{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,20]],"date-time":"2026-09-20T00:32:48Z","timestamp":1789864368746,"version":"4.0.1"},"reference-count":25,"publisher":"Elsevier BV","issue":"2","license":[{"start":{"date-parts":[[2009,2,1]],"date-time":"2009-02-01T00:00:00Z","timestamp":1233446400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Revue Neurologique"],"published-print":{"date-parts":[[2009,2]]},"DOI":"10.1016\/j.neurol.2008.08.008","type":"journal-article","created":{"date-parts":[[2008,10,20]],"date-time":"2008-10-20T04:34:42Z","timestamp":1224477282000},"page":"170-177","source":"Crossref","is-referenced-by-count":22,"title":["Les enjeux de la loi Leonetti\u00a0: participation des patients atteints de scl\u00e9rose lat\u00e9rale amyotrophique \u00e0 une discussion anticip\u00e9e sur la r\u00e9animation respiratoire et les soins de fin de vie"],"prefix":"10.1016","volume":"165","author":[{"given":"V.","family":"Danel-Brunaud","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"L.","family":"Laurier","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"K.","family":"Parent","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"C.","family":"Moreau","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"L.","family":"Defebvre","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"D.","family":"Jacquemin","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"A.","family":"Dest\u00e9e","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"key":"10.1016\/j.neurol.2008.08.008_bib1","doi-asserted-by":"crossref","first-page":"278","DOI":"10.1212\/WNL.53.2.278","article-title":"A prospective study of preferences and actual treatment choices in ALS","volume":"53","author":"Albert","year":"1999","journal-title":"Neurology"},{"key":"10.1016\/j.neurol.2008.08.008_bib2","doi-asserted-by":"crossref","first-page":"987","DOI":"10.1164\/rccm.200409-1295OC","article-title":"Risk of post-traumatic stress symptoms in family members of intensive care unit patients","volume":"171","author":"Azoulay","year":"2005","journal-title":"Am J Respir Crit Care Med"},{"key":"10.1016\/j.neurol.2008.08.008_bib3","doi-asserted-by":"crossref","first-page":"141","DOI":"10.1212\/01.wnl.0000250339.14392.bb","article-title":"Incidence of ALS in Lombardy, Italy","volume":"68","author":"Beghi","year":"2007","journal-title":"Neurology"},{"key":"10.1016\/j.neurol.2008.08.008_bib4","doi-asserted-by":"crossref","first-page":"76","DOI":"10.1016\/S1765-4629(05)80517-3","article-title":"Responsabilit\u00e9 \u00e9thique au quotidien","volume":"2","author":"Benaroyo","year":"2005","journal-title":"Ethique Sante"},{"key":"10.1016\/j.neurol.2008.08.008_bib5","doi-asserted-by":"crossref","first-page":"1706","DOI":"10.1002\/mus.1208","article-title":"Empowering the individual with ALS at the end-of-life: disease-specific advance care planning","volume":"24","author":"Benditt","year":"2001","journal-title":"Muscle Nerve"},{"key":"10.1016\/j.neurol.2008.08.008_bib6","first-page":"15","article-title":"Lorsque tout va trop vite et que le diagnostic \u00ab\u00a0attendu\u00a0\u00bb tourne \u00e0 \u00ab\u00a0l\u2019inattendu\u00a0\u00bb\u2026\u00a0: \u00e0 propos d\u2019une situation de scl\u00e9rose lat\u00e9rale amyotrophique","volume":"50","author":"Brunaud-Danel","year":"2008","journal-title":"Ethica Clinica"},{"key":"10.1016\/j.neurol.2008.08.008_bib7","doi-asserted-by":"crossref","first-page":"1002","DOI":"10.1212\/01.wnl.0000258551.96893.6f","article-title":"Ethnic variation in the incidence of ALS: a systematic review","volume":"68","author":"Cronin","year":"2007","journal-title":"Neurology"},{"key":"10.1016\/j.neurol.2008.08.008_bib8","doi-asserted-by":"crossref","first-page":"748","DOI":"10.1378\/chest.07-0745","article-title":"Point: the ethics of unilateral \u201cdo not resuscitate\u201d orders: the role of \u201cinformed assent\u201d","volume":"132","author":"Curtis","year":"2007","journal-title":"Chest"},{"key":"10.1016\/j.neurol.2008.08.008_bib9","doi-asserted-by":"crossref","first-page":"2221","DOI":"10.1001\/jama.1992.03480160079038","article-title":"Four models of the physician-patient relationship","volume":"267","author":"Emmanuel","year":"1992","journal-title":"JAMA"},{"key":"10.1016\/j.neurol.2008.08.008_bib10","doi-asserted-by":"crossref","first-page":"923","DOI":"10.1212\/01.wnl.0000257093.53430.a8","article-title":"A longitudinal study on quality of life and depression in ALS patient-caregiver couples","volume":"68","author":"Gauthier","year":"2007","journal-title":"Neurology"},{"key":"10.1016\/j.neurol.2008.08.008_bib11","doi-asserted-by":"crossref","first-page":"165","DOI":"10.1016\/S1765-4629(07)91434-8","article-title":"Aide \u00e0 la r\u00e9flexion face aux situations extr\u00eames","volume":"4","author":"Geoffroy","year":"2007","journal-title":"Ethique Sante"},{"key":"10.1016\/j.neurol.2008.08.008_bib12","first-page":"4S334","article-title":"Quels sont les aspects \u00e9thiques des d\u00e9cisions de suppl\u00e9ance et de leur r\u00e9versibilit\u00e9\u00a0? Texte du groupe bibliographique de la conf\u00e9rence de consensus sur la \u00ab\u00a0prise en charge des personnes atteintes de scl\u00e9rose lat\u00e9rale amyotrophique\u00a0\u00bb","volume":"62","author":"Guerrier","year":"2006","journal-title":"Rev Neurol (Paris)"},{"key":"10.1016\/j.neurol.2008.08.008_bib13","doi-asserted-by":"crossref","first-page":"135","DOI":"10.1212\/01.WNL.0000069925.02052.1F","article-title":"ALS patients on TPPV: totally locked-in state, neurologic findings and ethical implications","volume":"61","author":"Hayashi","year":"2003","journal-title":"Neurology"},{"key":"10.1016\/j.neurol.2008.08.008_bib14","doi-asserted-by":"crossref","first-page":"203","DOI":"10.1080\/14660820152882214","article-title":"The ALS Patient Care Database: insights into end-of-life care in ALS","volume":"2","author":"Mandler","year":"2001","journal-title":"Amyotroph Lateral Scler Other Motor Neuron Disord"},{"key":"10.1016\/j.neurol.2008.08.008_bib15","doi-asserted-by":"crossref","first-page":"51","DOI":"10.1378\/chest.07-0912","article-title":"Counterpoint: is it ethical to order \u201cdo not resuscitate\u201d without patient consent?","volume":"132","author":"Manthous","year":"2007","journal-title":"Chest"},{"key":"10.1016\/j.neurol.2008.08.008_bib16","doi-asserted-by":"crossref","first-page":"114","DOI":"10.1159\/000086353","article-title":"Survival of patients with amyotrophic lateral sclerosis in a population-based registry","volume":"25","author":"Millul","year":"2005","journal-title":"Neuroepidemiology"},{"key":"10.1016\/j.neurol.2008.08.008_bib17","doi-asserted-by":"crossref","first-page":"269","DOI":"10.1164\/rccm.200403-314OC","article-title":"Use of Sniff nasal-inspiratory force to predict survival in amyotrophic lateral sclerosis","volume":"171","author":"Morgan","year":"2005","journal-title":"Am J Respir Crit Care Med"},{"key":"10.1016\/j.neurol.2008.08.008_bib18","first-page":"996","article-title":"End-of-life decision making in 42 patients with amyotrophic lateral sclerosis","volume":"52","author":"Munroe","year":"2007","journal-title":"Respir Care"},{"key":"10.1016\/j.neurol.2008.08.008_bib19","doi-asserted-by":"crossref","first-page":"30","DOI":"10.1136\/jnnp.2007.117788","article-title":"Epidemiology and clinical features of amyotrophic lateral sclerosis in Ireland between 1995 and 2004","volume":"79","author":"O\u2019toole","year":"2007","journal-title":"J Neurol Neurosurg Psychiatry"},{"key":"10.1016\/j.neurol.2008.08.008_bib20","doi-asserted-by":"crossref","first-page":"86","DOI":"10.1080\/14660820500515021","article-title":"Predictors and course of elective long-term mechanical ventilation: A prospective study of ALS patients","volume":"7","author":"Rabkin","year":"2006","journal-title":"Amyotroph Lateral Scler"},{"key":"10.1016\/j.neurol.2008.08.008_bib21","doi-asserted-by":"crossref","first-page":"772","DOI":"10.1007\/s00415-005-0739-6","article-title":"Cognitive function in bulbar- and spinal-onset amyotrophic lateral sclerosis. A longitudinal study in 52 patients","volume":"252","author":"Schreiber","year":"2005","journal-title":"J Neurol"},{"key":"10.1016\/j.neurol.2008.08.008_bib22","doi-asserted-by":"crossref","first-page":"906","DOI":"10.1016\/S0025-6196(12)61577-8","article-title":"Amyotrophic lateral sclerosis and life-sustaining therapy: patients\u2019 desires for information, participation in decision making, and life-sustaining therapy","volume":"66","author":"Silverstein","year":"1991","journal-title":"Mayo Clin Proc"},{"key":"10.1016\/j.neurol.2008.08.008_bib23","doi-asserted-by":"crossref","first-page":"S93","DOI":"10.1016\/S0022-510X(97)00253-0","article-title":"End of life decisions in amyotrophic lateral sclerosis: a cross-cultural perspective","volume":"152","author":"Smyth","year":"1997","journal-title":"J Neurol Sci"},{"key":"10.1016\/j.neurol.2008.08.008_bib24","doi-asserted-by":"crossref","first-page":"563","DOI":"10.1378\/chest.06-1955","article-title":"Informed consent in clinical medicine","volume":"131","author":"Terrry","year":"2007","journal-title":"Chest"},{"key":"10.1016\/j.neurol.2008.08.008_bib25","doi-asserted-by":"crossref","first-page":"617","DOI":"10.1016\/S0035-3787(06)75055-X","article-title":"\u00c9tude des causes de retard au diagnostic de la scl\u00e9rose lat\u00e9rale amyotrophique","volume":"162","author":"Torny","year":"2006","journal-title":"Rev Neurol (Paris)"}],"container-title":["Revue Neurologique"],"original-title":[],"language":"fr","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0035378708004876?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0035378708004876?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2018,12,24]],"date-time":"2018-12-24T19:26:23Z","timestamp":1545679583000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S0035378708004876"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2009,2]]},"references-count":25,"journal-issue":{"issue":"2","published-print":{"date-parts":[[2009,2]]}},"alternative-id":["S0035378708004876"],"URL":"https:\/\/doi.org\/10.1016\/j.neurol.2008.08.008","relation":{},"ISSN":["0035-3787"],"issn-type":[{"value":"0035-3787","type":"print"}],"subject":[],"published":{"date-parts":[[2009,2]]}}}