{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,6,25]],"date-time":"2026-06-25T21:45:54Z","timestamp":1782423954913,"version":"3.54.5"},"reference-count":42,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2026,8,1]],"date-time":"2026-08-01T00:00:00Z","timestamp":1785542400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2026,8,1]],"date-time":"2026-08-01T00:00:00Z","timestamp":1785542400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2026,4,20]],"date-time":"2026-04-20T00:00:00Z","timestamp":1776643200000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/100014653","name":"NIHR Manchester Biomedical Research Centre","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100014653","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100000272","name":"National Institute for Health and Care Research","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100000272","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100013342","name":"NIHR Imperial Biomedical Research Centre","doi-asserted-by":"publisher","award":["NIHR203308"],"award-info":[{"award-number":["NIHR203308"]}],"id":[{"id":"10.13039\/501100013342","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","clinicalkey.es","clinicalkey.fr","clinicalkey.jp","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Patient Education and Counseling"],"published-print":{"date-parts":[[2026,8]]},"DOI":"10.1016\/j.pec.2026.109644","type":"journal-article","created":{"date-parts":[[2026,4,19]],"date-time":"2026-04-19T22:20:48Z","timestamp":1776637248000},"page":"109644","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":0,"special_numbering":"C","title":["Exploring the barriers and facilitators to accessing and engaging with information resources about rheumatoid arthritis (RA) by ethnic minority or non-native patients: A systematic review and thematic synthesis"],"prefix":"10.1016","volume":"149","author":[{"ORCID":"https:\/\/orcid.org\/0009-0004-5109-2571","authenticated-orcid":false,"given":"Rabia","family":"Keerio","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Joseph","family":"Rawlinson-Smith","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rebecca","family":"Lee","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nasimah","family":"Maricar","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anne","family":"Barton","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jenny","family":"H Humphreys","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"issue":"10416","key":"10.1016\/j.pec.2026.109644_bib1","doi-asserted-by":"crossref","first-page":"2019","DOI":"10.1016\/S0140-6736(23)01525-8","article-title":"Rheumatoid arthritis","volume":"402","author":"Di Matteo","year":"2023","journal-title":"Lancet"},{"issue":"1","key":"10.1016\/j.pec.2026.109644_bib2","doi-asserted-by":"crossref","DOI":"10.1038\/s41413-018-0016-9","article-title":"Rheumatoid arthritis: pathological mechanisms and modern pharmacologic therapies","volume":"6","author":"Guo","year":"2018","journal-title":"Bone Res"},{"issue":"10","key":"10.1016\/j.pec.2026.109644_bib3","first-page":"591","article-title":"Global epidemiology of rheumatoid arthritis","volume":"18","author":"Finckh","year":"2022","journal-title":"Nat Rev Rheuma"},{"key":"10.1016\/j.pec.2026.109644_bib4","series-title":"Rheumatic Disease in Geriatrics: Diagnosis and Management","first-page":"173","article-title":"Rheumatoid Arthritis","author":"Slobodin","year":"2020"},{"issue":"12","key":"10.1016\/j.pec.2026.109644_bib5","doi-asserted-by":"crossref","first-page":"1089","DOI":"10.1016\/j.amjmed.2013.09.002","article-title":"Racial and ethnic disparities in disease activity in patients with rheumatoid arthritis","volume":"126","author":"Greenberg","year":"2013","journal-title":"Am J Med"},{"issue":"4","key":"10.1016\/j.pec.2026.109644_bib6","doi-asserted-by":"crossref","first-page":"181","DOI":"10.1002\/acr2.11532","article-title":"Geographic variation in disease burden and mismatch in care of patients with rheumatoid arthritis in the United States","volume":"5","author":"Dowell","year":"2023","journal-title":"ACR Open Rheuma"},{"key":"10.1016\/j.pec.2026.109644_bib7","doi-asserted-by":"crossref","DOI":"10.1016\/j.ijnurstu.2020.103752","article-title":"Effectiveness of a self-management program for joint protection and physical activity in patients with rheumatoid arthritis: a randomized controlled trial","volume":"116","author":"Shao","year":"2021","journal-title":"Int J Nurs Stud"},{"issue":"2","key":"10.1016\/j.pec.2026.109644_bib8","doi-asserted-by":"crossref","first-page":"177","DOI":"10.1016\/S0738-3991(02)00032-0","article-title":"Self-management approaches for people with chronic conditions: a review","volume":"48","author":"Barlow","year":"2002","journal-title":"Patient Educ Couns"},{"key":"10.1016\/j.pec.2026.109644_bib9","doi-asserted-by":"crossref","DOI":"10.1016\/j.semarthrit.2023.152203","article-title":"Self-management support needs of patients with inflammatory arthritis and the content of self-management interventions: a scoping review","volume":"60","author":"Damgaard","year":"2023","journal-title":"Semin Arthritis Rheum"},{"key":"10.1016\/j.pec.2026.109644_bib10","article-title":"EULAR points to consider for patient education in physical activity and self-management of pain during transitional care","author":"Courel-Ib\u00e1\u00f1ez","year":"2024","journal-title":"Ann Rheum Dis"},{"issue":"6","key":"10.1016\/j.pec.2026.109644_bib11","doi-asserted-by":"crossref","first-page":"954","DOI":"10.1136\/annrheumdis-2014-206807","article-title":"EULAR recommendations for patient education for people with inflammatory arthritis","volume":"74","author":"Zangi","year":"2015","journal-title":"Ann Rheum Dis"},{"issue":"7","key":"10.1016\/j.pec.2026.109644_bib12","first-page":"1475","article-title":"Health status disparities in ethnic minority patients with rheumatoid arthritis: a cross-sectional study","volume":"34","author":"Bruce","year":"2007","journal-title":"J Rheumatol"},{"issue":"3","key":"10.1016\/j.pec.2026.109644_bib13","doi-asserted-by":"crossref","first-page":"350","DOI":"10.1097\/MLR.0b013e31818af829","article-title":"Racial disparities in treatment preferences for rheumatoid arthritis","volume":"47","author":"Constantinescu","year":"2009","journal-title":"Med Care"},{"key":"10.1016\/j.pec.2026.109644_bib14","doi-asserted-by":"crossref","DOI":"10.1177\/1759720X221137127","article-title":"Health disparities in rheumatoid arthritis","volume":"14","author":"Ciofoaia","year":"2022","journal-title":"Ther Adv Musculoskelet Dis"},{"issue":"2","key":"10.1016\/j.pec.2026.109644_bib15","doi-asserted-by":"crossref","first-page":"117","DOI":"10.1097\/BOR.0000000000000782","article-title":"Racial, ethnic, and healthcare disparities in rheumatoid arthritis","volume":"33","author":"Yip","year":"2021","journal-title":"Curr Opin Rheuma"},{"issue":"4","key":"10.1016\/j.pec.2026.109644_bib16","doi-asserted-by":"crossref","first-page":"470","DOI":"10.1002\/acr.25278","article-title":"Rheumatoid arthritis care experiences of black people living in Canada: a qualitative study to inform health service improvements","volume":"76","author":"Thomas","year":"2024","journal-title":"Arthritis Care Res (Hoboken)"},{"issue":"8","key":"10.1016\/j.pec.2026.109644_bib17","article-title":"Advancing the future of equitable access to health care: recommendations from international health care leaders","volume":"2","author":"Boyer","year":"2024","journal-title":"Health Aff Sch"},{"issue":"1","key":"10.1016\/j.pec.2026.109644_bib18","doi-asserted-by":"crossref","first-page":"159","DOI":"10.1186\/s13075-017-1366-1","article-title":"Factors associated with initial or subsequent choice of biologic disease-modifying antirheumatic drugs for treatment of rheumatoid arthritis","volume":"19","author":"Jin","year":"2017","journal-title":"Arthritis Res & Ther"},{"issue":"2","key":"10.1016\/j.pec.2026.109644_bib19","doi-asserted-by":"crossref","first-page":"184","DOI":"10.1002\/acr.20674","article-title":"Use of disease-modifying medications for rheumatoid arthritis by race and ethnicity in the National Ambulatory Medical Care Survey","volume":"64","author":"Solomon","year":"2012","journal-title":"Arthritis Care Res (Hoboken)"},{"key":"10.1016\/j.pec.2026.109644_bib20","unstructured":"Critical Appraisal Skills Programme (2024). CASP (Qualitative Studies) Checklist.. [cited 2024 2\/12\/2024]; Available from: \u3008https:\/\/casp-uk.net\/casp-tools-checklists\/qualitative-studies-checklist\/\u3009."},{"issue":"1","key":"10.1016\/j.pec.2026.109644_bib21","first-page":"31","article-title":"Optimising the value of the critical appraisal skills programme (CASP) tool for quality appraisal in qualitative evidence synthesis","volume":"1","author":"Long","year":"2020","journal-title":"Res Methods Med & Health Sci"},{"key":"10.1016\/j.pec.2026.109644_bib22","doi-asserted-by":"crossref","first-page":"45","DOI":"10.1186\/1471-2288-8-45","article-title":"Methods for the thematic synthesis of qualitative research in systematic reviews","volume":"8","author":"Thomas","year":"2008","journal-title":"BMC Med Res Method"},{"issue":"1","key":"10.1016\/j.pec.2026.109644_bib23","doi-asserted-by":"crossref","first-page":"11","DOI":"10.1002\/msc.191","article-title":"Breaking communication barriers for RA patients of South Asian origin: the use of a bilingual educational audio CD and linguistically appropriate peer support and education","volume":"9","author":"Kumar","year":"2011","journal-title":"Musculoskelet Care"},{"issue":"1","key":"10.1016\/j.pec.2026.109644_bib24","first-page":"rkaa009","article-title":"Comparing reactions to written leaflets, online information and real-time Doppler images among South Asian patients with rheumatoid arthritis","volume":"4","author":"Kumar","year":"2020","journal-title":"Rheuma Adv Pr"},{"issue":"2","key":"10.1016\/j.pec.2026.109644_bib25","first-page":"rkz017","article-title":"Experiences of South Asian patients in early inflammatory arthritis clinic: a qualitative interview study","volume":"3","author":"Kumar","year":"2019","journal-title":"Rheuma Adv Pr"},{"issue":"8","key":"10.1016\/j.pec.2026.109644_bib26","doi-asserted-by":"crossref","first-page":"837","DOI":"10.1177\/0961203311398512","article-title":"It's like taking poison to kill poison but I have to get better': a qualitative study of beliefs about medicines in Rheumatoid arthritis and Systemic lupus erythematosus patients of South Asian origin","volume":"20","author":"Kumar","year":"2011","journal-title":"Lupus"},{"key":"10.1016\/j.pec.2026.109644_bib27","doi-asserted-by":"crossref","first-page":"489","DOI":"10.2147\/PPA.S153741","article-title":"UK-South Asian patients' experiences of and satisfaction toward receiving information about biologics in rheumatoid arthritis","volume":"12","author":"Kumar","year":"2018","journal-title":"Patient Prefer Adherence"},{"issue":"4","key":"10.1016\/j.pec.2026.109644_bib28","doi-asserted-by":"crossref","first-page":"544","DOI":"10.1002\/acr.23869","article-title":"Qualitative study of treatment preferences for rheumatoid arthritis and pharmacotherapy acceptance: indigenous patient perspectives","volume":"72","author":"Loyola-Sanchez","year":"2020","journal-title":"Arthritis care & Res"},{"issue":"5","key":"10.1016\/j.pec.2026.109644_bib29","doi-asserted-by":"crossref","first-page":"795","DOI":"10.1177\/10547738211037467","article-title":"It is like a puppet show-experiences of rheumatoid arthritis among adult Chinese: a qualitative study","volume":"31","author":"Chen","year":"2022","journal-title":"Clin Nurs Res"},{"key":"10.1016\/j.pec.2026.109644_bib30","doi-asserted-by":"crossref","unstructured":"Pandey, M., Maina, R.Geoffrey, Amoyaw, Jonathan, Li, Yiyan, Kamrul, Rejina, Michaels, C.Rocha, Maroof, Razawa, Pandey, Mamata, Maina, R.Geoffrey, Amoyaw, Jonathan, Li, Yiyan, Kamrul, Rejina, Michaels, C.Rocha, Maroof, Razawa, Impacts of English language proficiency on healthcare access, use, and outcomes among immigrants: a qualitative study. 2021-07-26.","DOI":"10.21203\/rs.3.rs-291909\/v1"},{"key":"10.1016\/j.pec.2026.109644_bib31","doi-asserted-by":"crossref","unstructured":"Hilal Al Shamsi, A.G.A, Sulaiman Al Mashrafi, Talib Al Kalbani, Implications of Language Barriers for Healthcare: A Systematic Review. 2020 Apr 30.","DOI":"10.5001\/omj.2020.40"},{"issue":"4","key":"10.1016\/j.pec.2026.109644_bib32","doi-asserted-by":"crossref","first-page":"204","DOI":"10.1002\/msc.185","article-title":"Self-management strategies used during flares of rheumatoid arthritis in an ethnically diverse population","volume":"8","author":"Kett","year":"2010","journal-title":"Musculoskelet Care"},{"issue":"1","key":"10.1016\/j.pec.2026.109644_bib33","doi-asserted-by":"crossref","DOI":"10.1080\/17482631.2022.2075531","article-title":"Getting shut down and shut out': exploring ACB patient perceptions on healthcare access at the physician-patient level in Canada","volume":"17","author":"Fante-Coleman","year":"2022","journal-title":"Int J Qual Stud Health Well-being"},{"key":"10.1016\/j.pec.2026.109644_bib34","doi-asserted-by":"crossref","DOI":"10.1016\/j.pec.2024.108233","article-title":"Evaluating a conceptual framework for quality assessment of medical interpretation","volume":"123","author":"Hamai","year":"2024","journal-title":"Patient Educ Couns"},{"issue":"4","key":"10.1016\/j.pec.2026.109644_bib35","doi-asserted-by":"crossref","first-page":"356","DOI":"10.1097\/01.mlr.0000156861.58905.96","article-title":"Cultural competence: a systematic review of health care provider educational interventions","volume":"43","author":"Beach","year":"2005","journal-title":"Med Care"},{"issue":"5","key":"10.1016\/j.pec.2026.109644_bib36","doi-asserted-by":"crossref","first-page":"1352","DOI":"10.1093\/rheumatology\/kead383","article-title":"Development and testing of a bespoke cultural intervention to support healthcare professionals with patients from a diverse background","volume":"63","author":"Deshmukh","year":"2023","journal-title":"Rheumatology"},{"issue":"1","key":"10.1016\/j.pec.2026.109644_bib37","doi-asserted-by":"crossref","DOI":"10.1136\/bmjopen-2018-028061","article-title":"A study of the nature and level of trust between patients and healthcare providers, its dimensions and determinants: a scoping review protocol","volume":"10","author":"Rasiah","year":"2020","journal-title":"BMJ Open"},{"issue":"6","key":"10.1016\/j.pec.2026.109644_bib38","doi-asserted-by":"crossref","first-page":"616","DOI":"10.1080\/10410236.2012.710873","article-title":"Patient trust in physicians and shared decision-making among african-americans with diabetes","volume":"28","author":"Peek","year":"2013","journal-title":"Health Commun"},{"issue":"3","key":"10.1016\/j.pec.2026.109644_bib39","doi-asserted-by":"crossref","DOI":"10.1002\/14651858.CD004134.pub2","article-title":"Interventions for improving patients' trust in doctors and groups of doctors","author":"McKinstry","year":"2006","journal-title":"Cochrane Database Syst Rev"},{"key":"10.1016\/j.pec.2026.109644_bib40","doi-asserted-by":"crossref","unstructured":"Anna Robinson, M.E, Adam Todd, Andy Husband, A qualitative exploration of the barriers and facilitators affecting ethnic minority patient groups when accessing medicine review services: Perspectives of healthcare professionals. 2021 Dec 23.","DOI":"10.1111\/hex.13410"},{"issue":"2","key":"10.1016\/j.pec.2026.109644_bib41","doi-asserted-by":"crossref","first-page":"200","DOI":"10.1007\/s11606-017-4199-3","article-title":"Cultural issues in medication adherence: disparities and directions","volume":"33","author":"McQuaid","year":"2018","journal-title":"J Gen Intern Med"},{"issue":"8","key":"10.1016\/j.pec.2026.109644_bib42","doi-asserted-by":"crossref","first-page":"1218","DOI":"10.1111\/1467-9566.12304","article-title":"The moral experience of illness and its impact on normalisation: examples from narratives with Punjabi women living with rheumatoid arthritis in the UK","volume":"37","author":"Sanderson","year":"2015","journal-title":"Socio Health Illn"}],"container-title":["Patient Education and Counseling"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0738399126001771?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0738399126001771?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2026,6,25]],"date-time":"2026-06-25T20:47:41Z","timestamp":1782420461000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S0738399126001771"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,8]]},"references-count":42,"alternative-id":["S0738399126001771"],"URL":"https:\/\/doi.org\/10.1016\/j.pec.2026.109644","relation":{},"ISSN":["0738-3991"],"issn-type":[{"value":"0738-3991","type":"print"}],"subject":[],"published":{"date-parts":[[2026,8]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Exploring the barriers and facilitators to accessing and engaging with information resources about rheumatoid arthritis (RA) by ethnic minority or non-native patients: A systematic review and thematic synthesis","name":"articletitle","label":"Article Title"},{"value":"Patient Education and Counseling","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.pec.2026.109644","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2026 The Authors. Published by Elsevier B.V.","name":"copyright","label":"Copyright"}],"article-number":"109644"}}