{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,8]],"date-time":"2026-07-08T11:06:13Z","timestamp":1783508773651,"version":"3.55.0"},"reference-count":36,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2022,11,1]],"date-time":"2022-11-01T00:00:00Z","timestamp":1667260800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2022,11,1]],"date-time":"2022-11-01T00:00:00Z","timestamp":1667260800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2022,10,27]],"date-time":"2022-10-27T00:00:00Z","timestamp":1666828800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","pediatricnursing.org","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Journal of Pediatric Nursing"],"published-print":{"date-parts":[[2022,11]]},"DOI":"10.1016\/j.pedn.2022.10.011","type":"journal-article","created":{"date-parts":[[2022,11,3]],"date-time":"2022-11-03T18:24:12Z","timestamp":1667499852000},"page":"e9-e15","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":14,"special_numbering":"C","title":["Fear, isolation and the importance of support: A qualitative study of parents' experiences of feeding a child born with esophageal atresia"],"prefix":"10.1016","volume":"67","author":[{"given":"Vuokko","family":"Wallace","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kirsi","family":"Honkalampi","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Maija","family":"Korhonen","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"issue":"3","key":"10.1016\/j.pedn.2022.10.011_bb0005","doi-asserted-by":"crossref","first-page":"438","DOI":"10.1007\/s00455-019-10046-5","article-title":"Assessment of the concerns of caregivers of children with repaired esophageal atresia-tracheoesophageal fistula related to feeding-swallowing difficulties","volume":"35","author":"Arslan","year":"2020","journal-title":"Dysphagia"},{"issue":"3","key":"10.1016\/j.pedn.2022.10.011_bb0010","doi-asserted-by":"crossref","first-page":"224","DOI":"10.1111\/dote.12178","article-title":"A pilot investigation of feeding problems in children with esophageal atresia","volume":"28","author":"Baird","year":"2015","journal-title":"Diseases of the Esophagus"},{"key":"10.1016\/j.pedn.2022.10.011_bib167","doi-asserted-by":"crossref","first-page":"77","DOI":"10.1191\/1478088706qp063oa","article-title":"Using Thematic Analysis in Psychology","volume":"3","author":"Braun","year":"2006","journal-title":"Qualitative Research in Psychology"},{"key":"10.1016\/j.pedn.2022.10.011_bb0015","series-title":"Successful qualitative research: A practical guide for beginners","author":"Braun","year":"2013"},{"issue":"4","key":"10.1016\/j.pedn.2022.10.011_bb0020","doi-asserted-by":"crossref","first-page":"589","DOI":"10.1080\/2159676X.2019.1628806","article-title":"Reflecting on reflexive thematic analysis","volume":"11","author":"Braun","year":"2019","journal-title":"Qualitative Research in Sport Exercise Health"},{"key":"10.1016\/j.pedn.2022.10.011_bb0025","doi-asserted-by":"crossref","first-page":"37","DOI":"10.1002\/capr.12360","article-title":"Can I use TA? Should I use TA? Should I not use TA? Comparing reflexive thematic analysis and other pattern-based qualitative analytic approaches","volume":"21","author":"Braun","year":"2020","journal-title":"Counselling and Psychotherapy Research"},{"issue":"6","key":"10.1016\/j.pedn.2022.10.011_bb0030","doi-asserted-by":"crossref","first-page":"641","DOI":"10.1080\/13645579.2020.1805550","article-title":"The online survey as a qualitative research tool","volume":"24","author":"Braun","year":"2021","journal-title":"International Journal of Social Research Methodology"},{"issue":"04","key":"10.1016\/j.pedn.2022.10.011_bb0035","doi-asserted-by":"crossref","first-page":"318","DOI":"10.1055\/s-0035-1559819","article-title":"Feeding and swallowing disorders in esophageal atresia patients: A review of a critical issue","volume":"25","author":"Conforti","year":"2015","journal-title":"European Journal of Pediatric Surgery"},{"issue":"5","key":"10.1016\/j.pedn.2022.10.011_bb0040","doi-asserted-by":"crossref","first-page":"311","DOI":"10.1177\/1941406413496569","article-title":"Parent\u2019s\/Caregiver\u2019s relationship and the impact on nutrition","volume":"5","author":"Cullinane","year":"2013","journal-title":"Infant Child Adolescent Nutrition"},{"issue":"5","key":"10.1016\/j.pedn.2022.10.011_bb0045","doi-asserted-by":"crossref","first-page":"759","DOI":"10.1111\/cch.12372","article-title":"Coping strategies used by children and adolescents born with esophageal atresia - a focus group study obtaining the child and parent perspective","volume":"42","author":"Dellenmark-Blom","year":"2016","journal-title":"Child: Care, Health and Development"},{"issue":"4","key":"10.1016\/j.pedn.2022.10.011_bb0050","doi-asserted-by":"crossref","first-page":"729","DOI":"10.1016\/j.jpedsurg.2008.09.027","article-title":"Mental health and psychosocial functioning in adolescents with esophageal atresia","volume":"44","author":"Faugli","year":"2009","journal-title":"Journal of Pediatric Surgery"},{"issue":"2","key":"10.1016\/j.pedn.2022.10.011_bb0055","doi-asserted-by":"crossref","first-page":"305","DOI":"10.1097\/SLA.0000000000001978","article-title":"Swallowing dysfunction and quality of life in adults with surgically corrected esophageal atresia\/tracheoesophageal fistula as infants: Forty years of follow-up","volume":"266","author":"Gibreel","year":"2017","journal-title":"Annals of Surgery"},{"issue":"6","key":"10.1016\/j.pedn.2022.10.011_bb0060","doi-asserted-by":"crossref","first-page":"612","DOI":"10.1093\/jpepsy\/jsm116","article-title":"Caregiver stress and outcomes of children with pediatric feeding disorders treated in an intensive interdisciplinary program","volume":"33","author":"Greer","year":"2008","journal-title":"Journal of Pediatric Psychology"},{"issue":"11","key":"10.1016\/j.pedn.2022.10.011_bb0065","doi-asserted-by":"crossref","first-page":"1932","DOI":"10.1016\/j.jpedsurg.2020.12.024","article-title":"Patient-driven healthcare recommendations for adults with esophageal atresia and their families","volume":"56","author":"ten Kate","year":"2021","journal-title":"Journal of Pediatric Surgery"},{"key":"10.1016\/j.pedn.2022.10.011_bb0070","doi-asserted-by":"crossref","first-page":"21","DOI":"10.1016\/j.prrv.2015.06.002","article-title":"Feeding difficulties in children with esophageal atresia","volume":"19","author":"Mahoney","year":"2016","journal-title":"Paediatric Respiratory Reviews"},{"issue":"5","key":"10.1016\/j.pedn.2022.10.011_bb0075","first-page":"27","article-title":"Feeding problems and their underlying mechanisms in the esophageal atresia-tracheoesophageal fistula patient","volume":"31","author":"Mahoney","year":"2017","journal-title":"Frontiers in Pediatrics"},{"issue":"11","key":"10.1016\/j.pedn.2022.10.011_bb0080","doi-asserted-by":"crossref","first-page":"1791","DOI":"10.1111\/jpc.14840","article-title":"Parental feeding concerns of infants and young children with oesophageal atresia","volume":"56","author":"Menzies","year":"2020","journal-title":"Journal of Paediatrics and Child Health"},{"issue":"4","key":"10.1016\/j.pedn.2022.10.011_bb0085","doi-asserted-by":"crossref","first-page":"e100","DOI":"10.1097\/MPG.0000000000001436","article-title":"Prevalence of malnutrition and feeding difficulties in children with esophageal atresia","volume":"64","author":"Menzies","year":"2017","journal-title":"Journal of Pediatric Gastroenterology and Nutrition"},{"issue":"7","key":"10.1016\/j.pedn.2022.10.011_bb0090","doi-asserted-by":"crossref","first-page":"1423","DOI":"10.1016\/j.jpedsurg.2020.10.029","article-title":"Traumatic stress, mental health and quality of life in adolescents with esophageal atresia","volume":"57","author":"Mikkelsen","year":"2022","journal-title":"Journal of Pediatric Surgery"},{"issue":"1","key":"10.1016\/j.pedn.2022.10.011_bb0095","doi-asserted-by":"crossref","first-page":"85","DOI":"10.1016\/j.appet.2012.09.014","article-title":"Parental influences on children\u2019s eating behaviour and characteristics of successful parent-focussed interventions","volume":"60","author":"Mitchell","year":"2013","journal-title":"Appetite"},{"key":"10.1016\/j.pedn.2022.10.011_bb0100","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1016\/j.clnesp.2019.01.013","article-title":"Feeding difficulties in young paediatric intensive care survivors: A scoping review","volume":"30","author":"Morton","year":"2019","journal-title":"Clinical Nutrition ESPEN"},{"issue":"9","key":"10.1016\/j.pedn.2022.10.011_bib168","doi-asserted-by":"crossref","first-page":"1245","DOI":"10.1097\/ACM.0000000000000388","article-title":"Standards for Reporting Qualitative Research: A Synthesis of Recommendations","volume":"89","author":"O\u2019Brien","year":"2014","journal-title":"Academic Medicine"},{"issue":"2","key":"10.1016\/j.pedn.2022.10.011_bb0105","first-page":"426","article-title":"Reflexivity in qualitative research: a journey of learning","volume":"22","author":"Palaganas","year":"2017","journal-title":"The Qualitative Report"},{"issue":"1","key":"10.1016\/j.pedn.2022.10.011_bb0110","doi-asserted-by":"crossref","first-page":"52","DOI":"10.1136\/archdischild-2020-320609","article-title":"Feeding disorders in children with oesophageal atresia: A cross-sectional study","volume":"107","author":"Pham","year":"2021","journal-title":"Archives of Disease in Childhood"},{"issue":"1","key":"10.1016\/j.pedn.2022.10.011_bb0115","doi-asserted-by":"crossref","first-page":"84","DOI":"10.1136\/adc.65.1.84","article-title":"Growth and feeding problems after repair of oesophageal atresia","volume":"65","author":"Puntis","year":"1990","journal-title":"Archives of Disease in Childhood"},{"issue":"1","key":"10.1016\/j.pedn.2022.10.011_bb0120","doi-asserted-by":"crossref","first-page":"34","DOI":"10.1016\/j.ejmg.2010.09.007","article-title":"Long-term outcomes of adults with features of VACTERL association","volume":"54","author":"Raam","year":"2011","journal-title":"European Journal of Medical Genetics"},{"key":"10.1016\/j.pedn.2022.10.011_bb0125","doi-asserted-by":"crossref","DOI":"10.1016\/j.jpsychores.2021.110474","article-title":"A thematic analysis exploring the psychological well-being of adults born with esophageal atresia","volume":"145","author":"Rabone","year":"2021","journal-title":"Journal of Psychosomatic Research"},{"issue":"4","key":"10.1016\/j.pedn.2022.10.011_bb0130","doi-asserted-by":"crossref","first-page":"410","DOI":"10.1111\/dote.12062","article-title":"Feeding difficulties in children with esophageal atresia: Treatment by a multidisciplinary team","volume":"26","author":"Ramsay","year":"2013","journal-title":"Diseases of the Esophagus"},{"issue":"7","key":"10.1016\/j.pedn.2022.10.011_bb0135","doi-asserted-by":"crossref","first-page":"694","DOI":"10.1111\/jpc.13211","article-title":"Outcomes of oesophageal atresia and tracheo-oesophageal fistula repair","volume":"52","author":"Roberts","year":"2016","journal-title":"Journal of Paediatrics and Child Health"},{"issue":"6","key":"10.1016\/j.pedn.2022.10.011_bb0140","doi-asserted-by":"crossref","first-page":"688","DOI":"10.1093\/jpepsy\/jsab012","article-title":"Parental anxiety and posttraumatic stress symptoms in pediatric food allergy","volume":"46","author":"Roberts","year":"2021","journal-title":"Journal of Pediatric Psychology"},{"key":"10.1016\/j.pedn.2022.10.011_bb0145","doi-asserted-by":"crossref","first-page":"e85","DOI":"10.1016\/j.pedn.2019.04.009","article-title":"The impact of congenital esophageal atresia on the family functioning","volume":"50","author":"Rozensztrauch","year":"2020","journal-title":"Journal of Pediatric Nursing"},{"key":"10.1016\/j.pedn.2022.10.011_bb0150","doi-asserted-by":"crossref","DOI":"10.1016\/j.ijporl.2020.110162","article-title":"Parental management of feeding problems in young children-a population-based study","volume":"136","author":"Sdravou","year":"2020","journal-title":"International Journal of Pediatric Otorhinolaryngology"},{"issue":"10","key":"10.1016\/j.pedn.2022.10.011_bb0155","doi-asserted-by":"crossref","first-page":"1542","DOI":"10.1016\/j.jpedsurg.2005.06.007","article-title":"The management of long gap esophageal atresia","volume":"40","author":"S\u00e9guier-Lipszyc","year":"2005","journal-title":"Journal of Pediatric Surgery"},{"key":"10.1016\/j.pedn.2022.10.011_bb0160","doi-asserted-by":"crossref","first-page":"72","DOI":"10.1016\/j.invent.2016.02.001","article-title":"Recruiting for health, medical or psychosocial research using Facebook: Systematic review","volume":"4","author":"Thornton","year":"2016","journal-title":"Internet Interventions"},{"key":"10.1016\/j.pedn.2022.10.011_bib166","doi-asserted-by":"crossref","first-page":"497","DOI":"10.1111\/fare.12260","article-title":"Parental Pre- and Postpartum Mental Health Predicts Child Mental Health and Development","volume":"66","author":"V\u00e4nsk\u00e4","year":"2017","journal-title":"Family Relations"},{"key":"10.1016\/j.pedn.2022.10.011_bb0165","doi-asserted-by":"crossref","first-page":"77","DOI":"10.1016\/j.pedn.2021.02.016","article-title":"Anxiety and depression in parents of children born with esophageal atresia: An international online survey study","volume":"60","author":"Wallace","year":"2021","journal-title":"Journal of Pediatric Nursing"}],"container-title":["Journal of Pediatric Nursing"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0882596322002640?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0882596322002640?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2025,10,10]],"date-time":"2025-10-10T16:29:43Z","timestamp":1760113783000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S0882596322002640"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2022,11]]},"references-count":36,"alternative-id":["S0882596322002640"],"URL":"https:\/\/doi.org\/10.1016\/j.pedn.2022.10.011","relation":{},"ISSN":["0882-5963"],"issn-type":[{"value":"0882-5963","type":"print"}],"subject":[],"published":{"date-parts":[[2022,11]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Fear, isolation and the importance of support: A qualitative study of parents' experiences of feeding a child born with esophageal atresia","name":"articletitle","label":"Article Title"},{"value":"Journal of Pediatric Nursing","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.pedn.2022.10.011","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2022 The Authors. Published by Elsevier Inc.","name":"copyright","label":"Copyright"}]}}