{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,25]],"date-time":"2026-09-25T21:00:17Z","timestamp":1790370017886,"version":"4.1.0"},"reference-count":52,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2026,11,1]],"date-time":"2026-11-01T00:00:00Z","timestamp":1793491200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2026,11,1]],"date-time":"2026-11-01T00:00:00Z","timestamp":1793491200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2026,9,18]],"date-time":"2026-09-18T00:00:00Z","timestamp":1789689600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100009708","name":"Novo Nordisk Fonden","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100009708","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100032559","name":"Breakthrough T1D","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100032559","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100018940","name":"The Danish Diabetes Association","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100018940","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100022690","name":"JDRF","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100022690","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","pediatricnursing.org","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Journal of Pediatric Nursing"],"published-print":{"date-parts":[[2026,11]]},"DOI":"10.1016\/j.pedn.2026.09.006","type":"journal-article","created":{"date-parts":[[2026,9,21]],"date-time":"2026-09-21T19:54:03Z","timestamp":1790020443000},"page":"814-828","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":0,"special_numbering":"C","title":["Facilitating participation and child-centered care: co-designing narrative and play-based communication tools for young children with type 1 diabetes"],"prefix":"10.1016","volume":"91","author":[{"given":"Patricia","family":"DeCosta","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mette","family":"Madsen","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Line Aagaard","family":"Hasselbalch","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lotte Dyrmann","family":"Vedel","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jeanette","family":"Knudsen","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Malene \u00d8fjord","family":"Aistrup","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Maja","family":"Matthews","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ina Ehlers","family":"Petersen","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kasper Ascanius","family":"Pilgaard","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"S\u00f8ren","family":"Hagstr\u00f8m","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Niels","family":"Ejskj\u00e6r","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Dan","family":"Grabowski","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"issue":"1","key":"10.1016\/j.pedn.2026.09.006_bb0005","doi-asserted-by":"crossref","first-page":"S13","DOI":"10.2337\/dc26-S001","article-title":"Improving care and promoting health in populations: Standards of care in diabetes\u20142026","volume":"49","author":"American Diabetes Association Professional Practice Committee for Diabetes","year":"2026","journal-title":"Diabetes Care"},{"issue":"2","key":"10.1016\/j.pedn.2026.09.006_bb0010","doi-asserted-by":"crossref","first-page":"372","DOI":"10.1080\/09669760.2021.1997726","article-title":"Making space for children\u2019s agency with playful learning","volume":"31","author":"Baker","year":"2023","journal-title":"International Journal of Early Years Education"},{"issue":"2","key":"10.1016\/j.pedn.2026.09.006_bb0015","doi-asserted-by":"crossref","first-page":"77","DOI":"10.1191\/1478088706qp063oa","article-title":"Using thematic analysis in psychology","volume":"3","author":"Braun","year":"2006","journal-title":"Qualitative Research in Psychology"},{"issue":"4","key":"10.1016\/j.pedn.2026.09.006_bb0020","doi-asserted-by":"crossref","first-page":"589","DOI":"10.1080\/2159676X.2019.1628806","article-title":"Reflecting on reflexive thematic analysis","volume":"11","author":"Braun","year":"2019","journal-title":"Qualitative Research in Sport, Exercise and Health"},{"issue":"2","key":"10.1016\/j.pedn.2026.09.006_bb0025","doi-asserted-by":"crossref","first-page":"201","DOI":"10.1080\/2159676X.2019.1704846","article-title":"To saturate or not to saturate? Questioning data saturation as a useful concept for thematic analysis and sample-size rationales","volume":"13","author":"Braun","year":"2021","journal-title":"Qualitative Research in Sport, Exercise and Health"},{"issue":"3","key":"10.1016\/j.pedn.2026.09.006_bb0030","doi-asserted-by":"crossref","first-page":"1391","DOI":"10.1007\/s11135-021-01182-y","article-title":"A worked example of Braun and Clarke's approach to reflexive thematic analysis","volume":"56","author":"Byrne","year":"2022","journal-title":"Quality & Quantity"},{"issue":"1","key":"10.1016\/j.pedn.2026.09.006_bb0035","doi-asserted-by":"crossref","first-page":"31","DOI":"10.1177\/1367493520904804","article-title":"Creating a communication space in the healthcare context: Children\u2019s perspective of using the eHealth service, Sisom","volume":"25","author":"Carlsson","year":"2021","journal-title":"Journal of Child Health Care"},{"issue":"1","key":"10.1016\/j.pedn.2026.09.006_bb0040","doi-asserted-by":"crossref","first-page":"114","DOI":"10.3390\/pediatric16010012","article-title":"The concept of child-centred care in healthcare: A scoping review","volume":"16","author":"Carter","year":"2024","journal-title":"Pediatric Reports"},{"issue":"4","key":"10.1016\/j.pedn.2026.09.006_bb0045","doi-asserted-by":"crossref","first-page":"494","DOI":"10.1177\/1367493516642744","article-title":"Reframing the focus from a family-centred to a child-centred care approach for children's healthcare","volume":"20","author":"Coyne","year":"2016","journal-title":"Journal of Child Health Care"},{"issue":"6","key":"10.1016\/j.pedn.2026.09.006_bb0050","doi-asserted-by":"crossref","first-page":"445","DOI":"10.1097\/NCC.0000000000000114","article-title":"The everyday life of the young child shortly after receiving a cancer diagnosis, from both children's and parent's perspectives","volume":"37","author":"Darcy","year":"2014","journal-title":"Cancer Nursing"},{"issue":"4","key":"10.1016\/j.pedn.2026.09.006_bb0055","doi-asserted-by":"crossref","first-page":"1506","DOI":"10.1111\/jocn.16952","article-title":"Children's and young people's experiences of expressing their views and having them heard in health care: A deductive qualitative content analysis","volume":"33","author":"Davies","year":"2024","journal-title":"Journal of Clinical Nursing"},{"key":"10.1016\/j.pedn.2026.09.006_bb0060","doi-asserted-by":"crossref","DOI":"10.3389\/fcdhc.2021.707553","article-title":"Playful communication and care: Exploring child-centred Care of Young Children with Type 1 diabetes through the framework of zone of proximal development","volume":"2","author":"DeCosta","year":"2022","journal-title":"Frontiers in Clinical Diabetes and Healthcare"},{"issue":"10","key":"10.1016\/j.pedn.2026.09.006_bb0065","doi-asserted-by":"crossref","first-page":"1640","DOI":"10.1111\/dme.14354","article-title":"The psychosocial experience and needs of children newly diagnosed with type 1 diabetes from their own perspective: A systematic and narrative review","volume":"37","author":"DeCosta","year":"2020","journal-title":"Diabetic Medicine"},{"issue":"5","key":"10.1016\/j.pedn.2026.09.006_bb0070","doi-asserted-by":"crossref","first-page":"383","DOI":"10.3390\/children8050383","article-title":"The role of Trust in the Care of Young children with type 1 diabetes","volume":"8","author":"DeCosta","year":"2021","journal-title":"Children"},{"issue":"3","key":"10.1016\/j.pedn.2026.09.006_bb0075","doi-asserted-by":"crossref","first-page":"337","DOI":"10.1080\/14780887.2023.2195366","article-title":"Narrative and play-based interviewing - A framework for eliciting the perspectives of young children","volume":"20","author":"DeCosta","year":"2023","journal-title":"Qualitative Research in Psychology"},{"key":"10.1016\/j.pedn.2026.09.006_bb0080","doi-asserted-by":"crossref","first-page":"211","DOI":"10.1016\/j.pedn.2023.10.014","article-title":"Young children\u2019s perspectives on treatment and care: A qualitative study using narrative and play-based interviewing","volume":"73","author":"DeCosta","year":"2023","journal-title":"Journal of Pediatric Nursing"},{"key":"10.1016\/j.pedn.2026.09.006_bb0085","series-title":"Revealing the inner worlds of young children: The MacArthur story stem battery and parent-child narratives","year":"2003"},{"key":"10.1016\/j.pedn.2026.09.006_bb0090","doi-asserted-by":"crossref","first-page":"e39","DOI":"10.1016\/j.pedn.2018.08.012","article-title":"Child centred care: Challenging assumptions and repositioning children and young people","volume":"43","author":"Ford","year":"2018","journal-title":"Journal of Pediatric Nursing"},{"key":"10.1016\/j.pedn.2026.09.006_bb0095","doi-asserted-by":"crossref","first-page":"64","DOI":"10.1016\/j.pedn.2022.01.003","article-title":"Children\u2019s voices on their participation and best interests during a hospital stay in Australia","volume":"63","author":"Foster","year":"2022","journal-title":"Journal of Pediatric Nursing"},{"key":"10.1016\/j.pedn.2026.09.006_bb0100","doi-asserted-by":"crossref","DOI":"10.1016\/j.ijnurstu.2024.104958","article-title":"A child-centred research checklist to improve the design and reporting of paediatric research studies: A descriptive mixed methods study","volume":"162","author":"Foster","year":"2025","journal-title":"International Journal of Nursing Studies"},{"issue":"7","key":"10.1016\/j.pedn.2026.09.006_bb0105","doi-asserted-by":"crossref","DOI":"10.2196\/17673","article-title":"Impact of an electronic health service on child participation in pediatric oncology care: Quasiexperimental study","volume":"22","author":"Gilljam","year":"2020","journal-title":"Journal of Medical Internet Research"},{"issue":"7","key":"10.1016\/j.pedn.2026.09.006_bb0110","doi-asserted-by":"crossref","DOI":"10.1136\/bmjopen-2021-051957","article-title":"Play interventions for paediatric patients in hospital: A scoping review","volume":"11","author":"Gj\u00e6rde","year":"2021","journal-title":"BMJ Open"},{"issue":"2","key":"10.1016\/j.pedn.2026.09.006_bb0115","doi-asserted-by":"crossref","first-page":"213","DOI":"10.1080\/1350293X.2013.789189","article-title":"Adult play guidance and children's play development in a narrative play-world","volume":"21","author":"Hakkarainen","year":"2013","journal-title":"European Early Childhood Education Research Journal"},{"issue":"1","key":"10.1016\/j.pedn.2026.09.006_bb0120","doi-asserted-by":"crossref","DOI":"10.1186\/s12887-024-05258-0","article-title":"Implementing the my positive health dialogue tool for children with a chronic condition: Barriers and facilitators","volume":"25","author":"de Jong-Witjes","year":"2025","journal-title":"BMC Pediatrics"},{"issue":"2","key":"10.1016\/j.pedn.2026.09.006_bb0125","doi-asserted-by":"crossref","first-page":"150","DOI":"10.1111\/pan.14068","article-title":"Development and initial validation of self-report measures of general health, preoperative anxiety, and postoperative pain in young children using computer-administered animation","volume":"31","author":"Kaplan","year":"2021","journal-title":"Pediatric Anesthesia"},{"issue":"1","key":"10.1016\/j.pedn.2026.09.006_bb0130","doi-asserted-by":"crossref","first-page":"163","DOI":"10.1075\/ni.20088.kel","article-title":"Narrative story stem methodologies: Use and utility of quantitative and qualitative approaches across the lifespan","volume":"31","author":"Kelly","year":"2021","journal-title":"Narrative Inquiry"},{"key":"10.1016\/j.pedn.2026.09.006_bb0135","series-title":"Revealing the inner worlds of young children\u2014The MacArthur story stem battery and parent\u2013child narratives","first-page":"106","article-title":"The structure of 5-year-old children\u2019s play narratives within the MacArthur story stem methodology","author":"von Klitzing","year":"2003"},{"key":"10.1016\/j.pedn.2026.09.006_bb0140","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1016\/j.pedn.2024.02.023","article-title":"Children's participation rights and the role of pediatric healthcare teams: A critical review","volume":"77","author":"Koller","year":"2024","journal-title":"Journal of Pediatric Nursing"},{"issue":"1","key":"10.1016\/j.pedn.2026.09.006_bb0145","doi-asserted-by":"crossref","first-page":"26","DOI":"10.1037\/amp0000151","article-title":"Journal article reporting standards for qualitative primary, qualitative meta-analytic, and mixed methods research in psychology: The APA publications and communications board task force report","volume":"73","author":"Levitt","year":"2018","journal-title":"American Psychologist"},{"issue":"6","key":"10.1016\/j.pedn.2026.09.006_bb0150","doi-asserted-by":"crossref","first-page":"927","DOI":"10.1080\/01411920701657033","article-title":"\u2018Voice\u2019 is not enough: Conceptualising article 12 of the United Nations convention on the rights of the child","volume":"33","author":"Lundy","year":"2007","journal-title":"British Educational Research Journal"},{"key":"10.1016\/j.pedn.2026.09.006_bb0155","doi-asserted-by":"crossref","DOI":"10.1530\/endoabs.110.P358","article-title":"Giving the child with diabetes a clear voice: What matters the most to children with type 1 diabetes attending a pediatric diabetes clinic? A substudy in the ProKidsDia project","author":"Madsen","year":"2025","journal-title":"Endocrine Abstracts"},{"issue":"2","key":"10.1016\/j.pedn.2026.09.006_bb0160","doi-asserted-by":"crossref","first-page":"403","DOI":"10.1177\/S0038038501000190","article-title":"The nature of trust: From Georg Simmel to a theory of expectation, interpretation and suspension","volume":"35","author":"M\u00f6llering","year":"2001","journal-title":"Sociology"},{"issue":"1","key":"10.1016\/j.pedn.2026.09.006_bb0165","doi-asserted-by":"crossref","first-page":"85","DOI":"10.1080\/08351813.2018.1413878","article-title":"Multiple temporalities of language and body in interaction: Challenges for transcribing multimodality","volume":"51","author":"Mondada","year":"2018","journal-title":"Research on Language and Social Interaction"},{"issue":"11","key":"10.1016\/j.pedn.2026.09.006_bb0170","doi-asserted-by":"crossref","DOI":"10.1371\/journal.pone.0241764","article-title":"Using a respectful approach to child-centred healthcare (ReACH) in a paediatric clinical trial: A feasibility study","volume":"15","author":"Nicholl","year":"2020","journal-title":"PLoS ONE"},{"issue":"1","key":"10.1016\/j.pedn.2026.09.006_bb0175","first-page":"70","article-title":"Workshops as a research methodology","volume":"15","author":"\u00d8rngreen","year":"2017","journal-title":"Electronic Journal of E-learning"},{"issue":"3","key":"10.1016\/j.pedn.2026.09.006_bb0180","doi-asserted-by":"crossref","first-page":"408","DOI":"10.1007\/s00125-018-4763-3","article-title":"Trends and cyclical variation in the incidence of childhood type 1 diabetes in 26 European centres in the 25 year period 1989\u20132013: A multicentre prospective registration study","volume":"62","author":"Patterson","year":"2019","journal-title":"Diabetologia"},{"issue":"2","key":"10.1016\/j.pedn.2026.09.006_bb0185","doi-asserted-by":"crossref","first-page":"348","DOI":"10.1007\/s10567-020-00335-z","article-title":"Optimising exposure for children and adolescents with anxiety, OCD and PTSD: A systematic review","volume":"24","author":"Plaisted","year":"2021","journal-title":"Clinical Child and Family Psychology Review"},{"issue":"2","key":"10.1016\/j.pedn.2026.09.006_bb0190","doi-asserted-by":"crossref","first-page":"65","DOI":"10.1007\/s10488-010-0319-7","article-title":"Outcomes for implementation research: Conceptual distinctions, measurement challenges, and research agenda","volume":"38","author":"Proctor","year":"2011","journal-title":"Administration and Policy in Mental Health and Mental Health Services Research"},{"key":"10.1016\/j.pedn.2026.09.006_bb0195","series-title":"Childhood matters: Social theory, practice and politics","year":"1994"},{"issue":"1","key":"10.1016\/j.pedn.2026.09.006_bb0200","doi-asserted-by":"crossref","DOI":"10.1136\/bmjopen-2020-041506","article-title":"Effectiveness of pretend medical play in improving children\u2019s health outcomes and well-being: A systematic review","volume":"11","author":"Rashid","year":"2021","journal-title":"BMJ Open"},{"issue":"11","key":"10.1016\/j.pedn.2026.09.006_bb0205","doi-asserted-by":"crossref","first-page":"e355","DOI":"10.1542\/hpeds.2022-006994","article-title":"A review of creative play interventions to improve children\u2019s hospital experience and wellbeing","volume":"13","author":"Signorelli","year":"2023","journal-title":"Hospital Pediatrics"},{"key":"10.1016\/j.pedn.2026.09.006_bb0210","series-title":"The sociology of Georg Simmel","author":"Simmel","year":"1950"},{"issue":"2","key":"10.1016\/j.pedn.2026.09.006_bb0215","doi-asserted-by":"crossref","first-page":"99","DOI":"10.1177\/1367493510397624","article-title":"The importance of including both a child perspective and the child's perspective within health care settings to provide truly child-centred care","volume":"15","author":"S\u00f6derb\u00e4ck","year":"2011","journal-title":"Journal of Child Health Care"},{"key":"10.1016\/j.pedn.2026.09.006_bb0220","series-title":"Leg: en ny forst\u00e5else [Play: A new understanding]","author":"Sommer","year":"2020"},{"key":"10.1016\/j.pedn.2026.09.006_bb0225","series-title":"Child perspectives and children\u2019s perspectives in theory and practice","year":"2010"},{"issue":"2","key":"10.1016\/j.pedn.2026.09.006_bb0230","doi-asserted-by":"crossref","first-page":"313","DOI":"10.2337\/dc22-0945","article-title":"Projections of type 1 and type 2 diabetes burden in the U.S. population aged <20 years through 2060: The SEARCH for diabetes in youth study","volume":"46","author":"T\u00f6nnies","year":"2023","journal-title":"Diabetes Care"},{"key":"10.1016\/j.pedn.2026.09.006_bb0235","series-title":"Convention on the rights of the child","author":"United Nations","year":"1989"},{"key":"10.1016\/j.pedn.2026.09.006_bb0240","series-title":"Mind in society. The development of higher psychological processes","author":"Vygotsky","year":"1978"},{"issue":"8","key":"10.1016\/j.pedn.2026.09.006_bb0245","doi-asserted-by":"crossref","first-page":"1373","DOI":"10.1111\/pedi.13428","article-title":"ISPAD clinical practice consensus guidelines 2022: Psychological care of children, adolescents and young adults with diabetes","volume":"23","author":"de Wit","year":"2022","journal-title":"Pediatric Diabetes"},{"key":"10.1016\/j.pedn.2026.09.006_bb0250","doi-asserted-by":"crossref","DOI":"10.1016\/j.pec.2023.107749","article-title":"Child participation in triadic medical consultations: A scoping review and summary of promotive interventions","volume":"113","author":"van Woerden","year":"2023","journal-title":"Patient Education and Counseling"},{"issue":"2","key":"10.1016\/j.pedn.2026.09.006_bb0255","doi-asserted-by":"crossref","first-page":"89","DOI":"10.1111\/j.1469-7610.1976.tb00381.x","article-title":"The role of tutoring in problem solving","volume":"17","author":"Wood","year":"1976","journal-title":"Journal of Child Psychology and Psychiatry"},{"issue":"12","key":"10.1016\/j.pedn.2026.09.006_bb0260","doi-asserted-by":"crossref","first-page":"2126","DOI":"10.2337\/dc16-2053","article-title":"Psychosocial care for people with diabetes: A position statement of the American Diabetes Association","volume":"39","author":"Young-Hyman","year":"2016","journal-title":"Diabetes Care"}],"container-title":["Journal of Pediatric Nursing"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0882596326004550?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0882596326004550?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2026,9,25]],"date-time":"2026-09-25T20:09:50Z","timestamp":1790366990000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S0882596326004550"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,11]]},"references-count":52,"alternative-id":["S0882596326004550"],"URL":"https:\/\/doi.org\/10.1016\/j.pedn.2026.09.006","relation":{},"ISSN":["0882-5963"],"issn-type":[{"value":"0882-5963","type":"print"}],"subject":[],"published":{"date-parts":[[2026,11]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Facilitating participation and child-centered care: co-designing narrative and play-based communication tools for young children with type 1 diabetes","name":"articletitle","label":"Article Title"},{"value":"Journal of Pediatric Nursing","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.pedn.2026.09.006","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2026 The Authors. Published by Elsevier Inc.","name":"copyright","label":"Copyright"}]}}