{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,23]],"date-time":"2026-07-23T03:43:46Z","timestamp":1784778226112,"version":"3.55.0"},"reference-count":21,"publisher":"Elsevier BV","issue":"3","license":[{"start":{"date-parts":[[2010,3,1]],"date-time":"2010-03-01T00:00:00Z","timestamp":1267401600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2010,3,1]],"date-time":"2010-03-01T00:00:00Z","timestamp":1267401600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","clinicalkey.es","clinicalkey.fr","clinicalkey.jp","nmd-journal.com","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Neuromuscular Disorders"],"published-print":{"date-parts":[[2010,3]]},"DOI":"10.1016\/j.nmd.2009.12.002","type":"journal-article","created":{"date-parts":[[2010,1,15]],"date-time":"2010-01-15T01:06:06Z","timestamp":1263517566000},"page":"162-165","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":24,"title":["Reliability of telephone administration of the PedsQL\u2122 Generic Quality of Life Inventory\u2122 and Neuromuscular Module\u2122 in spinal muscular atrophy (SMA)"],"prefix":"10.1016","volume":"20","author":[{"given":"Sally","family":"Dunaway","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jacqueline","family":"Montes","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Megan","family":"Montgomery","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Vanessa","family":"Battista","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Benjamin","family":"Koo","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jonathan","family":"Marra","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Darryl C.","family":"De Vivo","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Linda S.","family":"Hynan","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Susan T.","family":"Iannaccone","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Petra","family":"Kaufmann","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"key":"10.1016\/j.nmd.2009.12.002_bib1","series-title":"Neuromuscular disorders of infancy, childhood, and adolescence: a clinician\u2019s approach","first-page":"145","article-title":"Spinal muscular atrophies","author":"Crawford","year":"2003"},{"issue":"4","key":"10.1016\/j.nmd.2009.12.002_bib2","doi-asserted-by":"crossref","first-page":"499","DOI":"10.1016\/j.nurt.2008.08.007","article-title":"Spinal muscular atrophy","volume":"5","author":"Oskoui","year":"2008","journal-title":"Neurotherapeutics"},{"issue":"1","key":"10.1016\/j.nmd.2009.12.002_bib3","doi-asserted-by":"crossref","first-page":"11","DOI":"10.1212\/01.wnl.0000251192.70723.80","article-title":"Learning to walk: challenges for spinal muscular atrophy clinical trials","volume":"68","author":"Kaufmann","year":"2007","journal-title":"Neurology"},{"issue":"8","key":"10.1016\/j.nmd.2009.12.002_bib4","doi-asserted-by":"crossref","first-page":"1130","DOI":"10.1001\/archneur.60.8.1130","article-title":"Reliability of 4 outcome measures in pediatric spinal muscular atrophy","volume":"60","author":"Iannaccone","year":"2003","journal-title":"Arch Neurol"},{"issue":"9","key":"10.1016\/j.nmd.2009.12.002_bib5","doi-asserted-by":"crossref","first-page":"1445","DOI":"10.1001\/archneur.59.9.1445","article-title":"Outcome measures for pediatric spinal muscular atrophy","volume":"59","author":"Iannaccone","year":"2002","journal-title":"Arch Neurol"},{"issue":"2","key":"10.1016\/j.nmd.2009.12.002_bib6","doi-asserted-by":"crossref","first-page":"102","DOI":"10.1016\/j.pediatrneurol.2008.04.011","article-title":"Parental stress and quality of life in children with neuromuscular disease","volume":"39","author":"Mah","year":"2008","journal-title":"Pediatr Neurol"},{"issue":"3","key":"10.1016\/j.nmd.2009.12.002_bib7","doi-asserted-by":"crossref","first-page":"198","DOI":"10.1212\/01.wnl.0000251299.54608.13","article-title":"Outcome of noninvasive ventilation in children with neuromuscular disease","volume":"68","author":"Young","year":"2007","journal-title":"Neurology"},{"issue":"10","key":"10.1016\/j.nmd.2009.12.002_bib8","doi-asserted-by":"crossref","first-page":"947","DOI":"10.1016\/S0899-9007(00)00404-4","article-title":"Obesity and quality of life","volume":"16","author":"Kushner","year":"2000","journal-title":"Nutrition"},{"issue":"Suppl. 3","key":"10.1016\/j.nmd.2009.12.002_bib9","doi-asserted-by":"crossref","first-page":"S217","DOI":"10.1097\/00005650-198903001-00018","article-title":"Generic and disease-specific measures in assessing health status and quality of life","volume":"27","author":"Patrick","year":"1989","journal-title":"Med Care"},{"issue":"4","key":"10.1016\/j.nmd.2009.12.002_bib10","doi-asserted-by":"crossref","first-page":"287","DOI":"10.1007\/BF00434800","article-title":"The European organization for research and treatment of cancer. Approach to quality of life assessment: guidelines for developing questionnaire modules. EORTC study group on quality of life","volume":"2","author":"Sprangers","year":"1993","journal-title":"Qual Life Res"},{"issue":"2","key":"10.1016\/j.nmd.2009.12.002_bib11","doi-asserted-by":"crossref","first-page":"126","DOI":"10.1097\/00005650-199902000-00003","article-title":"The PedsQL: measurement model for the Pediatric Quality of Life Inventory","volume":"37","author":"Varni","year":"1999","journal-title":"Med Care"},{"issue":"8","key":"10.1016\/j.nmd.2009.12.002_bib12","doi-asserted-by":"crossref","first-page":"800","DOI":"10.1097\/00005650-200108000-00006","article-title":"PedsQL 4. 0: reliability and validity of the Pediatric Quality of Life Inventory version 4.0 generic core scales in healthy and patient populations","volume":"39","author":"Varni","year":"2001","journal-title":"Med Care"},{"key":"10.1016\/j.nmd.2009.12.002_bib13","doi-asserted-by":"crossref","first-page":"805","DOI":"10.1016\/j.nmd.2009.09.009","article-title":"The PedsQL in pediatric patients with Spinal Muscular Atrophy: feasibility, reliability and validity of the Pediatric Quality of Life Inventory Generic Core scales and Neuromuscular Module","volume":"19","author":"Iannaccone","year":"2009","journal-title":"Neuromuscul Disord"},{"issue":"8","key":"10.1016\/j.nmd.2009.12.002_bib14","doi-asserted-by":"crossref","first-page":"957","DOI":"10.1177\/0883073807305665","article-title":"Perspectives on clinical trials in spinal muscular atrophy","volume":"22","author":"Swoboda","year":"2007","journal-title":"J Child Neurol"},{"issue":"11","key":"10.1016\/j.nmd.2009.12.002_bib15","doi-asserted-by":"crossref","first-page":"1601","DOI":"10.1001\/archneur.60.11.1601","article-title":"A phase 1 trial of riluzole in spinal muscular atrophy","volume":"60","author":"Russman","year":"2003","journal-title":"Arch Neurol"},{"issue":"2","key":"10.1016\/j.nmd.2009.12.002_bib16","doi-asserted-by":"crossref","first-page":"185","DOI":"10.1177\/1740774509102309","article-title":"Using factor analysis to confirm the validity of children\u2019s self-reported health-related quality of life across different modes of administration","volume":"6","author":"Varni JW Limbers","year":"2009","journal-title":"Clin Trials"},{"issue":"1","key":"10.1016\/j.nmd.2009.12.002_bib17","doi-asserted-by":"crossref","first-page":"3","DOI":"10.2466\/pr0.1966.19.1.3","article-title":"The intraclass correlation coefficient as a measure of reliability","volume":"19","author":"Bartko","year":"1966","journal-title":"Psychol Rep"},{"key":"10.1016\/j.nmd.2009.12.002_bib18","series-title":"The design and analysis of clinical experiments","first-page":"1","article-title":"Reliability of measurement","author":"Fleiss","year":"1986"},{"issue":"3","key":"10.1016\/j.nmd.2009.12.002_bib19","doi-asserted-by":"crossref","first-page":"314","DOI":"10.1016\/j.jclinepi.2008.06.011","article-title":"The internet is valid and reliable for child-report: an example using the Activities Scale for Kids (ASK) and the Pediatric Quality of Life Inventory (PedsQL)","volume":"62","author":"Young","year":"2009","journal-title":"J Clin Epidemiol"},{"issue":"4","key":"10.1016\/j.nmd.2009.12.002_bib20","doi-asserted-by":"crossref","first-page":"347","DOI":"10.1023\/A:1012253723272","article-title":"Can parents rate their child\u2019s health-related quality of life? Results of a systematic review","volume":"10","author":"Eiser","year":"2001","journal-title":"Qual Life Res"},{"issue":"6","key":"10.1016\/j.nmd.2009.12.002_bib21","doi-asserted-by":"crossref","first-page":"895","DOI":"10.1007\/s11136-008-9350-5","article-title":"Parent\u2013child agreement across child health-related quality of life instruments: a review of the literature","volume":"17","author":"Upton","year":"2008","journal-title":"Qual Life Res"}],"container-title":["Neuromuscular Disorders"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0960896609006968?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0960896609006968?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2025,10,18]],"date-time":"2025-10-18T07:57:38Z","timestamp":1760774258000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S0960896609006968"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2010,3]]},"references-count":21,"journal-issue":{"issue":"3","published-print":{"date-parts":[[2010,3]]}},"alternative-id":["S0960896609006968"],"URL":"https:\/\/doi.org\/10.1016\/j.nmd.2009.12.002","relation":{},"ISSN":["0960-8966"],"issn-type":[{"value":"0960-8966","type":"print"}],"subject":[],"published":{"date-parts":[[2010,3]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Reliability of telephone administration of the PedsQL\u2122 Generic Quality of Life Inventory\u2122 and Neuromuscular Module\u2122 in spinal muscular atrophy (SMA)","name":"articletitle","label":"Article Title"},{"value":"Neuromuscular Disorders","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.nmd.2009.12.002","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"Copyright \u00a9 2010 Published by Elsevier B.V.","name":"copyright","label":"Copyright"}]}}