{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,10]],"date-time":"2026-09-10T21:36:31Z","timestamp":1789076191181,"version":"build-2803163510"},"reference-count":43,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2024,4,1]],"date-time":"2024-04-01T00:00:00Z","timestamp":1711929600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2024,4,1]],"date-time":"2024-04-01T00:00:00Z","timestamp":1711929600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2024,4,1]],"date-time":"2024-04-01T00:00:00Z","timestamp":1711929600000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-017"},{"start":{"date-parts":[[2024,4,1]],"date-time":"2024-04-01T00:00:00Z","timestamp":1711929600000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-037"},{"start":{"date-parts":[[2024,4,1]],"date-time":"2024-04-01T00:00:00Z","timestamp":1711929600000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-012"},{"start":{"date-parts":[[2024,4,1]],"date-time":"2024-04-01T00:00:00Z","timestamp":1711929600000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-029"},{"start":{"date-parts":[[2024,4,1]],"date-time":"2024-04-01T00:00:00Z","timestamp":1711929600000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-004"}],"funder":[{"DOI":"10.13039\/501100001809","name":"National Natural Science Foundation of China","doi-asserted-by":"publisher","award":["72004240"],"award-info":[{"award-number":["72004240"]}],"id":[{"id":"10.13039\/501100001809","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","clinicalkey.es","clinicalkey.fr","clinicalkey.jp","msard-journal.com","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Multiple Sclerosis and Related Disorders"],"published-print":{"date-parts":[[2024,4]]},"DOI":"10.1016\/j.msard.2023.105419","type":"journal-article","created":{"date-parts":[[2023,12,28]],"date-time":"2023-12-28T21:58:34Z","timestamp":1703800714000},"page":"105419","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":5,"special_numbering":"C","title":["Characteristics of recurrence risk perception and coping strategies in patients with neuromyelitis optica spectrum disorder: A qualitative study"],"prefix":"10.1016","volume":"84","author":[{"given":"Haifen","family":"Liao","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ping","family":"Fan","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Hengfang","family":"Ruan","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Wei","family":"Qiu","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Meifen","family":"Zhang","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Huijuan","family":"Li","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"key":"10.1016\/j.msard.2023.105419_bib0001","doi-asserted-by":"crossref","DOI":"10.1016\/j.jneuroim.2020.577236","article-title":"Risk factors of attacks in neuromyelitis optica spectrum disorders","volume":"343","author":"Akaishi","year":"2020","journal-title":"J. Neuroimmunol."},{"issue":"1","key":"10.1016\/j.msard.2023.105419_bib0002","doi-asserted-by":"crossref","first-page":"134","DOI":"10.1177\/0193945917747856","article-title":"Measurement and outcomes of the perceived risk of stroke: a review","volume":"41","author":"Aycock","year":"2019","journal-title":"West. J. Nurs. Res."},{"issue":"4","key":"10.1016\/j.msard.2023.105419_bib0003","doi-asserted-by":"crossref","first-page":"e580","DOI":"10.1212\/NXI.0000000000000580","article-title":"Neuromyelitis optica spectrum disorder: patient experience and quality of life","volume":"6","author":"Beekman","year":"2019","journal-title":"Neurol. Neuroimmunol. Neuroinflamm."},{"key":"10.1016\/j.msard.2023.105419_bib0004","doi-asserted-by":"crossref","DOI":"10.1016\/j.msard.2019.101869","article-title":"Secondary hypersomnia as an initial manifestation of neuromyelitis optica spectrum disorders","volume":"38","author":"Beigneux","year":"2020","journal-title":"Mult. Scler. Relat. Disord."},{"issue":"1","key":"10.1016\/j.msard.2023.105419_bib0005","doi-asserted-by":"crossref","first-page":"87","DOI":"10.1037\/0033-2909.127.1.87","article-title":"Coping with stress during childhood and adolescence: problems, progress, and potential in theory and research","volume":"127","author":"Compas","year":"2001","journal-title":"Psychol. Bull."},{"issue":"10","key":"10.1016\/j.msard.2023.105419_bib0006","doi-asserted-by":"crossref","first-page":"5674","DOI":"10.1007\/s00415-022-11241-5","article-title":"Contemporary management challenges in seropositive NMOSD","volume":"269","author":"Costello","year":"2022","journal-title":"J. Neurol."},{"issue":"21\u201322","key":"10.1016\/j.msard.2023.105419_bib0007","doi-asserted-by":"crossref","first-page":"4403","DOI":"10.1111\/jocn.15431","article-title":"Embodiment and objectification in illness and health care: taking phenomenology from theory to practice","volume":"29","author":"Fernandez","year":"2020","journal-title":"J. Clin Nurs."},{"key":"10.1016\/j.msard.2023.105419_bib0008","doi-asserted-by":"crossref","first-page":"85","DOI":"10.1016\/j.copsyc.2015.03.012","article-title":"Risk perceptions and health behavior","volume":"5","author":"Ferrer","year":"2015","journal-title":"Curr. Opin. Psychol."},{"issue":"34","key":"10.1016\/j.msard.2023.105419_bib0009","doi-asserted-by":"crossref","first-page":"e16906","DOI":"10.1097\/MD.0000000000016906","article-title":"Neuromyelitis optica spectrum disorders with vertigo as the initial symptom: a case report","volume":"98","author":"Guo","year":"2019","journal-title":"Medicine (Baltimore)."},{"key":"10.1016\/j.msard.2023.105419_bib0010","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1016\/j.msard.2017.01.011","article-title":"Pruritus may be a common symptom related to neuromyelitis optica spectrum disorders","volume":"13","author":"He","year":"2017","journal-title":"Mult. Scler. Relat. Disord."},{"key":"10.1016\/j.msard.2023.105419_bib0011","series-title":"Qualitative Research in Nursing and Healthcare","first-page":"P213","author":"Holloway","year":"2010"},{"issue":"12","key":"10.1016\/j.msard.2023.105419_bib0012","doi-asserted-by":"crossref","first-page":"4522","DOI":"10.1007\/s00415-020-10235-5","article-title":"Recent progress in maintenance treatment of neuromyelitis optica spectrum disorder","volume":"268","author":"Holmoy","year":"2021","journal-title":"J. Neurol."},{"key":"10.1016\/j.msard.2023.105419_bib0013","doi-asserted-by":"crossref","DOI":"10.1016\/j.msard.2022.104023","article-title":"The description of neuromyelitis optica spectrum disorder: patient registry in Yangtze River Delta area of China","volume":"66","author":"Huang","year":"2022","journal-title":"Mult. Scler. Relat. Disord."},{"key":"10.1016\/j.msard.2023.105419_bib0014","doi-asserted-by":"crossref","first-page":"1197","DOI":"10.1212\/WNL.0b013e3182a6cb5c","article-title":"Updated estimate of AQP4-IgG serostatus and disability outcome in neuromyelitis optica","volume":"81","author":"Jiao","year":"2013","journal-title":"Neurology"},{"issue":"5","key":"10.1016\/j.msard.2023.105419_bib0015","doi-asserted-by":"crossref","first-page":"e269","DOI":"10.1212\/NXI.0000000000000269","article-title":"Early indicators of relapses vs pseudorelapses in neuromyelitis optica spectrum disorder","volume":"3","author":"Kessler","year":"2016","journal-title":"Neurol. Neuroimmunol. Neuroinflamm."},{"key":"10.1016\/j.msard.2023.105419_bib0016","doi-asserted-by":"crossref","first-page":"1834","DOI":"10.1093\/brain\/aws109","article-title":"Prognostic factors and disease course in aquaporin-4 antibody-positive patients with neuromyelitis optica spectrum disorder from the United Kingdom and Japan","volume":"135","author":"Kitley","year":"2012","journal-title":"Brain"},{"key":"10.1016\/j.msard.2023.105419_bib0017","doi-asserted-by":"crossref","first-page":"537","DOI":"10.3389\/fneur.2020.00537","article-title":"Relapse patterns in NMOSD: evidence for earlier occurrence of optic neuritis and possible seasonal variation","volume":"11","author":"Khalilidehkordi","year":"2020","journal-title":"Front. Neurol."},{"issue":"1","key":"10.1016\/j.msard.2023.105419_bib0018","doi-asserted-by":"crossref","first-page":"247","DOI":"10.1007\/s40120-021-00311-x","article-title":"Evaluating the economic burden of relapses in neuromyelitis optica spectrum disorder: a real-world analysis using German claims data","volume":"11","author":"Knapp","year":"2022","journal-title":"Neurol. Ther."},{"issue":"9451","key":"10.1016\/j.msard.2023.105419_bib0019","doi-asserted-by":"crossref","first-page":"2106","DOI":"10.1016\/S0140-6736(04)17551-X","article-title":"A serum autoantibody marker of neuromyelitis optica: distinction from multiple sclerosis","volume":"364","author":"Lennon","year":"2004","journal-title":"Lancet"},{"issue":"11","key":"10.1016\/j.msard.2023.105419_bib0021","first-page":"80","article-title":"Development and psychometric test of recurrence risk perception scale for patients with stroke","volume":"56","author":"Lin","year":"2021","journal-title":"Chin J Nurs"},{"key":"10.1016\/j.msard.2023.105419_bib0023","doi-asserted-by":"crossref","first-page":"99","DOI":"10.1016\/j.msard.2017.07.004","article-title":"Painful tonic spasm in neuromyelitis optica spectrum disorders: prevalence, clinical implications and treatment options","volume":"17","author":"Liu","year":"2017","journal-title":"Mult. Scler. Relat. Disord."},{"issue":"05","key":"10.1016\/j.msard.2023.105419_bib0024","first-page":"715","article-title":"Risk factors and recurrence characteristics of neuromyelitis optica spectrum disease","volume":"19","author":"Liu","year":"2021","journal-title":"Chinese Journal of General Practice"},{"issue":"9","key":"10.1016\/j.msard.2023.105419_bib0025","doi-asserted-by":"crossref","first-page":"1647","DOI":"10.1016\/j.jfma.2021.11.002","article-title":"Treatment response, risk of relapse and clinical characteristics of Taiwanese patients with neuromyelitis optica spectrum disorder","volume":"121","author":"Liu","year":"2022","journal-title":"J. Formos Med. Assoc."},{"key":"10.1016\/j.msard.2023.105419_bib0026","doi-asserted-by":"crossref","DOI":"10.1016\/j.msard.2020.102522","article-title":"Risk of relapse in patients with neuromyelitis optica spectrum disorder: recognition and preventive strategy","volume":"46","author":"Ma","year":"2020","journal-title":"Mult. Scler. Relat. Disord."},{"issue":"13","key":"10.1016\/j.msard.2023.105419_bib0027","doi-asserted-by":"crossref","first-page":"1753","DOI":"10.1177\/1049732315617444","article-title":"Sample size in qualitative interview studies: guided by information power","volume":"26","author":"Malterud","year":"2016","journal-title":"Qual. Health Res."},{"key":"10.1016\/j.msard.2023.105419_bib0028","doi-asserted-by":"crossref","first-page":"375","DOI":"10.1016\/j.jns.2016.06.036","article-title":"Recovery from optic neuritis attack in neuromyelitis optica spectrum disorder and multiple sclerosis","volume":"367","author":"Masuda","year":"2016","journal-title":"J. Neurol. Sci."},{"key":"10.1016\/j.msard.2023.105419_bib0029","doi-asserted-by":"crossref","first-page":"139","DOI":"10.1016\/j.msard.2018.09.029","article-title":"Multiple sclerosis relapse: qualitative findings from clinician and patient interviews","volume":"27","author":"Matza","year":"2019","journal-title":"Mult. Scler. Relat. Disord."},{"issue":"5","key":"10.1016\/j.msard.2023.105419_bib0030","doi-asserted-by":"crossref","first-page":"510","DOI":"10.1590\/0004-282x-anp-2021-0157","article-title":"Disease course of Chronic Relapsing Inflammatory Optic Neuropathy (CRION) in a single care center","volume":"80","author":"Molina-Carrion","year":"2022","journal-title":"Arq. Neuro-Psiquiatr."},{"issue":"2","key":"10.1016\/j.msard.2023.105419_bib0031","doi-asserted-by":"crossref","first-page":"90","DOI":"10.1007\/S40037-019-0509-2","article-title":"How phenomenology can help us learn from the experiences of others","volume":"8","author":"Neubauer","year":"2019","journal-title":"Perspect. Med. Educ."},{"issue":"6","key":"10.1016\/j.msard.2023.105419_bib0032","first-page":"423","article-title":"Chinese guidelines for diagnosis and treatment of neuromyelitis optica spectrum disorders (2021 edition)","volume":"28","year":"2021","journal-title":"Chin J Neuroimmunol Neurol"},{"issue":"2","key":"10.1016\/j.msard.2023.105419_bib0033","doi-asserted-by":"crossref","first-page":"20","DOI":"10.7748\/nr.2020.e1700","article-title":"The application and tailoring of Colaizzi's phenomenological approach in a hospital setting","volume":"28","author":"Northall","year":"2020","journal-title":"Nurse Res."},{"issue":"9","key":"10.1016\/j.msard.2023.105419_bib0034","doi-asserted-by":"crossref","first-page":"1245","DOI":"10.1097\/ACM.0000000000000388","article-title":"Standards for reporting qualitative research: a synthesis of recommendations","volume":"89","author":"O'Brien","year":"2014","journal-title":"Acad. Med."},{"issue":"5","key":"10.1016\/j.msard.2023.105419_bib0035","doi-asserted-by":"crossref","first-page":"1310","DOI":"10.1093\/brain\/awz054","article-title":"Outcome prediction models in AQP4-IgG positive neuromyelitis optica spectrum disorders","volume":"142","author":"Palace","year":"2019","journal-title":"Brain"},{"issue":"2","key":"10.1016\/j.msard.2023.105419_bib0036","doi-asserted-by":"crossref","first-page":"59","DOI":"10.1212\/WNL.0000000000011153","article-title":"Worldwide incidence and prevalence of neuromyelitis optica: a systematic review","volume":"96","author":"Papp","year":"2021","journal-title":"Neurology"},{"key":"10.1016\/j.msard.2023.105419_bib0037","unstructured":"People's Political Consultative Conference Website, 2020. The white paper on comprehensive social survey of NMOSD patients in China was officially released. http:\/\/www.rmzxb.com.cn\/c\/2020-05-26\/2583005.shtml (Accessed 10 November 2023)."},{"issue":"2","key":"10.1016\/j.msard.2023.105419_bib0038","doi-asserted-by":"crossref","first-page":"767","DOI":"10.1007\/s40120-021-00253-4","article-title":"Neuromyelitis Optica Spectrum Disorder: clinical Burden and Cost of Relapses and Disease-Related Care in US Clinical Practice","volume":"10","author":"Royston","year":"2021","journal-title":"Neurol. Ther."},{"issue":"2","key":"10.1016\/j.msard.2023.105419_bib0039","doi-asserted-by":"crossref","first-page":"511","DOI":"10.1037\/a0033065","article-title":"Does heightening risk appraisals change people's intentions and behavior? A meta-analysis of experimental studies","volume":"140","author":"Sheeran","year":"2014","journal-title":"Psychol. Bull."},{"issue":"7","key":"10.1016\/j.msard.2023.105419_bib0040","doi-asserted-by":"crossref","first-page":"981","DOI":"10.1111\/cns.13836","article-title":"Progress in treatment of neuromyelitis optica spectrum disorders (NMOSD): novel insights into therapeutic possibilities in NMOSD","volume":"28","author":"Shi","year":"2022","journal-title":"CNS Neurosci. Ther."},{"key":"10.1016\/j.msard.2023.105419_bib0041","article-title":"Incidence of neuromyelitis optica spectrum disorder (NMOSD) in China: a national population-based study","volume":"2","author":"Tian","year":"2020","journal-title":"Lancet Reg. Health West. Pac."},{"key":"10.1016\/j.msard.2023.105419_bib0042","article-title":"Deep learning-based relapse prediction of neuromyelitis optica spectrum disorder with anti-aquaporin-4 antibody","volume":"13","author":"Wang","year":"2022","journal-title":"Front. Neurol."},{"issue":"2","key":"10.1016\/j.msard.2023.105419_bib0043","doi-asserted-by":"crossref","first-page":"177","DOI":"10.1212\/WNL.0000000000001729","article-title":"International consensus diagnostic criteria for neuromyelitis optica spectrum disorders","volume":"85","author":"Wingerchuk","year":"2015","journal-title":"Neurology"},{"issue":"1","key":"10.1016\/j.msard.2023.105419_bib0044","doi-asserted-by":"crossref","first-page":"232","DOI":"10.1186\/s12912-022-01013-x","article-title":"I would stress less if I knew that the nurse is taking care of it\": multiple Sclerosis inpatients' and health care professionals' views of their nursing-experience and nursing consultation in rehabilitation-a qualitative study","volume":"21","author":"Witzig-Brandli","year":"2022","journal-title":"BMC Nurs"},{"issue":"4","key":"10.1016\/j.msard.2023.105419_bib0045","doi-asserted-by":"crossref","first-page":"400","DOI":"10.1016\/j.neurol.2020.07.019","article-title":"Area postrema syndrome as initial manifestation in neuromyelitis optica spectrum disorder patients: a retrospective study","volume":"177","author":"Zhou","year":"2021","journal-title":"Rev. Neurol."}],"container-title":["Multiple Sclerosis and Related Disorders"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S2211034823009185?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S2211034823009185?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2025,10,31]],"date-time":"2025-10-31T09:11:17Z","timestamp":1761901877000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S2211034823009185"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,4]]},"references-count":43,"alternative-id":["S2211034823009185"],"URL":"https:\/\/doi.org\/10.1016\/j.msard.2023.105419","relation":{},"ISSN":["2211-0348"],"issn-type":[{"value":"2211-0348","type":"print"}],"subject":[],"published":{"date-parts":[[2024,4]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Characteristics of recurrence risk perception and coping strategies in patients with neuromyelitis optica spectrum disorder: A qualitative study","name":"articletitle","label":"Article Title"},{"value":"Multiple Sclerosis and Related Disorders","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.msard.2023.105419","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2023 Published by Elsevier B.V.","name":"copyright","label":"Copyright"}],"article-number":"105419"}}