{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,10,11]],"date-time":"2025-10-11T01:36:27Z","timestamp":1760146587187,"version":"build-2065373602"},"reference-count":32,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2023,11,1]],"date-time":"2023-11-01T00:00:00Z","timestamp":1698796800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2023,11,1]],"date-time":"2023-11-01T00:00:00Z","timestamp":1698796800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2023,11,1]],"date-time":"2023-11-01T00:00:00Z","timestamp":1698796800000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-017"},{"start":{"date-parts":[[2023,11,1]],"date-time":"2023-11-01T00:00:00Z","timestamp":1698796800000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-037"},{"start":{"date-parts":[[2023,11,1]],"date-time":"2023-11-01T00:00:00Z","timestamp":1698796800000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-012"},{"start":{"date-parts":[[2023,11,1]],"date-time":"2023-11-01T00:00:00Z","timestamp":1698796800000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-029"},{"start":{"date-parts":[[2023,11,1]],"date-time":"2023-11-01T00:00:00Z","timestamp":1698796800000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-004"}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","pediatricnursing.org","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Journal of Pediatric Nursing"],"published-print":{"date-parts":[[2023,11]]},"DOI":"10.1016\/j.pedn.2023.08.010","type":"journal-article","created":{"date-parts":[[2023,8,15]],"date-time":"2023-08-15T07:02:14Z","timestamp":1692082934000},"page":"e172-e179","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":0,"special_numbering":"C","title":["The experiences of the families with children diagnosed with osteogenesis imperfecta: A Qualiative study in Turkey"],"prefix":"10.1016","volume":"73","author":[{"given":"Hatice","family":"Uzsen","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Dilek","family":"Zengin","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Zumrut","family":"Basbakkal","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"78","reference":[{"key":"10.1016\/j.pedn.2023.08.010_bb0005","series-title":"Pediatric Nursing in Child and Nursing Care with Chronic and Life-threatening Disease in Pediatric Nursing. \u201cKronik Ve Ya\u015fam\u0131 Tehdit Edici Hastal\u0131\u011f\u0131 Olan \u00c7ocuk Ve Hem\u015firelik Bak\u0131m\u0131 \u0130\u00e7inde Pediatri Hem\u015fireli\u011fi\u201d","first-page":"905","author":"Ak","year":"2021"},{"issue":"2","key":"10.1016\/j.pedn.2023.08.010_bb0010","first-page":"63","article-title":"Experiences of relat\u0131ves of patients rece\u0131v\u0131ng chemotherapy: A qual\u0131tat\u0131ve study","volume":"28","author":"Akta\u015f","year":"2012","journal-title":"Journal of Ege University Nursing Faculty"},{"issue":"7","key":"10.1016\/j.pedn.2023.08.010_bb0015","first-page":"764","article-title":"Difficulties experienced by caregivers of patients diagnosed with osteogenesis imperfect (OI): Example of A Hospital","volume":"65","author":"Arabaci","year":"2015","journal-title":"The Journal of the Pakistan Medical Association"},{"key":"10.1016\/j.pedn.2023.08.010_bb0020","first-page":"513","article-title":"Caregiver burden in chronic diseases","volume":"3","author":"Atagun","year":"2011","journal-title":"Current Approaches in Psychiatry"},{"key":"10.1016\/j.pedn.2023.08.010_bb0025","doi-asserted-by":"crossref","first-page":"743","DOI":"10.1016\/j.earlhumdev.2010.08.002","article-title":"Characterizing and treating osteogenesis imperfecta","volume":"11","author":"Bishop","year":"2010","journal-title":"Early Human Development"},{"issue":"2","key":"10.1016\/j.pedn.2023.08.010_bb0030","doi-asserted-by":"crossref","first-page":"84","DOI":"10.4274\/jcrpe.1304","article-title":"The impact of psycho-educational training on the psychosocial adjustment of caregivers of osteogenesis imperfecta patients","volume":"6","author":"Bozkurt","year":"2014","journal-title":"Journal of Clinical Research in Pediatric Endocrinology"},{"issue":"15\u201316","key":"10.1016\/j.pedn.2023.08.010_bb0035","doi-asserted-by":"crossref","first-page":"2999","DOI":"10.1111\/jocn.15310","article-title":"The day-to-day experiences of caring for children with osteogenesis \u0131mperfecta: A qualitative descriptive study","volume":"29","author":"Castro","year":"2020","journal-title":"Journal of Clinical Nursing"},{"issue":"3","key":"10.1016\/j.pedn.2023.08.010_bb0040","doi-asserted-by":"crossref","first-page":"75","DOI":"10.5455\/tjfmpc.159761","article-title":"Parental experiences since the diagnosis of disability in families with a disabled child: Accepting the difference","volume":"8","author":"Cigerli","year":"2014","journal-title":"Turkish Journal of Family Medicine and Primary Care"},{"issue":"4","key":"10.1016\/j.pedn.2023.08.010_bb0045","doi-asserted-by":"crossref","first-page":"309","DOI":"10.1046\/j.1365-2214.2002.00282.x","article-title":"What families with children with brittle bones want to tell","volume":"28","author":"Claesson","year":"2002","journal-title":"Child: Care, Health and Development"},{"key":"10.1016\/j.pedn.2023.08.010_bb0050","first-page":"324","article-title":"Psychological needs of parents whose children have cancer in the treatment process","volume":"13","author":"Cug","year":"2021","journal-title":"Current Approaches in Psychiatry"},{"issue":"1","key":"10.1016\/j.pedn.2023.08.010_bb0055","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1186\/1471-2431-13-153","article-title":"The impact of severe osteogenesis imperfecta on the lives of young patients and their parents\u2013a qualitative analysis","volume":"13","author":"Dogba","year":"2013","journal-title":"BMC Pediatrics"},{"key":"10.1016\/j.pedn.2023.08.010_bb0060","series-title":"The Problems of disable people and their families and the role of religion in their solutions: the case study of \u0131sparta","first-page":"169","author":"Efe","year":"2006"},{"issue":"1","key":"10.1016\/j.pedn.2023.08.010_bb0065","first-page":"7","article-title":"Experienced difficulties of children undergoing peritoneal dialysis and their mothers: A qualitative study","volume":"22","author":"Evgin","year":"2013","journal-title":"Journal of Health Science"},{"issue":"1","key":"10.1016\/j.pedn.2023.08.010_bb0070","doi-asserted-by":"crossref","first-page":"21","DOI":"10.1097\/01.ANC.0000311013.71510.41","article-title":"Osteogenesis imperfecta in the neonate","volume":"8","author":"Hackley","year":"2008","journal-title":"Advances in Neonatal Care"},{"issue":"1","key":"10.1016\/j.pedn.2023.08.010_bb0075","doi-asserted-by":"crossref","DOI":"10.1016\/j.dhjo.2021.101168","article-title":"Living with osteogenesis imperfecta: A qualitative study exploring experiences and psychosocial impact from the perspective of patients, parents and professionals","volume":"15","author":"Hill","year":"2022","journal-title":"Disability and Health Journal"},{"issue":"6","key":"10.1016\/j.pedn.2023.08.010_bb0080","first-page":"255","article-title":"Osteogensis imperfecta and role of nurse in management","volume":"104","author":"Joshi","year":"2013","journal-title":"The Nursing Journal of India"},{"issue":"3","key":"10.1016\/j.pedn.2023.08.010_bb0085","first-page":"7","article-title":"The phenomenolog\u0131cally determ\u0131nat\u0131on of biopsychosocial impact of child\u2019s disease on parents in case of dialysis child","volume":"1","author":"Karabudak","year":"2018","journal-title":"Journal of Nursing Science"},{"key":"10.1016\/j.pedn.2023.08.010_bb0090","first-page":"96","article-title":"Life experiences of having a disabled child: A qualitative research on mothers","volume":"41","author":"Karakus","year":"2019","journal-title":"Sel\u00e7uk University Social Sciences Institute Journal"},{"key":"10.1016\/j.pedn.2023.08.010_bb0095","first-page":"1","article-title":"The \u0131mpact of childhood chronic illness on the family: Psychosocial adjustment of siblings","author":"La Clare","year":"2013","journal-title":"Master of Social Work Clinical Research Papers"},{"key":"10.1016\/j.pedn.2023.08.010_bb0100","doi-asserted-by":"crossref","first-page":"145","DOI":"10.2147\/JMDH.S113483","article-title":"Managing the patient with osteogenesis imperfecta: A multidisciplinary approach","volume":"10","author":"Marr","year":"2017","journal-title":"Journal of Multidisciplinary Healthcare"},{"issue":"7","key":"10.1016\/j.pedn.2023.08.010_bb0105","doi-asserted-by":"crossref","first-page":"1235","DOI":"10.1359\/JBMR.050213","article-title":"Effects of intravenous pamidronate treatment in infants with osteogenesis imperfecta: Clinical and Histomorphometric outcome","volume":"20","author":"Munns","year":"2005","journal-title":"Journal of Bone and Mineral Research"},{"issue":"9418","key":"10.1016\/j.pedn.2023.08.010_bb0110","doi-asserted-by":"crossref","first-page":"1377","DOI":"10.1016\/S0140-6736(04)16051-0","article-title":"Osteogenesis imperfecta","volume":"363","author":"Rauch","year":"2004","journal-title":"Lancet"},{"key":"10.1016\/j.pedn.2023.08.010_bb0115","doi-asserted-by":"crossref","first-page":"2281","DOI":"10.1080\/09638288.2017.1334236","article-title":"Family experience with osteogenesis imperfecta type 1: The most distressing situations","volume":"40","author":"Santos","year":"2018","journal-title":"Disability and Rehabilitation"},{"issue":"3","key":"10.1016\/j.pedn.2023.08.010_bb0120","doi-asserted-by":"crossref","first-page":"163","DOI":"10.5152\/TurkPediatriArs.2015.2795","article-title":"Desire to have other children in families with a chronically disabled child and its effect on the relationship of the parents","volume":"50","author":"\u015eim\u015fek","year":"2015","journal-title":"Turkish Archives of Pediatrics\/T\u00fcrk Pediatri Ar\u015fivi"},{"issue":"2","key":"10.1016\/j.pedn.2023.08.010_bb0125","doi-asserted-by":"crossref","first-page":"237","DOI":"10.1177\/1098214005283748","article-title":"A general inductive approach for analyzing qualitative evaluation data","volume":"27","author":"Thomas","year":"2006","journal-title":"American Journal of Evaluation"},{"key":"10.1016\/j.pedn.2023.08.010_bb0130","doi-asserted-by":"crossref","first-page":"1877","DOI":"10.1007\/s11136-016-1247-0","article-title":"The psychosocial experience of individuals living with osteogenesis imperfecta: A mixed-methods systematic review","volume":"25","author":"Tsimicalis","year":"2016","journal-title":"Quality of Life Research"},{"year":"2020","series-title":"An investigation of the care burden, perceived social support, parental competence and social service needs of the mothers of pediatric oncology patients: A mixed method study","author":"Ugurlu","key":"10.1016\/j.pedn.2023.08.010_bb0140"},{"year":"2019","series-title":"A qualitative study on the problems and social exclusion of families with disabilities","author":"Uzunoglu","key":"10.1016\/j.pedn.2023.08.010_bb0145"},{"issue":"3","key":"10.1016\/j.pedn.2023.08.010_bb0150","doi-asserted-by":"crossref","first-page":"1","DOI":"10.29245\/2572-9411\/2019\/3.1175","article-title":"Commentary: \u201cQuality of life in caregivers of children and adolescents with osteogenesis imperfecta.\u201d","volume":"4","author":"Vanz","year":"2019","journal-title":"Journal of Rare Diseases Research & Treatment"},{"issue":"7\u20138","key":"10.1016\/j.pedn.2023.08.010_bb0155","doi-asserted-by":"crossref","first-page":"1773","DOI":"10.1177\/09697330221105635","article-title":"The moral experiences of children with osteogenesis imperfecta","volume":"29","author":"Wang","year":"2022","journal-title":"Nursing Ethics"},{"key":"10.1016\/j.pedn.2023.08.010_bb0160","doi-asserted-by":"crossref","first-page":"75","DOI":"10.1016\/j.pedn.2020.06.009","article-title":"Parents' perceptions of health-related quality of life of children diagnosed with osteogenesis imperfecta","volume":"55","author":"Wiggins","year":"2020","journal-title":"Journal of Pediatric Nursing"},{"issue":"5","key":"10.1016\/j.pedn.2023.08.010_bb0165","doi-asserted-by":"crossref","first-page":"309","DOI":"10.1097\/ANC.0000000000000094","article-title":"Osteogenesis imperfecta types I-XI: Implications for the neonatal nurse","volume":"14","author":"Womack","year":"2014","journal-title":"Advances in Neonatal Care"}],"container-title":["Journal of Pediatric Nursing"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0882596323002130?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0882596323002130?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2025,10,10]],"date-time":"2025-10-10T16:37:39Z","timestamp":1760114259000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S0882596323002130"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2023,11]]},"references-count":32,"alternative-id":["S0882596323002130"],"URL":"https:\/\/doi.org\/10.1016\/j.pedn.2023.08.010","relation":{},"ISSN":["0882-5963"],"issn-type":[{"type":"print","value":"0882-5963"}],"subject":[],"published":{"date-parts":[[2023,11]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"The experiences of the families with children diagnosed with osteogenesis imperfecta: A Qualiative study in Turkey","name":"articletitle","label":"Article Title"},{"value":"Journal of Pediatric Nursing","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.pedn.2023.08.010","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2023 Elsevier Inc. All rights reserved.","name":"copyright","label":"Copyright"}]}}