{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2025,11,18]],"date-time":"2025-11-18T01:30:48Z","timestamp":1763429448755},"reference-count":42,"publisher":"Wiley","issue":"1","license":[{"start":{"date-parts":[[2017,6,23]],"date-time":"2017-06-23T00:00:00Z","timestamp":1498176000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/onlinelibrary.wiley.com\/termsAndConditions#vor"}],"funder":[{"name":"MedSAU Fund"}],"content-domain":{"domain":["onlinelibrary.wiley.com"],"crossmark-restriction":true},"short-container-title":["PM&amp;R"],"published-print":{"date-parts":[[2018,1]]},"abstract":"<jats:title>Abstract<\/jats:title><jats:sec><jats:title>Background<\/jats:title><jats:p>The term self\u2010determination refers to decision\u2010making, goal setting, and perseverance to achieve those goals. Numerous studies have established the importance of self\u2010determination to enhance learning and improve postschool outcomes. However, most studies evaluate students with learning disabilities, cognitive impairment, or behavioral disabilities. There is an absence of research on self\u2010determination for adolescents with physical disabilities.<\/jats:p><\/jats:sec><jats:sec><jats:title>Objective<\/jats:title><jats:p>To assess self\u2010determination of adolescents with neonatal brachial plexus palsy (NBPP) compared with their typically developing peers via self\u2010reported measures of function.<\/jats:p><\/jats:sec><jats:sec><jats:title>Design<\/jats:title><jats:p>Case\u2010control study.<\/jats:p><\/jats:sec><jats:sec><jats:title>Setting<\/jats:title><jats:p>Brachial plexus clinic.<\/jats:p><\/jats:sec><jats:sec><jats:title>Participants<\/jats:title><jats:p>Twenty adolescents with NBPP (aged 10\u201017 years) and their parents and 20 age\/gender\u2010matched typically developing adolescents and their parents were recruited. Non\u2013English\u2010speaking participants and those with other physical impairments were excluded from study.<\/jats:p><\/jats:sec><jats:sec><jats:title>Methods<\/jats:title><jats:p>Participants completed demographic and American Institutes for Research (AIR) self\u2010determination surveys. One of two designated occupational therapists evaluated participant physical function.<\/jats:p><\/jats:sec><jats:sec><jats:title>Main Outcome Measurements<\/jats:title><jats:p>A demographic survey and AIR self\u2010determination assessment were administered, and active range of motion measurements in shoulder forward flexion, elbow flexion, elbow extension, forearm pronation, and supination were obtained. Grip\/pinch strength, MRC muscle strength, 9\u2010Hole Peg Test, and Mallet scale scores also were evaluated.<\/jats:p><\/jats:sec><jats:sec><jats:title>Results<\/jats:title><jats:p>Despite physical differences, adolescents with NBPP presented similar self\u2010determination levels as their typically developing peers. Adolescents with NBPP rated their opportunities to engage in self\u2010determined behaviors at school significantly lower than at home. Both adolescents with NBPP and those in the control group rated their opportunities to engage in self\u2010determined behaviors at school significantly lower than at home.<\/jats:p><\/jats:sec><jats:sec><jats:title>Conclusions<\/jats:title><jats:p>Adolescents with NBPP presented similar self\u2010determination scores as their age\/gender\u2010matched typically developing peers. These results could be a reflection of our program's patient\u2010 and family\u2010centered care approach. Therefore, caregivers and providers should encourage personal development and fulfillment in adolescents with NBPP. Teachers and schools should be aware that opportunities for acquiring self\u2010determination skills might be more limited at school than at home in this age group.<\/jats:p><\/jats:sec><jats:sec><jats:title>Level of Evidence<\/jats:title><jats:p>III<\/jats:p><\/jats:sec>","DOI":"10.1016\/j.pmrj.2017.06.013","type":"journal-article","created":{"date-parts":[[2017,6,23]],"date-time":"2017-06-23T10:02:50Z","timestamp":1498212170000},"page":"64-71","update-policy":"http:\/\/dx.doi.org\/10.1002\/crossmark_policy","source":"Crossref","is-referenced-by-count":7,"title":["Assessment of Self\u2010Determination in Adolescents with Neonatal Brachial Plexus Palsy"],"prefix":"10.1002","volume":"10","author":[{"given":"Donna","family":"Bergman","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Lynnette","family":"Rasmussen","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Kate Wan\u2010Chu","family":"Chang","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Lynda J\u2010S.","family":"Yang","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Virginia S.","family":"Nelson","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"311","published-online":{"date-parts":[[2017,6,23]]},"reference":[{"key":"e_1_2_6_2_2","volume-title":"Practical Management of Pediatric and Adult Brachial Plexus Palsies","author":"Chung K.C.","year":"2012"},{"key":"e_1_2_6_3_2","doi-asserted-by":"publisher","DOI":"10.2106\/JBJS.G.00853"},{"key":"e_1_2_6_4_2","doi-asserted-by":"publisher","DOI":"10.1097\/01241398-198411000-00006"},{"key":"e_1_2_6_5_2","doi-asserted-by":"crossref","first-page":"403","DOI":"10.2106\/JBJS.J.00750","article-title":"The prevalence, rate of progression, and treatment of elbow flexion contracture in children with brachial plexus birth palsy","volume":"94","author":"Sheffler L.C.","year":"2012","journal-title":"J Bone Joint Surg Am"},{"key":"e_1_2_6_6_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.adnc.2005.06.001"},{"key":"e_1_2_6_7_2","doi-asserted-by":"publisher","DOI":"10.1177\/0883073807307103"},{"key":"e_1_2_6_8_2","doi-asserted-by":"publisher","DOI":"10.1589\/jpts.27.3059"},{"key":"e_1_2_6_9_2","doi-asserted-by":"publisher","DOI":"10.1589\/jpts.27.2611"},{"key":"e_1_2_6_10_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.jhsa.2013.09.006"},{"key":"e_1_2_6_11_2","doi-asserted-by":"publisher","DOI":"10.3899\/jrheum.131377"},{"key":"e_1_2_6_12_2","volume-title":"The many facets of self\u2010determination; NICHCY transition summary","author":"Ward M.J.","year":"1988"},{"key":"e_1_2_6_13_2","volume-title":"A Practical Guide to Teaching Self\u2010Determination","author":"Field S.","year":"1998"},{"key":"e_1_2_6_14_2","doi-asserted-by":"publisher","DOI":"10.1177\/07419325030240060501"},{"key":"e_1_2_6_15_2","doi-asserted-by":"publisher","DOI":"10.1177\/0741932509355989"},{"key":"e_1_2_6_16_2","volume-title":"AIR Self\u2010Determination Scale and User Guide","author":"Wolman J.M.","year":"1994"},{"key":"e_1_2_6_17_2","doi-asserted-by":"publisher","DOI":"10.1007\/s11999-013-3324-9"},{"key":"e_1_2_6_18_2","doi-asserted-by":"publisher","DOI":"10.5014\/ajot.40.10.705"},{"key":"e_1_2_6_19_2","doi-asserted-by":"publisher","DOI":"10.2466\/pms.2000.90.3.823"},{"key":"e_1_2_6_20_2","doi-asserted-by":"publisher","DOI":"10.1093\/jpepsy\/jsu086"},{"key":"e_1_2_6_21_2","doi-asserted-by":"publisher","DOI":"10.1111\/j.1651-2227.2003.tb00611.x"},{"key":"e_1_2_6_22_2","first-page":"547","article-title":"Empowering student with disabilities by teaching self\u2010determination skills","volume":"117","author":"Harrison L.H.","year":"1997","journal-title":"Education"},{"key":"e_1_2_6_23_2","unstructured":"S.Pandey D.Justice K.W.C.Chang L.J.S.Yang.The Interdisciplinary Model: An Effective Approach to Patient Family\u2010Centered Healthcare at a Tertiary Care Specialty Brachial Plexus Program.The Beryl Institute2015 Available athttp:\/\/c.ymcdn.com\/sites\/theberylinstitute.site\u2010ym.com\/resource\/resmgr\/Grant_Program_Papers\/The_Interdisciplinary_Model.pdf Accessed March 1 2015"},{"key":"e_1_2_6_24_2","doi-asserted-by":"publisher","DOI":"10.1177\/00222194050380030501"},{"key":"e_1_2_6_25_2","doi-asserted-by":"crossref","first-page":"138","DOI":"10.1177\/074193250102200302","article-title":"Implementing self\u2010determination activities: Lessons from schools","volume":"22","author":"Eisenman L.T.","year":"2001","journal-title":"Remedial Spec Educ"},{"key":"e_1_2_6_26_2","doi-asserted-by":"publisher","DOI":"10.1177\/0885728811398271"},{"key":"e_1_2_6_27_2","doi-asserted-by":"publisher","DOI":"10.1177\/001440290607200305"},{"key":"e_1_2_6_28_2","first-page":"440","article-title":"Impact of the self\u2010determined learning model of instruction on teacher perceptions of student capacity and opportunity for self\u2010determination","volume":"49","author":"Shogren K.A.","year":"2014","journal-title":"Educ Training Autism Dev Disabil"},{"key":"e_1_2_6_29_2","doi-asserted-by":"publisher","DOI":"10.1007\/s11136-015-0953-3"},{"key":"e_1_2_6_30_2","doi-asserted-by":"crossref","first-page":"1067","DOI":"10.1097\/PRS.0000000000001047","article-title":"Coping with congenital hand differences","volume":"135","author":"Franzblau L.E.","year":"2015","journal-title":"Plast Reconstr Surg"},{"key":"e_1_2_6_31_2","doi-asserted-by":"publisher","DOI":"10.1097\/BCR.0b013e31827217a9"},{"key":"e_1_2_6_32_2","doi-asserted-by":"publisher","DOI":"10.1023\/A:1012253723272"},{"key":"e_1_2_6_33_2","doi-asserted-by":"crossref","first-page":"743","DOI":"10.1097\/DBP.0000000000000214","article-title":"The role of self\u2010competence in health\u2010related quality of life and behavioral functioning of children with Tourette syndrome","volume":"36","author":"Gutierrez\u2010Colina A.M.","year":"2015","journal-title":"J Dev Behav Pediatr"},{"key":"e_1_2_6_34_2","first-page":"1214","article-title":"Health\u2010related quality of life (HRQOL) in children with chronic liver disease in North East Iran using PedsQL 4.0","volume":"7","author":"Tehranian S.","year":"2015","journal-title":"Electron Physician"},{"key":"e_1_2_6_35_2","doi-asserted-by":"publisher","DOI":"10.1037\/0033-2909.101.2.213"},{"key":"e_1_2_6_36_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.jhsa.2012.09.036"},{"key":"e_1_2_6_37_2","doi-asserted-by":"publisher","DOI":"10.1016\/j.jhsa.2015.03.020"},{"key":"e_1_2_6_38_2","doi-asserted-by":"publisher","DOI":"10.1177\/1063426609332605"},{"key":"e_1_2_6_39_2","doi-asserted-by":"publisher","DOI":"10.1177\/001440290407000404"},{"key":"e_1_2_6_40_2","doi-asserted-by":"publisher","DOI":"10.1352\/1934-9556-51.6.496"},{"key":"e_1_2_6_41_2","doi-asserted-by":"crossref","first-page":"104","DOI":"10.1177\/08857288050280020101","article-title":"Teaching self\u2010determination to students with disabilities: will the literature help?","volume":"28","author":"Thoma C.A.","year":"2005","journal-title":"Career Dev Except Individ"},{"key":"e_1_2_6_42_2","doi-asserted-by":"publisher","DOI":"10.1177\/002246690003400201"},{"key":"e_1_2_6_43_2","doi-asserted-by":"publisher","DOI":"10.1177\/001440290707300406"}],"container-title":["PM&amp;R"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.wiley.com\/onlinelibrary\/tdm\/v1\/articles\/10.1016%2Fj.pmrj.2017.06.013","content-type":"application\/pdf","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S193414821631098X?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S193414821631098X?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/pdf\/10.1016\/j.pmrj.2017.06.013","content-type":"unspecified","content-version":"vor","intended-application":"similarity-checking"}],"deposited":{"date-parts":[[2023,9,14]],"date-time":"2023-09-14T21:38:31Z","timestamp":1694727511000},"score":1,"resource":{"primary":{"URL":"https:\/\/onlinelibrary.wiley.com\/doi\/10.1016\/j.pmrj.2017.06.013"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2017,6,23]]},"references-count":42,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2018,1]]}},"alternative-id":["10.1016\/j.pmrj.2017.06.013"],"URL":"https:\/\/doi.org\/10.1016\/j.pmrj.2017.06.013","archive":["Portico"],"relation":{},"ISSN":["1934-1482","1934-1563"],"issn-type":[{"value":"1934-1482","type":"print"},{"value":"1934-1563","type":"electronic"}],"subject":[],"published":{"date-parts":[[2017,6,23]]},"assertion":[{"value":"2016-08-03","order":0,"name":"received","label":"Received","group":{"name":"publication_history","label":"Publication History"}},{"value":"2017-06-13","order":1,"name":"accepted","label":"Accepted","group":{"name":"publication_history","label":"Publication History"}},{"value":"2017-06-23","order":2,"name":"published","label":"Published","group":{"name":"publication_history","label":"Publication History"}}]}}