{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,11,10]],"date-time":"2026-11-10T02:03:09Z","timestamp":1794276189720,"version":"4.9.0"},"reference-count":21,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2017,9,1]],"date-time":"2017-09-01T00:00:00Z","timestamp":1504224000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2017,9,1]],"date-time":"2017-09-01T00:00:00Z","timestamp":1504224000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","pediatricnursing.org","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Journal of Pediatric Nursing"],"published-print":{"date-parts":[[2017,9]]},"DOI":"10.1016\/j.pedn.2017.07.005","type":"journal-article","created":{"date-parts":[[2017,7,15]],"date-time":"2017-07-15T06:47:29Z","timestamp":1500101249000},"page":"232-235","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":14,"special_numbering":"C","title":["Functional Independence of Children With Myelomeningocele: Is It Associated With the Informal Caregivers' Burden?"],"prefix":"10.1016","volume":"36","author":[{"given":"Karen Negr\u00e3o","family":"Cavalari","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6436-9307","authenticated-orcid":false,"given":"Pedro Tadao","family":"Hamamoto Filho","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Silvia Maria","family":"Caldeira","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Helio Rubens de Carvalho","family":"Nunes","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Fernanda Maria Alves","family":"Lima","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marla Andr\u00e9ia Garcia","family":"de Avila","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"key":"10.1016\/j.pedn.2017.07.005_bb0005","doi-asserted-by":"crossref","first-page":"993","DOI":"10.1056\/NEJMoa1014379","article-title":"A randomized trial of prenatal versus postnatal repair of myelomeningocele","volume":"364","author":"Adzick","year":"2011","journal-title":"New England Journal of Medicine"},{"issue":"2","key":"10.1016\/j.pedn.2017.07.005_bb0010","doi-asserted-by":"crossref","first-page":"267","DOI":"10.1590\/S0034-71672013000200017","article-title":"Impact of childhood cancer for family caregivers: Integrative review","volume":"66","author":"Amador","year":"2013","journal-title":"Revista Brasileira de Enfermagem"},{"key":"10.1016\/j.pedn.2017.07.005_bb0015","doi-asserted-by":"crossref","first-page":"e24","DOI":"10.2105\/AJPH.2015.302902","article-title":"Global birth prevalence of spina bifida by folic acid fortification status: A systematic review and meta-analysis","volume":"106","author":"Atta","year":"2016","journal-title":"American Journal of Public Health"},{"key":"10.1016\/j.pedn.2017.07.005_bb0020","doi-asserted-by":"crossref","first-page":"801","DOI":"10.1007\/s00381-009-0865-z","article-title":"The changing incidence of myelomeningocele and its impact on paediatric neurosurgery: A review from the Children's memorial hospital","volume":"25","author":"Bowman","year":"2009","journal-title":"Child's Nervous System"},{"key":"10.1016\/j.pedn.2017.07.005_bb0025","doi-asserted-by":"crossref","first-page":"31","DOI":"10.1590\/S1519-38292009000100004","article-title":"Assessment of the caregiver burden of children with cerebral palsy using the burden interview scale","volume":"9","author":"Camargos","year":"2009","journal-title":"Revista Brasileira de Sa\u00fade Materno Infantil"},{"key":"10.1016\/j.pedn.2017.07.005_bb0030","doi-asserted-by":"crossref","first-page":"15007","DOI":"10.1038\/nrdp.2015.7","article-title":"Spina bifida","volume":"1","author":"Copp","year":"2015","journal-title":"Nat Rev Dis Primers"},{"key":"10.1016\/j.pedn.2017.07.005_bb0035","doi-asserted-by":"crossref","first-page":"799","DOI":"10.1016\/S1474-4422(13)70110-8","article-title":"Neural tube defects: Recent advances, unsolved questions, and controversies","volume":"12","author":"Copp","year":"2013","journal-title":"The Lancet Neurology"},{"key":"10.1016\/j.pedn.2017.07.005_bb0040","first-page":"79","article-title":"Children with special health needs and family: implications for nursing","volume":"69","author":"Figueiredo","year":"2016","journal-title":"Revista Brasileira de Enfermagem"},{"key":"10.1016\/j.pedn.2017.07.005_bb0045","series-title":"Pediatric evaluation of disability inventory: Development, standardization and administration manual","author":"Haley","year":"1992"},{"key":"10.1016\/j.pedn.2017.07.005_bb0050","doi-asserted-by":"crossref","first-page":"40","DOI":"10.1002\/ddrr.90","article-title":"Psychosocial and family functioning in spina bifida","volume":"16","author":"Holmbeck","year":"2010","journal-title":"Developmental Disabilities Research Reviews"},{"key":"10.1016\/j.pedn.2017.07.005_bb0055","doi-asserted-by":"crossref","first-page":"769","DOI":"10.1590\/0104-1169.0196.2613","article-title":"Burden and quality of life of mothers of children and adolescents with chronic illnesses: An integrative review","volume":"23","author":"Macedo","year":"2015","journal-title":"Revista Latino-Americana de Enfermagem"},{"key":"10.1016\/j.pedn.2017.07.005_bb0060","doi-asserted-by":"crossref","first-page":"65.e1","DOI":"10.1016\/j.jpurol.2014.09.009","article-title":"Mental health and parenting characteristics of caregivers of children with spina bifida","volume":"11","author":"Malm-Buatsi","year":"2015","journal-title":"Journal of Pediatric Urology"},{"key":"10.1016\/j.pedn.2017.07.005_bb5000","series-title":"Pediatric Evaluation of Disability Inventory (PEDI): manual of the Brazilian adapted version","first-page":"2005","author":"Mancini","year":"2005"},{"key":"10.1016\/j.pedn.2017.07.005_bb0065","first-page":"193","article-title":"Adaption and validation of the caregiver burden scale to Brazilian cultural milieu","volume":"38","author":"Medeiros","year":"1998","journal-title":"Revista Brasileira de Reumatologia"},{"key":"10.1016\/j.pedn.2017.07.005_bb0070","doi-asserted-by":"crossref","first-page":"50","DOI":"10.1590\/1414-462X201500010009","article-title":"Quality of life and low back pain in primary caregivers of children with cerebral palsy","volume":"23","author":"Neves","year":"2015","journal-title":"Cadernos Sa\u00fade Coletiva"},{"key":"10.1016\/j.pedn.2017.07.005_bb0075","first-page":"515","article-title":"Treatment of myelomeningocele: A review of outcomes and continuing neurological considerations among adults","volume":"6","author":"Piatt","year":"2010","journal-title":"Journal of Neurosurgery: Pediatrics"},{"key":"10.1016\/j.pedn.2017.07.005_bb0080","doi-asserted-by":"crossref","first-page":"285S","DOI":"10.1093\/ajcn\/85.1.285S","article-title":"Folate and neural tube defects","volume":"85","author":"Pitkin","year":"2007","journal-title":"The American Journal of Clinical Nutrition"},{"key":"10.1016\/j.pedn.2017.07.005_bb0085","doi-asserted-by":"crossref","first-page":"19","DOI":"10.1186\/1471-2296-12-19","article-title":"Relationships between quality of life and family function in caregiver","volume":"12","author":"Rodr\u00edguez-S\u00e1nchez","year":"2011","journal-title":"BMC Family Practice"},{"key":"10.1016\/j.pedn.2017.07.005_bb0090","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1007\/s40120-013-0007-0","article-title":"A review of the social, psychological and economic burdens experienced by people with spina bifida and their caregivers","volume":"2","author":"Rofail","year":"2013","journal-title":"Neurology and Therapy"},{"key":"10.1016\/j.pedn.2017.07.005_bb0095","doi-asserted-by":"crossref","first-page":"553","DOI":"10.1038\/sc.2012.10","article-title":"Burden and quality of life among caregivers of children and adolescents with meningomyelocele: Measuring the relationship to anxiety and depression","volume":"50","author":"Valen\u00e7a","year":"2012","journal-title":"Spinal Cord"},{"key":"10.1016\/j.pedn.2017.07.005_bb0100","series-title":"Preventing chronic diseases: A vital investment","author":"World Health Organization","year":"2005"}],"container-title":["Journal of Pediatric Nursing"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0882596317300027?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0882596317300027?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2025,10,10]],"date-time":"2025-10-10T16:18:32Z","timestamp":1760113112000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S0882596317300027"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2017,9]]},"references-count":21,"alternative-id":["S0882596317300027"],"URL":"https:\/\/doi.org\/10.1016\/j.pedn.2017.07.005","relation":{},"ISSN":["0882-5963"],"issn-type":[{"value":"0882-5963","type":"print"}],"subject":[],"published":{"date-parts":[[2017,9]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Functional Independence of Children With Myelomeningocele: Is It Associated With the Informal Caregivers' Burden?","name":"articletitle","label":"Article Title"},{"value":"Journal of Pediatric Nursing","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.pedn.2017.07.005","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2017 Elsevier Inc. All rights reserved.","name":"copyright","label":"Copyright"}]}}