{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,7]],"date-time":"2026-09-07T23:08:04Z","timestamp":1788822484674,"version":"build-2803163510"},"reference-count":45,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2026,9,1]],"date-time":"2026-09-01T00:00:00Z","timestamp":1788220800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2026,9,1]],"date-time":"2026-09-01T00:00:00Z","timestamp":1788220800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2026,9,1]],"date-time":"2026-09-01T00:00:00Z","timestamp":1788220800000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-017"},{"start":{"date-parts":[[2026,9,1]],"date-time":"2026-09-01T00:00:00Z","timestamp":1788220800000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-037"},{"start":{"date-parts":[[2026,9,1]],"date-time":"2026-09-01T00:00:00Z","timestamp":1788220800000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-012"},{"start":{"date-parts":[[2026,9,1]],"date-time":"2026-09-01T00:00:00Z","timestamp":1788220800000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-029"},{"start":{"date-parts":[[2026,9,1]],"date-time":"2026-09-01T00:00:00Z","timestamp":1788220800000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-004"}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","pediatricnursing.org","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Journal of Pediatric Nursing"],"published-print":{"date-parts":[[2026,9]]},"DOI":"10.1016\/j.pedn.2026.07.029","type":"journal-article","created":{"date-parts":[[2026,7,22]],"date-time":"2026-07-22T13:31:41Z","timestamp":1784727101000},"page":"657-665","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":0,"special_numbering":"C","title":["Caregiving challenges among caregivers of children living with HIV: A descriptive qualitative study"],"prefix":"10.1016","volume":"90","author":[{"given":"Yuting","family":"Yang","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Qiuyue","family":"Shang","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Yong","family":"Gu","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mei","family":"Liu","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Siyan","family":"Gao","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Xiaoyu","family":"Song","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Zhiwei","family":"Chen","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Yanhua","family":"Chen","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jian","family":"Tang","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"issue":"3","key":"10.1016\/j.pedn.2026.07.029_bb0005","doi-asserted-by":"crossref","first-page":"232","DOI":"10.2989\/16085906.2021.1979606","article-title":"Barriers to ART adherence among school students living with HIV in Kenya","volume":"20","author":"Apondi","year":"2021","journal-title":"African Journal of AIDS Research"},{"key":"10.1016\/j.pedn.2026.07.029_bb0010","article-title":"Caregivers\u2019 experiences with caring for a child living with hiv\/aids: A qualitative study in northern Ghana. Global","volume":"8","author":"Atanuriba","year":"2021","journal-title":"Pediatric Health"},{"issue":"11","key":"10.1016\/j.pedn.2026.07.029_bb0015","doi-asserted-by":"crossref","first-page":"1766","DOI":"10.1016\/j.chiabu.2014.08.013","article-title":"Medical nonadherence in pediatric HIV: Psychosocial risks and intersection with the child protection system for medical neglect","volume":"38","author":"Azzopardi","year":"2014","journal-title":"Child Abuse & Neglect"},{"issue":"8","key":"10.1016\/j.pedn.2026.07.029_bb0020","doi-asserted-by":"crossref","first-page":"922","DOI":"10.1111\/jcpp.12729","article-title":"Family-based promotion of mental health in children affected by HIV: A pilot randomized controlled trial","volume":"58","author":"Betancourt","year":"2017","journal-title":"Journal of Child Psychology and Psychiatry"},{"issue":"4","key":"10.1016\/j.pedn.2026.07.029_bb0025","doi-asserted-by":"crossref","first-page":"293","DOI":"10.1080\/24694193.2017.1372531","article-title":"Hope for the future but fear the risk of stigma: Ethiopian family caregivers\u2019 lived experience of caring for their HIV positive child two years after starting antiretroviral treatment","volume":"41","author":"Biru","year":"2018","journal-title":"Comprehensive Child and Adolescent Nursing"},{"issue":"4","key":"10.1016\/j.pedn.2026.07.029_bb0030","doi-asserted-by":"crossref","first-page":"589","DOI":"10.1080\/2159676X.2019.1628806","article-title":"Reflecting on reflexive thematic analysis","volume":"11","author":"Braun","year":"2019","journal-title":"Qualitative Research in Sport, Exercise and Health"},{"issue":"3","key":"10.1016\/j.pedn.2026.07.029_bb0035","doi-asserted-by":"crossref","first-page":"328","DOI":"10.1080\/14780887.2020.1769238","article-title":"One size fits all? What counts as quality practice in (reflexive) thematic analysis?","volume":"18","author":"Braun","year":"2021","journal-title":"Qualitative Research in Psychology"},{"issue":"Supplement 1","key":"10.1016\/j.pedn.2026.07.029_bb0040","doi-asserted-by":"crossref","DOI":"10.1542\/peds.2025-070739D","article-title":"Mental health care gaps for adolescents with hiv: Lessons from tanzania and the united states","volume":"156","author":"Dow","year":"2025","journal-title":"Pediatrics"},{"issue":"3","key":"10.1016\/j.pedn.2026.07.029_bb0045","doi-asserted-by":"crossref","first-page":"360","DOI":"10.1093\/jpepsy\/jsq094","article-title":"Mental health in youth infected with and affected by HIV: The role of caregiver HIV","volume":"36","author":"Elkington","year":"2011","journal-title":"Journal of Pediatric Psychology"},{"issue":"11","key":"10.1016\/j.pedn.2026.07.029_bb0050","doi-asserted-by":"crossref","DOI":"10.3390\/ijerph19116879","article-title":"Mental health challenges and the Associated factors in women living with HIV who have children living with HIV in Indonesia: A qualitative study","volume":"19","author":"Fauk","year":"2022","journal-title":"International Journal of Environmental Research and Public Health"},{"issue":"10","key":"10.1016\/j.pedn.2026.07.029_bb0055","doi-asserted-by":"crossref","first-page":"1280","DOI":"10.1080\/09540121.2017.1307917","article-title":"Caring for perinatally HIV-infected children: call for mental care for the children and the caregivers","volume":"29","author":"Kikuchi","year":"2017","journal-title":"AIDS Care"},{"issue":"9","key":"10.1016\/j.pedn.2026.07.029_bb0060","doi-asserted-by":"crossref","DOI":"10.1371\/journal.pgph.0002418","article-title":"Navigating antiretroviral adherence in boarding secondary schools in Nairobi, Kenya: A qualitative study of adolescents living with HIV, their caregivers and school nurses","volume":"3","author":"Kipkurui","year":"2023","journal-title":"PLOS Global Public Health"},{"issue":"12","key":"10.1016\/j.pedn.2026.07.029_bb0065","doi-asserted-by":"crossref","DOI":"10.1371\/journal.pone.0260278","article-title":"Supporting adolescents living with HIV within boarding schools in Kenya","volume":"16","author":"Kose","year":"2021","journal-title":"PLoS One"},{"issue":"1","key":"10.1016\/j.pedn.2026.07.029_bb0070","doi-asserted-by":"crossref","DOI":"10.1007\/s11904-025-00742-3","article-title":"Improving communication: A narrative synthesis of interventions for HIV disclosure to pediatric populations","volume":"22","author":"Kumah","year":"2025","journal-title":"Current HIV\/AIDS Reports"},{"issue":"3","key":"10.1016\/j.pedn.2026.07.029_bb0075","doi-asserted-by":"crossref","first-page":"325","DOI":"10.1177\/14413582241264622","article-title":"What is quantitative research? An overview and guidelines","volume":"33","author":"Lim","year":"2025","journal-title":"Australasian Marketing Journal"},{"key":"10.1016\/j.pedn.2026.07.029_bb0080","series-title":"Naturalistic inquiry","author":"Lincoln","year":"1985"},{"issue":"4","key":"10.1016\/j.pedn.2026.07.029_bb0085","doi-asserted-by":"crossref","first-page":"471","DOI":"10.1080\/09540121.2019.1654076","article-title":"Children living with HIV-related disabilities in a resource-poor community in South Africa: caregiver perceptions of caring and rehabilitation","volume":"32","author":"Maddocks","year":"2019","journal-title":"AIDS Care"},{"issue":"12","key":"10.1016\/j.pedn.2026.07.029_bb0090","doi-asserted-by":"crossref","DOI":"10.3390\/children7120289","article-title":"The consequences of delaying telling children with perinatal HIV about their diagnosis as perceived by healthcare workers in the eastern cape; a qualitative study","volume":"7","author":"Madiba","year":"2020","journal-title":"Children"},{"issue":"13","key":"10.1016\/j.pedn.2026.07.029_bb0095","doi-asserted-by":"crossref","first-page":"1753","DOI":"10.1177\/1049732315617444","article-title":"Sample size in qualitative interview studies: Guided by information power","volume":"26","author":"Malterud","year":"2016","journal-title":"Qualitative Health Research"},{"key":"10.1016\/j.pedn.2026.07.029_bb0100","author":"Medrano"},{"issue":"1","key":"10.1016\/j.pedn.2026.07.029_bb0105","article-title":"Care burden and coping strategies among caregivers of Pediatric HIV\/AIDS in northern Uganda: a cross-sectional mixed-method study","volume":"2021","author":"Mujjuzi","year":"2021","journal-title":"AIDS Research and Treatment"},{"issue":"6","key":"10.1016\/j.pedn.2026.07.029_bb0110","doi-asserted-by":"crossref","first-page":"793","DOI":"10.1080\/09540121.2016.1263722","article-title":"Caregiver mental health and HIV-infected child wellness: perspectives from Ugandan caregivers","volume":"29","author":"Murray","year":"2016","journal-title":"AIDS Care"},{"key":"10.1016\/j.pedn.2026.07.029_bb0115","author":"National Health Commission of the People's Republic of China"},{"issue":"1","key":"10.1016\/j.pedn.2026.07.029_bb0120","doi-asserted-by":"crossref","DOI":"10.1186\/1471-2288-9-52","article-title":"Qualitative description\u2013the poor cousin of health research?","volume":"9","author":"Neergaard","year":"2009","journal-title":"BMC Medical Research Methodology"},{"issue":"8","key":"10.1016\/j.pedn.2026.07.029_bb0125","doi-asserted-by":"crossref","DOI":"10.1371\/journal.pone.0307143","article-title":"The unmet mental health needs of adolescents with HIV in eastern Tanzania: Experiences of healthcare providers, adolescents, and caregivers","volume":"19","author":"Njau","year":"2024","journal-title":"PLoS One"},{"issue":"1","key":"10.1016\/j.pedn.2026.07.029_bb0130","doi-asserted-by":"crossref","first-page":"93","DOI":"10.2174\/1874613602115010093","article-title":"School-level barriers of antiretroviral therapy adherence and interventions to overcome them among adolescents living with HIV in western Kenya: A qualitative study","volume":"15","author":"Onyango","year":"2021","journal-title":"The Open AIDS Journal"},{"issue":"9","key":"10.1016\/j.pedn.2026.07.029_bb0140","doi-asserted-by":"crossref","first-page":"3133","DOI":"10.1007\/s10461-023-04034-y","article-title":"Examining the relationship between HIV-related stigma and the health and wellbeing of children and adolescents living with HIV: a systematic review","volume":"27","author":"Robinson","year":"2023","journal-title":"AIDS and Behavior"},{"issue":"4","key":"10.1016\/j.pedn.2026.07.029_bb0145","doi-asserted-by":"crossref","first-page":"334","DOI":"10.1002\/1098-240X(200008)23:4<334::AID-NUR9>3.0.CO;2-G","article-title":"Whatever happened to qualitative description?","volume":"23","author":"Sandelowski","year":"2000","journal-title":"Research in Nursing & Health"},{"issue":"1","key":"10.1016\/j.pedn.2026.07.029_bb0150","doi-asserted-by":"crossref","first-page":"77","DOI":"10.1002\/nur.20362","article-title":"What's in a name? Qualitative description revisited","volume":"33","author":"Sandelowski","year":"2010","journal-title":"Research in Nursing & Health"},{"issue":"4","key":"10.1016\/j.pedn.2026.07.029_bb0155","doi-asserted-by":"crossref","first-page":"501","DOI":"10.24953\/turkjpediatr.2025.5730","article-title":"Barriers and facilitators of pediatric adherence to antiretroviral therapy: perspectives from caregivers in T\u00fcrkiye","volume":"67","author":"\u015eensoy","year":"2025","journal-title":"The Turkish Journal of Pediatrics"},{"issue":"6","key":"10.1016\/j.pedn.2026.07.029_bb0160","doi-asserted-by":"crossref","first-page":"890","DOI":"10.1111\/cch.12387","article-title":"The effects of caregiver and household HIV on child development: a community-based longitudinal study of young children","volume":"42","author":"Sherr","year":"2016","journal-title":"Child: Care, Health and Development"},{"issue":"8","key":"10.1016\/j.pedn.2026.07.029_bb0165","doi-asserted-by":"crossref","first-page":"957","DOI":"10.1080\/09540121.2010.542298","article-title":"Challenges faced by elderly guardians in sustaining the adherence to antiretroviral therapy in HIV-infected children in Zimbabwe","volume":"23","author":"Skovdal","year":"2011","journal-title":"AIDS Care"},{"key":"10.1016\/j.pedn.2026.07.029_bb0170","doi-asserted-by":"crossref","first-page":"1027","DOI":"10.2147\/PPA.S357580","article-title":"Caregiver burden among informal caregivers of persons living with HIV\/AIDS in Liangshan Prefecture, China","volume":"16","author":"Song","year":"2022","journal-title":"Patient Preference and Adherence"},{"key":"10.1016\/j.pedn.2026.07.029_bb0175","series-title":"Qualitative research in nursing: Advancing the humanistic imperative","author":"Speziale","year":"2011"},{"issue":"5","key":"10.1016\/j.pedn.2026.07.029_bb0180","doi-asserted-by":"crossref","DOI":"10.1136\/bmjopen-2023-079474","article-title":"Real experience of caregivers of patients with HIV\/AIDS from the perspective of iceberg theory: A qualitative research","volume":"14","author":"Tang","year":"2024","journal-title":"BMJ Open"},{"issue":"2","key":"10.1016\/j.pedn.2026.07.029_bb0185","doi-asserted-by":"crossref","first-page":"214","DOI":"10.1093\/inthealth\/ihae044","article-title":"Disclosure of diagnosis by parents and caregivers to children infected with HIV in Hawassa, southern Ethiopia: a multicentre, cross-sectional study","volume":"17","author":"Tari","year":"2025","journal-title":"International Health"},{"issue":"6","key":"10.1016\/j.pedn.2026.07.029_bb0190","doi-asserted-by":"crossref","first-page":"349","DOI":"10.1093\/intqhc\/mzm042","article-title":"Consolidated criteria for reporting qualitative research (COREQ): A 32-item checklist for interviews and focus groups","volume":"19","author":"Tong","year":"2007","journal-title":"International Journal for Quality in Health Care"},{"issue":"1","key":"10.1016\/j.pedn.2026.07.029_bb0195","doi-asserted-by":"crossref","DOI":"10.1186\/s12889-020-08506-x","article-title":"\u201cWhat will my child think of me if he hears I gave him HIV?\u201d: A sequential, explanatory, mixed-methods approach on the predictors and experience of caregivers on disclosure of HIV status to infected children in Gombe, Northeast Nigeria","volume":"20","author":"Wariri","year":"2020","journal-title":"BMC Public Health"},{"key":"10.1016\/j.pedn.2026.07.029_bb0200","author":"World Health Organization"},{"key":"10.1016\/j.pedn.2026.07.029_bb0205","series-title":"Supporting disclosure among children and adolescents living with HIV: interventions, emerging considerations, key gaps and key actions","author":"World Health Organization","year":"2025"},{"issue":"23","key":"10.1016\/j.pedn.2026.07.029_bb0210","doi-asserted-by":"crossref","first-page":"2799","DOI":"10.1097\/CM9.0000000000001842","article-title":"Prevention and control of HIV\/AIDS in China: Lessons from the past three decades","volume":"134","author":"Xu","year":"2021","journal-title":"Chinese Medical Journal"},{"issue":"5","key":"10.1016\/j.pedn.2026.07.029_bb0215","doi-asserted-by":"crossref","DOI":"10.1136\/bmjopen-2023-081036","article-title":"Challenges and support experienced by family caregivers seeking antiretroviral therapy services for children living with HIV\/AIDS: A phenomenological study in Ghana","volume":"14","author":"Yiryuo","year":"2024","journal-title":"BMJ Open"},{"key":"10.1016\/j.pedn.2026.07.029_bb0220","article-title":"Prevalence of mental disorders among young people living with HIV: A systematic review and meta-analysis. Frontiers","volume":"12","author":"Zhan","year":"2024","journal-title":"Public Health"},{"key":"10.1016\/j.pedn.2026.07.029_bb0225","doi-asserted-by":"crossref","first-page":"677","DOI":"10.2147\/PPA.S454590","article-title":"Beyond the burden: A qualitative inquiry into the experiences of chinese informal caregivers for people living with HIV or AIDS","volume":"18","author":"Zhang","year":"2024","journal-title":"Patient Preference and Adherence"},{"issue":"1","key":"10.1016\/j.pedn.2026.07.029_bb0230","doi-asserted-by":"crossref","DOI":"10.1186\/s13034-023-00601-2","article-title":"Behavioral and emotional difficulties and HIV treatment outcomes among HIV-infected children in rural southwestern China","volume":"17","author":"Zhou","year":"2023","journal-title":"Child and Adolescent Psychiatry and Mental Health"}],"container-title":["Journal of Pediatric Nursing"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0882596326003313?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0882596326003313?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2026,9,7]],"date-time":"2026-09-07T22:27:58Z","timestamp":1788820078000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S0882596326003313"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,9]]},"references-count":45,"alternative-id":["S0882596326003313"],"URL":"https:\/\/doi.org\/10.1016\/j.pedn.2026.07.029","relation":{},"ISSN":["0882-5963"],"issn-type":[{"value":"0882-5963","type":"print"}],"subject":[],"published":{"date-parts":[[2026,9]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Caregiving challenges among caregivers of children living with HIV: A descriptive qualitative study","name":"articletitle","label":"Article Title"},{"value":"Journal of Pediatric Nursing","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.pedn.2026.07.029","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2026 Elsevier Inc. All rights are reserved, including those for text and data mining, AI training, and similar technologies.","name":"copyright","label":"Copyright"}]}}