{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,30]],"date-time":"2026-09-30T00:04:25Z","timestamp":1790726665666,"version":"4.1.0"},"reference-count":30,"publisher":"Elsevier BV","issue":"3","license":[{"start":{"date-parts":[[2026,3,1]],"date-time":"2026-03-01T00:00:00Z","timestamp":1772323200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2026,3,1]],"date-time":"2026-03-01T00:00:00Z","timestamp":1772323200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2026,3,17]],"date-time":"2026-03-17T00:00:00Z","timestamp":1773705600000},"content-version":"vor","delay-in-days":16,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100016300","name":"Octapharma AG","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100016300","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","clinicalkey.es","clinicalkey.fr","clinicalkey.jp","rpthjournal.org","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Research and Practice in Thrombosis and Haemostasis"],"published-print":{"date-parts":[[2026,3]]},"DOI":"10.1016\/j.rpth.2026.103418","type":"journal-article","created":{"date-parts":[[2026,3,24]],"date-time":"2026-03-24T16:00:30Z","timestamp":1774368030000},"page":"103418","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":0,"title":["Postpartum well-being in hemophilia carriers and women with von Willebrand disease: insights from patient-reported outcome measures"],"prefix":"10.1016","volume":"10","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-6980-0477","authenticated-orcid":false,"given":"Anne","family":"de Vaan","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Elke A.","family":"Doeff","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jeroen","family":"Eikenboom","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marieke J.H.A.","family":"Kruip","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marieke C.","family":"Punt","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Michiel","family":"Coppens","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Laurens","family":"Nieuwenhuizen","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Saskia E.M.","family":"Schols","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anja B.U.","family":"M\u00e4kelburg","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Floor C.J.I.","family":"Heubel-Moenen","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Hans J.","family":"Duvekot","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marjolein","family":"Peters","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Annemieke","family":"Middeldorp","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kitty W.M.","family":"Bloemenkamp","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Roger E.G.","family":"Schutgens","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Karin P.M.","family":"van Galen","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"key":"10.1016\/j.rpth.2026.103418_bib1","doi-asserted-by":"crossref","first-page":"2595","DOI":"10.1182\/blood-2024-193986","article-title":"Postpartum hemorrhage in women with von Willebrand disease after enhanced prophylactic clotting factor suppletion: the Pregnancy and Inherited Bleeding Disorders Study (PRIDES)","volume":"144","author":"De Vaan","year":"2024","journal-title":"Blood"},{"key":"10.1016\/j.rpth.2026.103418_bib2","doi-asserted-by":"crossref","first-page":"129","DOI":"10.1182\/blood-2024-207022","article-title":"Postpartum hemorrhage in hemophilia A and B carriers after enhanced prophylactic clotting factor suppletion: the Pregnancy and Inherited Bleeding Disorders Study (PRIDES)","volume":"144","author":"de Vaan","year":"2024","journal-title":"Blood"},{"key":"10.1016\/j.rpth.2026.103418_bib3","series-title":"Nederlandse Vereniging voor Hematologie","year":"2021"},{"key":"10.1016\/j.rpth.2026.103418_bib4","doi-asserted-by":"crossref","DOI":"10.1371\/journal.pone.0274041","article-title":"Primary postpartum haemorrhage and longer-term physical, psychological, and psychosocial health outcomes for women and their partners in high income countries: a mixed-methods systematic review","volume":"18","author":"Latt","year":"2023","journal-title":"PLoS One"},{"key":"10.1016\/j.rpth.2026.103418_bib5","doi-asserted-by":"crossref","first-page":"335","DOI":"10.1080\/0167482X.2020.1735343","article-title":"Severe postpartum hemorrhage increases risk of posttraumatic stress disorder: a prospective cohort study","volume":"42","author":"van Steijn","year":"2021","journal-title":"J Psychosom Obstet Gynecol"},{"key":"10.1016\/j.rpth.2026.103418_bib6","doi-asserted-by":"crossref","DOI":"10.1371\/journal.pone.0221216","article-title":"How well do postpartum blood loss and common definitions of postpartum hemorrhage correlate with postpartum anemia and fall in hemoglobin?","volume":"14","author":"Anger","year":"2019","journal-title":"PLoS One"},{"key":"10.1016\/j.rpth.2026.103418_bib7","doi-asserted-by":"crossref","first-page":"2099","DOI":"10.1007\/s11136-023-03384-3","article-title":"Postpartum quality of life and associated factors: a cross-sectional study","volume":"32","author":"Al Rehaili","year":"2023","journal-title":"Qual Life Res"},{"key":"10.1016\/j.rpth.2026.103418_bib8","doi-asserted-by":"crossref","first-page":"407","DOI":"10.1016\/j.wombi.2020.09.021","article-title":"The childbirth experience: a systematic review of predictors and outcomes","volume":"34","author":"McKelvin","year":"2021","journal-title":"Women Birth"},{"key":"10.1016\/j.rpth.2026.103418_bib9","doi-asserted-by":"crossref","DOI":"10.1016\/j.heliyon.2024.e41254","article-title":"Negative childbirth experience in Dutch women: A socio-ecological analysis of individual, interpersonal, and organisational factors from the birth experience study","volume":"11","author":"Muhamed","year":"2025","journal-title":"Heliyon"},{"key":"10.1016\/j.rpth.2026.103418_bib10","doi-asserted-by":"crossref","first-page":"212","DOI":"10.1111\/j.1365-2648.2003.02981.x","article-title":"Factors related to childbirth satisfaction","volume":"46","author":"Goodman","year":"2004","journal-title":"J Adv Nurs"},{"key":"10.1016\/j.rpth.2026.103418_bib11","first-page":"831","article-title":"Post-traumatic stress disorder after childbirth: the phenomenon of traumatic birth","volume":"156","author":"Reynolds","year":"1997","journal-title":"CMAJ"},{"key":"10.1016\/j.rpth.2026.103418_bib12","doi-asserted-by":"crossref","first-page":"e11","DOI":"10.1016\/j.midw.2007.02.001","article-title":"Place of birth and satisfaction with childbirth in Belgium and the Netherlands","volume":"25","author":"Christiaens","year":"2009","journal-title":"Midwifery"},{"key":"10.1016\/j.rpth.2026.103418_bib13","doi-asserted-by":"crossref","first-page":"275","DOI":"10.1016\/j.jpsychores.2007.06.003","article-title":"Psychometric evaluation of health-related quality of life measures in women after different types of delivery","volume":"63","author":"Jansen","year":"2007","journal-title":"J Psychosom Res"},{"key":"10.1016\/j.rpth.2026.103418_bib14","doi-asserted-by":"crossref","first-page":"1184","DOI":"10.1016\/j.jclinepi.2015.05.020","article-title":"Good reliability and validity for a new utility instrument measuring the birth experience, the Labor and Delivery Index","volume":"68","author":"G\u00e4rtner","year":"2015","journal-title":"J Clin Epidemiol"},{"key":"10.1016\/j.rpth.2026.103418_bib15","series-title":"RStudio: integrated development for R","year":"2023"},{"key":"10.1016\/j.rpth.2026.103418_bib16","series-title":"IBM SPSS Statistics for Windows, version 29.0.1","year":"2023"},{"key":"10.1016\/j.rpth.2026.103418_bib17","doi-asserted-by":"crossref","first-page":"217","DOI":"10.1002\/hec.4730020305","article-title":"The rand 36-item health survey 1.0","volume":"2","author":"Hays","year":"1993","journal-title":"Health Econ"},{"key":"10.1016\/j.rpth.2026.103418_bib18","first-page":"57","article-title":"Womens evaluation of their childbirth performance","volume":"23","author":"Mackey","year":"1995","journal-title":"Matern Child Nurs J"},{"key":"10.1016\/j.rpth.2026.103418_bib19","first-page":"19","article-title":"Womens evaluation of the labor and delivery experience","volume":"11","author":"Mackey","year":"1998","journal-title":"Nursingconnections"},{"key":"10.1016\/j.rpth.2026.103418_bib20","doi-asserted-by":"crossref","first-page":"147","DOI":"10.1186\/1471-2393-14-147","article-title":"A comprehensive representation of the birth-experience: identification and prioritization of birth-specific domains based on a mixed-method design","volume":"14","author":"G\u00e4rtner","year":"2014","journal-title":"BMC Pregnancy Childbirth"},{"key":"10.1016\/j.rpth.2026.103418_bib21","doi-asserted-by":"crossref","first-page":"668","DOI":"10.1002\/uog.26309","article-title":"Effect of intrapartum epidural analgesia on rate of emergency delivery for presumed fetal compromise: nationwide registry-based cohort study","volume":"62","author":"Damhuis","year":"2023","journal-title":"Ultrasound Obstet Gynecol"},{"key":"10.1016\/j.rpth.2026.103418_bib22","doi-asserted-by":"crossref","DOI":"10.5001\/omj.2020.108","article-title":"Iron deficiency anemia in pregnancy: novel approaches for an old problem","volume":"35","author":"Garzon","year":"2020","journal-title":"Oman Med J"},{"key":"10.1016\/j.rpth.2026.103418_bib23","doi-asserted-by":"crossref","DOI":"10.1371\/journal.pone.0164683","article-title":"Postpartum hemorrhage in women with von Willebrand disease\u2014a retrospective observational study","volume":"11","author":"Govorov","year":"2016","journal-title":"PLoS One"},{"key":"10.1016\/j.rpth.2026.103418_bib24","doi-asserted-by":"crossref","first-page":"733","DOI":"10.1002\/rth2.12246","article-title":"The experience of postpartum bleeding in women with inherited bleeding disorders","volume":"3","author":"VanderMeulen","year":"2019","journal-title":"Res Pract Thromb Haemost"},{"key":"10.1016\/j.rpth.2026.103418_bib25","doi-asserted-by":"crossref","first-page":"782","DOI":"10.1192\/bjp.150.6.782","article-title":"Detection of postnatal depression. Development of the 10-item Edinburgh Postnatal Depression Scale","volume":"150","author":"Cox","year":"1987","journal-title":"Br J Psychiatry"},{"key":"10.1016\/j.rpth.2026.103418_bib26","doi-asserted-by":"crossref","first-page":"1626","DOI":"10.1111\/jth.14825","article-title":"The experiences and attitudes of hemophilia carriers around pregnancy: a qualitative systematic review","volume":"18","author":"Punt","year":"2020","journal-title":"J Thromb Haemost"},{"key":"10.1016\/j.rpth.2026.103418_bib27","doi-asserted-by":"crossref","first-page":"e599","DOI":"10.1016\/j.wombi.2020.12.002","article-title":"\u201cIts like a bus, going downhill, without a driver\u201d: a qualitative study of how postpartum haemorrhage is experienced by women, their birth partners, and healthcare professionals","volume":"34","author":"Briley","year":"2021","journal-title":"Women Birth"},{"key":"10.1016\/j.rpth.2026.103418_bib28","series-title":"Zorgstandaard Integrale Geboortezorg","year":"2020"},{"key":"10.1016\/j.rpth.2026.103418_bib30","doi-asserted-by":"crossref","first-page":"e675","DOI":"10.1111\/hae.14396","article-title":"A qualitative study on the experiences of haemophilia carriers before, during and after pregnancy","volume":"27","author":"Punt","year":"2021","journal-title":"Haemophilia"},{"key":"10.1016\/j.rpth.2026.103418_bib31","doi-asserted-by":"crossref","first-page":"365","DOI":"10.1111\/j.1479-828X.2011.01317.x","article-title":"Emotional and physical health outcomes after significant primary post-partum haemorrhage (PPH): a multicentre cohort study","volume":"51","author":"Thompson","year":"2011","journal-title":"Aust N Z J Obst Gynaecol"}],"container-title":["Research and Practice in Thrombosis and Haemostasis"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S2475037926000762?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S2475037926000762?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2026,9,29]],"date-time":"2026-09-29T23:17:10Z","timestamp":1790723830000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S2475037926000762"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,3]]},"references-count":30,"journal-issue":{"issue":"3","published-print":{"date-parts":[[2026,3]]}},"alternative-id":["S2475037926000762"],"URL":"https:\/\/doi.org\/10.1016\/j.rpth.2026.103418","relation":{},"ISSN":["2475-0379"],"issn-type":[{"value":"2475-0379","type":"print"}],"subject":[],"published":{"date-parts":[[2026,3]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Postpartum well-being in hemophilia carriers and women with von Willebrand disease: insights from patient-reported outcome measures","name":"articletitle","label":"Article Title"},{"value":"Research and Practice in Thrombosis and Haemostasis","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.rpth.2026.103418","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2026 The Authors. Published by Elsevier Inc. on behalf of International Society on Thrombosis and Haemostasis.","name":"copyright","label":"Copyright"}],"article-number":"103418"}}