{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,24]],"date-time":"2026-09-24T20:58:58Z","timestamp":1790283538126,"version":"4.1.0"},"reference-count":30,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2026,9,1]],"date-time":"2026-09-01T00:00:00Z","timestamp":1788220800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2026,9,1]],"date-time":"2026-09-01T00:00:00Z","timestamp":1788220800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2026,9,1]],"date-time":"2026-09-01T00:00:00Z","timestamp":1788220800000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-017"},{"start":{"date-parts":[[2026,9,1]],"date-time":"2026-09-01T00:00:00Z","timestamp":1788220800000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-037"},{"start":{"date-parts":[[2026,9,1]],"date-time":"2026-09-01T00:00:00Z","timestamp":1788220800000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-012"},{"start":{"date-parts":[[2026,9,1]],"date-time":"2026-09-01T00:00:00Z","timestamp":1788220800000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-029"},{"start":{"date-parts":[[2026,9,1]],"date-time":"2026-09-01T00:00:00Z","timestamp":1788220800000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-004"}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","pediatricnursing.org","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Journal of Pediatric Nursing"],"published-print":{"date-parts":[[2026,9]]},"DOI":"10.1016\/j.pedn.2026.09.033","type":"journal-article","created":{"date-parts":[[2026,9,22]],"date-time":"2026-09-22T20:50:34Z","timestamp":1790110234000},"update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":0,"title":["Adapting the Australian Hospital Patient Experience Question Set (AHPEQS-Parent) for anal dilatation care"],"prefix":"10.1016","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-4290-4863","authenticated-orcid":false,"given":"Jessica","family":"Taranto","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6983-0166","authenticated-orcid":false,"given":"Misel","family":"Trajanovska","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-5614-4957","authenticated-orcid":false,"given":"Helen","family":"Nelson","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-1994-4437","authenticated-orcid":false,"given":"Suzanne","family":"Jackson-Fleurus","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-2072-6450","authenticated-orcid":false,"given":"Fiona","family":"Newall","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-5396-0265","authenticated-orcid":false,"given":"Sebastian K.","family":"King","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"key":"10.1016\/j.pedn.2026.09.033_bb0005","doi-asserted-by":"crossref","first-page":"39","DOI":"10.1016\/j.pedn.2018.06.012","article-title":"Parents' experiences of family-centred care practices","volume":"42","author":"Arabiat","year":"2018","journal-title":"Journal of Pediatric Nursing"},{"issue":"1","key":"10.1016\/j.pedn.2026.09.033_bb0010","doi-asserted-by":"crossref","first-page":"97","DOI":"10.1186\/s13643-015-0089-0","article-title":"Instruments to measure patient experience of healthcare quality in hospitals: A systematic review","volume":"4","author":"Beattie","year":"2015","journal-title":"Systematic Reviews"},{"issue":"2","key":"10.1016\/j.pedn.2026.09.033_bb0015","doi-asserted-by":"crossref","first-page":"287","DOI":"10.1093\/poq\/nfm006","article-title":"Research synthesis: The practice of cognitive interviewing","volume":"71","author":"Beatty","year":"2007","journal-title":"Public Opinion Quarterly"},{"key":"10.1016\/j.pedn.2026.09.033_bb0020","doi-asserted-by":"crossref","DOI":"10.3389\/fped.2021.753536","article-title":"Use of patient-reported experience measures in pediatric care: A systematic review","volume":"9","author":"Bele","year":"2021","journal-title":"Frontiers in Pediatrics"},{"key":"10.1016\/j.pedn.2026.09.033_bb0025","doi-asserted-by":"crossref","first-page":"8","DOI":"10.1016\/j.npls.2016.01.001","article-title":"How to plan and perform a qualitative study using content analysis","volume":"2","author":"Bengtsson","year":"2016","journal-title":"NursingPlus Open"},{"issue":"1","key":"10.1016\/j.pedn.2026.09.033_bb0030","doi-asserted-by":"crossref","first-page":"13","DOI":"10.1186\/1471-2288-12-13","article-title":"The association between survey timing and patient-reported experiences with hospitals: Results of a national postal survey","volume":"12","author":"Bjertnaes","year":"2012","journal-title":"BMC Medical Research Methodology"},{"key":"10.1016\/j.pedn.2026.09.033_bb0035","doi-asserted-by":"crossref","first-page":"218","DOI":"10.1016\/j.pedn.2022.08.008","article-title":"Translational research: Stress associated with parenting and caregiving of children with chronic conditions or special healthcare needs","volume":"66","author":"Christian","year":"2022","journal-title":"Journal of Pediatric Nursing"},{"issue":"4","key":"10.1016\/j.pedn.2026.09.033_bb0040","doi-asserted-by":"crossref","first-page":"494","DOI":"10.1177\/1367493516642744","article-title":"Reframing the focus from a family-centred to a child-centred care approach for children's healthcare","volume":"20","author":"Coyne","year":"2016","journal-title":"Journal of Child Health Care"},{"key":"10.1016\/j.pedn.2026.09.033_bb0045","doi-asserted-by":"crossref","first-page":"21","DOI":"10.1007\/s11136-020-02625-z","article-title":"International guidance on the selection of patient-reported outcome measures in clinical trials: A review","volume":"30","author":"Crossnohere","year":"2021","journal-title":"Quality of Life Research"},{"key":"10.1016\/j.pedn.2026.09.033_bb0050","series-title":"Content analysis","author":"Drisko","year":"2016"},{"issue":"8","key":"10.1016\/j.pedn.2026.09.033_bb0055","doi-asserted-by":"crossref","DOI":"10.1136\/bmjopen-2016-011907","article-title":"Systematic review of approaches to using patient experience data for quality improvement in healthcare settings","volume":"6","author":"Gleeson","year":"2016","journal-title":"BMJ Open"},{"issue":"2","key":"10.1016\/j.pedn.2026.09.033_bb0060","doi-asserted-by":"crossref","first-page":"377","DOI":"10.1016\/j.jbi.2008.08.010","article-title":"Research electronic data capture (REDCap): A metadata-driven methodology and workflow process for providing translational research informatics support","volume":"42","author":"Harris","year":"2009","journal-title":"Journal of Biomedical Informatics"},{"issue":"4","key":"10.1016\/j.pedn.2026.09.033_bb0065","doi-asserted-by":"crossref","first-page":"479","DOI":"10.1362\/146934703771910080","article-title":"An overview of content analysis","volume":"3","author":"Harwood","year":"2003","journal-title":"The Marketing Review"},{"issue":"3","key":"10.1016\/j.pedn.2026.09.033_bb0070","doi-asserted-by":"crossref","first-page":"172","DOI":"10.1007\/s11655-012-1104-0","article-title":"Advising on preferred reporting items for patient-reported outcome instrument development: The PRIPROID","volume":"19","author":"Hou","year":"2013","journal-title":"Chinese Journal of Integrative Medicine"},{"issue":"1","key":"10.1016\/j.pedn.2026.09.033_bb0075","doi-asserted-by":"crossref","DOI":"10.1155\/jonm\/5166392","article-title":"Patient-reported experience measures in adult inpatient settings: A systematic review","volume":"2024","author":"Kang","year":"2024","journal-title":"Journal of Nursing Management"},{"issue":"Suppl. 3","key":"10.1016\/j.pedn.2026.09.033_bb0080","article-title":"Patient-reported indicator surveys (PaRIS): Making the case for co-development and adaptation to national contexts","volume":"34","author":"Kendir","year":"2024","journal-title":"European Journal of Public Health"},{"issue":"2","key":"10.1016\/j.pedn.2026.09.033_bb0085","doi-asserted-by":"crossref","first-page":"128","DOI":"10.1016\/j.pedhc.2012.12.009","article-title":"Parents\u2019 perception of satisfaction with care from pediatric nurse practitioners instrument","volume":"28","author":"Kinder","year":"2014","journal-title":"Journal of Pediatric Health Care"},{"issue":"9","key":"10.1016\/j.pedn.2026.09.033_bb0090","doi-asserted-by":"crossref","first-page":"3805","DOI":"10.1007\/s00431-023-05050-9","article-title":"Hospital-to-home transitions for children with medical complexity: Part 1, a systematic review of reported outcomes","volume":"182","author":"de Lange","year":"2023","journal-title":"European Journal of Pediatrics"},{"issue":"1","key":"10.1016\/j.pedn.2026.09.033_bb0095","doi-asserted-by":"crossref","first-page":"33","DOI":"10.1186\/1750-1172-2-33","article-title":"Anorectal malformations","volume":"2","author":"Levitt","year":"2007","journal-title":"Orphanet Journal of Rare Diseases"},{"issue":"1","key":"10.1016\/j.pedn.2026.09.033_bb0100","doi-asserted-by":"crossref","DOI":"10.1111\/cch.70031","article-title":"Exploration of the evidence on discharge from hospital to home for children with medical complexity and their parents: A review of the literature","volume":"51","author":"Mackay","year":"2025","journal-title":"Child: Care, Health and Development"},{"issue":"2","key":"10.1016\/j.pedn.2026.09.033_bb0105","doi-asserted-by":"crossref","first-page":"213","DOI":"10.1016\/j.colegn.2022.09.003","article-title":"Development of the Australian hospital patient experience question set for parents","volume":"30","author":"Nelson","year":"2023","journal-title":"Collegian"},{"issue":"6","key":"10.1016\/j.pedn.2026.09.033_bb0110","doi-asserted-by":"crossref","first-page":"906","DOI":"10.1177\/2374373520951672","article-title":"Understanding the patient experience: A conceptual framework","volume":"7","author":"Oben","year":"2020","journal-title":"Journal of Patient Experience"},{"issue":"3","key":"10.1016\/j.pedn.2026.09.033_bb0115","doi-asserted-by":"crossref","first-page":"174","DOI":"10.1016\/j.rehab.2019.01.006","article-title":"Cross-cultural adaptation of patient-reported outcome measures: A solution or a problem?","volume":"62","author":"Prakash","year":"2019","journal-title":"Annals of Physical and Rehabilitation Medicine"},{"key":"10.1016\/j.pedn.2026.09.033_bb0120","series-title":"Scale development, scale adaptation and scale adoption in survey research","author":"Ramely","year":"2024"},{"key":"10.1016\/j.pedn.2026.09.033_bb0125","doi-asserted-by":"crossref","first-page":"57","DOI":"10.1016\/j.pedn.2018.06.014","article-title":"Concept analysis of family-centered care of hospitalized pediatric patients","volume":"42","author":"Smith","year":"2018","journal-title":"Journal of Pediatric Nursing"},{"issue":"1","key":"10.1016\/j.pedn.2026.09.033_bb0130","doi-asserted-by":"crossref","first-page":"121","DOI":"10.1111\/1552-6909.12001","article-title":"Insights into patient and family-centered care through the hospital experiences of parents","volume":"42","author":"Uhl","year":"2013","journal-title":"Journal of Obstetric, Gynecologic & Neonatal Nursing"},{"issue":"3","key":"10.1016\/j.pedn.2026.09.033_bb0135","doi-asserted-by":"crossref","first-page":"398","DOI":"10.1111\/nhs.12048","article-title":"Content analysis and thematic analysis: Implications for conducting a qualitative descriptive study","volume":"15","author":"Vaismoradi","year":"2013","journal-title":"Nursing & Health Sciences"},{"key":"10.1016\/j.pedn.2026.09.033_bb0140","series-title":"Patient-reported outcome measures: Literature review","author":"Williams","year":"2016"},{"key":"10.1016\/j.pedn.2026.09.033_bb0145","series-title":"Cognitive interviewing: A tool for improving questionnaire design","author":"Willis","year":"2004"},{"issue":"1","key":"10.1016\/j.pedn.2026.09.033_bb0150","doi-asserted-by":"crossref","first-page":"7","DOI":"10.35680\/2372-0247.1000","article-title":"Defining patient experience","volume":"1","author":"Wolf","year":"2014","journal-title":"Patient Experience Journal"}],"container-title":["Journal of Pediatric Nursing"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0882596326004847?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0882596326004847?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2026,9,24]],"date-time":"2026-09-24T20:00:48Z","timestamp":1790280048000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S0882596326004847"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,9]]},"references-count":30,"alternative-id":["S0882596326004847"],"URL":"https:\/\/doi.org\/10.1016\/j.pedn.2026.09.033","relation":{},"ISSN":["0882-5963"],"issn-type":[{"value":"0882-5963","type":"print"}],"subject":[],"published":{"date-parts":[[2026,9]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Adapting the Australian Hospital Patient Experience Question Set (AHPEQS-Parent) for anal dilatation care","name":"articletitle","label":"Article Title"},{"value":"Journal of Pediatric Nursing","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.pedn.2026.09.033","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2026 Elsevier Inc. All rights are reserved, including those for text and data mining, AI training, and similar technologies.","name":"copyright","label":"Copyright"}]}}