{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,23]],"date-time":"2026-07-23T17:48:38Z","timestamp":1784828918253,"version":"3.55.0"},"reference-count":38,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2024,1,1]],"date-time":"2024-01-01T00:00:00Z","timestamp":1704067200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2024,1,1]],"date-time":"2024-01-01T00:00:00Z","timestamp":1704067200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2024,1,1]],"date-time":"2024-01-01T00:00:00Z","timestamp":1704067200000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-017"},{"start":{"date-parts":[[2024,1,1]],"date-time":"2024-01-01T00:00:00Z","timestamp":1704067200000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-037"},{"start":{"date-parts":[[2024,1,1]],"date-time":"2024-01-01T00:00:00Z","timestamp":1704067200000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-012"},{"start":{"date-parts":[[2024,1,1]],"date-time":"2024-01-01T00:00:00Z","timestamp":1704067200000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-029"},{"start":{"date-parts":[[2024,1,1]],"date-time":"2024-01-01T00:00:00Z","timestamp":1704067200000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-004"}],"funder":[{"DOI":"10.13039\/501100000265","name":"Medical Research Council","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100000265","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","clinicalkey.es","clinicalkey.fr","clinicalkey.jp","nmd-journal.com","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Neuromuscular Disorders"],"published-print":{"date-parts":[[2024,1]]},"DOI":"10.1016\/j.nmd.2023.12.002","type":"journal-article","created":{"date-parts":[[2023,12,9]],"date-time":"2023-12-09T11:33:47Z","timestamp":1702121627000},"page":"95-104","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":7,"special_numbering":"C","title":["Understanding anxiety experienced by young males with Duchenne muscular dystrophy: a qualitative focus group study"],"prefix":"10.1016","volume":"34","author":[{"given":"Rachel E.","family":"Trimmer","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"William P.L.","family":"Mandy","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9102-5232","authenticated-orcid":false,"given":"Francesco","family":"Muntoni","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-7046-122X","authenticated-orcid":false,"given":"Kate E.","family":"Maresh","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"key":"10.1016\/j.nmd.2023.12.002_bib0001","doi-asserted-by":"crossref","first-page":"1049","DOI":"10.1038\/ejhg.2012.301","article-title":"Newborn bloodspot screening for Duchenne muscular dystrophy: 21 years experience in Wales (UK)","volume":"21","author":"Moat","year":"2013","journal-title":"Eur J Hum Genet"},{"key":"10.1016\/j.nmd.2023.12.002_bib0002","doi-asserted-by":"crossref","first-page":"77","DOI":"10.1111\/dmcn.12922","article-title":"Neurodevelopmental, emotional, and behavioural problems in Duchenne muscular dystrophy in relation to underlying dystrophin gene mutations","volume":"58","author":"Ricotti","year":"2016","journal-title":"Dev Med Child Neurol"},{"key":"10.1016\/j.nmd.2023.12.002_bib0003","doi-asserted-by":"crossref","first-page":"470","DOI":"10.1016\/j.nmd.2007.03.002","article-title":"Managing Duchenne muscular dystrophy\u2013the additive effect of spinal surgery and home nocturnal ventilation in improving survival","volume":"17","author":"Eagle","year":"2007","journal-title":"Neuromuscul Disord"},{"key":"10.1016\/j.nmd.2023.12.002_bib0004","doi-asserted-by":"crossref","first-page":"445","DOI":"10.1016\/S1474-4422(18)30026-7","article-title":"Diagnosis and management of Duchenne muscular dystrophy, Part 3: primary care, emergency management, psychosocial care, and transitions of care across the lifespan","volume":"17","author":"Birnkrant","year":"2018","journal-title":"Lancet Neurol"},{"key":"10.1016\/j.nmd.2023.12.002_bib0005","doi-asserted-by":"crossref","DOI":"10.1016\/j.apmr.2022.05.015","article-title":"Prevalence of neuropsychiatric disorders in Duchenne and Becker muscular dystrophies: a systematic review and meta-analysis","author":"Pascual-Morena","year":"2022","journal-title":"Arch Phys Med Rehabil"},{"key":"10.1016\/j.nmd.2023.12.002_bib0006","doi-asserted-by":"crossref","first-page":"835","DOI":"10.1001\/jamapediatrics.2019.1712","article-title":"Prevalence and incidence of anxiety and depression among children, adolescents, and young adults with life-limiting conditions: a systematic review and meta-analysis","volume":"173","author":"Barker","year":"2019","journal-title":"JAMA Pediatr"},{"key":"10.1016\/j.nmd.2023.12.002_bib0007","series-title":"Shining a light: the impact of COVID-19 and the future of care for people with a muscle-wasting condition","first-page":"1","year":"2021"},{"key":"10.1016\/j.nmd.2023.12.002_bib0008","unstructured":"All Party Parliamentary Group for Muscular Dystrophy. Access to psychological support for people with neuromuscular conditions. 2018."},{"key":"10.1016\/j.nmd.2023.12.002_bib0009","doi-asserted-by":"crossref","first-page":"1205","DOI":"10.1093\/jpepsy\/jsz062","article-title":"Instruments for the assessment of behavioral and psychosocial functioning in Duchenne and Becker muscular dystrophy; a systematic review of the literature","volume":"44","author":"Hellebrekers","year":"2019","journal-title":"J Pediatr Psychol"},{"key":"10.1016\/j.nmd.2023.12.002_bib0010","doi-asserted-by":"crossref","first-page":"1337","DOI":"10.1097\/00004583-200111000-00015","article-title":"Psychometric properties of the strengths and difficulties questionnaire","volume":"40","author":"Goodman","year":"2001","journal-title":"J Am Acad Child Adolesc Psychiatry"},{"key":"10.1016\/j.nmd.2023.12.002_bib0011","doi-asserted-by":"crossref","first-page":"835","DOI":"10.1016\/S0005-7967(99)00130-8","article-title":"Assessment of symptoms of DSM-IV anxiety and depression in children: a revised child anxiety and depression scale","volume":"38","author":"Chorpita","year":"2000","journal-title":"Behav Res Ther"},{"key":"10.1016\/j.nmd.2023.12.002_bib0012","doi-asserted-by":"crossref","first-page":"124","DOI":"10.1093\/brain\/awn253","article-title":"A deficit of brain dystrophin impairs specific amygdala GABAergic transmission and enhances defensive behaviour in mice","volume":"132","author":"Sekiguchi","year":"2009","journal-title":"Brain"},{"key":"10.1016\/j.nmd.2023.12.002_bib0013","doi-asserted-by":"crossref","first-page":"252","DOI":"10.1093\/brain\/awac048","article-title":"Startle responses in Duchenne muscular dystrophy: a novel biomarker of brain dystrophin deficiency","volume":"146","author":"Maresh","year":"2023","journal-title":"Brain"},{"key":"10.1016\/j.nmd.2023.12.002_bib0014","doi-asserted-by":"crossref","first-page":"116","DOI":"10.1080\/09638288.2016.1247469","article-title":"Psychological adjustment to chronic disease and rehabilitation - an exploration","volume":"40","author":"Dekker","year":"2018","journal-title":"Disabil Rehabil"},{"key":"10.1016\/j.nmd.2023.12.002_bib0015","doi-asserted-by":"crossref","first-page":"663","DOI":"10.1177\/1362361315601012","article-title":"Using qualitative methods to guide scale development for anxiety in youth with autism spectrum disorder","volume":"20","author":"Bearss","year":"2016","journal-title":"Autism"},{"key":"10.1016\/j.nmd.2023.12.002_bib0016","doi-asserted-by":"crossref","first-page":"102","DOI":"10.1177\/0193841X9501900105","article-title":"A using focus groups to discuss sensitive topics with children","volume":"19","author":"Hoppe","year":"1995","journal-title":"Eval Rev"},{"key":"10.1016\/j.nmd.2023.12.002_bib0017","doi-asserted-by":"crossref","first-page":"175","DOI":"10.1177\/1476718X09345412","article-title":"research with children: methodological issues and innovative techniques","volume":"8","author":"Fargas-Malet","year":"2010","journal-title":"J Early Childhood Res"},{"key":"10.1016\/j.nmd.2023.12.002_bib0018","doi-asserted-by":"crossref","first-page":"47","DOI":"10.1093\/jpepsy\/27.1.47","article-title":"The use of focus group interviews in pediatric health care research","volume":"27","author":"Heary","year":"2002","journal-title":"J Pediatr Psychol"},{"key":"10.1016\/j.nmd.2023.12.002_bib0019","doi-asserted-by":"crossref","first-page":"568","DOI":"10.1192\/bjp.187.6.568","article-title":"Measuring autistic traits: heritability, reliability and validity of the social and communication disorders checklist","volume":"187","author":"Skuse","year":"2005","journal-title":"Br J Psychiatry"},{"key":"10.1016\/j.nmd.2023.12.002_bib0020","series-title":"Manual for the ASEBA school-age forms & profiles","author":"Achenbach","year":"2001"},{"key":"10.1016\/j.nmd.2023.12.002_bib0021","doi-asserted-by":"crossref","first-page":"545","DOI":"10.1016\/S0005-7967(98)00034-5","article-title":"A measure of anxiety symptoms among children","volume":"36","author":"Spence","year":"1998","journal-title":"Behav Res Ther"},{"key":"10.1016\/j.nmd.2023.12.002_bib0022","doi-asserted-by":"crossref","first-page":"128","DOI":"10.1097\/CHI.0b013e31819176b8","article-title":"Social communication competence and functional adaptation in a general population of children: preliminary evidence for sex-by-verbal IQ differential risk","volume":"48","author":"Skuse","year":"2009","journal-title":"J Am Acad Child Adolesc Psychiatry"},{"key":"10.1016\/j.nmd.2023.12.002_bib0023","series-title":"Analyzing qualitative data","first-page":"173","article-title":"Qualitative data analysis for applied policy research","author":"Ritchie","year":"1994"},{"key":"10.1016\/j.nmd.2023.12.002_bib0024","series-title":"UCL Great Ormond Street Institute of Child Health","article-title":"Deep phenotyping of the central nervous system in Duchenne muscular dystrophy","author":"Maresh","year":"2022"},{"key":"10.1016\/j.nmd.2023.12.002_bib0025","series-title":"Department of Health Annual Report of the Chief Medical Officer 2012, Our Children Deserve Better: Prevention Pays","first-page":"3","article-title":"Children with neurodevelopmental disabilities","author":"Blackburn","year":"2012"},{"key":"10.1016\/j.nmd.2023.12.002_bib0026","unstructured":"Hatton C., Glover, G., Emerson, E., Brown, I., People with learning disabilities in England 2015: Main report, England P H, Editor. 2016, Public Health England: London, UK."},{"key":"10.1016\/j.nmd.2023.12.002_bib0027","series-title":"NHS digital","article-title":"Mental health of children and young people in England, 2017","author":"Vizard","year":"2018"},{"key":"10.1016\/j.nmd.2023.12.002_bib0028","doi-asserted-by":"crossref","first-page":"921","DOI":"10.1097\/CHI.0b013e318179964f","article-title":"Psychiatric disorders in children with autism spectrum disorders: prevalence, comorbidity, and associated factors in a population-derived sample","volume":"47","author":"Simonoff","year":"2008","journal-title":"J Am Acad Child Adolesc Psychiatry"},{"key":"10.1016\/j.nmd.2023.12.002_bib0029","first-page":"1","article-title":"A systematic review and qualitative synthesis of the experiences of parents of individuals living with Duchenne muscular dystrophy","author":"Donnelly","year":"2022","journal-title":"Disabil Rehabil"},{"key":"10.1016\/j.nmd.2023.12.002_bib0030","doi-asserted-by":"crossref","first-page":"644","DOI":"10.1097\/DBP.0b013e318235d614","article-title":"Resilience in children diagnosed with a chronic neuromuscular disorder","volume":"32","author":"Fee","year":"2011","journal-title":"J Dev Behav Pediatr"},{"key":"10.1016\/j.nmd.2023.12.002_bib0031","doi-asserted-by":"crossref","first-page":"44","DOI":"10.1111\/j.1469-8749.2003.tb00858.x","article-title":"Behavioural problems in children and adolescents with spinal muscular atrophy and their siblings","volume":"45","author":"Laufersweiler-Plass","year":"2003","journal-title":"Dev Med Child Neurol"},{"key":"10.1016\/j.nmd.2023.12.002_bib0032","doi-asserted-by":"crossref","first-page":"385","DOI":"10.1186\/s13023-021-02008-8","article-title":"Anxiety and depression in school-age patients with spinal muscular atrophy: a cross-sectional study","volume":"16","author":"Yao","year":"2021","journal-title":"Orphanet J Rare Dis"},{"key":"10.1016\/j.nmd.2023.12.002_bib0033","first-page":"245","article-title":"Systematic review: bullying Involvement of children with and without chronic physical illness and\/or physical\/sensory disability-a meta-analytic comparison with healthy\/nondisabled peers","volume":"42","author":"Pinquart","year":"2017","journal-title":"J Pediatr Psychol"},{"key":"10.1016\/j.nmd.2023.12.002_bib0034","series-title":"Diagnostic and statistical manual of mental disorders","year":"2013"},{"key":"10.1016\/j.nmd.2023.12.002_bib0035","doi-asserted-by":"crossref","first-page":"17","DOI":"10.1023\/A:1022658222914","article-title":"Comparing the strengths and difficulties questionnaire and the child behavior checklist: is small beautiful?","volume":"27","author":"Goodman","year":"1999","journal-title":"J Abnorm Child Psychol"},{"key":"10.1016\/j.nmd.2023.12.002_bib0036","doi-asserted-by":"crossref","first-page":"1205","DOI":"10.1002\/aur.1603","article-title":"Development of the anxiety scale for children with autism spectrum disorder (ASC-ASD)","volume":"9","author":"Rodgers","year":"2016","journal-title":"Autism Res"},{"key":"10.1016\/j.nmd.2023.12.002_bib0037","doi-asserted-by":"crossref","first-page":"935","DOI":"10.1016\/j.nmd.2022.10.002","article-title":"Dystrophinopathy and the brain: a parent project muscular dystrophy (PPMD) meeting report November 11-12, 2021, New York City, NY","volume":"32","author":"Colvin","year":"2022","journal-title":"Neuromuscul Disord"},{"key":"10.1016\/j.nmd.2023.12.002_bib0038","doi-asserted-by":"crossref","first-page":"292","DOI":"10.1016\/j.pediatrneurol.2011.08.003","article-title":"Neurocognitive profiles in Duchenne muscular dystrophy and gene mutation site","volume":"45","author":"D'Angelo","year":"2011","journal-title":"Pediatr Neurol"}],"container-title":["Neuromuscular Disorders"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0960896623008313?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0960896623008313?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2025,10,18]],"date-time":"2025-10-18T08:14:59Z","timestamp":1760775299000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S0960896623008313"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,1]]},"references-count":38,"alternative-id":["S0960896623008313"],"URL":"https:\/\/doi.org\/10.1016\/j.nmd.2023.12.002","relation":{},"ISSN":["0960-8966"],"issn-type":[{"value":"0960-8966","type":"print"}],"subject":[],"published":{"date-parts":[[2024,1]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Understanding anxiety experienced by young males with Duchenne muscular dystrophy: a qualitative focus group study","name":"articletitle","label":"Article Title"},{"value":"Neuromuscular Disorders","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.nmd.2023.12.002","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2023 Elsevier B.V. All rights reserved.","name":"copyright","label":"Copyright"}]}}