{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,8]],"date-time":"2026-09-08T00:12:57Z","timestamp":1788826377143,"version":"build-2803163510"},"reference-count":20,"publisher":"Elsevier BV","issue":"7","license":[{"start":{"date-parts":[[2019,7,1]],"date-time":"2019-07-01T00:00:00Z","timestamp":1561939200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2019,7,1]],"date-time":"2019-07-01T00:00:00Z","timestamp":1561939200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"}],"funder":[{"DOI":"10.13039\/100000001","name":"National Science Foundation","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100000001","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000138","name":"U.S. Department of Education","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100000138","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000002","name":"National Institutes of Health","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100000002","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","clinicalkey.es","clinicalkey.fr","clinicalkey.jp","nmd-journal.com","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Neuromuscular Disorders"],"published-print":{"date-parts":[[2019,7]]},"DOI":"10.1016\/j.nmd.2019.05.006","type":"journal-article","created":{"date-parts":[[2019,5,23]],"date-time":"2019-05-23T09:38:12Z","timestamp":1558604292000},"page":"503-513","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":27,"title":["Longitudinal study of upper extremity reachable workspace in fascioscapulohumeral muscular dystrophy"],"prefix":"10.1016","volume":"29","author":[{"given":"Maya N.","family":"Hatch","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-7681-7023","authenticated-orcid":false,"given":"Kiin","family":"Kim","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Gregorij","family":"Kurillo","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Alina","family":"Nicorici","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Craig M.","family":"McDonald","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jay J.","family":"Han","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"issue":"4","key":"10.1016\/j.nmd.2019.05.006_bib0001","doi-asserted-by":"crossref","first-page":"601","DOI":"10.1016\/j.nurt.2008.07.005","article-title":"Facioscapulohumeral muscular dystrophy","volume":"5","author":"Tawil","year":"2008","journal-title":"Neurotherapeutics"},{"issue":"6\u20137","key":"10.1016\/j.nmd.2019.05.006_bib0002","doi-asserted-by":"crossref","first-page":"525","DOI":"10.1016\/S0960-8966(01)00201-2","article-title":"Genetic characterization of a large, historically significant Utah kindred with facioscapulohumeral dystrophy","volume":"11","author":"Flanigan","year":"2001","journal-title":"Neuromuscul Disord"},{"issue":"6","key":"10.1016\/j.nmd.2019.05.006_bib0003","doi-asserted-by":"crossref","first-page":"550","DOI":"10.1111\/j.1399-0004.2009.01158.x","article-title":"Facioscapulohumeral muscular dystrophy: epidemiological and molecular study in a north-east Italian population sample","volume":"75","author":"Mostacciuolo","year":"2009","journal-title":"Clin Genet"},{"issue":"5999","key":"10.1016\/j.nmd.2019.05.006_bib0004","doi-asserted-by":"crossref","first-page":"1650","DOI":"10.1126\/science.1189044","article-title":"A unifying genetic model for facioscapulohumeral muscular dystrophy","volume":"329","author":"Lemmers","year":"2010","journal-title":"Science"},{"issue":"13","key":"10.1016\/j.nmd.2019.05.006_bib0005","doi-asserted-by":"crossref","first-page":"2414","DOI":"10.1093\/hmg\/ddp180","article-title":"RNA transcripts, miRNA-sized fragments and proteins produced from D4Z4 units: new candidates for the pathophysiology of facioscapulohumeral dystrophy","volume":"18","author":"Snider","year":"2009","journal-title":"Hum Mol Genet"},{"key":"10.1016\/j.nmd.2019.05.006_bib0006","doi-asserted-by":"crossref","first-page":"12","DOI":"10.1186\/2044-5040-4-12","article-title":"Facioscapulohumeral dystrophy: the path to consensus on pathophysiology","volume":"4","author":"Tawil","year":"2014","journal-title":"Skelet Muscle"},{"issue":"1","key":"10.1016\/j.nmd.2019.05.006_bib0007","doi-asserted-by":"crossref","first-page":"79","DOI":"10.1016\/j.nmd.2013.07.009","article-title":"Clinical trial preparedness in facioscapulohumeral dystrophy: outcome measures and patient access: 8\u20139 April 2013, Leiden, The Netherlands","volume":"24","author":"Tawil","year":"2014","journal-title":"Neuromuscul Disord"},{"issue":"5 Suppl","key":"10.1016\/j.nmd.2019.05.006_bib0008","doi-asserted-by":"crossref","first-page":"S131","DOI":"10.1097\/00002060-199509001-00007","article-title":"Profiles of neuromuscular diseases. Facioscapulohumeral muscular dystrophy","volume":"74","author":"Kilmer","year":"1995","journal-title":"Am J Phys Med Rehabil."},{"issue":"2","key":"10.1016\/j.nmd.2019.05.006_bib0009","doi-asserted-by":"crossref","first-page":"168","DOI":"10.1002\/mus.24287","article-title":"Reachable workspace in facioscapulohumeral muscular dystrophy (FSHD) by Kinect","volume":"51","author":"Han","year":"2015","journal-title":"Muscle Nerve"},{"issue":"6","key":"10.1016\/j.nmd.2019.05.006_bib0010","doi-asserted-by":"crossref","first-page":"641","DOI":"10.3233\/THC-130764","article-title":"Evaluation of upper extremity reachable workspace using Kinect camera","volume":"21","author":"Kurillo","year":"2013","journal-title":"Technol Health Care"},{"issue":"6","key":"10.1016\/j.nmd.2019.05.006_bib0011","doi-asserted-by":"crossref","first-page":"948","DOI":"10.1002\/mus.24651","article-title":"Reachable workspace reflects dynamometer-measured upper extremity strength in facioscapulohumeral muscular dystrophy","volume":"52","author":"Han","year":"2015","journal-title":"Muscle Nerve"},{"issue":"2","key":"10.1016\/j.nmd.2019.05.006_bib0012","doi-asserted-by":"crossref","first-page":"213","DOI":"10.1002\/mus.21671","article-title":"A standardized clinical evaluation of patients affected by facioscapulohumeral muscular dystrophy: the FSHD clinical score","volume":"42","author":"Lamperti","year":"2010","journal-title":"Muscle Nerve"},{"issue":"3","key":"10.1016\/j.nmd.2019.05.006_bib0013","doi-asserted-by":"crossref","first-page":"186","DOI":"10.1002\/mus.880040304","article-title":"Clinical trial in Duchenne dystrophy. I. The design of the protocol","volume":"4","author":"Brooke","year":"1981","journal-title":"Muscle Nerve."},{"issue":"1","key":"10.1016\/j.nmd.2019.05.006_bib0014","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1002\/mus.20522","article-title":"Facioscapulohumeral muscular dystrophy","volume":"34","author":"Tawil","year":"2006","journal-title":"Muscle Nerve"},{"issue":"1\u20132","key":"10.1016\/j.nmd.2019.05.006_bib0015","doi-asserted-by":"crossref","first-page":"17","DOI":"10.1080\/21678421.2016.1241278","article-title":"Longitudinal evaluation of upper extremity reachable workspace in ALS by Kinect sensor","volume":"18","author":"de Bie","year":"2017","journal-title":"Amyotroph Lateral Scler Frontotemporal Degener"},{"issue":"1","key":"10.1016\/j.nmd.2019.05.006_bib0016","doi-asserted-by":"crossref","first-page":"38","DOI":"10.1212\/WNL.48.1.38","article-title":"A prospective, quantitative study of the natural history of facioscapulohumeral muscular dystrophy (FSHD): implications for therapeutic trials. The FSH-DY Group","volume":"48","year":"1997","journal-title":"Neurology."},{"issue":"9","key":"10.1016\/j.nmd.2019.05.006_bib0017","doi-asserted-by":"crossref","first-page":"1457","DOI":"10.1007\/s00415-010-5544-1","article-title":"Facioscapulohumeral muscular dystrophy: a prospective study of weakness and functional impairment","volume":"257","author":"St\u00fcbgen","year":"2010","journal-title":"J Neurol"},{"issue":"20","key":"10.1016\/j.nmd.2019.05.006_bib0018","doi-asserted-by":"crossref","first-page":"2057","DOI":"10.1212\/WNL.0000000000004647","article-title":"Adding quantitative muscle MRI to the FSHD clinical trial toolbox","volume":"89","author":"Mul","year":"2017","journal-title":"Neurology"},{"issue":"1","key":"10.1016\/j.nmd.2019.05.006_bib0019","doi-asserted-by":"crossref","first-page":"72","DOI":"10.1002\/mus.26088","article-title":"Facioscapulohumeral muscular dystrophy functional composite outcome measure","volume":"58","author":"Eichinger","year":"2018","journal-title":"Muscle Nerve"},{"issue":"4","key":"10.1016\/j.nmd.2019.05.006_bib0020","doi-asserted-by":"crossref","first-page":"592","DOI":"10.1002\/mus.24611","article-title":"Electrical impedance myography in Duchenne muscular dystrophy and healthy controls: a multicenter study of reliability and validity","volume":"52","author":"Zaidman","year":"2015","journal-title":"Muscle Nerve"}],"container-title":["Neuromuscular Disorders"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0960896618313762?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0960896618313762?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2025,10,18]],"date-time":"2025-10-18T08:08:05Z","timestamp":1760774885000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S0960896618313762"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2019,7]]},"references-count":20,"journal-issue":{"issue":"7","published-print":{"date-parts":[[2019,7]]}},"alternative-id":["S0960896618313762"],"URL":"https:\/\/doi.org\/10.1016\/j.nmd.2019.05.006","relation":{},"ISSN":["0960-8966"],"issn-type":[{"value":"0960-8966","type":"print"}],"subject":[],"published":{"date-parts":[[2019,7]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Longitudinal study of upper extremity reachable workspace in fascioscapulohumeral muscular dystrophy","name":"articletitle","label":"Article Title"},{"value":"Neuromuscular Disorders","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.nmd.2019.05.006","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"Published by Elsevier B.V.","name":"copyright","label":"Copyright"}]}}