{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,17]],"date-time":"2026-08-17T19:38:57Z","timestamp":1786995537266,"version":"build-2736575974"},"reference-count":30,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2026,1,1]],"date-time":"2026-01-01T00:00:00Z","timestamp":1767225600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2026,1,1]],"date-time":"2026-01-01T00:00:00Z","timestamp":1767225600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2025,9,19]],"date-time":"2025-09-19T00:00:00Z","timestamp":1758240000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","clinicalkey.es","clinicalkey.fr","clinicalkey.jp","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Patient Education and Counseling"],"published-print":{"date-parts":[[2026,1]]},"DOI":"10.1016\/j.pec.2025.109355","type":"journal-article","created":{"date-parts":[[2025,9,22]],"date-time":"2025-09-22T22:53:35Z","timestamp":1758581615000},"page":"109355","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":1,"special_numbering":"C","title":["Do patients who underestimate their health decline rely more on doctors? Insights from patients in their last six months of life"],"prefix":"10.1016","volume":"142","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-3273-7993","authenticated-orcid":false,"given":"Cl\u00e9ment","family":"Meier","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8472-6989","authenticated-orcid":false,"given":"Ver\u00f3nica I.","family":"Veloso","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3135-2693","authenticated-orcid":false,"given":"Julia","family":"Strupp","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2206-246X","authenticated-orcid":false,"given":"Marisa","family":"Mart\u00edn-Rosell\u00f3","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2767-8017","authenticated-orcid":false,"given":"Pilar","family":"Barnestein-Fonseca","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ida","family":"Korfage","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5584-4305","authenticated-orcid":false,"given":"Agnes","family":"van der Heide","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2328-6032","authenticated-orcid":false,"given":"Vilma A.","family":"Tripodoro","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"key":"10.1016\/j.pec.2025.109355_bib1","doi-asserted-by":"crossref","first-page":"345","DOI":"10.1016\/S0140-6736(03)14019-6","article-title":"End-of-life decision-making in six european countries: descriptive study","volume":"362","author":"van der Heide","year":"2003","journal-title":"Lancet"},{"key":"10.1016\/j.pec.2025.109355_bib2","doi-asserted-by":"crossref","DOI":"10.4414\/smw.2016.14369","article-title":"Choosing wisely at the end of life: the crucial role of medical indication","volume":"146","author":"Borasio","year":"2016","journal-title":"Swiss Med Wkly"},{"key":"10.1016\/j.pec.2025.109355_bib3","article-title":"Meaning in life and quality of life: palliative care patients versus the general population","author":"Bernard","year":"2020","journal-title":"BMJ Support Palliat Care"},{"key":"10.1016\/j.pec.2025.109355_bib4","unstructured":"End-of-life care decision-making from perspectives of patients, family members and healthcare professionals in 10 countries: a qualitative study within the iLIVE project: Mortality: Vol 0, No 0 - Get Access n.d. \u3008https:\/\/www.tandfonline.com\/doi\/full\/10.1080\/13576275.2025.2449900?src=\u3009 (Accessed February 11, 2025)."},{"key":"10.1016\/j.pec.2025.109355_bib5","doi-asserted-by":"crossref","DOI":"10.1371\/journal.pone.0100435","article-title":"Patients\u2019 preferences for participation in treatment decision-making at the end of life: qualitative interviews with advanced cancer patients","volume":"9","author":"Brom","year":"2014","journal-title":"PloS One"},{"key":"10.1016\/j.pec.2025.109355_bib6","doi-asserted-by":"crossref","first-page":"1145","DOI":"10.1093\/annonc\/mdp534","article-title":"Preferred and actual participation roles during health care decision making in persons with cancer: a systematic review","volume":"21","author":"Tariman","year":"2010","journal-title":"Ann Oncol J Eur Soc Med Oncol"},{"key":"10.1016\/j.pec.2025.109355_bib7","doi-asserted-by":"crossref","first-page":"299","DOI":"10.1016\/j.ejon.2008.03.004","article-title":"Preferences for involvement in treatment decision making of patients with cancer: a review of the literature","volume":"12","author":"Hubbard","year":"2008","journal-title":"Eur J Oncol Nurs J Eur Oncol Nurs Soc"},{"key":"10.1016\/j.pec.2025.109355_bib8","doi-asserted-by":"crossref","first-page":"335","DOI":"10.1097\/00005650-200003000-00010","article-title":"Patient preferences for medical decision making: who really wants to participate?","volume":"38","author":"Arora","year":"2000","journal-title":"Med Care"},{"key":"10.1016\/j.pec.2025.109355_bib9","doi-asserted-by":"crossref","first-page":"1180","DOI":"10.1007\/s11606-022-07775-z","article-title":"Patients\u2019 preference for participation in medical Decision-Making: secondary analysis of the BEDSIDE-OUTSIDE trial","volume":"38","author":"Becker","year":"2023","journal-title":"J Gen Intern Med"},{"key":"10.1016\/j.pec.2025.109355_bib10","doi-asserted-by":"crossref","first-page":"S258","DOI":"10.1097\/PHH.0000000000001324","article-title":"Updating health literacy for healthy people 2030: defining its importance for a new decade in public health","volume":"27","author":"Santana","year":"2021","journal-title":"J Public Health Manag Pract"},{"key":"10.1016\/j.pec.2025.109355_bib11","series-title":"International Handbook of Health Literacy","article-title":"Research, practice and policy across the lifespan","author":"Okan","year":"2019"},{"key":"10.1016\/j.pec.2025.109355_bib12","series-title":"Committee on health literacy. Health literacy: a prescription to end confusion","author":"Institute of Medicine (US)","year":"2004"},{"key":"10.1016\/j.pec.2025.109355_bib13","doi-asserted-by":"crossref","first-page":"495","DOI":"10.1177\/1049909110398005","article-title":"Exploring uncertainty in advance care planning in African Americans: does low health literacy influence decision making preference at end of life","volume":"28","author":"Melhado","year":"2011","journal-title":"Am J Hosp Palliat Care"},{"key":"10.1016\/j.pec.2025.109355_bib14","article-title":"Advance care planning and health literacy in older dialysis patients: qualitative interview study","author":"O Riordan","year":"2021","journal-title":"BMJ Support Palliat Care"},{"key":"10.1016\/j.pec.2025.109355_bib15","doi-asserted-by":"crossref","first-page":"403","DOI":"10.1111\/jgs.12134","article-title":"Literacy and race as risk factors for low rates of advance directives in older adults","volume":"61","author":"Waite","year":"2013","journal-title":"J Am Geriatr Soc"},{"key":"10.1016\/j.pec.2025.109355_bib16","doi-asserted-by":"crossref","DOI":"10.1136\/bmjopen-2021-057229","article-title":"Live well, die well \u2013 an international cohort study on experiences, concerns and preferences of patients in the last phase of life: the research protocol of the iLIVE study","volume":"12","author":"Yildiz","year":"2022","journal-title":"BMJ Open"},{"key":"10.1016\/j.pec.2025.109355_bib17","doi-asserted-by":"crossref","DOI":"10.1371\/journal.pone.0317002","article-title":"Recruitment, follow-up and survival in an 11-country cohort study of patients at the end of life and their relatives","volume":"20","author":"Schelin","year":"2025","journal-title":"PloS One"},{"key":"10.1016\/j.pec.2025.109355_bib18","doi-asserted-by":"crossref","first-page":"285","DOI":"10.1136\/bmjspcare-2013-000488","article-title":"Development and evaluation of the supportive and palliative care indicators tool (SPICT): a mixed-methods study","volume":"4","author":"Highet","year":"2014","journal-title":"BMJ Support Palliat Care"},{"key":"10.1016\/j.pec.2025.109355_bib19","doi-asserted-by":"crossref","first-page":"397","DOI":"10.1191\/0269216305pm1036oa","article-title":"The development of a questionnaire to assess the attitudes of older people to end-of-life issues (AEOLI)","volume":"19","author":"Catt","year":"2005","journal-title":"Palliat Med"},{"key":"10.1016\/j.pec.2025.109355_bib20","article-title":"Knowledge gaps in End-of-Life care and planning options among older adults in Switzerland","volume":"0","author":"Vilpert","year":"2022","journal-title":"Int J Public Health"},{"key":"10.1016\/j.pec.2025.109355_bib21","doi-asserted-by":"crossref","DOI":"10.1136\/bmjph-2023-000600","article-title":"End-of-life health literacy, knowledge and behaviours towards advance care planning among older adults: cross-sectional evidence from Switzerland","volume":"2","author":"Meier","year":"2024","journal-title":"BMJ Public Health"},{"key":"10.1016\/j.pec.2025.109355_bib22","doi-asserted-by":"crossref","first-page":"754","DOI":"10.1089\/jpm.2007.0224","article-title":"Health literacy not race predicts end-of-life care preferences","volume":"11","author":"Volandes","year":"2008","journal-title":"J Palliat Med"},{"key":"10.1016\/j.pec.2025.109355_bib23","doi-asserted-by":"crossref","first-page":"e724","DOI":"10.1111\/hsc.12791","article-title":"The impact of health literacy on knowledge, attitude and decision towards hospice care among community-dwelling seniors","volume":"27","author":"Huang","year":"2019","journal-title":"Health Soc Care Community"},{"key":"10.1016\/j.pec.2025.109355_bib24","doi-asserted-by":"crossref","first-page":"2151","DOI":"10.1111\/jgs.16129","article-title":"Health literacy matters more than experience for advance care planning knowledge among older adults","volume":"67","author":"Nouri","year":"2019","journal-title":"J Am Geriatr Soc"},{"key":"10.1016\/j.pec.2025.109355_bib25","doi-asserted-by":"crossref","first-page":"290","DOI":"10.1093\/geront\/gnw267","article-title":"\u201cEnd-of-Life care? I\u2019m Not going to worry about that Yet.\u201d health literacy gaps and End-of-Life planning among elderly dialysis patients","volume":"58","author":"Ladin","year":"2018","journal-title":"Gerontologist"},{"key":"10.1016\/j.pec.2025.109355_bib26","doi-asserted-by":"crossref","DOI":"10.1136\/bmjopen-2019-035988","article-title":"Improving regional care in the last year of life by setting up a pragmatic evidence-based Plan-Do-Study-Act cycle: results from a cross-sectional survey","volume":"10","author":"Voltz","year":"2020","journal-title":"BMJ Open"},{"key":"10.1016\/j.pec.2025.109355_bib27","article-title":"\u201cSomeone must do it\u201d: multiple views on family\u2019s role in end-of-life care - an international qualitative study","volume":"18","author":"Tripodoro","year":"2024","journal-title":"Palliat Care Soc Pract"},{"key":"10.1016\/j.pec.2025.109355_bib28","first-page":"284","article-title":"Use and effectiveness of the Teach-Back method in patient education and health outcomes","volume":"36","author":"Yen","year":"2019","journal-title":"Fed Pract"},{"key":"10.1016\/j.pec.2025.109355_bib29","doi-asserted-by":"crossref","first-page":"801","DOI":"10.1001\/jamaoncol.2019.0292","article-title":"Evaluating an intervention to improve communication between oncology clinicians and patients with Life-Limiting cancer: a cluster randomized clinical trial of the serious illness care program","volume":"5","author":"Paladino","year":"2019","journal-title":"JAMA Oncol"},{"key":"10.1016\/j.pec.2025.109355_bib30","doi-asserted-by":"crossref","first-page":"3631","DOI":"10.1002\/cncr.33676","article-title":"The PREPARE for your care program increases advance care planning engagement among diverse older adults with cancer","volume":"127","author":"Nouri","year":"2021","journal-title":"Cancer"}],"container-title":["Patient Education and Counseling"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0738399125007220?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0738399125007220?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2025,12,6]],"date-time":"2025-12-06T21:14:22Z","timestamp":1765055662000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S0738399125007220"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,1]]},"references-count":30,"alternative-id":["S0738399125007220"],"URL":"https:\/\/doi.org\/10.1016\/j.pec.2025.109355","relation":{},"ISSN":["0738-3991"],"issn-type":[{"value":"0738-3991","type":"print"}],"subject":[],"published":{"date-parts":[[2026,1]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Do patients who underestimate their health decline rely more on doctors? Insights from patients in their last six months of life","name":"articletitle","label":"Article Title"},{"value":"Patient Education and Counseling","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.pec.2025.109355","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2025 The Authors. Published by Elsevier B.V.","name":"copyright","label":"Copyright"}],"article-number":"109355"}}