{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,11,9]],"date-time":"2026-11-09T13:54:16Z","timestamp":1794232456184,"version":"4.9.0"},"reference-count":57,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2026,3,1]],"date-time":"2026-03-01T00:00:00Z","timestamp":1772323200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2026,3,1]],"date-time":"2026-03-01T00:00:00Z","timestamp":1772323200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2026,3,1]],"date-time":"2026-03-01T00:00:00Z","timestamp":1772323200000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-017"},{"start":{"date-parts":[[2026,3,1]],"date-time":"2026-03-01T00:00:00Z","timestamp":1772323200000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-037"},{"start":{"date-parts":[[2026,3,1]],"date-time":"2026-03-01T00:00:00Z","timestamp":1772323200000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-012"},{"start":{"date-parts":[[2026,3,1]],"date-time":"2026-03-01T00:00:00Z","timestamp":1772323200000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-029"},{"start":{"date-parts":[[2026,3,1]],"date-time":"2026-03-01T00:00:00Z","timestamp":1772323200000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-004"}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","pediatricnursing.org","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Journal of Pediatric Nursing"],"published-print":{"date-parts":[[2026,3]]},"DOI":"10.1016\/j.pedn.2026.01.001","type":"journal-article","created":{"date-parts":[[2026,1,8]],"date-time":"2026-01-08T14:35:06Z","timestamp":1767882906000},"page":"78-87","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":2,"special_numbering":"C","title":["The lived experiences of parents of children with cerebral palsy. A phenomenological study in a tertiary care facility, Ghana"],"prefix":"10.1016","volume":"87","author":[{"given":"Ruth Nkpezah","family":"Nimota","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ndekugri Damata Huldah","family":"Atame","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kennedy Diema","family":"Konlan","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"issue":"5","key":"10.1016\/j.pedn.2026.01.001_bb0005","first-page":"496","article-title":"Facilitators and barriers of active participation of caregivers of children with cerebral palsy in their rehabilitation: An exploratory study","volume":"32","author":"Abdullahi","year":"2018","journal-title":"Neurorehabilitation and Neural Repair"},{"issue":"1","key":"10.1016\/j.pedn.2026.01.001_bb0010","doi-asserted-by":"crossref","DOI":"10.1136\/bmjpo-2024-002617","article-title":"Caregiver perspectives on the long-lasting impact of the COVID-19 pandemic on children with cerebral palsy in Johannesburg, South Africa","volume":"8","author":"Adams","year":"2024","journal-title":"BMJ Paediatrics Open"},{"issue":"8","key":"10.1016\/j.pedn.2026.01.001_bb0015","doi-asserted-by":"crossref","first-page":"1313","DOI":"10.3390\/children10081313","article-title":"Family needs assessment of patients with cerebral palsy attending two hospitals in Accra, Ghana","volume":"10","author":"Aduful","year":"2023","journal-title":"Children"},{"key":"10.1016\/j.pedn.2026.01.001_bb0020","series-title":"An overview on cerebral palsy","author":"Alenzy","year":"2021"},{"issue":"3","key":"10.1016\/j.pedn.2026.01.001_bb0025","doi-asserted-by":"crossref","first-page":"279","DOI":"10.1016\/j.jtcme.2020.08.004","article-title":"Vernonia cinerea regenerates tubular epithelial cells in cisplatin induced nephrotoxicity in cancer bearing mice without affecting antitumor activity","volume":"11","author":"Amuthan","year":"2021","journal-title":"Journal of Traditional and Complementary Medicine"},{"issue":"4","key":"10.1016\/j.pedn.2026.01.001_bb0030","doi-asserted-by":"crossref","first-page":"454","DOI":"10.1111\/dmcn.14401","article-title":"Impairments, functional limitations, and access to services and education for children with cerebral palsy in Uganda: A population-based study","volume":"62","author":"Andrews","year":"2020","journal-title":"Developmental Medicine and Child Neurology"},{"issue":"8","key":"10.1016\/j.pedn.2026.01.001_bb0035","doi-asserted-by":"crossref","first-page":"555","DOI":"10.1080\/17518423.2021.1917718","article-title":"Evaluation of anxiety, depression and burden on caregivers of children with cerebral palsy","volume":"24","author":"Barutcu","year":"2021","journal-title":"Developmental Neurorehabilitation"},{"key":"10.1016\/j.pedn.2026.01.001_bb0040","series-title":"The lived experiences of parents with chronic sorrow who are caring for children with a chronic medical condition","author":"Batchelor","year":"2017"},{"issue":"2","key":"10.1016\/j.pedn.2026.01.001_bb0045","doi-asserted-by":"crossref","first-page":"399","DOI":"10.1080\/14780887.2024.2382244","article-title":"Reporting guidelines for qualitative research: A values-based approach","volume":"22","author":"Braun","year":"2025","journal-title":"Qualitative Research in Psychology"},{"issue":"2","key":"10.1016\/j.pedn.2026.01.001_bb0050","doi-asserted-by":"crossref","first-page":"232","DOI":"10.32322\/jhsm.1597750","article-title":"The relationship between self-efficacy and caregiving burden among parents of children with cerebral palsy","volume":"8","author":"Can","year":"2025","journal-title":"Journal of Health Sciences and Medicine"},{"issue":"1","key":"10.1016\/j.pedn.2026.01.001_bb0055","doi-asserted-by":"crossref","first-page":"724","DOI":"10.1186\/s13104-017-3011-0","article-title":"Caring for a cerebral palsy child: A caregivers perspective at the university teaching hospital, Zambia","volume":"10","author":"Chiluba","year":"2017","journal-title":"BMC Research Notes"},{"issue":"2","key":"10.1016\/j.pedn.2026.01.001_bb0060","doi-asserted-by":"crossref","first-page":"79","DOI":"10.4337\/jqrt.2023.0006","article-title":"How to use thematic analysis in qualitative research","volume":"3","author":"Christou","year":"2022","journal-title":"Journal of Qualitative Research in Tourism"},{"key":"10.1016\/j.pedn.2026.01.001_bb0065","series-title":"Caring for children with severe cerebral palsy: The lived experience of parents","author":"Cook","year":"2019"},{"issue":"6","key":"10.1016\/j.pedn.2026.01.001_bb0070","doi-asserted-by":"crossref","first-page":"700","DOI":"10.1111\/dmcn.16274","article-title":"Proposed updated description of cerebral palsy","volume":"67","author":"Dan","year":"2025","journal-title":"Developmental Medicine and Child Neurology"},{"key":"10.1016\/j.pedn.2026.01.001_bb0075","series-title":"Experiences of caregivers caring for children with cerebral palsy in Mahalapye Botswana","author":"Diseko","year":"2017"},{"key":"10.1016\/j.pedn.2026.01.001_bb0080","doi-asserted-by":"crossref","first-page":"157","DOI":"10.1016\/j.pedn.2023.08.026","article-title":"Caregivers\u2019 experiences of having a child with cerebral palsy. A meta-synthesis","volume":"73","author":"Dlamini","year":"2023","journal-title":"Journal of Pediatric Nursing"},{"key":"10.1016\/j.pedn.2026.01.001_bb0085","series-title":"Seminars in pediatric neurology","first-page":"30","article-title":"Pediatric cerebral palsy in Africa: a systematic review","volume":"(Vol. 21, No. 1,","author":"Donald","year":"2014"},{"key":"10.1016\/j.pedn.2026.01.001_bb0090","doi-asserted-by":"crossref","first-page":"e129","DOI":"10.1016\/j.pedn.2020.03.004","article-title":"Adolescents\u2019 perceptions of living with co-existing ADHD and medical disorder in Denmark","volume":"53","author":"Enggaard","year":"2020","journal-title":"Journal of Pediatric Nursing"},{"issue":"4","key":"10.1016\/j.pedn.2026.01.001_bb0095","doi-asserted-by":"crossref","first-page":"1128","DOI":"10.18203\/2349-3291.ijcp20172656","article-title":"Challenges of care givers of children with cerebral palsy in a developing country","volume":"4","author":"Eyong","year":"2017","journal-title":"International Journal of Contemporary Pediatrics"},{"key":"10.1016\/j.pedn.2026.01.001_bb0100","series-title":"Addressing disparities among children with cerebral palsy: Optimizing enablement, functioning, and participation","first-page":"153","volume":"Vol. 14","author":"Flanagan","year":"2021"},{"issue":"10","key":"10.1016\/j.pedn.2026.01.001_bb0105","doi-asserted-by":"crossref","DOI":"10.1371\/journal.pone.0258650","article-title":"The multifaceted care-seeking practices among caregivers of children with cerebral palsy: Perspectives from mothers and providers in Ghana","volume":"16","author":"Fonzi","year":"2021","journal-title":"PLoS One"},{"key":"10.1016\/j.pedn.2026.01.001_bb0110","series-title":"Are we there yet? Data saturation in qualitative research","author":"Fusch","year":"2015"},{"issue":"2","key":"10.1016\/j.pedn.2026.01.001_bb0115","doi-asserted-by":"crossref","first-page":"94","DOI":"10.1097\/NOR.0000000000000928","article-title":"Parental caregiver expectations and satisfaction following hip reconstruction and spinal fusion in children with cerebral palsy","volume":"42","author":"Geyer","year":"2023","journal-title":"Orthopaedic Nursing"},{"issue":"2","key":"10.1016\/j.pedn.2026.01.001_bb0120","doi-asserted-by":"crossref","first-page":"701","DOI":"10.1007\/s11845-020-02337-w","article-title":"Physical workload during caregiving activities and related factors among the caregivers of children with cerebral palsy","volume":"190","author":"Gokcin Eminel","year":"2021","journal-title":"Irish Journal of Medical Science"},{"key":"10.1016\/j.pedn.2026.01.001_bb0125","first-page":"1","article-title":"The relationship between emotion regulation and activity performance and quality of life in adolescents with cerebral palsy","author":"G\u00f6kta\u015f","year":"2025","journal-title":"Developmental Neurorehabilitation"},{"issue":"7","key":"10.1016\/j.pedn.2026.01.001_bb0130","doi-asserted-by":"crossref","first-page":"2527","DOI":"10.3390\/jcm12072527","article-title":"Emotion regulation is associated with anxiety, depression and stress in adults with cerebral palsy","volume":"12","author":"Honan","year":"2023","journal-title":"Journal of Clinical Medicine"},{"issue":"11","key":"10.1016\/j.pedn.2026.01.001_bb0135","doi-asserted-by":"crossref","first-page":"1344","DOI":"10.1111\/dmcn.14920","article-title":"Sleep problems in children with cerebral palsy and their parents","volume":"63","author":"Hulst","year":"2021","journal-title":"Developmental Medicine and Child Neurology"},{"issue":"1","key":"10.1016\/j.pedn.2026.01.001_bb0140","doi-asserted-by":"crossref","first-page":"475","DOI":"10.3390\/ijerph19010475","article-title":"The economic burden and determinant factors of parents\/caregivers of children with cerebral palsy in Malaysia: A mixed methods study","volume":"19","author":"Ismail","year":"2022","journal-title":"International Journal of Environmental Research and Public Health"},{"key":"10.1016\/j.pedn.2026.01.001_bb0145","series-title":"Interviews in qualitative research","author":"King","year":"2018"},{"issue":"4","key":"10.1016\/j.pedn.2026.01.001_bb0150","doi-asserted-by":"crossref","DOI":"10.1111\/cch.70141","article-title":"Family caregivers\u2019 burden and coping with caring for children with cerebral palsy: A qualitative study in a low-resourced context, Ghana","volume":"51","author":"Kisinna","year":"2025","journal-title":"Child: Care, Health and Development"},{"issue":"6","key":"10.1016\/j.pedn.2026.01.001_bb0155","doi-asserted-by":"crossref","first-page":"859","DOI":"10.1111\/cch.12897","article-title":"Children with cerebral palsy: A cross-sectional study of their sleep and their caregiver\u2019s sleep quality, psychological health and well-being","volume":"47","author":"Lang","year":"2021","journal-title":"Child: Care, Health and Development"},{"key":"10.1016\/j.pedn.2026.01.001_bb0160","doi-asserted-by":"crossref","DOI":"10.3389\/fresc.2023.1139847","article-title":"\u201cIt is something that gives us hope\u201d: Lived experience among parents to children with cerebral palsy who are non-ambulant of the phenomenon physical activity, with or without the use of a novel dynamic standing device","volume":"4","author":"Lauruschkus","year":"2023","journal-title":"Frontiers in Rehabilitation Sciences"},{"issue":"3","key":"10.1016\/j.pedn.2026.01.001_bb0165","doi-asserted-by":"crossref","first-page":"299","DOI":"10.1080\/09638288.2019.1623852","article-title":"Quality of life in children and adolescents with cerebral palsy: A systematic review with meta-analysis","volume":"43","author":"Makris","year":"2021","journal-title":"Disability and Rehabilitation"},{"issue":"3","key":"10.1016\/j.pedn.2026.01.001_bb0170","doi-asserted-by":"crossref","first-page":"440","DOI":"10.3390\/children10030440","article-title":"Caring for children with cerebral palsy: A challenge to caregivers in rural areas of South Africa","volume":"10","author":"Manyuma","year":"2023","journal-title":"Children"},{"key":"10.1016\/j.pedn.2026.01.001_bb0175","series-title":"Perceptions and experiences of caregivers of children with cerebral palsy in a sub urban district of Ghana","author":"Menlah","year":"2020"},{"key":"10.1016\/j.pedn.2026.01.001_bb0180","series-title":"The Sage handbook of qualitative research in the Asian context","article-title":"Rigor in qualitative research","volume":"vol. 327","author":"Miller","year":"2022"},{"issue":"12","key":"10.1016\/j.pedn.2026.01.001_bb0185","doi-asserted-by":"crossref","DOI":"10.1371\/journal.pone.0277543","article-title":"Exploring the quality of life of adolescents with cerebral palsy participating in conductive education around the Pannonian Basin","volume":"17","author":"Mladoneczki-Leszk\u00f3","year":"2022","journal-title":"PLoS One"},{"issue":"1","key":"10.1016\/j.pedn.2026.01.001_bb0190","doi-asserted-by":"crossref","DOI":"10.1136\/bmjpo-2022-001807","article-title":"Family caregivers\u2019 experience of care with a child with cerebral palsy: The lived experiences and challenges of caregivers in a resource-limited setting in northern Ghana","volume":"7","author":"Mwinbam","year":"2023","journal-title":"BMJ Paediatrics Open"},{"key":"10.1016\/j.pedn.2026.01.001_bb0195","series-title":"Thematic analysis of qualitative research data: A seven-step guide","author":"Mwita","year":"2025"},{"key":"10.1016\/j.pedn.2026.01.001_bb0200","article-title":"Family caregivers\u2019 experiences of caring for children with cerebral palsy in China: A qualitative descriptive study","volume":"59","author":"Ni","year":"2022","journal-title":"Inquiry: The Journal of Health Care Organization, Provision, and Financing"},{"key":"10.1016\/j.pedn.2026.01.001_bb0205","first-page":"1","article-title":"The impact of caring for children with cerebral palsy: A study on spiritual well-being, resilience, and caregiver burden","author":"Nojavan","year":"2025","journal-title":"Journal of Disability & Religion"},{"issue":"12","key":"10.1016\/j.pedn.2026.01.001_bb0210","doi-asserted-by":"crossref","DOI":"10.1371\/journal.pgph.0001331","article-title":"Barriers to providing healthcare to children living with cerebral palsy in Ghana: A qualitative study of healthcare provider perspectives","volume":"2","author":"Oguntade","year":"2022","journal-title":"PLOS Global Public Health"},{"issue":"1","key":"10.1016\/j.pedn.2026.01.001_bb0215","doi-asserted-by":"crossref","first-page":"32","DOI":"10.1111\/dmcn.15640","article-title":"Social determinants of health for children with cerebral palsy and their families","volume":"66","author":"Ostojic","year":"2024","journal-title":"Developmental Medicine and Child Neurology"},{"issue":"Suppl. 1","key":"10.1016\/j.pedn.2026.01.001_bb0220","doi-asserted-by":"crossref","first-page":"S125","DOI":"10.21037\/tp.2020.01.01","article-title":"Cerebral palsy in children: A clinical overview","volume":"9","author":"Patel","year":"2020","journal-title":"Translational Pediatrics"},{"issue":"3","key":"10.1016\/j.pedn.2026.01.001_bb0225","doi-asserted-by":"crossref","DOI":"10.1093\/heapro\/daac049","article-title":"The impact of caring for family members with mental illnesses on the caregiver: A scoping review","volume":"38","author":"Phillips","year":"2023","journal-title":"Health Promotion International"},{"issue":"4","key":"10.1016\/j.pedn.2026.01.001_bb0230","doi-asserted-by":"crossref","first-page":"721","DOI":"10.1016\/j.ccc.2022.06.016","article-title":"The next frontier in neurocritical care in resource-constrained settings","volume":"38","author":"Raees","year":"2022","journal-title":"Critical Care Clinics"},{"key":"10.1016\/j.pedn.2026.01.001_bb0235","series-title":"A study on purposive sampling method in research","first-page":"8","volume":"Vol. 5","author":"Rai","year":"2015"},{"issue":"6","key":"10.1016\/j.pedn.2026.01.001_bb0240","doi-asserted-by":"crossref","first-page":"719","DOI":"10.3390\/children11060719","article-title":"Proprioception, emotion and social responsiveness in children with developmental disorders: An exploratory study in autism Spectrum disorder, cerebral palsy and different neurodevelopmental situations","volume":"11","author":"Riquelme","year":"2024","journal-title":"Children"},{"key":"10.1016\/j.pedn.2026.01.001_bb0245","series-title":"Cerebral Palsy-Updates","article-title":"Impact of cerebral palsy on parents and families","author":"Sankombo","year":"2022"},{"key":"10.1016\/j.pedn.2026.01.001_bb0250","doi-asserted-by":"crossref","first-page":"e133","DOI":"10.1016\/j.pedn.2024.06.028","article-title":"Anxiety, depression, and support needs of the mothers of children with cerebral palsy and determining their opinions: Mixed methods study","volume":"78","author":"Sarman","year":"2024","journal-title":"Journal of Pediatric Nursing"},{"key":"10.1016\/j.pedn.2026.01.001_bb0255","doi-asserted-by":"crossref","first-page":"64","DOI":"10.1016\/j.pedn.2022.01.014","article-title":"Mothers' experience of having a child with cerebral palsy. A systematic review","volume":"64","author":"Smith","year":"2022","journal-title":"Journal of Pediatric Nursing"},{"issue":"2","key":"10.1016\/j.pedn.2026.01.001_bb0260","doi-asserted-by":"crossref","first-page":"258","DOI":"10.1111\/dmcn.15708","article-title":"Causation in cerebral palsy: Parental beliefs and associated emotions","volume":"66","author":"Smyth","year":"2024","journal-title":"Developmental Medicine and Child Neurology"},{"issue":"17","key":"10.1016\/j.pedn.2026.01.001_bb0265","doi-asserted-by":"crossref","first-page":"4767","DOI":"10.1080\/09638288.2021.1919765","article-title":"Mothers\u2019 perception of cerebral palsy in a low-income country of West Africa: A cross-sectional study","volume":"44","author":"Sogbossi","year":"2022","journal-title":"Disability and Rehabilitation"},{"key":"10.1016\/j.pedn.2026.01.001_bb0270","series-title":"Employing phenomenology to highlight the richness of the leadership experience. Proceedings of the European Conference on e-Learning","author":"Sutherland","year":"2015"},{"issue":"1","key":"10.1016\/j.pedn.2026.01.001_bb0275","doi-asserted-by":"crossref","first-page":"369","DOI":"10.1186\/s12883-025-04397-w","article-title":"Psychosocial impact on parents raising children with cerebral palsy at Gondar comprehensive specialized hospital, Northwest Ethiopia","volume":"25","author":"Tegegne","year":"2025","journal-title":"BMC Neurology"},{"issue":"1","key":"10.1016\/j.pedn.2026.01.001_bb0280","doi-asserted-by":"crossref","first-page":"645","DOI":"10.1186\/s12889-020-08808-0","article-title":"Burden of caregivers of children with cerebral palsy: An intersectional analysis of gender, poverty, stigma, and public policy","volume":"20","author":"Vadivelan","year":"2020","journal-title":"BMC Public Health"},{"issue":"2","key":"10.1016\/j.pedn.2026.01.001_bb0285","doi-asserted-by":"crossref","first-page":"1","DOI":"10.21926\/obm.neurobiol.2202120","article-title":"Cerebral palsy: An overview of etiology, types and comorbidities","volume":"6","author":"Vova","year":"2022","journal-title":"OBM Neurobiology"}],"container-title":["Journal of Pediatric Nursing"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0882596326000011?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0882596326000011?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2026,3,23]],"date-time":"2026-03-23T15:59:32Z","timestamp":1774281572000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S0882596326000011"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,3]]},"references-count":57,"alternative-id":["S0882596326000011"],"URL":"https:\/\/doi.org\/10.1016\/j.pedn.2026.01.001","relation":{},"ISSN":["0882-5963"],"issn-type":[{"value":"0882-5963","type":"print"}],"subject":[],"published":{"date-parts":[[2026,3]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"The lived experiences of parents of children with cerebral palsy. A phenomenological study in a tertiary care facility, Ghana","name":"articletitle","label":"Article Title"},{"value":"Journal of Pediatric Nursing","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.pedn.2026.01.001","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2026 Elsevier Inc. All rights are reserved, including those for text and data mining, AI training, and similar technologies.","name":"copyright","label":"Copyright"}]}}