{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,29]],"date-time":"2026-09-29T01:23:16Z","timestamp":1790644996594,"version":"4.1.0"},"reference-count":43,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2025,2,1]],"date-time":"2025-02-01T00:00:00Z","timestamp":1738368000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2025,2,1]],"date-time":"2025-02-01T00:00:00Z","timestamp":1738368000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2024,11,28]],"date-time":"2024-11-28T00:00:00Z","timestamp":1732752000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/100004337","name":"Roche","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100004337","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100001826","name":"Netherlands Organisation for Health Research and Development","doi-asserted-by":"publisher","award":["73305095003"],"award-info":[{"award-number":["73305095003"]}],"id":[{"id":"10.13039\/501100001826","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100001826","name":"Netherlands Organisation for Health Research and Development","doi-asserted-by":"publisher","award":["10510032120003"],"award-info":[{"award-number":["10510032120003"]}],"id":[{"id":"10.13039\/501100001826","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100001826","name":"Netherlands Organisation for Health Research and Development","doi-asserted-by":"publisher","award":["10510032120004"],"award-info":[{"award-number":["10510032120004"]}],"id":[{"id":"10.13039\/501100001826","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100010969","name":"Alzheimer Nederland","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100010969","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100016036","name":"Health~Holland","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100016036","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100003246","name":"Nederlandse Organisatie voor Wetenschappelijk Onderzoek","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100003246","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100003769","name":"Eisai","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100003769","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100000320","name":"Alzheimer's Society","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100000320","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","clinicalkey.es","clinicalkey.fr","clinicalkey.jp","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Patient Education and Counseling"],"published-print":{"date-parts":[[2025,2]]},"DOI":"10.1016\/j.pec.2024.108587","type":"journal-article","created":{"date-parts":[[2024,11,28]],"date-time":"2024-11-28T18:57:40Z","timestamp":1732820260000},"page":"108587","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":2,"special_numbering":"C","title":["The need for personalization when sharing results of amyloid imaging for Alzheimer\u2019s disease: Insights from a randomized experimental study"],"prefix":"10.1016","volume":"131","author":[{"given":"Agnetha D.","family":"Fruijtier","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Wiesje M.","family":"van der Flier","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ingrid","family":"van Maurik","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jetske","family":"van der Schaar","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Yolande A.L.","family":"Pijnenburg","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ellen M.A.","family":"Smets","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Leonie N.C.","family":"Visser","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"issue":"10284","key":"10.1016\/j.pec.2024.108587_bib1","doi-asserted-by":"crossref","first-page":"1577","DOI":"10.1016\/S0140-6736(20)32205-4","article-title":"Alzheimer's disease","volume":"397","author":"Scheltens","year":"2021","journal-title":"Lancet"},{"issue":"12","key":"10.1016\/j.pec.2024.108587_bib2","doi-asserted-by":"crossref","first-page":"5773","DOI":"10.1002\/alz.13410","article-title":"Impact of sharing Alzheimer's disease biomarkers with individuals without dementia: A systematic review and meta-analysis of empirical data, Alzheimer's & dementia: the journal of the Alzheimer'","volume":"19","author":"van der Schaar","year":"2023","journal-title":"Alzheimer's Dement\u00a0J\u00a0Alzheimer Assoc"},{"issue":"3","key":"10.1016\/j.pec.2024.108587_bib3","doi-asserted-by":"crossref","first-page":"617","DOI":"10.3233\/JAD-150692","article-title":"Timely diagnosis for Alzheimer's disease: a literature review on benefits and challenges","volume":"49","author":"Dubois","year":"2016","journal-title":"J Alzheimers Dis"},{"issue":"3","key":"10.1016\/j.pec.2024.108587_bib4","doi-asserted-by":"crossref","first-page":"270","DOI":"10.1016\/j.jalz.2011.03.008","article-title":"The diagnosis of mild cognitive impairment due to Alzheimer's disease: recommendations from the National Institute on Aging-Alzheimer\u00a0association workgroups on diagnostic guidelines for Alzheimer's disease'","volume":"7","author":"Albert","year":"2011","journal-title":"Alzheimer'S Dement: J Alzheimer'S Assoc"},{"issue":"3","key":"10.1016\/j.pec.2024.108587_bib5","doi-asserted-by":"crossref","first-page":"126","DOI":"10.1212\/WNL.0000000000004826","article-title":"Practice guideline update summary: Mild cognitive impairment: Report of the Guideline Development, Dissemination, and Implementation Subcommittee of the American Academy of Neurology","volume":"90","author":"Petersen","year":"2018","journal-title":"Neurology"},{"issue":"12","key":"10.1016\/j.pec.2024.108587_bib6","doi-asserted-by":"crossref","first-page":"1481","DOI":"10.1001\/jamaneurol.2017.2712","article-title":"Alzheimer's disease neuroimaging, interpreting biomarker results in individual patients with mild cognitive impairment in the Alzheimer's biomarkers in daily practice (ABIDE) project","volume":"74","author":"van Maurik","year":"2017","journal-title":"JAMA Neurol"},{"issue":"3","key":"10.1016\/j.pec.2024.108587_bib7","first-page":"305","article-title":"Clinicians' views on conversations and shared decision making in diagnostic testing for Alzheimer's disease: the ABIDE project","volume":"3","author":"Kunneman","year":"2017","journal-title":"Alzheimers Dement"},{"issue":"1","key":"10.1016\/j.pec.2024.108587_bib8","doi-asserted-by":"crossref","first-page":"72","DOI":"10.1186\/s13195-018-0398-3","article-title":"Disclosure of amyloid positron emission tomography results to individuals without dementia: a systematic review","volume":"10","author":"de Wilde","year":"2018","journal-title":"Alzheimers Res Ther"},{"issue":"1","key":"10.1016\/j.pec.2024.108587_bib9","doi-asserted-by":"crossref","first-page":"131","DOI":"10.1186\/s13195-023-01276-9","article-title":"Communication about diagnosis, prognosis, and prevention in the memory clinic: perspectives of European memory clinic professionals","volume":"15","author":"Hendriksen","year":"2023","journal-title":"Alzheimers Res Ther"},{"issue":"1","key":"10.1016\/j.pec.2024.108587_bib10","doi-asserted-by":"crossref","first-page":"35","DOI":"10.1186\/s13195-017-0261-y","article-title":"Communicating mild cognitive impairment diagnoses with and without amyloid imaging","volume":"9","author":"Grill","year":"2017","journal-title":"Alzheimers Res Ther"},{"issue":"1","key":"10.1016\/j.pec.2024.108587_bib11","doi-asserted-by":"crossref","first-page":"17","DOI":"10.3233\/JAD-150985","article-title":"Development of a standardized approach to disclosing amyloid imaging research results in mild cognitive impairment","volume":"52","author":"Lingler","year":"2016","journal-title":"J Alzheimers Dis"},{"issue":"1","key":"10.1016\/j.pec.2024.108587_bib12","doi-asserted-by":"crossref","first-page":"285","DOI":"10.1002\/alz.12630","article-title":"Identifying best practices for disclosure of amyloid imaging results: a randomized controlled trial","volume":"19","author":"Fruijtier","year":"2023","journal-title":"Alzheimer's Dement\u00a0J\u00a0Alzheimer Assoc"},{"issue":"3","key":"10.1016\/j.pec.2024.108587_bib13","doi-asserted-by":"crossref","first-page":"514","DOI":"10.1016\/j.pec.2019.09.024","article-title":"Tailoring the amount of treatment information to cancer patients' and survivors' preferences: Effects on patient-reported outcomes","volume":"103","author":"Lehmann","year":"2020","journal-title":"Patient Educ Couns"},{"issue":"1","key":"10.1016\/j.pec.2024.108587_bib14","doi-asserted-by":"crossref","first-page":"102","DOI":"10.1111\/hcre.12097","article-title":"Tailoring the mode of information presentation: effects on younger and older adults' attention and recall of online information","volume":"43","author":"Nguyen","year":"2017","journal-title":"Hum Commun Res"},{"issue":"3","key":"10.1016\/j.pec.2024.108587_bib15","doi-asserted-by":"crossref","first-page":"295","DOI":"10.1016\/j.pec.2013.01.020","article-title":"Developing and administering scripted video vignettes for experimental research of patient-provider communication","volume":"91","author":"Hillen","year":"2013","journal-title":"Patient Educ Couns"},{"issue":"1","key":"10.1016\/j.pec.2024.108587_bib16","doi-asserted-by":"crossref","first-page":"56","DOI":"10.1016\/j.pec.2012.10.017","article-title":"How to create and administer scripted video-vignettes in an experimental study on disclosure of a palliative breast cancer diagnosis","volume":"91","author":"van Vliet","year":"2013","journal-title":"Patient Educ Couns"},{"issue":"11","key":"10.1016\/j.pec.2024.108587_bib17","doi-asserted-by":"crossref","first-page":"1528","DOI":"10.1007\/s11606-012-2111-8","article-title":"The validity of using analogue patients in practitioner-patient communication research: systematic review and meta-analysis","volume":"27","author":"van Vliet","year":"2012","journal-title":"J Gen Intern Med"},{"issue":"1","key":"10.1016\/j.pec.2024.108587_bib18","article-title":"Dutch brain research registry for study participant recruitment: design and first results","volume":"7","author":"Zwan","year":"2021","journal-title":"Alzheimers Dement"},{"key":"10.1016\/j.pec.2024.108587_bib19","first-page":"520","article-title":"Clinician-patient communication during the diagnostic workup: the ABIDE project","volume":"11","author":"Visser","year":"2019","journal-title":"Alzheimers Dement"},{"issue":"15","key":"10.1016\/j.pec.2024.108587_bib20","doi-asserted-by":"crossref","first-page":"2726","DOI":"10.1016\/j.ejca.2010.06.118","article-title":"An international validation study of the EORTC QLQ-INFO25 questionnaire: an instrument to assess the information given to cancer patients","volume":"46","author":"Arraras","year":"2010","journal-title":"Eur J Cancer"},{"issue":"1","key":"10.1016\/j.pec.2024.108587_bib21","doi-asserted-by":"crossref","first-page":"107","DOI":"10.1111\/j.1365-2648.2007.04569.x","article-title":"The qualitative content analysis process","volume":"62","author":"Elo","year":"2008","journal-title":"J Adv Nurs"},{"issue":"9","key":"10.1016\/j.pec.2024.108587_bib22","doi-asserted-by":"crossref","first-page":"1277","DOI":"10.1177\/1049732305276687","article-title":"Three approaches to qualitative content analysis","volume":"15","author":"Hsieh","year":"2005","journal-title":"Qual Health Res"},{"issue":"1","key":"10.1016\/j.pec.2024.108587_bib23","doi-asserted-by":"crossref","first-page":"42","DOI":"10.1177\/1744987117741667","article-title":"Directed qualitative content analysis: the description and elaboration of its underpinning methods and data analysis process","volume":"23","author":"Assarroudi","year":"2018","journal-title":"J Res Nurs"},{"key":"10.1016\/j.pec.2024.108587_bib24","doi-asserted-by":"crossref","first-page":"134","DOI":"10.1080\/10810730.2011.604383","article-title":"Applicability of internationally available health literacy measures in the Netherlands","volume":"16","author":"Fransen","year":"2011","journal-title":"J Health Commun"},{"issue":"5","key":"10.1016\/j.pec.2024.108587_bib25","doi-asserted-by":"crossref","first-page":"874","DOI":"10.2337\/dc07-1932","article-title":"Measuring functional, communicative, and critical health literacy among diabetic patients","volume":"31","author":"Ishikawa","year":"2008","journal-title":"Diabetes Care"},{"issue":"1","key":"10.1016\/j.pec.2024.108587_bib26","doi-asserted-by":"crossref","first-page":"21","DOI":"10.1016\/0191-8869(96)00029-3","article-title":"Coping with medical threat: an evaluation of the threatening medical situations inventory (TMSI)","volume":"21","author":"van Zuuren","year":"1996","journal-title":"Personal Individ Differ"},{"key":"10.1016\/j.pec.2024.108587_bib27","doi-asserted-by":"crossref","DOI":"10.1016\/j.pec.2023.108092","article-title":"What do we mean by \"tailoring\" of medical information during clinical interactions?","volume":"119","author":"Smets","year":"2024","journal-title":"Patient Educ Couns"},{"issue":"8","key":"10.1016\/j.pec.2024.108587_bib28","doi-asserted-by":"crossref","first-page":"785","DOI":"10.1037\/bul0000197","article-title":"What did you do yesterday? A meta-analysis of sex differences in episodic memory","volume":"145","author":"Asperholm","year":"2019","journal-title":"Psychol Bull"},{"issue":"2","key":"10.1016\/j.pec.2024.108587_bib29","doi-asserted-by":"crossref","first-page":"192","DOI":"10.1080\/09658210701204456","article-title":"Memory for emotional and neutral information: gender and individual differences in emotional sensitivity","volume":"15","author":"Bloise","year":"2007","journal-title":"Memory"},{"issue":"1","key":"10.1016\/j.pec.2024.108587_bib30","doi-asserted-by":"crossref","first-page":"2","DOI":"10.1207\/S15327957PSPR0601_1","article-title":"Sex differences in coping behavior: a meta-analytic review and an examination of relative coping","volume":"6","author":"Tamres","year":"2002","journal-title":"Personal Soc Psychol Rev"},{"issue":"2","key":"10.1016\/j.pec.2024.108587_bib31","doi-asserted-by":"crossref","first-page":"183","DOI":"10.1016\/j.nlm.2009.09.009","article-title":"Learning under stress impairs memory formation","volume":"93","author":"Schwabe","year":"2010","journal-title":"Neurobiol Learn Mem"},{"key":"10.1016\/j.pec.2024.108587_bib32","doi-asserted-by":"crossref","DOI":"10.1001\/jamainternmed.2021.4607","article-title":"Approval of aducanumab for Alzheimer disease-the FDA's perspective","author":"Dunn","year":"2021","journal-title":"JAMA Intern Med"},{"issue":"1","key":"10.1016\/j.pec.2024.108587_bib33","doi-asserted-by":"crossref","DOI":"10.1186\/s13195-019-0531-y","article-title":"ABIDE Delphi study: topics to discuss in diagnostic consultations in memory clinics","volume":"11","author":"Fruijtier","year":"2019","journal-title":"Alzheimers Res Ther"},{"issue":"_1","key":"10.1016\/j.pec.2024.108587_bib34","doi-asserted-by":"crossref","first-page":"S58","DOI":"10.1093\/geront\/gnx162","article-title":"Meeting the informational, educational, and psychosocial support needs of persons living with dementia and their family caregivers","volume":"58","author":"Whitlatch","year":"2018","journal-title":"Gerontologist"},{"issue":"3","key":"10.1016\/j.pec.2024.108587_bib35","first-page":"314","article-title":"Patients' and caregivers' views on conversations and shared decision making in diagnostic testing for Alzheimer's disease: the ABIDE project","volume":"3","author":"Kunneman","year":"2017","journal-title":"Alzheimers Dement"},{"issue":"1","key":"10.1016\/j.pec.2024.108587_bib36","article-title":"Identifying relevant outcomes in the progression of Alzheimer's disease; what do patients and care partners want to know about prognosis?","volume":"7","author":"Mank","year":"2021","journal-title":"Alzheimers Dement"},{"issue":"1","key":"10.1016\/j.pec.2024.108587_bib37","doi-asserted-by":"crossref","first-page":"170","DOI":"10.1186\/s13195-021-00840-5","article-title":"Dementia risk communication. A user manual for brain health services-part 3 of 6","volume":"13","author":"Visser","year":"2021","journal-title":"Alzheimers Res Ther"},{"issue":"4","key":"10.1016\/j.pec.2024.108587_bib38","doi-asserted-by":"crossref","first-page":"1025","DOI":"10.1111\/hex.13255","article-title":"A scoping review of practice recommendations for clinicians' communication of uncertainty","volume":"24","author":"Medendorp","year":"2021","journal-title":"Health Expect"},{"issue":"4","key":"10.1016\/j.pec.2024.108587_bib39","doi-asserted-by":"crossref","first-page":"535","DOI":"10.1016\/j.jalz.2018.02.018","article-title":"Contributors, NIA-AA research framework: toward a biological definition of Alzheimer's disease","volume":"14","author":"Jack","year":"2018","journal-title":"Alzheimer's Dement\u00a0J\u00a0Alzheimer' Assoc"},{"issue":"5","key":"10.1016\/j.pec.2024.108587_bib40","doi-asserted-by":"crossref","first-page":"663","DOI":"10.1007\/s00401-018-1918-8","article-title":"Questions concerning the role of amyloid-beta in the definition, aetiology and diagnosis of Alzheimer's disease","volume":"136","author":"Morris","year":"2018","journal-title":"Acta Neuropathol"},{"issue":"5","key":"10.1016\/j.pec.2024.108587_bib41","first-page":"219","article-title":"Patients' memory for medical information","volume":"96","author":"Kessels","year":"2003","journal-title":"J R Soc Med"},{"issue":"11","key":"10.1016\/j.pec.2024.108587_bib42","doi-asserted-by":"crossref","first-page":"1382","DOI":"10.1037\/hea0000097","article-title":"Reducing patients' anxiety and uncertainty, and improving recall in bad news consultations","volume":"33","author":"van Osch","year":"2014","journal-title":"Health Psychol"},{"issue":"5","key":"10.1016\/j.pec.2024.108587_bib43","doi-asserted-by":"crossref","first-page":"494","DOI":"10.1038\/s43587-023-00404-2","article-title":"Towards a future where Alzheimer's disease pathology is stopped before the onset of dementia","volume":"3","author":"van der Flier","year":"2023","journal-title":"Nat Aging"}],"container-title":["Patient Education and Counseling"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0738399124004543?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0738399124004543?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2026,5,11]],"date-time":"2026-05-11T22:58:40Z","timestamp":1778540320000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S0738399124004543"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,2]]},"references-count":43,"alternative-id":["S0738399124004543"],"URL":"https:\/\/doi.org\/10.1016\/j.pec.2024.108587","relation":{},"ISSN":["0738-3991"],"issn-type":[{"value":"0738-3991","type":"print"}],"subject":[],"published":{"date-parts":[[2025,2]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"The need for personalization when sharing results of amyloid imaging for Alzheimer\u2019s disease: Insights from a randomized experimental study","name":"articletitle","label":"Article Title"},{"value":"Patient Education and Counseling","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.pec.2024.108587","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2024 The Authors. Published by Elsevier B.V.","name":"copyright","label":"Copyright"}],"article-number":"108587"}}