{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,10]],"date-time":"2026-10-10T00:27:45Z","timestamp":1791592065412,"version":"4.3.4"},"reference-count":47,"publisher":"Elsevier BV","issue":"1","license":[{"start":{"date-parts":[[2024,2,1]],"date-time":"2024-02-01T00:00:00Z","timestamp":1706745600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2024,2,1]],"date-time":"2024-02-01T00:00:00Z","timestamp":1706745600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2023,11,29]],"date-time":"2023-11-29T00:00:00Z","timestamp":1701216000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100013814","name":"University of Southern Denmark Department of Clinical Research","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100013814","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100024075","name":"Region of Southern Denmark","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100024075","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","clinicalkey.es","clinicalkey.fr","clinicalkey.jp","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Journal of Tissue Viability"],"published-print":{"date-parts":[[2024,2]]},"DOI":"10.1016\/j.jtv.2023.11.009","type":"journal-article","created":{"date-parts":[[2023,11,29]],"date-time":"2023-11-29T18:02:01Z","timestamp":1701280921000},"page":"50-59","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":17,"title":["\u201cI am just trying to live a life!\u201d \u2013a qualitative study of the lived experience of pressure ulcers in people with spinal cord injuries"],"prefix":"10.1016","volume":"33","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-5826-4469","authenticated-orcid":false,"given":"Knaerke","family":"Soegaard","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Josephine Ransborg","family":"Sig","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8920-7758","authenticated-orcid":false,"given":"Charlotte","family":"Nielsen","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2063-5033","authenticated-orcid":false,"given":"Sofie","family":"Verhaeghe","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Dimitri","family":"Beeckman","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2186-0144","authenticated-orcid":false,"given":"Fin","family":"Biering-S\u00f8rensen","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-4903-0094","authenticated-orcid":false,"given":"Jens Ahm","family":"S\u00f8rensen","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"key":"10.1016\/j.jtv.2023.11.009_bib1","series-title":"Prevention and treatment of pressure ulcers\/injuries: clinical practice guideline. The international guideline. European pressure ulcer advisory Panel, national pressure injury advisory Panel and Pan pacific pressure injury alliance","year":"2019"},{"key":"10.1016\/j.jtv.2023.11.009_bib2","series-title":"Consortium for spinal cord medicine","article-title":"Pressure ulcer prevention and treatment following spinal cord injury: a clinical practice guideline for health-care professionals","year":"2014"},{"key":"10.1016\/j.jtv.2023.11.009_bib3","series-title":"2022 Annual statistical report for the spinal cord injury model systems. Report","author":"National Spinal Cord Injury Statistical Center","year":"2022"},{"issue":"2","key":"10.1016\/j.jtv.2023.11.009_bib4","doi-asserted-by":"crossref","first-page":"383","DOI":"10.1016\/j.pmr.2009.12.002","article-title":"Aging with spinal cord injury","volume":"21","author":"Charlifue","year":"2010","journal-title":"Phys Med Rehabil Clin"},{"issue":"6","key":"10.1016\/j.jtv.2023.11.009_bib5","doi-asserted-by":"crossref","first-page":"1208","DOI":"10.1016\/j.apmr.2004.12.023","article-title":"Pressure ulcer prevalence in people with spinal cord injury: age-period-duration effects","volume":"86","author":"Chen","year":"2005","journal-title":"Arch Phys Med Rehabil"},{"key":"10.1016\/j.jtv.2023.11.009_bib6","series-title":"Canadian best practice guidelines for the prevention and management of pressure ulcers in people with Spinal Cord Injury: a resource handbook for clinicians","author":"Houghton","year":"2013"},{"issue":"1","key":"10.1016\/j.jtv.2023.11.009_bib7","doi-asserted-by":"crossref","first-page":"334","DOI":"10.1186\/s12891-020-03369-0","article-title":"The global burden of pressure ulcers among patients with spinal cord injury: a systematic review and meta-analysis","volume":"21","author":"Shiferaw","year":"2020","journal-title":"BMC Muscoskel Disord"},{"issue":"8","key":"10.1016\/j.jtv.2023.11.009_bib8","doi-asserted-by":"crossref","first-page":"1847","DOI":"10.1016\/j.injury.2016.06.012","article-title":"Profile and costs of secondary conditions resulting in emergency department presentations and readmission to hospital following traumatic spinal cord injury","volume":"47","author":"Gabbe","year":"2016","journal-title":"Injury"},{"issue":"6","key":"10.1016\/j.jtv.2023.11.009_bib9","doi-asserted-by":"crossref","first-page":"371","DOI":"10.1038\/sj.sc.3101019","article-title":"Hospital readmissions in people with chronic spinal cord injury","volume":"38","author":"Savic","year":"2000","journal-title":"Spinal Cord"},{"key":"10.1016\/j.jtv.2023.11.009_bib10","series-title":"ISCoS textbook on comprehensive management of spinal cord injuries","author":"Chhabra","year":"2015"},{"issue":"2","key":"10.1016\/j.jtv.2023.11.009_bib11","doi-asserted-by":"crossref","first-page":"99","DOI":"10.1038\/sc.2008.107","article-title":"Pressure ulcer risk factors in persons with SCI: Part I: acute and rehabilitation stages","volume":"47","author":"Gelis","year":"2009","journal-title":"Spinal Cord"},{"key":"10.1016\/j.jtv.2023.11.009_bib12","series-title":"Prevention and treatment of pressure ulcers: clinical practice guideline. European pressure ulcer advisory Panel, national pressure injury advisory Panel and Pan pacific pressure injury alliance","year":"2014"},{"issue":"2","key":"10.1016\/j.jtv.2023.11.009_bib13","doi-asserted-by":"crossref","first-page":"197","DOI":"10.2340\/16501977-2039","article-title":"Health conditions in people with spinal cord injury: contemporary evidence from a population-based community survey in Switzerland","volume":"48","author":"Brinkhof","year":"2016","journal-title":"J Rehabil Med"},{"issue":"4","key":"10.1016\/j.jtv.2023.11.009_bib14","doi-asserted-by":"crossref","first-page":"53","DOI":"10.1310\/sci1604-53","article-title":"Causes and costs of unplanned hospitalizations among persons with spinal cord injury","volume":"16","author":"DeVivo","year":"2011","journal-title":"Top Spinal Cord Inj Rehabil"},{"issue":"4","key":"10.1016\/j.jtv.2023.11.009_bib15","doi-asserted-by":"crossref","first-page":"43","DOI":"10.1310\/01YF-RTP4-21UB-MK7V","article-title":"Depression and adjustment after spinal cord injury: a three-year longitudinal study","volume":"9","author":"Dorsett","year":"2004","journal-title":"Top Spinal Cord Inj Rehabil"},{"issue":"12","key":"10.1016\/j.jtv.2023.11.009_bib16","doi-asserted-by":"crossref","first-page":"2312","DOI":"10.1016\/j.apmr.2014.08.003","article-title":"Impact of pressure ulcers on individuals living with a spinal cord injury","volume":"95","author":"Lala","year":"2014","journal-title":"Arch PM&R (Phys Med Rehabil)"},{"issue":"6","key":"10.1016\/j.jtv.2023.11.009_bib17","doi-asserted-by":"crossref","first-page":"331","DOI":"10.12968\/jowc.2014.23.6.331","article-title":"Quality of life and self-esteem in patients with paraplegia and pressure ulcers: a controlled cross-sectional study","volume":"23","author":"Lourenco","year":"2014","journal-title":"J Wound Care"},{"issue":"2","key":"10.1016\/j.jtv.2023.11.009_bib18","doi-asserted-by":"crossref","first-page":"213","DOI":"10.1016\/j.apmr.2008.08.212","article-title":"A systematic review of therapeutic interventions for pressure ulcers after spinal cord injury","volume":"90","author":"Regan","year":"2009","journal-title":"Arch Phys Med Rehabil"},{"issue":"2","key":"10.1016\/j.jtv.2023.11.009_bib19","doi-asserted-by":"crossref","first-page":"16","DOI":"10.1310\/sci1502-16","article-title":"Decisions and dilemmas in everyday life: daily use of wheelchairs by individuals with spinal cord injury and the impact on pressure ulcer risk","volume":"15","author":"Fogelberg","year":"2009","journal-title":"Top Spinal Cord Inj Rehabil"},{"issue":"1","key":"10.1016\/j.jtv.2023.11.009_bib20","doi-asserted-by":"crossref","first-page":"48","DOI":"10.1186\/1471-2377-14-48","article-title":"Perceived facilitators and barriers to self-management in individuals with traumatic spinal cord injury: a qualitative descriptive study","volume":"14","author":"Munce","year":"2014","journal-title":"BMC Neurol"},{"issue":"17","key":"10.1016\/j.jtv.2023.11.009_bib21","doi-asserted-by":"crossref","first-page":"1008","DOI":"10.1080\/0963828031000122285","article-title":"Bridging the gap: transitional rehabilitation services for people with spinal cord injury","volume":"25","author":"Kendall","year":"2003","journal-title":"Disabil Rehabil"},{"issue":"10","key":"10.1016\/j.jtv.2023.11.009_bib22","doi-asserted-by":"crossref","first-page":"1238","DOI":"10.3111\/13696998.2013.832256","article-title":"Are labour-intensive efforts to prevent pressure ulcers cost-effective?","volume":"16","author":"Mathiesen","year":"2013","journal-title":"J Med Econ"},{"issue":"2","key":"10.1016\/j.jtv.2023.11.009_bib23","doi-asserted-by":"crossref","first-page":"194","DOI":"10.1016\/j.jtv.2023.02.005","article-title":"Interventions, stakeholders, and organisation related to pressure ulcer prevention for individuals with spinal cord injuries in transition from hospital to home - a scoping review","volume":"32","author":"Soegaard","year":"2023","journal-title":"J Tissue Viability"},{"issue":"2","key":"10.1016\/j.jtv.2023.11.009_bib25","doi-asserted-by":"crossref","first-page":"1","DOI":"10.46292\/sci2702-1","article-title":"International standards for neurological classification of spinal cord injury: revised 2019","volume":"27","author":"Rupp","year":"2021","journal-title":"Top Spinal Cord Inj Rehabil"},{"issue":"2","key":"10.1016\/j.jtv.2023.11.009_bib26","doi-asserted-by":"crossref","first-page":"145","DOI":"10.1111\/j.1471-6712.2004.00258.x","article-title":"A phenomenological hermeneutical method for researching lived experience","volume":"18","author":"Lindseth","year":"2004","journal-title":"Scand J Caring Sci"},{"key":"10.1016\/j.jtv.2023.11.009_bib27","doi-asserted-by":"crossref","DOI":"10.1177\/2333393618807395","article-title":"A Ricoeur-inspired approach to interpret participant observations and interviews","volume":"5","author":"Simon\u00ff","year":"2018","journal-title":"Global qualitative nursing research"},{"issue":"11\u201312","key":"10.1016\/j.jtv.2023.11.009_bib28","doi-asserted-by":"crossref","first-page":"577","DOI":"10.1080\/0963828031000137081","article-title":"Measuring participation according to the international classification of functioning, disability and health (ICF)","volume":"25","author":"Perenboom","year":"2003","journal-title":"Disabil Rehabil"},{"issue":"1","key":"10.1016\/j.jtv.2023.11.009_bib29","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1310\/BJJA-2018-45KL-0VTL","article-title":"Community integration: conceptual issues and measurement approaches in rehabilitation research","volume":"4","author":"Dijkers","year":"1998","journal-title":"Top Spinal Cord Inj Rehabil"},{"issue":"7","key":"10.1016\/j.jtv.2023.11.009_bib30","doi-asserted-by":"crossref","DOI":"10.2340\/16501977-2858","article-title":"Participation and quality of life in persons living with spinal cord injury in Norway","volume":"53","author":"Halvorsen","year":"2021","journal-title":"J Rehabil Med"},{"issue":"3","key":"10.1016\/j.jtv.2023.11.009_bib31","doi-asserted-by":"crossref","first-page":"174","DOI":"10.1038\/sc.2011.120","article-title":"Associations between psychological factors and quality of life ratings in persons with spinal cord injury: a systematic review","volume":"50","author":"Van Leeuwen","year":"2012","journal-title":"Spinal Cord"},{"issue":"6","key":"10.1016\/j.jtv.2023.11.009_bib32","doi-asserted-by":"crossref","first-page":"572","DOI":"10.1179\/2045772313Y.0000000093","article-title":"Comprehensive management of pressure ulcers in spinal cord injury: current concepts and future trends","volume":"36","author":"Kruger","year":"2013","journal-title":"J Spinal Cord Med"},{"issue":"1","key":"10.1016\/j.jtv.2023.11.009_bib33","first-page":"58","article-title":"Quality of life and pressure ulcers: a literature review","volume":"5","author":"Moore","year":"2009","journal-title":"Wounds U K"},{"issue":"3","key":"10.1016\/j.jtv.2023.11.009_bib34","doi-asserted-by":"crossref","first-page":"306","DOI":"10.1037\/a0016545","article-title":"Psychological well-being after spinal cord injury: perception of loss and meaning making","volume":"54","author":"deRoon-Cassini","year":"2009","journal-title":"Rehabil Psychol"},{"issue":"3","key":"10.1016\/j.jtv.2023.11.009_bib35","doi-asserted-by":"crossref","first-page":"347","DOI":"10.1348\/135910707X197046","article-title":"A longitudinal analysis of emotional impact, coping strategies and post\u2010traumatic psychological growth following spinal cord injury: a 10\u2010year review","volume":"12","author":"Pollard","year":"2007","journal-title":"Br J Health Psychol"},{"issue":"5","key":"10.1016\/j.jtv.2023.11.009_bib36","doi-asserted-by":"crossref","first-page":"382","DOI":"10.1038\/sc.2011.182","article-title":"Psychosocial issues in spinal cord injury: a review","volume":"50","author":"Post","year":"2012","journal-title":"Spinal Cord"},{"issue":"1","key":"10.1016\/j.jtv.2023.11.009_bib37","doi-asserted-by":"crossref","first-page":"69","DOI":"10.1016\/j.jtv.2016.08.002","article-title":"A cross-sectional study on self-management of pressure ulcer prevention in paraplegic patients","volume":"26","author":"de Laat","year":"2017","journal-title":"J Tissue Viability"},{"issue":"4","key":"10.1016\/j.jtv.2023.11.009_bib38","doi-asserted-by":"crossref","first-page":"315","DOI":"10.1310\/sci17-00050","article-title":"Experiences with navigating and managing information in the community following spinal cord injury","volume":"24","author":"Lennox","year":"2018","journal-title":"Top Spinal Cord Inj Rehabil"},{"key":"10.1016\/j.jtv.2023.11.009_bib39","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1186\/s12883-016-0534-2","article-title":"Meaning of self-management from the perspective of individuals with traumatic spinal cord injury, their caregivers, and acute care and rehabilitation managers: an opportunity for improved care delivery","volume":"16","author":"Munce","year":"2016","journal-title":"BMC Neurol"},{"key":"10.1016\/j.jtv.2023.11.009_bib40","article-title":"Outpatient and community care for preventing pressure injuries in spinal cord injury. A qualitative study of service users' and providers' experience","author":"Zanini","year":"2020","journal-title":"Spinal Cord"},{"issue":"3","key":"10.1016\/j.jtv.2023.11.009_bib41","first-page":"58","article-title":"Wound bed preparation: TIME in practice","volume":"1","author":"Dowsett","year":"2005","journal-title":"Wounds U K"},{"issue":"4","key":"10.1016\/j.jtv.2023.11.009_bib42","first-page":"34","article-title":"The Triangle of Wound Assessment: a holistic framework from wound assessment to management goals and treatments","volume":"8","author":"Dowsett","year":"2017","journal-title":"Wounds Int"},{"key":"10.1016\/j.jtv.2023.11.009_bib43","series-title":"Stress, appraisal, and coping","first-page":"117","author":"Lazarus","year":"1984"},{"issue":"11","key":"10.1016\/j.jtv.2023.11.009_bib44","doi-asserted-by":"crossref","first-page":"778","DOI":"10.1038\/sc.2009.60","article-title":"Spinal cord injury, coping and psychological adjustment: a literature review","volume":"47","author":"Chevalier","year":"2009","journal-title":"Spinal Cord"},{"issue":"2","key":"10.1016\/j.jtv.2023.11.009_bib45","doi-asserted-by":"crossref","first-page":"157","DOI":"10.1348\/135910700168838","article-title":"A longitudinal analysis of psychological impact and coping strategies following spinal cord injury","volume":"5","author":"Kennedy","year":"2000","journal-title":"Br J Health Psychol"},{"key":"10.1016\/j.jtv.2023.11.009_bib46","article-title":"Impact of the person\u2010centred intervention guided self\u2010determination across healthcare settings\u2014an integrated review","author":"Linnet Olesen","year":"2022","journal-title":"Scand J Caring Sci"},{"key":"10.1016\/j.jtv.2023.11.009_bib47","series-title":"Annual report NorSCIR norsk ryggmargsskaderegister and NordicSCIR nordic spinal cord injury registry 2022","article-title":"Med plan for forbedringstiltak [Annual report 2021 with improvement measures","year":"2021"},{"issue":"1","key":"10.1016\/j.jtv.2023.11.009_bib48","first-page":"25","article-title":"A comprehensive literature review of secondary complications of spinal cord injury","volume":"14","author":"Ysasi","year":"2016","journal-title":"J Life Care Plan"}],"container-title":["Journal of Tissue Viability"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0965206X23001286?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0965206X23001286?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2025,10,18]],"date-time":"2025-10-18T16:55:35Z","timestamp":1760806535000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S0965206X23001286"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,2]]},"references-count":47,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2024,2]]}},"alternative-id":["S0965206X23001286"],"URL":"https:\/\/doi.org\/10.1016\/j.jtv.2023.11.009","relation":{},"ISSN":["0965-206X"],"issn-type":[{"value":"0965-206X","type":"print"}],"subject":[],"published":{"date-parts":[[2024,2]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"\u201cI am just trying to live a life!\u201d \u2013a qualitative study of the lived experience of pressure ulcers in people with spinal cord injuries","name":"articletitle","label":"Article Title"},{"value":"Journal of Tissue Viability","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.jtv.2023.11.009","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2023 The Authors. Published by Elsevier Ltd on behalf of Tissue Viability Society \/ Society of Tissue Viability.","name":"copyright","label":"Copyright"}]}}