{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,13]],"date-time":"2026-05-13T18:12:38Z","timestamp":1778695958910,"version":"3.51.4"},"reference-count":95,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2025,12,1]],"date-time":"2025-12-01T00:00:00Z","timestamp":1764547200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2025,12,1]],"date-time":"2025-12-01T00:00:00Z","timestamp":1764547200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2025,8,28]],"date-time":"2025-08-28T00:00:00Z","timestamp":1756339200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100001711","name":"Schweizerischer Nationalfonds zur F\u00f6rderung der Wissenschaftlichen Forschung","doi-asserted-by":"publisher","award":["10001C_200520"],"award-info":[{"award-number":["10001C_200520"]}],"id":[{"id":"10.13039\/501100001711","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","clinicalkey.es","clinicalkey.fr","clinicalkey.jp","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Patient Education and Counseling"],"published-print":{"date-parts":[[2025,12]]},"DOI":"10.1016\/j.pec.2025.109318","type":"journal-article","created":{"date-parts":[[2025,8,28]],"date-time":"2025-08-28T16:18:28Z","timestamp":1756397908000},"page":"109318","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":0,"special_numbering":"C","title":["Self-management decision-making in spinal cord injury after initial rehabilitation: A thematic narrative analysis"],"prefix":"10.1016","volume":"141","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-9466-3379","authenticated-orcid":false,"given":"Enxhi","family":"Qama","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1386-9915","authenticated-orcid":false,"given":"Nicola","family":"Diviani","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-0989-7999","authenticated-orcid":false,"given":"Clara","family":"H\u00e4fliger","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3389-0057","authenticated-orcid":false,"given":"Xavier","family":"Jordan","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3820-6664","authenticated-orcid":false,"given":"Anke","family":"Scheel-Sailer","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-3863-061X","authenticated-orcid":false,"given":"Claudia","family":"Zanini","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Sara","family":"Rubinelli","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"78","reference":[{"issue":"2","key":"10.1016\/j.pec.2025.109318_bib1","doi-asserted-by":"crossref","first-page":"123","DOI":"10.1038\/sc.2012.160","article-title":"International spinal cord injury data sets for non-traumatic spinal cord injury","volume":"52","author":"New","year":"2014","journal-title":"Spinal Cord"},{"issue":"4","key":"10.1016\/j.pec.2025.109318_bib2","first-page":"275","article-title":"Efficacy of Self-management among Community-Dwelling persons with spinal cord injury: a systematic review","volume":"24","author":"Begum","year":"2022","journal-title":"J Jpn Acad Health Sci"},{"issue":"3","key":"10.1016\/j.pec.2025.109318_bib3","doi-asserted-by":"crossref","first-page":"297","DOI":"10.1016\/j.pec.2010.01.016","article-title":"Effectiveness of self-management interventions on mortality, hospital readmissions, chronic heart failure hospitalization rate and quality of life in patients with chronic heart failure: a systematic review","volume":"78","author":"Ditewig","year":"2010","journal-title":"Patient Educ Couns"},{"issue":"3","key":"10.1016\/j.pec.2025.109318_bib4","first-page":"255","article-title":"Delineation of self-care and associated concepts","volume":"43","author":"Richard","year":"2011","journal-title":"J Nurs Scholarsh"},{"issue":"1","key":"10.1016\/j.pec.2025.109318_bib5","doi-asserted-by":"crossref","first-page":"12","DOI":"10.1038\/s41394-018-0042-2","article-title":"Stigma and self-management: an interpretative phenomenological analysis of the impact of chronic recurrent urinary tract infections after spinal cord injury","volume":"4","author":"Hearn","year":"2018","journal-title":"Spinal Cord Ser Cases"},{"issue":"21","key":"10.1016\/j.pec.2025.109318_bib6","doi-asserted-by":"crossref","first-page":"6401","DOI":"10.1080\/09638288.2021.1966678","article-title":"The usual bowel care regimes of people living in the community with spinal cord injury and factors important for integrating bowel care into everyday life","volume":"44","author":"Pryor","year":"2022","journal-title":"Disabil Rehabil"},{"issue":"4","key":"10.1016\/j.pec.2025.109318_bib7","doi-asserted-by":"crossref","first-page":"324","DOI":"10.1016\/j.jtv.2020.07.002","article-title":"What pressure ulcers mean to me?\u201d representations of pressure ulcer in persons with spinal cord injury: a qualitative study","volume":"29","author":"Gourlan","year":"2020","journal-title":"J Tissue Viability"},{"issue":"2","key":"10.1016\/j.pec.2025.109318_bib8","doi-asserted-by":"crossref","first-page":"247","DOI":"10.1080\/10790268.2018.1543094","article-title":"Engaging in the prevention of pressure injuries in spinal cord injury: a qualitative study of community-dwelling individuals\u2019 different styles of prevention in Switzerland","volume":"43","author":"Zanini","year":"2020","journal-title":"J Spinal Cord Med"},{"issue":"12","key":"10.1016\/j.pec.2025.109318_bib9","doi-asserted-by":"crossref","first-page":"991","DOI":"10.1177\/1545968317736819","article-title":"Effectiveness of a self-management intervention to promote an active lifestyle in persons with long-term spinal cord injury: the HABITS randomized clinical trial","volume":"31","author":"Kooijmans","year":"2017","journal-title":"Neurorehabilitation Neural Repair"},{"issue":"3","key":"10.1016\/j.pec.2025.109318_bib10","doi-asserted-by":"crossref","DOI":"10.2196\/12507","article-title":"A web-based physical activity portal for individuals living with a spinal cord injury: qualitative study","volume":"3","author":"Pancer","year":"2019","journal-title":"JMIR Form Res"},{"issue":"1","key":"10.1016\/j.pec.2025.109318_bib11","doi-asserted-by":"crossref","first-page":"41","DOI":"10.1111\/j.1752-9824.2010.01078.x","article-title":"A model of integration of illness and self-management in type 2 diabetes","volume":"3","author":"H\u00f6rnsten","year":"2011","journal-title":"J Nurs Healthc Chronic Illn"},{"key":"10.1016\/j.pec.2025.109318_bib12","unstructured":"Jutterstr\u00f6m L. Illness integration, self-management and patient-centred support in type 2 diabetes: Ume\u00e5 universitet; 2013."},{"issue":"1","key":"10.1016\/j.pec.2025.109318_bib13","doi-asserted-by":"crossref","first-page":"50","DOI":"10.1016\/j.jtv.2023.11.009","article-title":"I am just trying to live a life!\u201d \u2013a qualitative study of the lived experience of pressure ulcers in people with spinal cord injuries","volume":"33","author":"Soegaard","year":"2024","journal-title":"J Tissue Viability"},{"issue":"12","key":"10.1016\/j.pec.2025.109318_bib14","doi-asserted-by":"crossref","DOI":"10.1136\/bmjopen-2022-066647","article-title":"Factors influencing the integration of self-management in daily life routines in chronic conditions: a scoping review of qualitative evidence","volume":"12","author":"Qama","year":"2022","journal-title":"BMJ Open"},{"issue":"4","key":"10.1016\/j.pec.2025.109318_bib15","doi-asserted-by":"crossref","first-page":"794","DOI":"10.1016\/j.jtv.2022.07.002","article-title":"Lessons learned from patients with spinal cord injury in managing pressure ulcers: a qualitative study","volume":"31","author":"Gaal","year":"2022","journal-title":"J Tissue Viability"},{"issue":"4","key":"10.1016\/j.pec.2025.109318_bib16","doi-asserted-by":"crossref","first-page":"277","DOI":"10.1310\/sci2004-277","article-title":"An exploratory analysis of the potential association between SCI secondary health conditions and daily activities","volume":"20","author":"Cobb","year":"2014","journal-title":"Top Spinal Cord Inj Rehabil"},{"issue":"4","key":"10.1016\/j.pec.2025.109318_bib17","doi-asserted-by":"crossref","first-page":"419","DOI":"10.1038\/s41393-020-00576-3","article-title":"Detecting subgroups in social participation among individuals living with spinal cord injury: a longitudinal analysis of community survey data","volume":"59","author":"Gross-Hemmi","year":"2021","journal-title":"Spinal Cord"},{"issue":"3","key":"10.1016\/j.pec.2025.109318_bib18","doi-asserted-by":"crossref","first-page":"336","DOI":"10.1038\/s41393-020-00608-y","article-title":"Exploring the contextual transition from spinal cord injury rehabilitation to the home environment: a qualitative study","volume":"59","author":"Weber","year":"2021","journal-title":"Spinal Cord"},{"issue":"4","key":"10.1016\/j.pec.2025.109318_bib19","doi-asserted-by":"crossref","first-page":"807","DOI":"10.1111\/bjhp.12143","article-title":"Adjustment following chronic spinal cord injury: determining factors that contribute to social participation","volume":"20","author":"Craig","year":"2015","journal-title":"Br J Health Psychol"},{"key":"10.1016\/j.pec.2025.109318_bib20","first-page":"117","article-title":"Theory of adjustment following severe neurological injury: evidence supporting the spinal cord injury adjustment model","volume":"29","author":"Craig","year":"2017","journal-title":"Horiz Neurosci Res"},{"issue":"4","key":"10.1016\/j.pec.2025.109318_bib21","doi-asserted-by":"crossref","first-page":"463","DOI":"10.1080\/13548506.2011.555769","article-title":"Difficulties adjusting to post-discharge life following a spinal cord injury: an interpretative phenomenological analysis","volume":"16","author":"Dickson","year":"2011","journal-title":"Psychol Health Med"},{"issue":"3","key":"10.1016\/j.pec.2025.109318_bib22","doi-asserted-by":"crossref","first-page":"190","DOI":"10.1016\/j.dhjo.2012.03.005","article-title":"Barriers for individuals with spinal cord injury returning to the community: a preliminary classification","volume":"5","author":"Silver","year":"2012","journal-title":"Disabil Health J"},{"issue":"1","key":"10.1016\/j.pec.2025.109318_bib23","doi-asserted-by":"crossref","first-page":"76","DOI":"10.3109\/09638288.2011.587089","article-title":"Life satisfaction in people with spinal cord injury during the first five years after discharge from inpatient rehabilitation","volume":"34","author":"Van Leeuwen","year":"2012","journal-title":"Disabil Rehabil"},{"issue":"2","key":"10.1016\/j.pec.2025.109318_bib24","doi-asserted-by":"crossref","first-page":"94","DOI":"10.1038\/sc.2011.116","article-title":"The role of social support and social skills in people with spinal cord injury\u2014a systematic review of the literature","volume":"50","author":"M\u00fcller","year":"2012","journal-title":"Spinal Cord"},{"issue":"3","key":"10.1016\/j.pec.2025.109318_bib25","doi-asserted-by":"crossref","first-page":"277","DOI":"10.1080\/17437199.2016.1151372","article-title":"Theoretical explanations for maintenance of behaviour change: a systematic review of behaviour theories","volume":"10","author":"Kwasnicka","year":"2016","journal-title":"Health Psychol Rev"},{"issue":"4","key":"10.1016\/j.pec.2025.109318_bib26","doi-asserted-by":"crossref","first-page":"565","DOI":"10.1002\/ejsp.258","article-title":"Action planning and coping planning for long-term lifestyle change: theory and assessment","volume":"35","author":"Sniehotta","year":"2005","journal-title":"Eur J Soc Psychol"},{"issue":"7","key":"10.1016\/j.pec.2025.109318_bib27","doi-asserted-by":"crossref","first-page":"522","DOI":"10.1038\/sc.2013.29","article-title":"A systematic review of risk factors for the development and recurrence of pressure ulcers in people with spinal cord injuries","volume":"51","author":"Marin","year":"2013","journal-title":"Spinal Cord"},{"issue":"4","key":"10.1016\/j.pec.2025.109318_bib28","doi-asserted-by":"crossref","first-page":"387","DOI":"10.1080\/10790268.2010.11689717","article-title":"The relationship of pressure ulcers, race, and socioeconomic conditions after spinal cord injury","volume":"33","author":"Saunders","year":"2010","journal-title":"J Spinal Cord Med"},{"issue":"1","key":"10.1016\/j.pec.2025.109318_bib29","doi-asserted-by":"crossref","first-page":"115","DOI":"10.1017\/S1930297500003223","article-title":"Decision-making styles and their associations with decision-making competencies and mental health","volume":"10","author":"Bavo\u013e\u00e1r","year":"2015","journal-title":"Judgm Decis Mak"},{"issue":"3","key":"10.1016\/j.pec.2025.109318_bib30","doi-asserted-by":"crossref","first-page":"744","DOI":"10.1016\/j.ijnurstu.2014.10.010","article-title":"Self-management priority setting and decision-making in adults with multimorbidity: a narrative review of literature","volume":"52","author":"Bratzke","year":"2015","journal-title":"Int J Nurs Stud"},{"issue":"1","key":"10.1016\/j.pec.2025.109318_bib31","doi-asserted-by":"crossref","first-page":"53","DOI":"10.5172\/conu.2012.42.1.53","article-title":"Decision-making processes for the self-management of persistent pain: a grounded theory study","volume":"42","author":"Fenwick","year":"2012","journal-title":"Contemp Nurse"},{"issue":"4","key":"10.1016\/j.pec.2025.109318_bib32","doi-asserted-by":"crossref","first-page":"297","DOI":"10.1016\/j.hrtlng.2018.03.013","article-title":"Heart failure self-management and normalizing symptoms: an exploration of decision making in the community","volume":"47","author":"Schumacher","year":"2018","journal-title":"Heart Lung"},{"issue":"2","key":"10.1016\/j.pec.2025.109318_bib33","doi-asserted-by":"crossref","first-page":"177","DOI":"10.1016\/S0738-3991(02)00032-0","article-title":"Self-management approaches for people with chronic conditions: a review","volume":"48","author":"Barlow","year":"2002","journal-title":"Patient Educ Couns"},{"issue":"1","key":"10.1016\/j.pec.2025.109318_bib34","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1207\/S15324796ABM2601_01","article-title":"Self-management education: history, definition, outcomes, and mechanisms","volume":"26","author":"Lorig","year":"2003","journal-title":"Ann Behav Med"},{"issue":"3","key":"10.1016\/j.pec.2025.109318_bib35","doi-asserted-by":"crossref","first-page":"335","DOI":"10.1046\/j.1365-2648.2001.01850.x","article-title":"Critical analysis of everyday self-care decision making in chronic illness","volume":"35","author":"Paterson","year":"2001","journal-title":"J Adv Nurs"},{"issue":"6","key":"10.1016\/j.pec.2025.109318_bib36","doi-asserted-by":"crossref","first-page":"741","DOI":"10.1177\/0272989X16638330","article-title":"Self-management skills in chronic disease management: what role does health literacy have?","volume":"36","author":"Mackey","year":"2016","journal-title":"Med Decis Mak"},{"issue":"5","key":"10.1016\/j.pec.2025.109318_bib37","doi-asserted-by":"crossref","first-page":"818","DOI":"10.1177\/0013164495055005017","article-title":"Decision-making style: the development and assessment of a new measure","volume":"55","author":"Scott","year":"1995","journal-title":"Educ Psychol Meas"},{"issue":"4","key":"10.1016\/j.pec.2025.109318_bib38","doi-asserted-by":"crossref","first-page":"931","DOI":"10.1016\/S0191-8869(03)00162-4","article-title":"Decision-making style: habit, style or both?","volume":"36","author":"Thunholm","year":"2004","journal-title":"Personal Individ Differ"},{"issue":"3","key":"10.1016\/j.pec.2025.109318_bib39","doi-asserted-by":"crossref","first-page":"424","DOI":"10.1016\/j.ahj.2007.04.058","article-title":"Cognitive influences on self-care decision making in persons with heart failure","volume":"154","author":"Dickson","year":"2007","journal-title":"Am Heart J"},{"issue":"4","key":"10.1016\/j.pec.2025.109318_bib40","doi-asserted-by":"crossref","first-page":"1249","DOI":"10.1007\/s10796-021-10125-9","article-title":"Design of an intelligent patient decision aid based on individual decision-making styles and information need preferences","volume":"24","author":"Motorny","year":"2022","journal-title":"Inf Syst Front"},{"issue":"7","key":"10.1016\/j.pec.2025.109318_bib41","doi-asserted-by":"crossref","first-page":"405","DOI":"10.1080\/09638280500192439","article-title":"Evaluation of patient education in spinal cord injury rehabilitation: knowledge, problem-solving and perceived importance","volume":"28","author":"May","year":"2006","journal-title":"Disabil Rehabil"},{"issue":"11","key":"10.1016\/j.pec.2025.109318_bib42","doi-asserted-by":"crossref","first-page":"1084","DOI":"10.3390\/healthcare12111084","article-title":"The changing prevalence of pressure injury among ontarians with SCI\/D at rehabilitation admission: opportunities for improvement","volume":"12","author":"Craven","year":"2024","journal-title":"Healthcare"},{"issue":"7","key":"10.1016\/j.pec.2025.109318_bib43","doi-asserted-by":"crossref","first-page":"618","DOI":"10.1038\/s41393-021-00704-7","article-title":"Prevalence of comorbidities and secondary health conditions among the Finnish population with spinal cord injury","volume":"60","author":"Tallqvist","year":"2022","journal-title":"Spinal Cord"},{"issue":"1","key":"10.1016\/j.pec.2025.109318_bib44","doi-asserted-by":"crossref","first-page":"84","DOI":"10.1038\/s41394-020-00334-w","article-title":"Mortality and secondary complications four years after traumatic spinal cord injury in Cape Town, South Africa","volume":"6","author":"Madasa","year":"2020","journal-title":"Spinal Cord Ser Cases"},{"issue":"4","key":"10.1016\/j.pec.2025.109318_bib45","doi-asserted-by":"crossref","first-page":"S87","DOI":"10.1016\/j.apmr.2012.10.037","article-title":"Rehospitalization in the first year of traumatic spinal cord injury after discharge from medical rehabilitation","volume":"94","author":"DeJong","year":"2013","journal-title":"Arch Phys Med Rehabil"},{"issue":"2","key":"10.1016\/j.pec.2025.109318_bib46","doi-asserted-by":"crossref","first-page":"235","DOI":"10.2340\/16501977-2060","article-title":"From the person's perspective: perceived problems in functioning among individuals with spinal cord injury in Switzerland","volume":"48","author":"Rubinelli","year":"2016","journal-title":"J Rehabil Med"},{"issue":"9","key":"10.1016\/j.pec.2025.109318_bib47","doi-asserted-by":"crossref","first-page":"1800","DOI":"10.1016\/j.apmr.2016.12.011","article-title":"Complications of spinal cord injury over the first year after discharge from inpatient rehabilitation","volume":"98","author":"Stillman","year":"2017","journal-title":"Arch Phys Med Rehabil"},{"issue":"5","key":"10.1016\/j.pec.2025.109318_bib48","doi-asserted-by":"crossref","first-page":"290","DOI":"10.1038\/s41393-023-00880-8","article-title":"Unplanned hospital admissions due to secondary health conditions after spinal cord injury: a population-based description of determinants of length of stay","volume":"61","author":"Jedrusik","year":"2023","journal-title":"Spinal Cord"},{"key":"10.1016\/j.pec.2025.109318_bib49","article-title":"Role of self-efficacy on functional limitations among persons with spinal cord injury","author":"Bhattarai","year":"2023","journal-title":"Chronic Illn"},{"issue":"2","key":"10.1016\/j.pec.2025.109318_bib50","doi-asserted-by":"crossref","first-page":"159","DOI":"10.1080\/14767430.2021.1894909","article-title":"A realist approach to thematic analysis: making sense of qualitative data through experiential, inferential and dispositional themes","volume":"20","author":"Wiltshire","year":"2021","journal-title":"J Crit Realism"},{"issue":"1","key":"10.1016\/j.pec.2025.109318_bib51","doi-asserted-by":"crossref","first-page":"3","DOI":"10.1037\/qup0000196","article-title":"Conceptual and design thinking for thematic analysis","volume":"9","author":"Braun","year":"2022","journal-title":"Qual Psychol"},{"issue":"4","key":"10.1016\/j.pec.2025.109318_bib52","doi-asserted-by":"crossref","first-page":"391","DOI":"10.1525\/maq.1990.4.4.02a00020","article-title":"A systematic approach for using qualitative methods in primary prevention research","volume":"4","author":"Willms","year":"1990","journal-title":"Med Anthropol Q"},{"issue":"9","key":"10.1016\/j.pec.2025.109318_bib53","doi-asserted-by":"crossref","first-page":"1245","DOI":"10.1097\/ACM.0000000000000388","article-title":"Standards for reporting qualitative research: a synthesis of recommendations","volume":"89","author":"O\u2019Brien","year":"2014","journal-title":"Acad Med"},{"issue":"11","key":"10.1016\/j.pec.2025.109318_bib54","doi-asserted-by":"crossref","first-page":"S5","DOI":"10.1097\/PHM.0b013e318230fd41","article-title":"Design of the Swiss spinal cord injury cohort study","volume":"90","author":"Post","year":"2011","journal-title":"Am J Phys Med Rehabil"},{"issue":"10","key":"10.1016\/j.pec.2025.109318_bib55","doi-asserted-by":"crossref","DOI":"10.1371\/journal.pone.0076305","article-title":"Are two interviews better than one? Eyewitness memory across repeated cognitive interviews","volume":"8","author":"Odinot","year":"2013","journal-title":"PloS One"},{"issue":"1","key":"10.1016\/j.pec.2025.109318_bib56","doi-asserted-by":"crossref","first-page":"42","DOI":"10.1186\/1748-5908-6-42","article-title":"The behaviour change wheel: a new method for characterising and designing behaviour change interventions","volume":"6","author":"Michie","year":"2011","journal-title":"Implement Sci"},{"key":"10.1016\/j.pec.2025.109318_bib57","series-title":"A Practical Guide on Behaviour Change Support for Self-Managing Chronic Disease","first-page":"11","article-title":"Concepts and theories in behaviour change to support chronic disease Self-Management","author":"Henriques","year":"2023"},{"key":"10.1016\/j.pec.2025.109318_bib58","doi-asserted-by":"crossref","first-page":"10","DOI":"10.21037\/mhealth-22-52","article-title":"Applying the behaviour change wheel to assess the theoretical underpinning of a novel smartphone application to increase physical activity in adults with spinal cord injuries","volume":"9","author":"Haley","year":"2023","journal-title":"Mhealth"},{"issue":"3","key":"10.1016\/j.pec.2025.109318_bib59","doi-asserted-by":"crossref","first-page":"261","DOI":"10.1177\/1474515120957292","article-title":"Applying the COM-B behaviour model to overcome barriers to heart failure self-care: a practical application of a conceptual framework for the development of complex interventions (ACHIEVE study)","volume":"20","author":"Whittal","year":"2020","journal-title":"Eur J Cardiovasc Nurs"},{"issue":"6","key":"10.1016\/j.pec.2025.109318_bib60","doi-asserted-by":"crossref","first-page":"665","DOI":"10.1038\/s41393-020-00555-8","article-title":"Enhancing participation while aging with spinal cord injury: applying behaviour change frameworks to develop intervention recommendations","volume":"59","author":"Giroux","year":"2021","journal-title":"Spinal Cord"},{"issue":"7","key":"10.1016\/j.pec.2025.109318_bib61","doi-asserted-by":"crossref","first-page":"664","DOI":"10.1038\/s41393-021-00743-0","article-title":"Barriers and facilitators to changing bowel care practices after spinal cord injury: a theoretical domains framework approach","volume":"60","author":"Lucci","year":"2022","journal-title":"Spinal Cord"},{"key":"10.1016\/j.pec.2025.109318_bib62","first-page":"1","article-title":"Definitions of recovery and reintegration across the first year: a qualitative study of perspectives of persons with spinal cord injury and caregivers","author":"Anderson","year":"2024","journal-title":"Spinal Cord"},{"key":"10.1016\/j.pec.2025.109318_bib63","doi-asserted-by":"crossref","DOI":"10.1016\/j.pec.2025.108763","article-title":"Approaches to self-management integration and influencing factors in everyday life after spinal cord injury: a qualitative narrative analysis","volume":"136","author":"Qama","year":"2025","journal-title":"Patient Educ Couns"},{"key":"10.1016\/j.pec.2025.109318_bib64","doi-asserted-by":"crossref","DOI":"10.1177\/1609406919874596","article-title":"Using zoom videoconferencing for qualitative data collection: perceptions and experiences of researchers and participants","volume":"18","author":"Archibald","year":"2019","journal-title":"Int J Qual Methods"},{"issue":"5","key":"10.1016\/j.pec.2025.109318_bib65","first-page":"1292","article-title":"Expanding qualitative research interviewing strategies: zoom video communications","volume":"25","author":"Gray","year":"2020","journal-title":"Qual Rep"},{"issue":"1","key":"10.1016\/j.pec.2025.109318_bib66","doi-asserted-by":"crossref","first-page":"37","DOI":"10.1002\/capr.12360","article-title":"Can I use TA? Should I use TA? Should I not use TA? Comparing reflexive thematic analysis and other pattern-based qualitative analytic approaches","volume":"21","author":"Braun","year":"2021","journal-title":"Couns Psychother Res"},{"issue":"3","key":"10.1016\/j.pec.2025.109318_bib67","doi-asserted-by":"crossref","first-page":"1391","DOI":"10.1007\/s11135-021-01182-y","article-title":"A worked example of braun and Clarke\u2019s approach to reflexive thematic analysis","volume":"56","author":"Byrne","year":"2022","journal-title":"Qual Quant"},{"issue":"4","key":"10.1016\/j.pec.2025.109318_bib68","doi-asserted-by":"crossref","first-page":"589","DOI":"10.1080\/2159676X.2019.1628806","article-title":"Reflecting on reflexive thematic analysis","volume":"11","author":"Braun","year":"2019","journal-title":"Qual Res Sport Exerc Health"},{"issue":"1","key":"10.1016\/j.pec.2025.109318_bib69","doi-asserted-by":"crossref","first-page":"10","DOI":"10.33546\/bnj.4","article-title":"Ensuring trustworthiness in qualitative research","volume":"1","author":"Gunawan","year":"2015","journal-title":"Belitung Nurs J"},{"key":"10.1016\/j.pec.2025.109318_bib70","doi-asserted-by":"crossref","first-page":"142","DOI":"10.1016\/j.socscimed.2015.11.007","article-title":"Quality of qualitative research in the health sciences: analysis of the common criteria present in 58 assessment guidelines by expert users","volume":"148","author":"Santiago-Delefosse","year":"2016","journal-title":"Soc Sci Med"},{"issue":"1","key":"10.1016\/j.pec.2025.109318_bib71","article-title":"Personal factors and health literacy as predictors of health decision-making styles among outpatients in a Nigerian tertiary health facility","volume":"1","author":"Fatunbi","year":"2022","journal-title":"NIGERIAN J BEHAVIOURAL Stud"},{"issue":"11","key":"10.1016\/j.pec.2025.109318_bib72","doi-asserted-by":"crossref","DOI":"10.2196\/15332","article-title":"A typology of patients based on decision-making styles: cross-sectional survey study","volume":"21","author":"FitzPatrick","year":"2019","journal-title":"J Med Internet Res"},{"issue":"3","key":"10.1016\/j.pec.2025.109318_bib73","doi-asserted-by":"crossref","first-page":"456","DOI":"10.1518\/001872008X288385","article-title":"Naturalistic decision making","volume":"50","author":"Klein","year":"2008","journal-title":"Hum Factors"},{"issue":"5-6","key":"10.1016\/j.pec.2025.109318_bib74","doi-asserted-by":"crossref","first-page":"917","DOI":"10.1111\/jocn.14151","article-title":"Decision-making in nursing practice: an integrative literature review","volume":"27","author":"Nibbelink","year":"2018","journal-title":"J Clin Nurs"},{"issue":"10","key":"10.1016\/j.pec.2025.109318_bib75","doi-asserted-by":"crossref","first-page":"1337","DOI":"10.1177\/1049732303258039","article-title":"The structure of everyday Self-Care decision making in chronic illness","volume":"13","author":"Thorne","year":"2003","journal-title":"Qual Health Res"},{"key":"10.1016\/j.pec.2025.109318_bib76","doi-asserted-by":"crossref","DOI":"10.1016\/j.ijnurstu.2023.104665","article-title":"Patterns of self-care decision-making and associated factors: a cross-sectional observational study","volume":"150","author":"Lee","year":"2024","journal-title":"Int J Nurs Stud"},{"issue":"3","key":"10.1016\/j.pec.2025.109318_bib77","doi-asserted-by":"crossref","first-page":"260","DOI":"10.1037\/bul0000027","article-title":"Thinking styles and decision making: a meta-analysis","volume":"142","author":"Phillips","year":"2016","journal-title":"Psychol Bull"},{"issue":"4","key":"10.1016\/j.pec.2025.109318_bib78","doi-asserted-by":"crossref","first-page":"413","DOI":"10.1111\/dme.12105","article-title":"Barriers to self-management of diabetes","volume":"30","author":"Ahola","year":"2013","journal-title":"Diabet Med"},{"issue":"2","key":"10.1016\/j.pec.2025.109318_bib79","doi-asserted-by":"crossref","first-page":"117","DOI":"10.1093\/fampra\/18.2.117","article-title":"Coping strategies in the self-management of chronic heart failure","volume":"18","author":"Buetow","year":"2001","journal-title":"Fam Pract"},{"issue":"5","key":"10.1016\/j.pec.2025.109318_bib80","doi-asserted-by":"crossref","first-page":"837","DOI":"10.1080\/10790268.2022.2095496","article-title":"Patients\u2019 experiences with goal setting during initial rehabilitation after newly acquired spinal cord injury: a pilot qualitative interview study","volume":"46","author":"Lampart","year":"2023","journal-title":"J Spinal Cord Med"},{"issue":"9","key":"10.1016\/j.pec.2025.109318_bib81","doi-asserted-by":"crossref","first-page":"949","DOI":"10.1038\/s41393-020-0485-8","article-title":"Experiences with and perspectives on goal setting in spinal cord injury rehabilitation: a systematic review of qualitative studies","volume":"58","author":"Maribo","year":"2020","journal-title":"Spinal Cord"},{"issue":"8","key":"10.1016\/j.pec.2025.109318_bib82","doi-asserted-by":"crossref","DOI":"10.1371\/journal.pone.0220116","article-title":"Helping patients help themselves: a systematic review of self-management support strategies in primary health care practice","volume":"14","author":"Dineen-Griffin","year":"2019","journal-title":"PloS One"},{"key":"10.1016\/j.pec.2025.109318_bib83","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1186\/s40359-021-00659-7","article-title":"Learning self-care skills after spinal cord injury: a qualitative study","volume":"9","author":"van Diemen","year":"2021","journal-title":"BMC Psychol"},{"issue":"3","key":"10.1016\/j.pec.2025.109318_bib84","doi-asserted-by":"crossref","first-page":"248","DOI":"10.1111\/j.1369-7625.2007.00441.x","article-title":"Do people want to be autonomous patients? Preferred roles in treatment decision-making in several patient populations","volume":"10","author":"Deber","year":"2007","journal-title":"Health Expect"},{"issue":"3","key":"10.1016\/j.pec.2025.109318_bib85","doi-asserted-by":"crossref","first-page":"270","DOI":"10.1080\/17437199.2013.813729","article-title":"How can self-efficacy be increased? Meta-analysis of dietary interventions","volume":"8","author":"Prestwich","year":"2014","journal-title":"Health Psychol Rev"},{"issue":"3","key":"10.1016\/j.pec.2025.109318_bib86","doi-asserted-by":"crossref","first-page":"175","DOI":"10.1097\/JCN.0b013e3181c71e8e","article-title":"Self-efficacy and educational interventions in heart failure: a review of the literature","volume":"25","author":"Yehle","year":"2010","journal-title":"J Cardiovasc Nurs"},{"key":"10.1016\/j.pec.2025.109318_bib87","article-title":"Patients as knowledge partners in the context of complex chronic conditions","author":"Hsu","year":"2024","journal-title":"Med Humanit"},{"issue":"4","key":"10.1016\/j.pec.2025.109318_bib88","doi-asserted-by":"crossref","DOI":"10.3399\/bjgpopen20X101086","article-title":"The role of chronic conditions in influencing symptom attribution and anticipated help-seeking for potential lung cancer symptoms: a vignette-based study","volume":"4","author":"Kaushal","year":"2020","journal-title":"Bjgp Open"},{"issue":"8","key":"10.1016\/j.pec.2025.109318_bib89","doi-asserted-by":"crossref","first-page":"1531","DOI":"10.1016\/j.pec.2020.02.024","article-title":"Information seeking behavior and perceived health literacy of family caregivers of persons living with a chronic condition. The case of spinal cord injury in Switzerland","volume":"103","author":"Diviani","year":"2020","journal-title":"Patient Educ Couns"},{"issue":"2526","key":"10.1016\/j.pec.2025.109318_bib90","doi-asserted-by":"crossref","DOI":"10.4414\/smw.2019.20086","article-title":"Challenges to building and maintaining partnership in the prevention and treatment of pressure injuries in spinal cord injury: a qualitative study of health professionals\u2019 views","volume":"149","author":"Zanini","year":"2019","journal-title":"Swiss Med Weekly"},{"issue":"6","key":"10.1016\/j.pec.2025.109318_bib91","doi-asserted-by":"crossref","first-page":"284","DOI":"10.4103\/jmedsci.jmedsci_203_23","article-title":"Debunking the dilemma: is cyberchondria truly a form of hypochondria?","volume":"44","author":"Charan","year":"2024","journal-title":"J Med Sci"},{"key":"10.1016\/j.pec.2025.109318_bib92","article-title":"Editors. Conversational agents for chronic disease self-management: a systematic review","author":"Griffin","year":"2021","journal-title":"AMIA Annu Symp Proc"},{"issue":"5","key":"10.1016\/j.pec.2025.109318_bib93","doi-asserted-by":"crossref","first-page":"676","DOI":"10.1080\/10790268.2019.1614343","article-title":"Implementing a self-management mobile app for spinal cord injury during inpatient rehabilitation and following community discharge: a feasibility study","volume":"43","author":"MacGillivray","year":"2020","journal-title":"J Spinal Cord Med"},{"issue":"1","key":"10.1016\/j.pec.2025.109318_bib94","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1146\/annurev.clinpsy.3.022806.091415","article-title":"Ecological momentary assessment","volume":"4","author":"Shiffman","year":"2008","journal-title":"Annu Rev Clin Psychol"},{"issue":"10","key":"10.1016\/j.pec.2025.109318_bib95","doi-asserted-by":"crossref","first-page":"1355","DOI":"10.1089\/neu.2004.21.1355","article-title":"A global perspective on spinal cord injury epidemiology","volume":"21","author":"Ackery","year":"2004","journal-title":"J Neurotrauma"}],"container-title":["Patient Education and Counseling"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0738399125006858?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0738399125006858?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2026,5,13]],"date-time":"2026-05-13T17:26:45Z","timestamp":1778693205000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S0738399125006858"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,12]]},"references-count":95,"alternative-id":["S0738399125006858"],"URL":"https:\/\/doi.org\/10.1016\/j.pec.2025.109318","relation":{},"ISSN":["0738-3991"],"issn-type":[{"value":"0738-3991","type":"print"}],"subject":[],"published":{"date-parts":[[2025,12]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Self-management decision-making in spinal cord injury after initial rehabilitation: A thematic narrative analysis","name":"articletitle","label":"Article Title"},{"value":"Patient Education and Counseling","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.pec.2025.109318","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2025 The Author(s). Published by Elsevier B.V.","name":"copyright","label":"Copyright"}],"article-number":"109318"}}