{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,29]],"date-time":"2026-09-29T20:30:07Z","timestamp":1790713807826,"version":"4.1.0"},"reference-count":46,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2023,7,1]],"date-time":"2023-07-01T00:00:00Z","timestamp":1688169600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2023,7,1]],"date-time":"2023-07-01T00:00:00Z","timestamp":1688169600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2023,7,1]],"date-time":"2023-07-01T00:00:00Z","timestamp":1688169600000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-017"},{"start":{"date-parts":[[2023,7,1]],"date-time":"2023-07-01T00:00:00Z","timestamp":1688169600000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-037"},{"start":{"date-parts":[[2023,7,1]],"date-time":"2023-07-01T00:00:00Z","timestamp":1688169600000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-012"},{"start":{"date-parts":[[2023,7,1]],"date-time":"2023-07-01T00:00:00Z","timestamp":1688169600000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-029"},{"start":{"date-parts":[[2023,7,1]],"date-time":"2023-07-01T00:00:00Z","timestamp":1688169600000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-004"}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","pediatricnursing.org","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Journal of Pediatric Nursing"],"published-print":{"date-parts":[[2023,7]]},"DOI":"10.1016\/j.pedn.2023.04.014","type":"journal-article","created":{"date-parts":[[2023,4,29]],"date-time":"2023-04-29T15:34:08Z","timestamp":1682782448000},"page":"e46-e56","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":5,"special_numbering":"C","title":["Perceptions of families with adolescents utilizing augmentative and alternative communication technology: A qualitative approach"],"prefix":"10.1016","volume":"71","author":[{"given":"Patricia","family":"West","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Emily J.","family":"Jensen","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sarah N.","family":"Douglas","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Gwen","family":"Wyatt","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lorraine","family":"Robbins","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Charles","family":"Given","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"key":"10.1016\/j.pedn.2023.04.014_bb0005","article-title":"Associations between caregiving, social support, and well-being among parents of children with childhood apraxia of speech","volume":"28","author":"Allen","year":"2013","journal-title":"Health Communication"},{"key":"10.1016\/j.pedn.2023.04.014_bb0010","series-title":"Core competencies on disability for health care education","author":"Alliance for Disability in Health Care Education","year":"2018"},{"key":"10.1016\/j.pedn.2023.04.014_bb0015","author":"American Speech-Language-Hearing Association. (ASHA)"},{"key":"10.1016\/j.pedn.2023.04.014_bb0020","unstructured":"Author. (2020)."},{"issue":"2","key":"10.1016\/j.pedn.2023.04.014_bib223","doi-asserted-by":"crossref","first-page":"75","DOI":"10.3109\/17518423.2013.857735","article-title":"Australian parents\u2019 experience of speech generating device (SGD) service delivery","volume":"17","author":"Anderson","year":"2014","journal-title":"Developmental Neurorehabilitation"},{"issue":"2","key":"10.1016\/j.pedn.2023.04.014_bib222","doi-asserted-by":"crossref","first-page":"185","DOI":"10.3109\/17549507.2014.979876","article-title":"Alternative service delivery models for families with a new speech generating device: Perspectives of parents and therapists","volume":"17","author":"Anderson","year":"2015","journal-title":"International Journal of Speech-Language Pathology"},{"key":"10.1016\/j.pedn.2023.04.014_bb0025","doi-asserted-by":"crossref","first-page":"50","DOI":"10.1044\/0161-1461(2006\/006)","article-title":"Family members\u2019 perceptions of augmentative and alternative communication device use","volume":"37","author":"Bailey","year":"2006","journal-title":"Language, Speech, and Hearing Services in Schools"},{"issue":"3","key":"10.1016\/j.pedn.2023.04.014_bb0030","doi-asserted-by":"crossref","first-page":"237","DOI":"10.3109\/07434618.2014.940464","article-title":"Social participation of school-aged children who use communication aids: The views of children and parents","volume":"30","author":"Batorowicz","year":"2014","journal-title":"Augmentative and Alternative Communication"},{"issue":"2","key":"10.1016\/j.pedn.2023.04.014_bb0035","doi-asserted-by":"crossref","first-page":"115","DOI":"10.1111\/j.1460-6984.2011.00090.x","article-title":"Barriers and facilitators to the use of high-technology augmentative and alternative communication devices: a systematic review and qualitative synthesis","volume":"47","author":"Baxter","year":"2012","journal-title":"International Journal of Language & Communication Disorders"},{"issue":"3","key":"10.1016\/j.pedn.2023.04.014_bb0040","doi-asserted-by":"crossref","DOI":"10.1111\/jspn.12373","article-title":"Health care transition planning: a potpourri of perspectives from nurses","volume":"27","author":"Betz","year":"2022","journal-title":"Journal for Specialists in Pediatric Nursing"},{"issue":"13","key":"10.1016\/j.pedn.2023.04.014_bb0045","doi-asserted-by":"crossref","first-page":"1802","DOI":"10.1177\/1049732316654870","article-title":"Member checking: a tool to enhance trustworthiness or merely a nod to validation?","volume":"26","author":"Birt","year":"2016","journal-title":"Qualitative Health Research"},{"key":"10.1016\/j.pedn.2023.04.014_bb0050","first-page":"811","article-title":"A user and their family\u2019s perspective of the use of a low-tech vs a high-tech AAC system","volume":"217","author":"Borg","year":"2015","journal-title":"Studies in Health Technology and Informatics"},{"issue":"4","key":"10.1016\/j.pedn.2023.04.014_bb0055","doi-asserted-by":"crossref","first-page":"353","DOI":"10.1044\/1058-0360(2006\/033)","article-title":"Communication in young children with Fragile X Syndrome: a qualitative study of mothers\u2019 perspectives","volume":"15","author":"Brady","year":"2006","journal-title":"American Journal of Speech-Language Pathology"},{"key":"10.1016\/j.pedn.2023.04.014_bb0060","doi-asserted-by":"crossref","first-page":"134","DOI":"10.1016\/j.pedn.2017.06.019","article-title":"The use of technology by adolescents with intellectual and developmental disabilities","volume":"37","author":"Burke","year":"2017","journal-title":"Journal of Pediatric Nursing"},{"key":"10.1016\/j.pedn.2023.04.014_bb0065","author":"Center for Disease Control and Prevention"},{"key":"10.1016\/j.pedn.2023.04.014_bb0070","series-title":"Nothing about us without us: Disability oppression and empowerment","author":"Charlton","year":"2000"},{"issue":"4","key":"10.1016\/j.pedn.2023.04.014_bb0075","doi-asserted-by":"crossref","first-page":"501","DOI":"10.4040\/jkan.2015.45.4.501","article-title":"Adaptation in families of children with Down syndrome: a mixed-methods design","volume":"45","author":"Choi","year":"2015","journal-title":"Journal of Korean Academy of Nursing"},{"key":"10.1016\/j.pedn.2023.04.014_bb0080","series-title":"Research design: Qualitative, quantitative, and mixed methods approaches","author":"Creswell","year":"2018"},{"key":"10.1016\/j.pedn.2023.04.014_bib221","doi-asserted-by":"crossref","first-page":"229","DOI":"10.1111\/jspn.12074","article-title":"Barriers and facilitators to children\u2019s use of speech-generating devices: A descriptive qualitative study of mothers\u2019 perspectives","volume":"19","author":"Crisp","year":"2014","journal-title":"Journal for Specialists in Pediatric Nursing"},{"key":"10.1016\/j.pedn.2023.04.014_bb0085","doi-asserted-by":"crossref","first-page":"2102","DOI":"10.1111\/j.1365-2702.2008.02373.x","article-title":"A systematic review of the effectiveness of nurse communication with patients with complex communication needs with a focus on the use of augmentative and alternative communication","volume":"17","author":"Finke","year":"2008","journal-title":"Journal of Clinical Nursing"},{"key":"10.1016\/j.pedn.2023.04.014_bb0090","series-title":"Becoming qualitative researchers: An introduction","author":"Glesne","year":"2011"},{"key":"10.1016\/j.pedn.2023.04.014_bb0100","doi-asserted-by":"crossref","first-page":"526","DOI":"10.1111\/dmcn.13373","article-title":"Validity of the communication function classification system for use with preschool children with communication disorders","volume":"59","author":"Hidecker","year":"2017","journal-title":"Developmental Medicine and Child Neurology"},{"key":"10.1016\/j.pedn.2023.04.014_bb0105","doi-asserted-by":"crossref","first-page":"704","DOI":"10.1111\/j.1469-8749.2011.03996.x","article-title":"Developing and validating the communication function classification system for individuals with cerebral palsy","volume":"53","author":"Hidecker","year":"2011","journal-title":"Developmental Medicine and Child Neurology"},{"issue":"4","key":"10.1016\/j.pedn.2023.04.014_bb0110","doi-asserted-by":"crossref","first-page":"201","DOI":"10.1080\/07434618.2017.1370495","article-title":"Systematic review of AAC intervention research for adolescents and adults with autism spectrum disorder","volume":"33","author":"Holyfield","year":"2017","journal-title":"Augmentative and Alternative Communication"},{"issue":"2","key":"10.1016\/j.pedn.2023.04.014_bb0115","doi-asserted-by":"crossref","first-page":"53","DOI":"10.1300\/J006v22n02_04","article-title":"A life needs model of pediatric service delivery: services to support community participation and quality of life for children and youth with disabilities","volume":"22","author":"King","year":"2002","journal-title":"Physical & Occupational Therapy in Pediatrics"},{"issue":"1","key":"10.1016\/j.pedn.2023.04.014_bb0120","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1080\/07434618.2018.1556732","article-title":"Challenges and opportunities in augmentative and alternative communication: research and technology development to enhance communication and participation for individuals with complex communication needs","volume":"35","author":"Light","year":"2019","journal-title":"Augmentative and Alternative Communication"},{"key":"10.1016\/j.pedn.2023.04.014_bb0125","doi-asserted-by":"crossref","first-page":"207","DOI":"10.1111\/fare.12185","article-title":"Managing stress levels of parents of children with developmental disabilities: a meta-analytic review of interventions","volume":"65","author":"Lindo","year":"2016","journal-title":"Family Relations"},{"issue":"1","key":"10.1016\/j.pedn.2023.04.014_bb0130","first-page":"77","article-title":"\u2018Communication is everything I think.\u2019 Parenting a child who needs augmentative and alternative communication (AAC)","volume":"43","author":"Marshall","year":"2008","journal-title":"International Journal of Speech-Language Pathology"},{"issue":"12","key":"10.1016\/j.pedn.2023.04.014_bb0135","doi-asserted-by":"crossref","first-page":"3023","DOI":"10.1044\/2018_JSLHR-L-18-0008","article-title":"A multimethod analysis of pragmatic skills in children and adolescents with Fragile X syndrome, autism spectrum disorder, and Down syndrome","volume":"61","author":"Martin","year":"2018","journal-title":"Journal of Speech, Language, and Hearing Research"},{"key":"10.1016\/j.pedn.2023.04.014_bb0140","series-title":"Family assessment: Resiliency, coping and adaptation: Inventories for research and practice","author":"McCubbin","year":"1996"},{"issue":"4","key":"10.1016\/j.pedn.2023.04.014_bb0145","doi-asserted-by":"crossref","first-page":"311","DOI":"10.3233\/PRM-2010-0143","article-title":"Health transitions for youth communication strategies","volume":"3","author":"McNaughton","year":"2010","journal-title":"Journal of Pediatric Rehabilitation Medicine"},{"issue":"2","key":"10.1016\/j.pedn.2023.04.014_bb0150","doi-asserted-by":"crossref","first-page":"107","DOI":"10.3109\/07434618.2013.784930","article-title":"The iPad and mobile technology revolution: benefits and challenges for individuals who require augmentative and alternative communication","volume":"29","author":"McNaughton","year":"2013","journal-title":"Augmentative and Alternative Communication"},{"issue":"1","key":"10.1016\/j.pedn.2023.04.014_bb0155","doi-asserted-by":"crossref","first-page":"43","DOI":"10.1080\/07434610701421007","article-title":"\u201cA child needs to be given a chance to succeed\u201d: parents of individuals who use AAC describe the benefits and challenges of learning AAC technologies","volume":"24","author":"McNaughton","year":"2008","journal-title":"Augmentative and Alternative Communication"},{"issue":"1","key":"10.1016\/j.pedn.2023.04.014_bb0160","doi-asserted-by":"crossref","first-page":"27","DOI":"10.3109\/07434618.2014.995223","article-title":"iPads, mobile technologies, and communication applications: a survey of family wants, needs, and preferences","volume":"31","author":"Meder","year":"2015","journal-title":"Augmentative and Alternative Communication"},{"issue":"7","key":"10.1016\/j.pedn.2023.04.014_bb0165","doi-asserted-by":"crossref","first-page":"710","DOI":"10.1080\/17483107.2018.1499135","article-title":"A systematic review of the barriers and facilitators to the provision and use of low-tech and unaided AAC systems for people with complex communication needs and their families","volume":"14","author":"Moorcroft","year":"2019","journal-title":"Disability and Rehabilitation. Assistive Technology"},{"issue":"2","key":"10.1016\/j.pedn.2023.04.014_bb0170","first-page":"177","article-title":"Giving families a voice in augmentative an alternative communication decision-making","volume":"35","author":"Parette","year":"2000","journal-title":"Education and Training in Mental Retardation and Developmental Disabilities"},{"issue":"1","key":"10.1016\/j.pedn.2023.04.014_bb0175","doi-asserted-by":"crossref","first-page":"50","DOI":"10.2511\/rpsd.32.1.50","article-title":"Augmentative and alternative communication practice in the pursuit of family quality of life: a review of the literature","volume":"32","author":"Saito","year":"2007","journal-title":"Reserch and Practice for Persons with Severe Disablities"},{"key":"10.1016\/j.pedn.2023.04.014_bb0180","doi-asserted-by":"crossref","first-page":"1966","DOI":"10.1007\/s10803-017-3102-8","article-title":"Family quality of life of South African families raising children with autism spectrum disorder","volume":"47","author":"Schlebusch","year":"2017","journal-title":"Journal of Autism and Developmental Disorders"},{"key":"10.1016\/j.pedn.2023.04.014_bb0185","series-title":"Ordinary families, special children: A systems approach to childhood disability","author":"Seligman","year":"2007"},{"issue":"2","key":"10.1016\/j.pedn.2023.04.014_bb0190","doi-asserted-by":"crossref","first-page":"110","DOI":"10.1080\/07434618.2017.1309457","article-title":"Reflections of Malaysian parents of children with developmental disabilities on their experiences with AAC","volume":"33","author":"Singh","year":"2017","journal-title":"Augmentative and Alternative Communication"},{"key":"10.1016\/j.pedn.2023.04.014_bb0195","series-title":"Disability is natural: Revolutionary common sense for raising successful children with disabilities","author":"Snow","year":"2013"},{"issue":"6","key":"10.1016\/j.pedn.2023.04.014_bb0200","doi-asserted-by":"crossref","first-page":"349","DOI":"10.1093\/intqhc\/mzm042","article-title":"Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups","volume":"19","author":"Tong","year":"2007","journal-title":"International Journal for Quality in Health Care"},{"issue":"3","key":"10.1016\/j.pedn.2023.04.014_bb0205","doi-asserted-by":"crossref","first-page":"267","DOI":"10.1177\/107484070000600305","article-title":"Family variables associated with well-being in siblings of children with Down syndrome","volume":"6","author":"Van Riper","year":"2000","journal-title":"Journal of Family Nursing"},{"issue":"2","key":"10.1016\/j.pedn.2023.04.014_bb0210","doi-asserted-by":"crossref","first-page":"116","DOI":"10.1016\/j.pedn.2006.07.004","article-title":"Families of children with Down syndrome: responding to \u201ca change in plans\u201d with resilience","volume":"22","author":"Van Riper","year":"2007","journal-title":"Journal of Pediatric Nursing"},{"key":"10.1016\/j.pedn.2023.04.014_bb0215","doi-asserted-by":"crossref","first-page":"630","DOI":"10.1016\/j.pedn.2016.07.009","article-title":"Respite care and stress among caregivers of children with autism spectrum disorder: an integrative review","volume":"31","author":"Whitmore","year":"2016","journal-title":"Journal of Pediatric Nursing"},{"issue":"6","key":"10.1016\/j.pedn.2023.04.014_bb0220","doi-asserted-by":"crossref","first-page":"807","DOI":"10.1111\/cch.12611","article-title":"Medical care experiences of children with autism and their parents: a scoping review","volume":"44","author":"Wilson","year":"2018","journal-title":"Child: Care, Health and Development"}],"container-title":["Journal of Pediatric Nursing"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0882596323001033?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0882596323001033?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2025,10,10]],"date-time":"2025-10-10T16:32:04Z","timestamp":1760113924000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S0882596323001033"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2023,7]]},"references-count":46,"alternative-id":["S0882596323001033"],"URL":"https:\/\/doi.org\/10.1016\/j.pedn.2023.04.014","relation":{},"ISSN":["0882-5963"],"issn-type":[{"value":"0882-5963","type":"print"}],"subject":[],"published":{"date-parts":[[2023,7]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Perceptions of families with adolescents utilizing augmentative and alternative communication technology: A qualitative approach","name":"articletitle","label":"Article Title"},{"value":"Journal of Pediatric Nursing","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.pedn.2023.04.014","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2023 Elsevier Inc. All rights reserved.","name":"copyright","label":"Copyright"}]}}