{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,22]],"date-time":"2026-09-22T04:04:37Z","timestamp":1790049877173,"version":"4.0.1"},"reference-count":55,"publisher":"Elsevier BV","issue":"3","license":[{"start":{"date-parts":[[2004,5,1]],"date-time":"2004-05-01T00:00:00Z","timestamp":1083369600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"}],"content-domain":{"domain":[],"crossmark-restriction":false},"short-container-title":["Research in Developmental Disabilities"],"published-print":{"date-parts":[[2004,5]]},"DOI":"10.1016\/j.ridd.2003.06.003","type":"journal-article","created":{"date-parts":[[2004,4,28]],"date-time":"2004-04-28T12:31:11Z","timestamp":1083155471000},"page":"245-264","source":"Crossref","is-referenced-by-count":139,"title":["Finding meaning in parenting a child with Asperger syndrome: correlates of sense making and benefit finding"],"prefix":"10.1016","volume":"25","author":[{"given":"Kenneth I","family":"Pakenham","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kate","family":"Sofronoff","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Christina","family":"Samios","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"key":"10.1016\/j.ridd.2003.06.003_BIB1","unstructured":"Affleck, G., & Tennen, H. (1993). Cognitive adaptation to adversity: Insights from parents of medically fragile infants. In A. P. Turnball, J. M. Patterson, S. K. Behr, D. L. Murphy, J. G. Marquis, & M. J. Blue-Banning (Eds.), Cognitive coping, families, and disability (pp. 135\u2013150). Baltimore: Paul H. Brookes Publishing Co."},{"key":"10.1016\/j.ridd.2003.06.003_BIB2","doi-asserted-by":"crossref","first-page":"899","DOI":"10.1111\/j.1467-6494.1996.tb00948.x","article-title":"Construing benefits from adversity: Adaptational significance and dispositional underpinnings","volume":"64","author":"Affleck","year":"1996","journal-title":"Journal of Personality"},{"issue":"6","key":"10.1016\/j.ridd.2003.06.003_BIB3","first-page":"653","article-title":"Cognitive adaptations to high risk infants: The search for mastery, meaning, and protection from future harm","volume":"89","author":"Affleck","year":"1985","journal-title":"American Journal of Mental Deficiency"},{"key":"10.1016\/j.ridd.2003.06.003_BIB4","doi-asserted-by":"crossref","first-page":"12","DOI":"10.1002\/1097-0355(199021)11:1<12::AID-IMHJ2280110103>3.0.CO;2-P","article-title":"Mothers, fathers, and the crisis of newborn intensive care","volume":"15","author":"Affleck","year":"1990","journal-title":"Infant Mental Health Journal"},{"key":"10.1016\/j.ridd.2003.06.003_BIB5","doi-asserted-by":"crossref","unstructured":"Affleck, G., Tennen, H., & Rowe, J. (1991). Infants in crisis: How parents cope with newborn intensive care and its aftermath. New York: Springer-Verlag.","DOI":"10.1007\/978-1-4612-3050-2"},{"key":"10.1016\/j.ridd.2003.06.003_BIB6","unstructured":"Behr, S. K., & Murphy, D. L. (1993). Research progress and promise: The role of perceptions in cognitive adaptation to disability. In A. P. Turnball, J. M. Patterson, S. K. Behr, D. L. Murphy, J. G. Marquis, & M. J. Blue-Banning (Eds.), Cognitive coping, families, and disability (pp. 151\u2013163). Baltimore: Paul H. Brookes Publishing Co."},{"key":"10.1016\/j.ridd.2003.06.003_BIB7","doi-asserted-by":"crossref","first-page":"722","DOI":"10.1002\/1097-4679(199011)46:6<722::AID-JCLP2270460605>3.0.CO;2-6","article-title":"The impact of chronic childhood illness on family stress: A comparison between autism and cystic fibrosis","volume":"46","author":"Bouma","year":"1990","journal-title":"Journal of Clinical Psychology"},{"issue":"4","key":"10.1016\/j.ridd.2003.06.003_BIB8","doi-asserted-by":"crossref","first-page":"469","DOI":"10.1007\/BF01486964","article-title":"Mothers of children with autism and communication disorders: Successful adaptation and the Double ABCX model","volume":"17","author":"Bristol","year":"1987","journal-title":"Journal of Autism and Developmental Disorders"},{"key":"10.1016\/j.ridd.2003.06.003_BIB9","unstructured":"Brown, J. D. (1993). Coping with stress: The beneficial role of positive illusions. In A. P. Turnball, J. M. Patterson, S. K. Behr, D. L. Murphy, J. G. Marquis, & M. J. Blue-Banning (Eds.), Cognitive coping, families, and disability (pp. 123\u2013133). Baltimore: Paul H. Brookes Publishing Co."},{"key":"10.1016\/j.ridd.2003.06.003_BIB10","doi-asserted-by":"crossref","first-page":"1278","DOI":"10.1176\/ajp.136.10.1278","article-title":"Adaptive strategies and recovery from rape","volume":"136","author":"Burgess","year":"1979","journal-title":"American Journal of Psychiatry"},{"issue":"2","key":"10.1016\/j.ridd.2003.06.003_BIB11","doi-asserted-by":"crossref","first-page":"267","DOI":"10.1037\/0022-3514.56.2.267","article-title":"Assessing coping strategies: A theoretically based approach","volume":"56","author":"Carver","year":"1989","journal-title":"Journal of Personality and Social Psychology"},{"key":"10.1016\/j.ridd.2003.06.003_BIB12","doi-asserted-by":"crossref","first-page":"561","DOI":"10.1037\/0022-3514.75.2.561","article-title":"Making sense of loss and benefiting from the experience: Two construals of meaning","volume":"75","author":"Davis","year":"1998","journal-title":"Journal of Personality and Social Psychology"},{"key":"10.1016\/j.ridd.2003.06.003_BIB13","unstructured":"Diggle, T., McConachie, H. R., & Randle, V. R. L. (2003). Parent mediated early intervention for young children with autism spectrum disorder (Cochrane Review). In The Cochrane Library (Issue 1). Oxford: Update Software."},{"key":"10.1016\/j.ridd.2003.06.003_BIB14","unstructured":"Eyberg, S., & Pincus, D. (1999). Eyberg Child Behaviour Inventory and Sutter-Eyberg Student Behavior Inventory: Professional manual. Odessa, FL: Psychological Assessment Resources."},{"key":"10.1016\/j.ridd.2003.06.003_BIB15","unstructured":"Frankl, V. E. (1984). Man\u2019s search for meaning: An introduction to logotherapy (3rd ed.). New York: Simon & Schuster."},{"key":"10.1016\/j.ridd.2003.06.003_BIB16","unstructured":"Hill, R. (1949). Families under stress. New York: Harper and Row."},{"key":"10.1016\/j.ridd.2003.06.003_BIB17","doi-asserted-by":"crossref","first-page":"139","DOI":"10.1177\/1044389458039002-318","article-title":"Generic features of families under stress","volume":"49","author":"Hill","year":"1958","journal-title":"Social Casework"},{"key":"10.1016\/j.ridd.2003.06.003_BIB18","doi-asserted-by":"crossref","first-page":"213","DOI":"10.1016\/0022-3999(67)90010-4","article-title":"The Social Readjustment Rating Scale","volume":"11","author":"Holmes","year":"1967","journal-title":"Journal of Psychosomatic Research"},{"key":"10.1016\/j.ridd.2003.06.003_BIB19","first-page":"431","article-title":"Mental retardation and stress on the parents: A contrast between Down\u2019s syndrome and childhood autism","volume":"80","author":"Holroyd","year":"1976","journal-title":"American Journal of Mental Deficiency"},{"issue":"5","key":"10.1016\/j.ridd.2003.06.003_BIB20","doi-asserted-by":"crossref","first-page":"569","DOI":"10.1177\/135910530100600509","article-title":"Parents of children with autism using an email group: A grounded theory study","volume":"6","author":"Huws","year":"2001","journal-title":"Journal of Health Psychology"},{"key":"10.1016\/j.ridd.2003.06.003_BIB21","unstructured":"Janoff-Bulman, R. (1992). Shattered assumptions: Towards a new psychology of trauma. New York: Free Press."},{"key":"10.1016\/j.ridd.2003.06.003_BIB22","unstructured":"Janoff-Bulman, R., & Frantz, C. M. (1997). The impact of trauma on meaning: From meaningless world to meaningful life. In M. Power & C. R. Brewin (Eds.), The transformation of meaning in psychological therapies (pp. 91\u2013106). New York: Wiley."},{"issue":"1","key":"10.1016\/j.ridd.2003.06.003_BIB23","doi-asserted-by":"crossref","first-page":"39","DOI":"10.1023\/A:1025869105208","article-title":"Linking parental perceptions to interactions in young children with autism","volume":"27","author":"Kasari","year":"1997","journal-title":"Journal of Autism and Developmental Disorders"},{"key":"10.1016\/j.ridd.2003.06.003_BIB24","unstructured":"Klin, A., Volkmar, F. R., & Sparrow, S. S. (2000). Asperger syndrome. New York: The Guilford Press."},{"key":"10.1016\/j.ridd.2003.06.003_BIB25","unstructured":"Konstantareas, M. M., & Homatidis, S. (1988). Stress and differential parent involvement in families of autistic and learning disabled children. In E. D. Hibbs (Ed.), Children and families: Studies in prevention and intervention (pp. 321\u2013336). Madison, WI: International Universities Press."},{"key":"10.1016\/j.ridd.2003.06.003_BIB26","unstructured":"Krauss, M. W., & Seltzer, M. M. (1993). Coping strategies among older mothers of adults with retardation: A life-span developmental perspective. In A. P. Turnball, J. M. Patterson, S. K. Behr, D. L. Murphy, J. G. Marquis, & M. J. Blue-Banning (Eds.), Cognitive coping, families, and disability (pp. 173\u2013182). Baltimore: Paul H. Brookes Publishing Co."},{"key":"10.1016\/j.ridd.2003.06.003_BIB27","unstructured":"Lovibond, S. H., & Lovibond, P. F. (1995). Manual for the depression anxiety stress scales (2nd ed.). Sydney, Australia: Psychology Foundation of Australia."},{"key":"10.1016\/j.ridd.2003.06.003_BIB28","unstructured":"McCausland, J., & Pakenham, K. I. (in press). Investigation of the benefits of HIV\/AIDS caregiving and relations among caregiver adjustment, benefit finding and stress\/coping variables. AIDS Care."},{"key":"10.1016\/j.ridd.2003.06.003_BIB29","doi-asserted-by":"crossref","unstructured":"McCubbin, H. I., & Patterson, J. M. (1983). The family stress process: The Double ABCX model of adjustment and adaptation. In H. I. McCubbin, M. B. Sussman, & J. M. Patterson (Eds.), Social stress and the family: Advances and developments in family stress theory and research (pp. 7\u201337). New York: Haworth.","DOI":"10.1300\/J002v06n01_02"},{"key":"10.1016\/j.ridd.2003.06.003_BIB30","first-page":"143","article-title":"Reactions to impaired fertility: The vicissitudes of primary and secondary control appraisals","volume":"1","author":"McLaney","year":"1995","journal-title":"Women\u2019s Health: Research on Gender, Behaviour, and Policy"},{"key":"10.1016\/j.ridd.2003.06.003_BIB31","doi-asserted-by":"crossref","unstructured":"Moos, R. H., & Schaefer, J. A. (1986). Life transitions and crises: A conceptual overview. In R. H. Moos (Ed.), Coping with life crises: An integrated approach (pp. 3\u201328). New York: Plenum Press.","DOI":"10.1007\/978-1-4684-7021-5_1"},{"key":"10.1016\/j.ridd.2003.06.003_BIB32","unstructured":"Mullen, K. B., & Frea, W. D. (1995). A parent-professional consultation model for functional analysis. In R. L. Koegel & L. K. Koegel (Eds.), Teaching children with autism (pp. 175\u2013188). Baltimore: Paul H. Brookes Publishing Co."},{"key":"10.1016\/j.ridd.2003.06.003_BIB33","unstructured":"Myles, B. S., & Simpson, R. L. (1998). Asperger syndrome: A guide for educators and parents. Texas: Pro-Ed, Inc."},{"issue":"4","key":"10.1016\/j.ridd.2003.06.003_BIB34","first-page":"444","article-title":"Coping with stress in families with children who have mental retardation: An evaluation of the Double ABCX model","volume":"95","author":"Orr","year":"1991","journal-title":"American Journal on Mental Retardation"},{"key":"10.1016\/j.ridd.2003.06.003_BIB35","unstructured":"Ozonoff, S., Dawson, G., & McPartland, J. (2002). A parent\u2019s guide to Asperger syndrome and high functioning autism. New York: Guilford Press."},{"key":"10.1016\/j.ridd.2003.06.003_BIB36","doi-asserted-by":"crossref","first-page":"1194","DOI":"10.1037\/0022-006X.62.6.1194","article-title":"The relationships between adjustment to HIV and both social support and coping strategies","volume":"62","author":"Pakenham","year":"1994","journal-title":"Journal of Consulting and Clinical Psychology"},{"key":"10.1016\/j.ridd.2003.06.003_BIB37","unstructured":"Pakenham, K. I., Samios, C., & Sofronoff, K. (in press). Adjustment in mothers of children with Asperger syndrome: An application of the Double ABCX model of family adjustment. Submitted for publication."},{"issue":"1","key":"10.1016\/j.ridd.2003.06.003_BIB38","doi-asserted-by":"crossref","first-page":"71","DOI":"10.1111\/j.1467-6494.1996.tb00815.x","article-title":"Assessment and prediction of stress-related growth","volume":"64","author":"Park","year":"1996","journal-title":"Journal of Personality"},{"key":"10.1016\/j.ridd.2003.06.003_BIB39","unstructured":"Parkes, C. M., & Weiss, R. S. (1983). Recovery from bereavement. New York: Basic Books."},{"key":"10.1016\/j.ridd.2003.06.003_BIB40","unstructured":"Patterson, J. M. (1989). A family stress model: The family adjustment and adaptation response. In C. Ramsey (Ed.), The science of family medicine (pp. 95\u2013117). New York: Guilford Press."},{"key":"10.1016\/j.ridd.2003.06.003_BIB41","first-page":"129","article-title":"A family systems perspective for working with youth with disability","volume":"18","author":"Patterson","year":"1991","journal-title":"Pediatrician"},{"key":"10.1016\/j.ridd.2003.06.003_BIB42","doi-asserted-by":"crossref","unstructured":"Patterson, J. M., & Leonard, B. J. (1994). Caregiving and children. In E. Kahana, D. E. Biegel, & M. Wykle (Eds.), Family caregving across the lifespan (pp. 133\u2013158). Newbury Park, CA: Sage Publications.","DOI":"10.4135\/9781452243238.n5"},{"key":"10.1016\/j.ridd.2003.06.003_BIB43","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1080\/0300443920830101","article-title":"Parental coping and family stress. 1. Resources for and functioning of families with a preschool child having a developmental disability","volume":"83","author":"Reddon","year":"1992","journal-title":"Early Child Development and Care"},{"key":"10.1016\/j.ridd.2003.06.003_BIB44","doi-asserted-by":"crossref","first-page":"127","DOI":"10.1037\/0022-3514.44.1.127","article-title":"Assessing social support: The Social Support Questionnaire","volume":"44","author":"Sarason","year":"1983","journal-title":"Journal of Personality and Social Psychology"},{"key":"10.1016\/j.ridd.2003.06.003_BIB45","doi-asserted-by":"crossref","first-page":"16","DOI":"10.1080\/10673220216207","article-title":"Pervasive developmental disorder and parental adaptation: Previewing and reviewing atypical development with parents in child psychiatric consultation","volume":"10","author":"Schuntermann","year":"2002","journal-title":"Harvard Review of Psychiatry"},{"issue":"1","key":"10.1016\/j.ridd.2003.06.003_BIB46","doi-asserted-by":"crossref","first-page":"9","DOI":"10.1177\/1362361302006001003","article-title":"The CAST (Childhood Asperger Syndrome Test): Preliminary development of a UK screen for mainstream primary-school-age children","volume":"6","author":"Scott","year":"2002","journal-title":"Autism"},{"issue":"2","key":"10.1016\/j.ridd.2003.06.003_BIB47","first-page":"79","article-title":"Development of a brief Social Support Questionnaire","volume":"16","author":"Siegert","year":"1987","journal-title":"New Zealand Journal of Psychology"},{"issue":"4","key":"10.1016\/j.ridd.2003.06.003_BIB48","doi-asserted-by":"crossref","first-page":"397","DOI":"10.1177\/1362361302006004006","article-title":"Family systems and coping behaviours. A comparison between parents of children with autistic spectrum disorders and parents with non-autistic children","volume":"6","author":"Sivberg","year":"2002","journal-title":"Autism"},{"key":"10.1016\/j.ridd.2003.06.003_BIB49","unstructured":"Smyth, J. M., & Pennebaker, J. W. (1999). Sharing one\u2019s story: Translating emotional experiences into words as a coping tool. In C. R. Snyder (Ed.), Coping: The psychology of what works (pp. 70\u201389). New York: Oxford University Press."},{"key":"10.1016\/j.ridd.2003.06.003_BIB50","unstructured":"Sofronoff, K. (2002). Stress in the management of Asperger\u2019s syndrome. Unpublished document."},{"issue":"3","key":"10.1016\/j.ridd.2003.06.003_BIB51","doi-asserted-by":"crossref","first-page":"271","DOI":"10.1177\/1362361302006003005","article-title":"The effectiveness of parent management training to increase self-efficacy in parents of children with Asperger syndrome","volume":"6","author":"Sofronoff","year":"2002","journal-title":"Autism"},{"key":"10.1016\/j.ridd.2003.06.003_BIB52","doi-asserted-by":"crossref","first-page":"1161","DOI":"10.1037\/0003-066X.38.11.1161","article-title":"Adjusting to threatening events: A theory of cognitive adaptation","volume":"38","author":"Taylor","year":"1983","journal-title":"American Psychologist"},{"key":"10.1016\/j.ridd.2003.06.003_BIB53","doi-asserted-by":"crossref","first-page":"873","DOI":"10.1111\/j.1467-6494.1996.tb00947.x","article-title":"Positive illusions and coping with adversity","volume":"64","author":"Taylor","year":"1996","journal-title":"Journal of Personality"},{"key":"10.1016\/j.ridd.2003.06.003_BIB54","doi-asserted-by":"crossref","unstructured":"Tedeschi, R. G., Park, C. L., & Calhoun, L. G. (Eds.). (1998). Posttraumatic growth: Positive change in the aftermath of crisis. Mahwah, NJ: Erlbaum.","DOI":"10.4324\/9781410603401"},{"key":"10.1016\/j.ridd.2003.06.003_BIB55","unstructured":"Weissman, M. M. (1986). The Social Adjustment Self-report Questionnaire. In P. A. Keller & L. G. Ritt (Eds.), Innovations in clinical practice: A source book (Vol. 5, pp. 299\u2013307). Sarasota, FL: Professional Resource Press."}],"container-title":["Research in Developmental Disabilities"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0891422204000216?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0891422204000216?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2020,4,1]],"date-time":"2020-04-01T21:19:58Z","timestamp":1585775998000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S0891422204000216"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2004,5]]},"references-count":55,"journal-issue":{"issue":"3","published-print":{"date-parts":[[2004,5]]}},"alternative-id":["S0891422204000216"],"URL":"https:\/\/doi.org\/10.1016\/j.ridd.2003.06.003","relation":{},"ISSN":["0891-4222"],"issn-type":[{"value":"0891-4222","type":"print"}],"subject":[],"published":{"date-parts":[[2004,5]]}}}