{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,7,28]],"date-time":"2026-07-28T16:13:35Z","timestamp":1785255215521,"version":"3.55.0"},"reference-count":25,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2023,3,1]],"date-time":"2023-03-01T00:00:00Z","timestamp":1677628800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2023,3,1]],"date-time":"2023-03-01T00:00:00Z","timestamp":1677628800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2023,3,1]],"date-time":"2023-03-01T00:00:00Z","timestamp":1677628800000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-017"},{"start":{"date-parts":[[2023,3,1]],"date-time":"2023-03-01T00:00:00Z","timestamp":1677628800000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-037"},{"start":{"date-parts":[[2023,3,1]],"date-time":"2023-03-01T00:00:00Z","timestamp":1677628800000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-012"},{"start":{"date-parts":[[2023,3,1]],"date-time":"2023-03-01T00:00:00Z","timestamp":1677628800000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-029"},{"start":{"date-parts":[[2023,3,1]],"date-time":"2023-03-01T00:00:00Z","timestamp":1677628800000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-004"}],"funder":[{"DOI":"10.13039\/501100004035","name":"Jordan University of Science and Technology","doi-asserted-by":"publisher","award":["20210265"],"award-info":[{"award-number":["20210265"]}],"id":[{"id":"10.13039\/501100004035","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","pediatricnursing.org","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Journal of Pediatric Nursing"],"published-print":{"date-parts":[[2023,3]]},"DOI":"10.1016\/j.pedn.2022.12.026","type":"journal-article","created":{"date-parts":[[2022,12,29]],"date-time":"2022-12-29T07:30:14Z","timestamp":1672299014000},"page":"e127-e135","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":4,"special_numbering":"C","title":["The experiences of mothers of children with hydrocephalus in Jordan: A phenomenological study"],"prefix":"10.1016","volume":"69","author":[{"given":"Khulood Kayed","family":"Shattnawi","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Fatima Said","family":"Qananbeh","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Wejdan","family":"Khater","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"issue":"10","key":"10.1016\/j.pedn.2022.12.026_bb0005","doi-asserted-by":"crossref","first-page":"789","DOI":"10.4236\/ns.2012.410104","article-title":"Prevalence of congenital hydrocephalus in the Hashemite kingdom of Jordan: A hospital-based study","volume":"04","author":"Alebous","year":"2012","journal-title":"Natural Science"},{"key":"10.1016\/j.pedn.2022.12.026_bb0010","doi-asserted-by":"crossref","first-page":"e74","DOI":"10.1016\/j.pedn.2021.01.009","article-title":"Challenges faced by mothers caring for children with leukaemia during COVID-19 pandemic: A qualitative study","volume":"58","author":"Atout","year":"2021","journal-title":"Journal of Pediatric Nursing"},{"issue":"1","key":"10.1016\/j.pedn.2022.12.026_bb0015","doi-asserted-by":"crossref","first-page":"147","DOI":"10.36108\/NJSA\/0202\/81(0101)","article-title":"Community perception about children with hydrocephalus in Lagos state, Nigeria","volume":"18","author":"Bakare","year":"2020","journal-title":"The Nigerian Journal of Sociology and Anthropology"},{"key":"10.1016\/j.pedn.2022.12.026_bb0020","doi-asserted-by":"crossref","first-page":"88","DOI":"10.1016\/j.pedn.2017.11.004","article-title":"A Metasynthesis: Uncovering what is known about the experiences of families with children who have life-limiting and life-threatening illnesses","volume":"38","author":"Bally","year":"2018","journal-title":"Journal of Pediatric Nursing"},{"issue":"2","key":"10.1016\/j.pedn.2022.12.026_bb0025","doi-asserted-by":"crossref","first-page":"77","DOI":"10.1191\/1478088706qp063oa","article-title":"Using thematic analysis in psychology","volume":"3","author":"Braun","year":"2006","journal-title":"Qualitative Research in Psychology"},{"issue":"4","key":"10.1016\/j.pedn.2022.12.026_bb0030","doi-asserted-by":"crossref","first-page":"1065","DOI":"10.3171\/2017.10.JNS17439","article-title":"Global hydrocephalus epidemiology and incidence: Systematic review and meta-analysis","volume":"130","author":"Dewan","year":"2019","journal-title":"Journal of Neurosurgery"},{"issue":"12","key":"10.1016\/j.pedn.2022.12.026_bb0035","first-page":"1341","article-title":"Isolated and on guard: Preparing neonatal intensive care unit families for life with hydrocephalus","volume":"39","author":"Dorner","year":"2021","journal-title":"American Journal of Perinatology"},{"issue":"2","key":"10.1016\/j.pedn.2022.12.026_bb0040","first-page":"1382","article-title":"Factors affecting the anxiety level and quality of life of parents of children with hydrocephalus","volume":"13","author":"Duzgun","year":"2020","journal-title":"International Journal of Caring Sciences"},{"key":"10.1016\/j.pedn.2022.12.026_bb0045","doi-asserted-by":"crossref","first-page":"13","DOI":"10.1163\/156916212X632943","article-title":"The interview: Data collection in descriptive phenomenological human scientific research","volume":"43","author":"Englander","year":"2012","journal-title":"Journal of Phenomenological Psychology"},{"key":"10.1016\/j.pedn.2022.12.026_bb0050","series-title":"Reading, understanding, and applying nursing searserch","author":"Fain","year":"2017"},{"key":"10.1016\/j.pedn.2022.12.026_bb0055","unstructured":"Guba, E., & Lincoln, Y. (1994). Handbook of qualitative research. Sage Publications, Inc. http:\/\/www.uncg.edu\/hdf\/facultystaff\/Tudge\/Guba\/20&\/20Lincoln\/201994.pdf"},{"issue":"2","key":"10.1016\/j.pedn.2022.12.026_bb0060","first-page":"435","article-title":"The experienced problems of mothers having children with Hydrocephalus: A qualitative study","volume":"8","author":"Gurol","year":"2015","journal-title":"International Journal of Caring Sciences"},{"key":"10.1016\/j.pedn.2022.12.026_bib121","series-title":"Inside interviewing: New lenses, new concerns","author":"Holstein","year":"2003"},{"issue":"1","key":"10.1016\/j.pedn.2022.12.026_bb0065","first-page":"1","article-title":"Abortion \u2013 An Islamic perspective","volume":"2","author":"Iqbal","year":"2019","journal-title":"Journal of the British Islamic Medical Association"},{"issue":"1","key":"10.1016\/j.pedn.2022.12.026_bb0070","doi-asserted-by":"crossref","first-page":"22","DOI":"10.4103\/jehp.jehp_199_18","article-title":"Informational needs of pregnant women following the prenatal diagnosis of fetal anomalies: A qualitative study in Iran","volume":"8","author":"Irani","year":"2019","journal-title":"Journal of Education and Health Promotion"},{"issue":"December 2020","key":"10.1016\/j.pedn.2022.12.026_bb0075","article-title":"Differences in health-seeking behaviors by socioeconomic groups among the pediatric hydrocephalus patient population","volume":"24","author":"Kelly","year":"2021","journal-title":"Interdisciplinary Neurosurgery: Advanced Techniques and Case Management"},{"key":"10.1016\/j.pedn.2022.12.026_bb0080","article-title":"Care giver\u2019s experiences of having a child with hydrocephalus: A phenomenological study at Ruharo mission hospital","author":"Kyarimpa","year":"2020","journal-title":"MedRxiv"},{"issue":"1","key":"10.1016\/j.pedn.2022.12.026_bb0085","doi-asserted-by":"crossref","first-page":"95","DOI":"10.1080\/09687599.2018.1511415","article-title":"\u2018We create our own small world\u2019: Daily realities of mothers of disabled children in a South African urban settlement","volume":"34","author":"van der Mark","year":"2019","journal-title":"Disability and Society"},{"issue":"11","key":"10.1016\/j.pedn.2022.12.026_bb0090","doi-asserted-by":"crossref","first-page":"2373","DOI":"10.1016\/j.pec.2020.05.010","article-title":"Parental expectations of raising a child with disability in decision-making for prenatal testing and termination of pregnancy: A mixed methods study","volume":"103","author":"Ngan","year":"2020","journal-title":"Patient Education and Counseling"},{"issue":"4","key":"10.1016\/j.pedn.2022.12.026_bb0095","first-page":"8","article-title":"Management of childhood hydrocephalus in our centre: Parents \u2019 knowledge, experiences and expectations","volume":"7","author":"Ogunleye","year":"2022","journal-title":"Global Journal for Research Analysis"},{"issue":"4","key":"10.1016\/j.pedn.2022.12.026_bb0100","doi-asserted-by":"crossref","first-page":"452","DOI":"10.1111\/hex.12040","article-title":"Parents\u2019 experiences of living with a child with a long-term condition: A rapid structured review of the literature","volume":"18","author":"Smith","year":"2015","journal-title":"Health Expectations: An International Journal of Public Participation in Health Care and Health Policy"},{"issue":"5","key":"10.1016\/j.pedn.2022.12.026_bb0105","doi-asserted-by":"crossref","first-page":"1709","DOI":"10.1111\/hex.12164","article-title":"Parents\u2019 experiences of living with a child with hydrocephalus: A cross-sectional interview-based study","volume":"18","author":"Smith","year":"2015","journal-title":"Health Expectations"},{"key":"10.1016\/j.pedn.2022.12.026_bb0110","doi-asserted-by":"crossref","first-page":"64","DOI":"10.1016\/j.pedn.2022.01.014","article-title":"Mothers\u2019 experience of having a child with cerebral palsy. A systematic review","volume":"64","author":"Smith","year":"2022","journal-title":"Journal of Pediatric Nursing"},{"issue":"7","key":"10.1016\/j.pedn.2022.12.026_bb0115","doi-asserted-by":"crossref","first-page":"1075","DOI":"10.1007\/s00431-019-03393-w","article-title":"Parental experiences and coping strategies when caring for a child receiving paediatric palliative care: A qualitative study","volume":"178","author":"Verberne","year":"2019","journal-title":"European Journal of Pediatrics"},{"key":"10.1016\/j.pedn.2022.12.026_bb0120","doi-asserted-by":"crossref","first-page":"52","DOI":"10.1016\/j.pedn.2021.12.028","article-title":"Experiences and needs of families caring for children and adolescents with chronic kidney disease: A meta-synthesis","volume":"63","author":"Wee","year":"2022","journal-title":"Journal of Pediatric Nursing"}],"container-title":["Journal of Pediatric Nursing"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0882596322003414?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0882596322003414?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2025,10,10]],"date-time":"2025-10-10T16:30:17Z","timestamp":1760113817000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S0882596322003414"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2023,3]]},"references-count":25,"alternative-id":["S0882596322003414"],"URL":"https:\/\/doi.org\/10.1016\/j.pedn.2022.12.026","relation":{},"ISSN":["0882-5963"],"issn-type":[{"value":"0882-5963","type":"print"}],"subject":[],"published":{"date-parts":[[2023,3]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"The experiences of mothers of children with hydrocephalus in Jordan: A phenomenological study","name":"articletitle","label":"Article Title"},{"value":"Journal of Pediatric Nursing","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.pedn.2022.12.026","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2022 Elsevier Inc. All rights reserved.","name":"copyright","label":"Copyright"}]}}