{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,3,6]],"date-time":"2025-03-06T05:25:33Z","timestamp":1741238733052,"version":"3.38.0"},"reference-count":12,"publisher":"JLE","issue":"4","license":[{"start":{"date-parts":[[2017,6,1]],"date-time":"2017-06-01T00:00:00Z","timestamp":1496275200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"}],"content-domain":{"domain":["clinicalkey.fr","em-consulte.com","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["N\u00e9phrologie & Th\u00e9rapeutique"],"published-print":{"date-parts":[[2017,6]]},"DOI":"10.1016\/j.nephro.2016.10.006","type":"journal-article","created":{"date-parts":[[2017,4,27]],"date-time":"2017-04-27T01:46:52Z","timestamp":1493257612000},"page":"220-227","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":0,"title":["Polykystose r\u00e9nale\u00a0: analyse des discussions des e-patients sur la blogosph\u00e8re publique"],"prefix":"10.1684","volume":"13","author":[{"given":"Corinne","family":"Lagrafeuil","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"M\u00e9lanie","family":"Hueber","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Xavier","family":"Magnien","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Thierry","family":"Baroghel","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Laurent","family":"Lecardeur","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Thierry","family":"Marquet","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"18929","reference":[{"year":"1993","series-title":"SF-36\u00a0Health Survey: Manual and Interpretation Guide","author":"Ware","key":"10.1016\/j.nephro.2016.10.006_bib0065"},{"key":"10.1016\/j.nephro.2016.10.006_bib0070","doi-asserted-by":"crossref","first-page":"560","DOI":"10.2215\/CJN.02410508","article-title":"Quality of life in autosomal dominant polycystic kidney disease patients not yet on dialysis","volume":"4","author":"Rizk","year":"2009","journal-title":"Clin J Am Soc Nephrol"},{"issue":"4","key":"10.1016\/j.nephro.2016.10.006_bib0075","doi-asserted-by":"crossref","first-page":"iv142","DOI":"10.1093\/ndt\/gfu073","article-title":"DIPAK Consortium. A stepwise approach for effective management of chronic pain in autosomal-dominant polycystic kidney disease","volume":"29","author":"Casteleijn","year":"2014","journal-title":"Nephrol Dial Transplant."},{"key":"10.1016\/j.nephro.2016.10.006_bib0080","doi-asserted-by":"crossref","first-page":"e0144526","DOI":"10.1371\/journal.pone.0144526","article-title":"Clinical correlates of mass effect in autosomal dominant polycystic kidney disease","volume":"10","author":"Kim","year":"2015","journal-title":"PLoSOne"},{"key":"10.1016\/j.nephro.2016.10.006_bib0085","doi-asserted-by":"crossref","first-page":"214","DOI":"10.1053\/j.ajkd.2013.08.017","article-title":"HALT-PKD study. Health-related quality of life in patients with autosomal dominant polycystic kidney disease and CKD stages\u00a01-4: a cross-sectional study","volume":"63","author":"Miskulin","year":"2014","journal-title":"Am J Kidney Dis"},{"key":"10.1016\/j.nephro.2016.10.006_bib0090","doi-asserted-by":"crossref","first-page":"179","DOI":"10.1186\/1471-2369-14-179","article-title":"Quality of life of patients with ADPKD-Toranomon PKD QOL study: cross-sectional study","volume":"14","author":"Suwabe","year":"2013","journal-title":"BMC Nephrol"},{"key":"10.1016\/j.nephro.2016.10.006_bib0095","doi-asserted-by":"crossref","first-page":"790","DOI":"10.1093\/ndt\/gfv010","article-title":"A painful inheritance-patient perspective on living with polycystic kidney disease: thematic synthesis of qualitative research","volume":"30","author":"Tong","year":"2015","journal-title":"Nephrol Dial Transplant"},{"key":"10.1016\/j.nephro.2016.10.006_bib0100","doi-asserted-by":"crossref","first-page":"531","DOI":"10.1093\/ckj\/sfv060","article-title":"Understanding the physical and emotional impact of early-stage ADPKD: experiences and perspectives of patients and physicians","volume":"8","author":"Baker","year":"2015","journal-title":"Clin Kidney J"},{"key":"10.1016\/j.nephro.2016.10.006_bib0105","doi-asserted-by":"crossref","first-page":"1561","DOI":"10.1111\/j.1523-1755.2004.00921.x","article-title":"Pain patterns in patients with polycystic kidney disease","volume":"66","author":"Bajwa","year":"2004","journal-title":"Kidney Int"},{"key":"10.1016\/j.nephro.2016.10.006_bib0110","first-page":"ii:gfv299","article-title":"Increased psychosocial risk, depression and reduced quality of life living with autosomal dominant polycystic kidney disease","author":"Simms","year":"2015","journal-title":"Nephrol Dial Transplant"},{"key":"10.1016\/j.nephro.2016.10.006_bib0115","first-page":"120","article-title":"Anxiety, depression, and quality of life in patients with familial glomerulonephritis or autosomal dominant polycystic kidney disease","volume":"33","author":"de Barros","year":"2011","journal-title":"J Bras Nefrol"},{"key":"10.1016\/j.nephro.2016.10.006_bib0060","doi-asserted-by":"crossref","first-page":"693","DOI":"10.1093\/ndt\/gfv058","article-title":"More than a kidney disease: a patient-centred approach to improving care in autosomal dominant polycystic kidney disease","volume":"30","author":"Youssouf","year":"2015","journal-title":"Nephrol Dial Transplant"}],"container-title":["N\u00e9phrologie & Th\u00e9rapeutique"],"original-title":[],"language":"fr","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1769725517301104?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1769725517301104?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/www.jle.com\/10.1016\/j.nephro.2016.10.006","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2025,3,5]],"date-time":"2025-03-05T16:40:45Z","timestamp":1741192845000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S1769725517301104"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2017,6]]},"references-count":12,"journal-issue":{"issue":"4","published-print":{"date-parts":[[2017,6]]}},"alternative-id":["S1769725517301104"],"URL":"https:\/\/doi.org\/10.1016\/j.nephro.2016.10.006","relation":{},"ISSN":["1769-7255"],"issn-type":[{"type":"print","value":"1769-7255"}],"subject":[],"published":{"date-parts":[[2017,6]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Polykystose r\u00e9nale\u00a0: analyse des discussions des e-patients sur la blogosph\u00e8re publique","name":"articletitle","label":"Article Title"},{"value":"N\u00e9phrologie & Th\u00e9rapeutique","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.nephro.2016.10.006","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2017 Soci\u00e9t\u00e9 francophone de n\u00e9phrologie, dialyse et transplantation. Published by Elsevier Masson SAS. All rights reserved.","name":"copyright","label":"Copyright"}]}}