{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,2,25]],"date-time":"2026-02-25T17:00:32Z","timestamp":1772038832675,"version":"3.50.1"},"reference-count":54,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2023,2,1]],"date-time":"2023-02-01T00:00:00Z","timestamp":1675209600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2023,2,1]],"date-time":"2023-02-01T00:00:00Z","timestamp":1675209600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2023,12,5]],"date-time":"2023-12-05T00:00:00Z","timestamp":1701734400000},"content-version":"am","delay-in-days":307,"URL":"http:\/\/www.elsevier.com\/open-access\/userlicense\/1.0\/"}],"funder":[{"DOI":"10.13039\/100006377","name":"Purdue University","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100006377","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100006975","name":"Indiana Clinical and Translational Sciences Institute","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100006975","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000002","name":"National Institutes of Health","doi-asserted-by":"publisher","award":["KL2TR002530"],"award-info":[{"award-number":["KL2TR002530"]}],"id":[{"id":"10.13039\/100000002","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000002","name":"National Institutes of Health","doi-asserted-by":"publisher","award":["UL1TR002529"],"award-info":[{"award-number":["UL1TR002529"]}],"id":[{"id":"10.13039\/100000002","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100011627","name":"Purdue University Purdue Women's Global Health Institute","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100011627","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100006108","name":"National Center for Advancing Translational Sciences","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100006108","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","clinicalkey.es","clinicalkey.fr","clinicalkey.jp","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Patient Education and Counseling"],"published-print":{"date-parts":[[2023,2]]},"DOI":"10.1016\/j.pec.2022.107584","type":"journal-article","created":{"date-parts":[[2022,11,30]],"date-time":"2022-11-30T20:29:34Z","timestamp":1669840174000},"page":"107584","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":9,"special_numbering":"C","title":["\u201cI think people should be more aware:\u201d Uterine fibroid experiences among women living in Indiana, USA"],"prefix":"10.1016","volume":"107","author":[{"given":"Chandler","family":"Dykstra","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Alfu","family":"Laily","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Erica E.","family":"Marsh","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Monica L.","family":"Kasting","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Andrea L.","family":"DeMaria","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"78","reference":[{"key":"10.1016\/j.pec.2022.107584_bib1","doi-asserted-by":"crossref","first-page":"1501","DOI":"10.1111\/1471-0528.14640","article-title":"Epidemiology of uterine fibroids: a systematic review","volume":"124","author":"Stewart","year":"2017","journal-title":"BJOG Int J Obstet Gynaecol"},{"key":"10.1016\/j.pec.2022.107584_bib2","doi-asserted-by":"crossref","first-page":"807","DOI":"10.1089\/jwh.2013.4334","article-title":"The burden of uterine fibroids for African-American women: Results of a national survey","volume":"22","author":"Stewart","year":"2013","journal-title":"J Women\u2019s Health"},{"key":"10.1016\/j.pec.2022.107584_bib3","doi-asserted-by":"crossref","first-page":"194","DOI":"10.1016\/j.ajog.2013.08.008","article-title":"The health disparities of uterine fibroid tumors for African American women: a public health issue","volume":"210","author":"Eltoukhi","year":"2014","journal-title":"Am J Obstet Gynecol"},{"key":"10.1016\/j.pec.2022.107584_bib4","doi-asserted-by":"crossref","DOI":"10.1016\/j.ajog.2011.12.002","article-title":"The estimated annual cost of uterine leiomyomata in the United States","volume":"206","author":"Cardozo","year":"2012","journal-title":"Am J Obstet Gynecol"},{"key":"10.1016\/j.pec.2022.107584_bib5","doi-asserted-by":"crossref","first-page":"846","DOI":"10.1089\/jwh.2015.5531","article-title":"An altered perception of normal: understanding causes for treatment delay in women with symptomatic uterine fibroids","author":"Ghant","year":"2016","journal-title":"J Women\u2019s Health"},{"key":"10.1016\/j.pec.2022.107584_bib6","doi-asserted-by":"crossref","first-page":"100","DOI":"10.1067\/mob.2003.99","article-title":"High cumulative incidence of uterine leiomyoma in black and white women: ultrasound evidence","volume":"188","author":"Day Baird","year":"2003","journal-title":"Am J Obstet Gynecol"},{"key":"10.1016\/j.pec.2022.107584_bib7","doi-asserted-by":"crossref","first-page":"1488","DOI":"10.1016\/S0015-0282(03)02207-6","article-title":"Uterine fibroids and gynecologic pain symptoms in a population-based study","volume":"80","author":"Lippman","year":"2003","journal-title":"Fertil Steril"},{"key":"10.1016\/j.pec.2022.107584_bib8","doi-asserted-by":"crossref","first-page":"6","DOI":"10.1186\/1472-6874-12-6","article-title":"Prevalence, symptoms and management of uterine fibroids: an international internet-based survey of 21,746 women","volume":"12","author":"Zimmermann","year":"2012","journal-title":"BMC Women\u2019s Health"},{"key":"10.1016\/j.pec.2022.107584_bib9","doi-asserted-by":"crossref","first-page":"174","DOI":"10.1016\/j.maturitas.2006.01.013","article-title":"Risk factors for clinically diagnosed uterine fibroids in women around menopause","volume":"55","author":"Parazzini","year":"2006","journal-title":"Maturitas"},{"key":"10.1016\/j.pec.2022.107584_bib10","doi-asserted-by":"crossref","first-page":"2","DOI":"10.1097\/GRF.0000000000000164","article-title":"Epidemiology of uterine fibroids: from menarche to menopause","volume":"59","author":"Wise","year":"2016","journal-title":"Clin Obstet Gynecol"},{"key":"10.1016\/j.pec.2022.107584_bib11","first-page":"424","article-title":"Epidemiology of uterine myomas: a review","volume":"9","author":"Sparic","year":"2016","journal-title":"Int J Fertil Steril"},{"key":"10.1016\/j.pec.2022.107584_bib12","doi-asserted-by":"crossref","first-page":"665","DOI":"10.1093\/humupd\/dmw023","article-title":"Uterine fibroid management: from the present to the future","volume":"22","author":"Donnez","year":"2016","journal-title":"Hum Reprod Update"},{"key":"10.1016\/j.pec.2022.107584_bib13","doi-asserted-by":"crossref","first-page":"113","DOI":"10.1093\/aje\/kwh016","article-title":"Reproductive factors, hormonal contraception, and risk of uterine leiomyomata in African-American women: a prospective study","volume":"159","author":"Wise","year":"2004","journal-title":"Am J Epidemiol"},{"key":"10.1016\/j.pec.2022.107584_bib14","unstructured":"ACOG. Health disparities in rural women: Number 586, February 2014 Committee on Health Care for Underserved Women Am. Coll. Obstet. Gynecol 2014."},{"key":"10.1016\/j.pec.2022.107584_bib15","unstructured":"The Indiana Data Hub, Count of OB-GYN Providers by County, (2020). https:\/\/hub.mph.in.gov\/en_AU\/dataset\/count-of-ob-gyn-providers-by-county\/resource\/11cbac83\u201315e1\u20134ebf-b366-fb0425745373 (accessed July 17, 2022)."},{"key":"10.1016\/j.pec.2022.107584_bib16","article-title":"The comparing options for management: patient-centered results for uterine fibroids (COMPARE-UF) registry: rationale and design","volume":"0","author":"Stewart","year":"2018","journal-title":"Am J Obstet Gynecol"},{"key":"10.1016\/j.pec.2022.107584_bib17","article-title":"Alternatives to hysterectomy: the burden of fibroids and the quality of life","author":"Fortin","year":"2017","journal-title":"Best Pract Res Clin Obstet Gynaecol"},{"key":"10.1016\/j.pec.2022.107584_bib18","first-page":"1503","article-title":"Uterine fibroid tumors: diagnosis and treatment","volume":"75","author":"Evans","year":"2007","journal-title":"Am Fam Physician"},{"key":"10.1016\/j.pec.2022.107584_bib19","doi-asserted-by":"crossref","first-page":"821","DOI":"10.1289\/ehp.00108s5821","article-title":"Epidemiologic contributions to understanding the etiology of uterine leiomyomata","volume":"108","author":"Schwartz","year":"2000","journal-title":"Environ Health Perspect"},{"key":"10.1016\/j.pec.2022.107584_bib20","doi-asserted-by":"crossref","first-page":"571","DOI":"10.1016\/j.bpobgyn.2008.04.002","article-title":"Incidence, aetiology and epidemiology of uterine fibroids","volume":"22","author":"Okolo","year":"2008","journal-title":"Best Pract Res Clin Obstet Gynaecol"},{"key":"10.1016\/j.pec.2022.107584_bib21","doi-asserted-by":"crossref","first-page":"71","DOI":"10.1007\/s13669-012-0010-y","article-title":"When should uterine fibroids be treated?","volume":"1","author":"Pritts","year":"2012","journal-title":"Curr Obstet Gynecol Rep"},{"key":"10.1016\/j.pec.2022.107584_bib22","unstructured":"Social Determinants of Health - Healthy People 2030 | health.gov, (n.d.). https:\/\/health.gov\/healthypeople\/priority-areas\/social-determinants-health (accessed July 15, 2022)."},{"key":"10.1016\/j.pec.2022.107584_bib23","unstructured":"CDC, The Social-Ecological Model: A Framework for Prevention, (2019). https:\/\/www.cdc.gov\/violenceprevention\/publichealthissue\/social-ecologicalmodel.html (accessed April 11, 2019)."},{"key":"10.1016\/j.pec.2022.107584_bib24","doi-asserted-by":"crossref","first-page":"768","DOI":"10.1016\/j.fertnstert.2012.10.039","article-title":"Comparison of characteristics of fibroids in African American and white women undergoing premenopausal hysterectomy","volume":"99","author":"Moorman","year":"2013","journal-title":"Fertil Steril"},{"issue":"22","key":"10.1016\/j.pec.2022.107584_bib25","doi-asserted-by":"crossref","first-page":"793","DOI":"10.1089\/jwh.2013.4597","article-title":"Uterine fibroid: the burden borne by African American women","volume":"15409996","author":"Richard-Davis","year":"2013","journal-title":"J Women\u2019s Health"},{"key":"10.1016\/j.pec.2022.107584_bib26","doi-asserted-by":"crossref","first-page":"560","DOI":"10.1055\/s-0037-1607267","article-title":"Patient-centered care and uterine fibroids","volume":"35","author":"Marsh","year":"2017","journal-title":"Semin Reprod Med"},{"key":"10.1016\/j.pec.2022.107584_bib27","doi-asserted-by":"crossref","first-page":"104","DOI":"10.1016\/j.jradnu.2016.12.003","article-title":"Benefits to patients and clinicians of discussing explanatory images during uterine fibroid consultations","volume":"36","author":"Saferstein","year":"2017","journal-title":"J Radiol Nurs"},{"key":"10.1016\/j.pec.2022.107584_bib28","unstructured":"O. of the Commissioner, FDA Approves New Option to Treat Heavy Menstrual Bleeding Associated with Fibroids in Women, FDA. (2020). https:\/\/www.fda.gov\/news-events\/press-announcements\/fda-approves-new-option-treat-heavy-menstrual-bleeding-associated-fibroids-women (accessed July 26, 2022)."},{"key":"10.1016\/j.pec.2022.107584_bib29","first-page":"24","article-title":"Qualitative research methods for the social sciences","volume":"26","author":"Ellingson","year":"2007","journal-title":"Commun Res Trends"},{"key":"10.1016\/j.pec.2022.107584_bib30","doi-asserted-by":"crossref","first-page":"77","DOI":"10.1191\/1478088706qp063oa","article-title":"Using thematic analysis in psychology","volume":"3","author":"Braun","year":"2006","journal-title":"Qual Res Psychol"},{"key":"10.1016\/j.pec.2022.107584_bib31","doi-asserted-by":"crossref","first-page":"80","DOI":"10.1177\/160940690600500107","article-title":"Demonstrating rigor using thematic analysis: a hybrid approach of inductive and deductive coding and theme development","volume":"5","author":"Fereday","year":"2006","journal-title":"Int J Qual Methods"},{"key":"10.1016\/j.pec.2022.107584_bib32","doi-asserted-by":"crossref","first-page":"66","DOI":"10.1186\/s12874-019-0707-y","article-title":"Attempting rigour and replicability in thematic analysis of qualitative research data; a case study of codebook development","volume":"19","author":"Roberts","year":"2019","journal-title":"BMC Med Res Methodol"},{"key":"10.1016\/j.pec.2022.107584_bib33","doi-asserted-by":"crossref","DOI":"10.1177\/1609406917733847","article-title":"Thematic analysis: striving to meet the trustworthiness criteria","volume":"16","author":"Nowell","year":"2017","journal-title":"Int J Qual Methods"},{"key":"10.1016\/j.pec.2022.107584_bib34","doi-asserted-by":"crossref","DOI":"10.1016\/j.fertnstert.2015.07.481","article-title":"Seeking the truth: a qualitative assessment of women\u2019s experiences seeking and obtaining knowledge of uterine fibroids","volume":"104","author":"Ghant","year":"2015","journal-title":"Fertil Steril"},{"key":"10.1016\/j.pec.2022.107584_bib35","doi-asserted-by":"crossref","DOI":"10.2196\/jmir.8.2.e9","article-title":"eHealth literacy: essential skills for consumer health in a networked world","volume":"8","author":"Norman","year":"2006","journal-title":"J Med Internet Res"},{"key":"10.1016\/j.pec.2022.107584_bib36","doi-asserted-by":"crossref","first-page":"767","DOI":"10.1108\/JD-09-2016-0107","article-title":"The bright side of information: ways of mitigating information overload","volume":"73","author":"Koltay","year":"2017","journal-title":"J Doc"},{"key":"10.1016\/j.pec.2022.107584_bib37","doi-asserted-by":"crossref","DOI":"10.1186\/s12955-022-01971-5","article-title":"\u201cI thought I had fibroids, and now I don\u2019t\u201d: a mixed method study on health-related quality of life in uterine sarcoma patients","volume":"20","author":"den Hollander","year":"2022","journal-title":"Health Qual Life Outcomes"},{"key":"10.1016\/j.pec.2022.107584_bib38","doi-asserted-by":"crossref","DOI":"10.1016\/j.ajog.2013.07.017","article-title":"The impact of uterine leiomyomas: a national survey of affected women","volume":"209","author":"Borah","year":"2013","journal-title":"Am J Obstet Gynecol"},{"key":"10.1016\/j.pec.2022.107584_bib39","doi-asserted-by":"crossref","first-page":"493","DOI":"10.1097\/JOM.0b013e31805f6cf2","article-title":"The direct and indirect cost burden of clinically significant and symptomatic uterine fibroids","volume":"49","author":"Lee","year":"2007","journal-title":"J Occup Environ Med"},{"key":"10.1016\/j.pec.2022.107584_bib40","doi-asserted-by":"crossref","DOI":"10.1111\/ijcp.14418","article-title":"An investigation of women\u2019s pregnancy experiences during the COVID\u201019 pandemic: a qualitative study","author":"Aydin","year":"2021","journal-title":"Int. J. Clin. Pract."},{"key":"10.1016\/j.pec.2022.107584_bib41","doi-asserted-by":"crossref","first-page":"e1384","DOI":"10.1111\/hsc.13546","article-title":"The experience of delayed health care access during the COVID 19 pandemic in Australian women: a mixed methods exploration","volume":"30","author":"White","year":"2022","journal-title":"Health Soc Care Community"},{"key":"10.1016\/j.pec.2022.107584_bib42","doi-asserted-by":"crossref","first-page":"95","DOI":"10.2147\/IJWH.S51083","article-title":"Uterine fibroids: current perspectives","volume":"6","author":"Khan","year":"2014","journal-title":"Int J Women\u2019s Health"},{"key":"10.1016\/j.pec.2022.107584_bib43","first-page":"25","article-title":"Effectively managing uterine fibroids: communicating risk factors, identifying treatment options integral for physician-patient relationship","volume":"67","author":"Petronelli","year":"2022","journal-title":"Contemp Obgyn"},{"key":"10.1016\/j.pec.2022.107584_bib44","doi-asserted-by":"crossref","DOI":"10.1007\/s43032-022-00877-3","article-title":"A call-to-action for clinicians to implement evidence-based best practices when caring for women with uterine fibroids","author":"Leyland","year":"2022","journal-title":"Reprod Sci"},{"key":"10.1016\/j.pec.2022.107584_bib45","first-page":"448","article-title":"Knowledge of uterine fibroid symptoms and presentation among African-American women: a pilot study","volume":"59","author":"Ekpo","year":"2014","journal-title":"J Reprod Med"},{"key":"10.1016\/j.pec.2022.107584_bib46","doi-asserted-by":"crossref","first-page":"81","DOI":"10.1016\/j.ogc.2016.11.007","article-title":"Disparities in fibroid incidence, prognosis, and management","volume":"44","author":"Laughlin-Tommaso","year":"2017","journal-title":"Obstet Gynecol Clin North Am"},{"key":"10.1016\/j.pec.2022.107584_bib47","doi-asserted-by":"crossref","first-page":"240","DOI":"10.1186\/s13104-017-2558-0","article-title":"One year symptom severity and health-related quality of life changes among Black African patients undergoing uterine fibroid embolisation","volume":"10","author":"Mariara","year":"2017","journal-title":"BMC Res Notes"},{"key":"10.1016\/j.pec.2022.107584_bib48","doi-asserted-by":"crossref","first-page":"499","DOI":"10.1016\/j.jpsychores.2014.12.016","article-title":"Beyond the physical: a qualitative assessment of the burden of symptomatic uterine fibroids on women\u2019s emotional and psychosocial health","volume":"78","author":"Ghant","year":"2015","journal-title":"J Psychosom Res"},{"key":"10.1016\/j.pec.2022.107584_bib49","doi-asserted-by":"crossref","DOI":"10.1016\/j.ajog.2020.05.044","article-title":"A systematic review of the psychosocial impact of fibroids before and after treatment","volume":"223","author":"Go","year":"2020","journal-title":"Am J Obstet Gynecol"},{"key":"10.1016\/j.pec.2022.107584_bib50","doi-asserted-by":"crossref","first-page":"126","DOI":"10.1016\/j.jad.2017.02.020","article-title":"Risk of depression in patients with uterine leiomyoma: a nationwide population-based cohort study","volume":"213","author":"Shen","year":"2017","journal-title":"J Affect Disord"},{"key":"10.1016\/j.pec.2022.107584_bib51","doi-asserted-by":"crossref","first-page":"1967","DOI":"10.1007\/s43032-022-00882-6","article-title":"The impact of uterine fibroids on fertility: how the uncertainty widens the gap in reproductive outcomes in black women","volume":"29","author":"Henshaw","year":"2022","journal-title":"Reprod Sci Thousand Oaks Calif"},{"key":"10.1016\/j.pec.2022.107584_bib52","article-title":"Perceptions of ethnoracial factors in the management and treatment of uterine fibroids","author":"Orellana","year":"2021","journal-title":"J Racial Ethn Health Disparities"},{"key":"10.1016\/j.pec.2022.107584_bib53","doi-asserted-by":"crossref","first-page":"178","DOI":"10.1007\/s40615-016-0216-1","article-title":"Racial\/ethnic differences in women\u2019s experiences with symptomatic uterine fibroids: a qualitative assessment","volume":"4","author":"Sengoba","year":"2017","journal-title":"J Racial Ethn Health Disparities"},{"key":"10.1016\/j.pec.2022.107584_bib54","first-page":"e1","article-title":"Integrating intersectionality into the exposome paradigm: a novel approach to racial inequities in uterine fibroids","author":"Zota","year":"2020","journal-title":"Am J Public Health"}],"container-title":["Patient Education and Counseling"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0738399122008679?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0738399122008679?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2025,10,9]],"date-time":"2025-10-09T18:41:45Z","timestamp":1760035305000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S0738399122008679"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2023,2]]},"references-count":54,"alternative-id":["S0738399122008679"],"URL":"https:\/\/doi.org\/10.1016\/j.pec.2022.107584","relation":{},"ISSN":["0738-3991"],"issn-type":[{"value":"0738-3991","type":"print"}],"subject":[],"published":{"date-parts":[[2023,2]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"\u201cI think people should be more aware:\u201d Uterine fibroid experiences among women living in Indiana, USA","name":"articletitle","label":"Article Title"},{"value":"Patient Education and Counseling","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.pec.2022.107584","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"Published by Elsevier B.V.","name":"copyright","label":"Copyright"}],"article-number":"107584"}}