{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,8]],"date-time":"2026-05-08T15:14:51Z","timestamp":1778253291906,"version":"3.51.4"},"reference-count":19,"publisher":"Elsevier BV","issue":"1","license":[{"start":{"date-parts":[[2026,5,1]],"date-time":"2026-05-01T00:00:00Z","timestamp":1777593600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2026,5,1]],"date-time":"2026-05-01T00:00:00Z","timestamp":1777593600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"}],"content-domain":{"domain":["clinicalkey.fr","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Revue des Maladies Respiratoires"],"published-print":{"date-parts":[[2026,5]]},"DOI":"10.1016\/j.rmr.2025.11.002","type":"journal-article","created":{"date-parts":[[2025,12,26]],"date-time":"2025-12-26T12:18:49Z","timestamp":1766751529000},"page":"72-81","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":0,"title":["Prise en charge sociale des patients adultes suivis pour une mucoviscidose"],"prefix":"10.1016","volume":"43","author":[{"given":"S.","family":"Dury","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"P.","family":"Mulette","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"A.","family":"Vivien","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"H.","family":"Yucel-Farcet","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"E.","family":"Longueville","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"A.","family":"Boutahir","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"B.","family":"Ravoninjatovo","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"A.","family":"Deforge","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"M.","family":"Griffon","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"F.","family":"Deschamps","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"G.","family":"Desl\u00e9e","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"J.","family":"Ancel","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"78","reference":[{"key":"10.1016\/j.rmr.2025.11.002_bib0110","doi-asserted-by":"crossref","first-page":"596","DOI":"10.1136\/thorax.57.7.596","article-title":"Relationship between nutritional status and lung function in cystic fibrosis: cross sectional and longitudinal analysis from the German CF quality assurance (CFQA)","volume":"57","author":"Steinkamp","year":"2002","journal-title":"Thorax"},{"key":"10.1016\/j.rmr.2025.11.002_bib0115","doi-asserted-by":"crossref","first-page":"2519","DOI":"10.1016\/S0140-6736(16)00576-6","article-title":"Cystic fibrosis","volume":"388","author":"Elborn","year":"2016","journal-title":"Lancet"},{"key":"10.1016\/j.rmr.2025.11.002_bib0120","doi-asserted-by":"crossref","first-page":"533","DOI":"10.1016\/j.jcf.2014.12.015","article-title":"Cystic Fibrosis Foundation and European Cystic Fibrosis Society Survey of Cystic Fibrosis Mental Health Care Delivery","volume":"14","author":"Abbott","year":"2015","journal-title":"J Cyst Fibros"},{"key":"10.1016\/j.rmr.2025.11.002_bib0125","series-title":"Protocole national de diagnostic et de soins (PNDS)\u00a0Mucoviscidose","year":"2017"},{"key":"10.1016\/j.rmr.2025.11.002_bib0130","doi-asserted-by":"crossref","first-page":"00015","DOI":"10.1183\/23120541.00015-2016","article-title":"Using social media to improve communication with people with cystic fibrosis","volume":"2","author":"Dale","year":"2016","journal-title":"ERJ Open Res"},{"key":"10.1016\/j.rmr.2025.11.002_bib0135","doi-asserted-by":"crossref","first-page":"e25014","DOI":"10.2196\/25014","article-title":"Perceptions of social media use to augment health care among adolescents and young adults with cystic fibrosis: survey study","volume":"4","author":"Perkins","year":"2021","journal-title":"JMIR Pediatr Parent"},{"key":"10.1016\/j.rmr.2025.11.002_bib0140","doi-asserted-by":"crossref","first-page":"S3","DOI":"10.1016\/j.jcf.2014.03.009","article-title":"European cystic fibrosis society standards of care: framework for the cystic fibrosis centre","volume":"13","author":"Conway","year":"2014","journal-title":"J Cyst Fibros"},{"key":"10.1016\/j.rmr.2025.11.002_bib0145","article-title":"Behavioral health screening in military cystic fibrosis centers: a survey","volume":"30","author":"Rutledge","year":"2022","journal-title":"Mil Med"},{"key":"10.1016\/j.rmr.2025.11.002_bib0150","unstructured":"https:\/\/www.legifrance.gouv.fr. Loi no\u00a02005-102\u00a0du 11\u00a0f\u00e9vrier 2005\u00a0pour l\u2019\u00e9galit\u00e9 des droits et des chances, la participation et la citoyennet\u00e9 des personnes handicap\u00e9es. (1)."},{"key":"10.1016\/j.rmr.2025.11.002_bib0155","unstructured":"https:\/\/muco-cftr.fr. eduMuco."},{"key":"10.1016\/j.rmr.2025.11.002_bib0160","unstructured":"https:\/\/educationtherapeutique.muco-cftr. GETHEM."},{"key":"10.1016\/j.rmr.2025.11.002_bib0175","unstructured":"https:\/\/www.vaincrelamuco.org. Registre fran\u00e7ais de la mucoviscidose\u2013Bilan des donn\u00e9es 2022\u00a0; Paris, septembre 2023."},{"key":"10.1016\/j.rmr.2025.11.002_bib0180","unstructured":"https:\/\/www.ameli.fr\u00a0; Vivre avec la mucoviscidose."},{"key":"10.1016\/j.rmr.2025.11.002_bib0185","unstructured":"https:\/\/www.orpha.net\u00a0; Mucoviscidose."},{"key":"10.1016\/j.rmr.2025.11.002_bib0190","unstructured":"https:\/\/www.legifrance.gouv.fr\u00a0; Loi no\u00a02022-270\u00a0du 28\u00a0f\u00e9vrier 2022\u00a0pour un acc\u00e8s plus juste, plus simple et plus transparent au march\u00e9 de l\u2019assurance emprunteur."},{"key":"10.1016\/j.rmr.2025.11.002_bib0195","doi-asserted-by":"crossref","first-page":"109858","DOI":"10.1016\/j.jpsychores.2019.109858","article-title":"Male gender and unemployment are associated with lower levels of perceived social support in adults with cystic fibrosis","volume":"127","author":"Flewelling","year":"2019","journal-title":"J Psychosom Res"},{"key":"10.1016\/j.rmr.2025.11.002_bib0200","doi-asserted-by":"crossref","first-page":"572","DOI":"10.1016\/j.jcf.2019.01.013","article-title":"Social support is associated with fewer reported symptoms and decreased treatment burden in adults with cystic fibrosis","volume":"18","author":"Flewelling","year":"2019","journal-title":"J Cyst Fibros"},{"key":"10.1016\/j.rmr.2025.11.002_bib0205","doi-asserted-by":"crossref","first-page":"119","DOI":"10.1016\/j.jcf.2022.08.018","article-title":"Non-respiratory health-related quality of life in people with cystic fibrosis receiving elexacaftor\/tezacaftor\/ivacaftor","volume":"22","author":"Fajac","year":"2023","journal-title":"J Cystic Fibros"},{"key":"10.1016\/j.rmr.2025.11.002_bib0105","doi-asserted-by":"crossref","first-page":"2873","DOI":"10.3390\/healthcare11212873","article-title":"Long-term follow-up of health-related quality of life and short-term intervention with CFTR modulator therapy in adults with cystic fibrosis: evaluation of changes over several years with or without 33\u00a0weekfs of CFTR modulator therapy","volume":"11","author":"Gruber","year":"2023","journal-title":"Healthcare (Basel)"}],"container-title":["Revue des Maladies Respiratoires"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0761842525002670?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0761842525002670?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2026,5,8]],"date-time":"2026-05-08T14:57:02Z","timestamp":1778252222000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S0761842525002670"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,5]]},"references-count":19,"journal-issue":{"issue":"1","published-print":{"date-parts":[[2026,5]]}},"alternative-id":["S0761842525002670"],"URL":"https:\/\/doi.org\/10.1016\/j.rmr.2025.11.002","relation":{},"ISSN":["0761-8425"],"issn-type":[{"value":"0761-8425","type":"print"}],"subject":[],"published":{"date-parts":[[2026,5]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Prise en charge sociale des patients adultes suivis pour une mucoviscidose","name":"articletitle","label":"Article Title"},{"value":"Revue des Maladies Respiratoires","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.rmr.2025.11.002","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2025 SPLF. Published by Elsevier Masson SAS. All rights are reserved, including those for text and data mining, AI training, and similar technologies.","name":"copyright","label":"Copyright"}]}}