{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,9]],"date-time":"2026-07-09T12:07:05Z","timestamp":1783598825665,"version":"3.55.0"},"reference-count":28,"publisher":"Elsevier BV","issue":"10","license":[{"start":{"date-parts":[[2021,10,1]],"date-time":"2021-10-01T00:00:00Z","timestamp":1633046400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2021,10,1]],"date-time":"2021-10-01T00:00:00Z","timestamp":1633046400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2022,10,1]],"date-time":"2022-10-01T00:00:00Z","timestamp":1664582400000},"content-version":"vor","delay-in-days":365,"URL":"http:\/\/www.elsevier.com\/open-access\/userlicense\/1.0\/"}],"funder":[{"DOI":"10.13039\/100014943","name":"Sarepta Therapeutics","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100014943","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000002","name":"National Institutes of Health","doi-asserted-by":"publisher","award":["1R01AR061875"],"award-info":[{"award-number":["1R01AR061875"]}],"id":[{"id":"10.13039\/100000002","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000002","name":"National Institutes of Health","doi-asserted-by":"publisher","award":["G12RR003051"],"award-info":[{"award-number":["G12RR003051"]}],"id":[{"id":"10.13039\/100000002","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000002","name":"National Institutes of Health","doi-asserted-by":"publisher","award":["RO1AR062380"],"award-info":[{"award-number":["RO1AR062380"]}],"id":[{"id":"10.13039\/100000002","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000002","name":"National Institutes of Health","doi-asserted-by":"publisher","award":["U54HD053177"],"award-info":[{"award-number":["U54HD053177"]}],"id":[{"id":"10.13039\/100000002","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000002","name":"National Institutes of Health","doi-asserted-by":"publisher","award":["U54RR026139"],"award-info":[{"award-number":["U54RR026139"]}],"id":[{"id":"10.13039\/100000002","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000002","name":"National Institutes of Health","doi-asserted-by":"publisher","award":["UL1RR024992"],"award-info":[{"award-number":["UL1RR024992"]}],"id":[{"id":"10.13039\/100000002","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000002","name":"National Institutes of Health","doi-asserted-by":"publisher","award":["UL1RR031988"],"award-info":[{"award-number":["UL1RR031988"]}],"id":[{"id":"10.13039\/100000002","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000005","name":"U.S. Department of Defense","doi-asserted-by":"publisher","award":["W81XWH-09-1-0592"],"award-info":[{"award-number":["W81XWH-09-1-0592"]}],"id":[{"id":"10.13039\/100000005","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000138","name":"U.S. Department of Education","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100000138","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100005693","name":"Parent Project Muscular Dystrophy","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100005693","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100006663","name":"National Institute on Disability and Rehabilitation Research","doi-asserted-by":"publisher","award":["H133B031118"],"award-info":[{"award-number":["H133B031118"]}],"id":[{"id":"10.13039\/100006663","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100006663","name":"National Institute on Disability and Rehabilitation Research","doi-asserted-by":"publisher","award":["H133B090001"],"award-info":[{"award-number":["H133B090001"]}],"id":[{"id":"10.13039\/100006663","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","clinicalkey.es","clinicalkey.fr","clinicalkey.jp","valueinhealthjournal.com","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Value in Health"],"published-print":{"date-parts":[[2021,10]]},"DOI":"10.1016\/j.jval.2021.05.016","type":"journal-article","created":{"date-parts":[[2021,9,9]],"date-time":"2021-09-09T00:38:12Z","timestamp":1631147892000},"page":"1490-1498","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":11,"title":["Rasch Analysis of the Pediatric Quality of Life Inventory 4.0 Generic Core Scales Administered to Patients With Duchenne Muscular Dystrophy"],"prefix":"10.1016","volume":"24","author":[{"given":"Erik","family":"Landfeldt","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Joel","family":"Iff","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Erik","family":"Henricson","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"V.","family":"Vishwanathan","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"S.","family":"Chidambaranathan","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"W. Douglas","family":"Biggar","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Laura C.","family":"McAdam","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jean K.","family":"Mah","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mar","family":"Tulinius","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Avital","family":"Cnaan","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lauren P.","family":"Morgenroth","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Robert","family":"Leshner","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Carolina","family":"TesiRocha","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mathula","family":"Thangarajh","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tina","family":"Duong","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Andrew","family":"Kornberg","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Monique","family":"Ryan","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Yoram","family":"Nevo","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Alberto","family":"Dubrovsky","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Paula R.","family":"Clemens","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Hoda","family":"Abdel-Hamid","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anne M.","family":"Connolly","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Alan","family":"Pestronk","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jean","family":"Teasley","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tulio E.","family":"Bertorini","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Richard","family":"Webster","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Hanna","family":"Kolski","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nancy","family":"Kuntz","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sherilyn","family":"Driscoll","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"John B.","family":"Bodensteiner","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jose","family":"Carlo","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ksenija","family":"Gorni","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Timothy","family":"Lotze","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"John W.","family":"Day","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Peter","family":"Karachunski","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Erik K.","family":"Henricson","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Richard T.","family":"Abresch","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nanette C.","family":"Joyce","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Craig M.","family":"McDonald","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"issue":"9307","key":"10.1016\/j.jval.2021.05.016_bib1","doi-asserted-by":"crossref","first-page":"687","DOI":"10.1016\/S0140-6736(02)07815-7","article-title":"The muscular dystrophies","volume":"359","author":"Emery","year":"2002","journal-title":"Lancet"},{"issue":"7","key":"10.1016\/j.jval.2021.05.016_bib2","doi-asserted-by":"crossref","first-page":"373","DOI":"10.1038\/s41582-019-0203-3","article-title":"Therapeutic developments for Duchenne muscular dystrophy","volume":"15","author":"Verhaart","year":"2019","journal-title":"Nat Rev Neurol"},{"issue":"12","key":"10.1016\/j.jval.2021.05.016_bib3","doi-asserted-by":"crossref","first-page":"1094","DOI":"10.1016\/S1474-4422(07)70290-9","article-title":"Rating scales as outcome measures for clinical trials in neurology: problems, solutions, and recommendations","volume":"6","author":"Hobart","year":"2007","journal-title":"Lancet Neurol"},{"issue":"8","key":"10.1016\/j.jval.2021.05.016_bib4","doi-asserted-by":"crossref","first-page":"800","DOI":"10.1097\/00005650-200108000-00006","article-title":"PedsQL 4.0: reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations","volume":"39","author":"Varni","year":"2001","journal-title":"Med Care"},{"issue":"3","key":"10.1016\/j.jval.2021.05.016_bib5","doi-asserted-by":"crossref","first-page":"97","DOI":"10.1097\/CND.0b013e3181c5053b","article-title":"The PedsQL in pediatric patients with Duchenne muscular dystrophy: feasibility, reliability, and validity of the pediatric Quality of life inventory neuromuscular module and generic core scales","volume":"11","author":"Davis","year":"2010","journal-title":"J\u00a0Clin Neuromuscul Dis"},{"issue":"7","key":"10.1016\/j.jval.2021.05.016_bib6","doi-asserted-by":"crossref","first-page":"1945","DOI":"10.1007\/s11136-014-0642-7","article-title":"The level of agreement between child self-reports and parent proxy-reports of health-related quality of life in boys with Duchenne muscular dystrophy","volume":"23","author":"Lim","year":"2014","journal-title":"Qual Life Res"},{"issue":"10","key":"10.1016\/j.jval.2021.05.016_bib7","doi-asserted-by":"crossref","first-page":"1117","DOI":"10.1016\/j.jclinepi.2012.04.014","article-title":"Rasch analysis of the PedsQL: an increased understanding of the properties of a rating scale","volume":"65","author":"Amin","year":"2012","journal-title":"J\u00a0Clin Epidemiol"},{"issue":"11","key":"10.1016\/j.jval.2021.05.016_bib8","doi-asserted-by":"crossref","first-page":"813","DOI":"10.1097\/OPX.0b013e3181f6fb84","article-title":"Is the pediatric quality of life inventory valid for use in preschool children with refractive errors?","volume":"87","author":"Lamoureux","year":"2010","journal-title":"Optom Vis Sci"},{"key":"10.1016\/j.jval.2021.05.016_bib9","doi-asserted-by":"crossref","first-page":"41","DOI":"10.1186\/1477-7525-6-41","article-title":"Validation of the Korean version of the pediatric quality of life inventory 4.0 (PedsQL) generic core scales in school children and adolescents using the Rasch model","volume":"6","author":"Kook","year":"2008","journal-title":"Health Qual Life Outcomes"},{"issue":"3","key":"10.1016\/j.jval.2021.05.016_bib10","doi-asserted-by":"crossref","first-page":"367","DOI":"10.1002\/mus.26109","article-title":"Psychometric analysis of the pediatric quality of life inventory 3.0 neuromuscular module administered to patients with Duchenne muscular dystrophy: a Rasch analysis","volume":"58","author":"Landfeldt","year":"2018","journal-title":"Muscle Nerve"},{"issue":"1","key":"10.1016\/j.jval.2021.05.016_bib11","doi-asserted-by":"crossref","first-page":"32","DOI":"10.1002\/mus.23807","article-title":"The cooperative international neuromuscular research group Duchenne natural history study\u2013a longitudinal investigation in the era of glucocorticoid therapy: design of protocol and the methods used","volume":"48","author":"McDonald","year":"2013","journal-title":"Muscle Nerve"},{"issue":"10119","key":"10.1016\/j.jval.2021.05.016_bib12","doi-asserted-by":"crossref","first-page":"451","DOI":"10.1016\/S0140-6736(17)32160-8","article-title":"Long-term effects of glucocorticoids on function, quality of life, and survival in patients with Duchenne muscular dystrophy: a prospective cohort study","volume":"391","author":"McDonald","year":"2018","journal-title":"Lancet"},{"issue":"1","key":"10.1016\/j.jval.2021.05.016_bib13","doi-asserted-by":"crossref","first-page":"55","DOI":"10.1002\/mus.23808","volume":"48","author":"Henricson","year":"2013","journal-title":"Muscle Nerve"},{"key":"10.1016\/j.jval.2021.05.016_bib14","series-title":"Probabilistic Models for Some Intelligence and Attainment Tests","author":"Rasch","year":"1960"},{"issue":"4","key":"10.1016\/j.jval.2021.05.016_bib15","doi-asserted-by":"crossref","first-page":"33","DOI":"10.1111\/j.1745-3992.1997.tb00606.x","article-title":"A\u00a0history of social science and measurement","volume":"52","author":"Wright","year":"1997","journal-title":"Educ Meas"},{"issue":"12","key":"10.1016\/j.jval.2021.05.016_bib16","doi-asserted-by":"crossref","DOI":"10.3310\/hta13120","article-title":"Improving the evaluation of therapeutic interventions in multiple sclerosis: the role of new psychometric methods","volume":"13","author":"Hobart","year":"2009","journal-title":"Health Technol Assess"},{"issue":"2","key":"10.1016\/j.jval.2021.05.016_bib17","doi-asserted-by":"crossref","first-page":"141","DOI":"10.1016\/j.jpsychires.2012.09.014","article-title":"An introduction to Rasch analysis for psychiatric practice and research","volume":"47","author":"da Rocha","year":"2013","journal-title":"J\u00a0Psychiatr Res"},{"issue":"4","key":"10.1016\/j.jval.2021.05.016_bib18","doi-asserted-by":"crossref","first-page":"561","DOI":"10.1007\/BF02293814","article-title":"A\u00a0rating formulation for ordered response categories","volume":"43","author":"Andrich","year":"1978","journal-title":"Psychometrika"},{"issue":"1 suppl","key":"10.1016\/j.jval.2021.05.016_bib19","doi-asserted-by":"crossref","first-page":"I7","DOI":"10.1097\/01.mlr.0000103528.48582.7c","article-title":"Controversy and the Rasch model: a characteristic of incompatible paradigms?","volume":"42","author":"Andrich","year":"2004","journal-title":"Med Care"},{"issue":"10","key":"10.1016\/j.jval.2021.05.016_bib20","doi-asserted-by":"crossref","first-page":"884","DOI":"10.2340\/16501977-0871","article-title":"Past and present issues in Rasch analysis: the functional independence measure (FIM\u2122) revisited","volume":"43","author":"Lundgren Nilsson","year":"2011","journal-title":"J\u00a0Rehabil Med"},{"issue":"8","key":"10.1016\/j.jval.2021.05.016_bib21","doi-asserted-by":"crossref","first-page":"1358","DOI":"10.1002\/art.23108","article-title":"The Rasch measurement model in rheumatology: what is it and why use it? When should it be applied, and what should one\u00a0look for in a Rasch paper?","volume":"57","author":"Tennant","year":"2007","journal-title":"Arthritis Rheum"},{"issue":"2","key":"10.1016\/j.jval.2021.05.016_bib22","doi-asserted-by":"crossref","first-page":"149","DOI":"10.1007\/BF02296272","article-title":"A\u00a0Rasch model for partial credit scoring","volume":"47","author":"Masters","year":"1982","journal-title":"Psychometrika"},{"issue":"3","key":"10.1016\/j.jval.2021.05.016_bib23","first-page":"238","article-title":"Reliability statistics","volume":"6","author":"Fisher","year":"1992","journal-title":"Rasch Meas Trans"},{"issue":"1 suppl","key":"10.1016\/j.jval.2021.05.016_bib24","first-page":"137","article-title":"Assessing and adjusting for cross cultural validity of impairment and activity limitation scales through differential item functioning within the framework of the Rasch model: the Pro-ESOR project","volume":"42","author":"Tennant","year":"2004","journal-title":"Med Care"},{"issue":"2","key":"10.1016\/j.jval.2021.05.016_bib25","first-page":"205","article-title":"Detecting and evaluating the impact of multidimensionality using item fit statistics and principal component analysis of residuals","volume":"3","author":"Smith","year":"2002","journal-title":"J\u00a0Appl Meas"},{"key":"10.1016\/j.jval.2021.05.016_bib26","first-page":"1048","article-title":"Unidimensionality matters","volume":"20","author":"Tennant","year":"2006","journal-title":"Rasch Meas Trans"},{"issue":"4","key":"10.1016\/j.jval.2021.05.016_bib27","doi-asserted-by":"crossref","first-page":"1","DOI":"10.3310\/hta5040","article-title":"Quality-of-life measures in chronic diseases of childhood","volume":"5","author":"Eiser","year":"2001","journal-title":"Health Technol Assess"},{"issue":"5","key":"10.1016\/j.jval.2021.05.016_bib28","doi-asserted-by":"crossref","first-page":"508","DOI":"10.1111\/dmcn.12938","article-title":"Health-related quality of life in patients with Duchenne muscular dystrophy: a multinational, cross-sectional study","volume":"58","author":"Landfeldt","year":"2016","journal-title":"Dev Med Child Neurol"}],"container-title":["Value in Health"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1098301521015977?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1098301521015977?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2025,10,22]],"date-time":"2025-10-22T01:24:37Z","timestamp":1761096277000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S1098301521015977"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2021,10]]},"references-count":28,"journal-issue":{"issue":"10","published-print":{"date-parts":[[2021,10]]}},"alternative-id":["S1098301521015977"],"URL":"https:\/\/doi.org\/10.1016\/j.jval.2021.05.016","relation":{},"ISSN":["1098-3015"],"issn-type":[{"value":"1098-3015","type":"print"}],"subject":[],"published":{"date-parts":[[2021,10]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Rasch Analysis of the Pediatric Quality of Life Inventory 4.0 Generic Core Scales Administered to Patients With Duchenne Muscular Dystrophy","name":"articletitle","label":"Article Title"},{"value":"Value in Health","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.jval.2021.05.016","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2021 ISPOR-The Professional Society for Health Economics and Outcomes Research. Published by Elsevier Inc.","name":"copyright","label":"Copyright"}]}}