{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,17]],"date-time":"2026-08-17T19:39:10Z","timestamp":1786995550991,"version":"build-2736575974"},"reference-count":15,"publisher":"Elsevier BV","issue":"4","license":[{"start":{"date-parts":[[2010,8,1]],"date-time":"2010-08-01T00:00:00Z","timestamp":1280620800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Pediatric Clinics of North America"],"published-print":{"date-parts":[[2010,8]]},"DOI":"10.1016\/j.pcl.2010.08.001","type":"journal-article","created":{"date-parts":[[2010,9,30]],"date-time":"2010-09-30T05:02:10Z","timestamp":1285822930000},"page":"893-901","source":"Crossref","is-referenced-by-count":21,"title":["Need for the Life Course Model for Spina Bifida"],"prefix":"10.1016","volume":"57","author":[{"given":"Mark E.","family":"Swanson","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"issue":"5","key":"10.1016\/j.pcl.2010.08.001_bib1","doi-asserted-by":"crossref","first-page":"346","DOI":"10.1002\/ajh.21676","article-title":"Sickle cell disease in the United States: looking back and forward at 100 years of progress in management and survival","volume":"85","author":"Prabhakar","year":"2010","journal-title":"Am J Hematol"},{"issue":"6","key":"10.1016\/j.pcl.2010.08.001_bib2","doi-asserted-by":"crossref","first-page":"411","DOI":"10.1097\/00002060-200206000-00003","article-title":"Duchenne muscular dystrophy: prolongation of life by noninvasive ventilation and mechanically assisted coughing","volume":"81","author":"Gomez-Merino","year":"2002","journal-title":"Am J Phys Med Rehabil"},{"issue":"3","key":"10.1016\/j.pcl.2010.08.001_bib3","doi-asserted-by":"crossref","first-page":"114","DOI":"10.1159\/000056005","article-title":"Spina bifida outcome: a 25-year prospective","volume":"34","author":"Bowman","year":"2001","journal-title":"Pediatr Neurosurg"},{"key":"10.1016\/j.pcl.2010.08.001_bib4","series-title":"Patient registry: annual data report 2008","author":"Cystic Fibrosis Foundation","year":"2008"},{"issue":"8","key":"10.1016\/j.pcl.2010.08.001_bib5","doi-asserted-by":"crossref","first-page":"670","DOI":"10.1111\/j.1469-8749.2009.03322.x","article-title":"Adult outcomes and lifespan issues for people with childhood-onset physical disability","volume":"51","author":"Roebroeck","year":"2009","journal-title":"Dev Med Child Neurol"},{"key":"10.1016\/j.pcl.2010.08.001_bib6","author":"National Resource Center for Self Determination Web site"},{"issue":"4","key":"10.1016\/j.pcl.2010.08.001_bib7","doi-asserted-by":"crossref","first-page":"47","DOI":"10.1080\/J006v26n04_04","article-title":"Growing up ready: a shared management approach","volume":"26","author":"Gall","year":"2006","journal-title":"Phys Occup Ther Pediatr"},{"issue":"1","key":"10.1016\/j.pcl.2010.08.001_bib8","doi-asserted-by":"crossref","first-page":"19","DOI":"10.1016\/S0031-3955(16)34533-3","article-title":"Development of children with a chronic illness","volume":"31","author":"Perrin","year":"1984","journal-title":"Pediatr Clin North Am"},{"key":"10.1016\/j.pcl.2010.08.001_bib9","author":"ICF Web site"},{"issue":"4","key":"10.1016\/j.pcl.2010.08.001_bib10","doi-asserted-by":"crossref","first-page":"389","DOI":"10.1097\/MOP.0b013e32833a468e","article-title":"Firm foundations: strength-based approaches to adolescent chronic disease","volume":"22","author":"Chung","year":"2010","journal-title":"Curr Opin Pediatr"},{"issue":"1","key":"10.1016\/j.pcl.2010.08.001_bib11","doi-asserted-by":"crossref","first-page":"21","DOI":"10.1046\/j.1365-2214.2003.00312.x","article-title":"Development and validation of a tool to measure the impact of childhood disabilities on the lives of children and their families","volume":"29","author":"Jessen","year":"2003","journal-title":"Child Care Health Dev"},{"issue":"13","key":"10.1016\/j.pcl.2010.08.001_bib12","doi-asserted-by":"crossref","first-page":"1157","DOI":"10.1080\/09638280500534507","article-title":"Participation of disabled children: how should it be characterized and measured?","volume":"28","author":"McConachie","year":"2006","journal-title":"Disabil Rehabil"},{"issue":"8","key":"10.1016\/j.pcl.2010.08.001_bib13","doi-asserted-by":"crossref","first-page":"639","DOI":"10.1080\/09638280701400375","article-title":"Measuring participation of children with disabilities: issues and challenges","volume":"30","author":"Coster","year":"2008","journal-title":"Disabil Rehabil"},{"issue":"12","key":"10.1016\/j.pcl.2010.08.001_bib14","doi-asserted-by":"crossref","first-page":"1097","DOI":"10.7326\/0003-4819-127-12-199712150-00008","article-title":"Collaborative management of chronic illness","volume":"127","author":"Von Korff","year":"1997","journal-title":"Ann Intern Med"},{"key":"10.1016\/j.pcl.2010.08.001_bib15","first-page":"354","article-title":"Supporting development of children with chronic conditions: from compliance towards shared management","volume":"26","author":"Kieckhefer","year":"2000","journal-title":"Pediatr Nurs"}],"container-title":["Pediatric Clinics of North America"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0031395510001124?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0031395510001124?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2024,3,30]],"date-time":"2024-03-30T17:18:28Z","timestamp":1711819108000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S0031395510001124"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2010,8]]},"references-count":15,"journal-issue":{"issue":"4","published-print":{"date-parts":[[2010,8]]}},"alternative-id":["S0031395510001124"],"URL":"https:\/\/doi.org\/10.1016\/j.pcl.2010.08.001","relation":{},"ISSN":["0031-3955"],"issn-type":[{"value":"0031-3955","type":"print"}],"subject":[],"published":{"date-parts":[[2010,8]]}}}