{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,2,19]],"date-time":"2026-02-19T06:21:53Z","timestamp":1771482113886,"version":"3.50.1"},"reference-count":46,"publisher":"Elsevier BV","issue":"4","license":[{"start":{"date-parts":[[2021,8,1]],"date-time":"2021-08-01T00:00:00Z","timestamp":1627776000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2021,8,1]],"date-time":"2021-08-01T00:00:00Z","timestamp":1627776000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2021,8,1]],"date-time":"2021-08-01T00:00:00Z","timestamp":1627776000000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-017"},{"start":{"date-parts":[[2021,8,1]],"date-time":"2021-08-01T00:00:00Z","timestamp":1627776000000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-037"},{"start":{"date-parts":[[2021,8,1]],"date-time":"2021-08-01T00:00:00Z","timestamp":1627776000000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-012"},{"start":{"date-parts":[[2021,8,1]],"date-time":"2021-08-01T00:00:00Z","timestamp":1627776000000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-029"},{"start":{"date-parts":[[2021,8,1]],"date-time":"2021-08-01T00:00:00Z","timestamp":1627776000000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-004"}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","clinicalkey.es","clinicalkey.fr","clinicalkey.jp","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Seminars in Arthritis and Rheumatism"],"published-print":{"date-parts":[[2021,8]]},"DOI":"10.1016\/j.semarthrit.2021.06.008","type":"journal-article","created":{"date-parts":[[2021,6,20]],"date-time":"2021-06-20T11:46:20Z","timestamp":1624189580000},"page":"888-894","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":16,"title":["Outcome measures used in psoriatic arthritis registries and cohorts: A systematic literature review of 27 registries or 16,183 patients"],"prefix":"10.1016","volume":"51","author":[{"given":"Krystel","family":"Aouad","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Georgia","family":"Moysidou","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Antsa","family":"Rakotozafiarison","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Bruno","family":"Fautrel","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Laure","family":"Gossec","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"78","reference":[{"issue":"Suppl 2","key":"10.1016\/j.semarthrit.2021.06.008_bib0001","article-title":"Psoriatic arthritis: epidemiology, clinical features, course, and outcome","volume":"64","author":"Gladman","year":"2005","journal-title":"Ann Rheum Dis"},{"issue":"10","key":"10.1016\/j.semarthrit.2021.06.008_bib0002","doi-asserted-by":"crossref","first-page":"957","DOI":"10.1056\/NEJMra1505557","article-title":"Psoriatic Arthritis","volume":"376","author":"Ritchlin","year":"2017","journal-title":"N Engl J Med"},{"issue":"4","key":"10.1016\/j.semarthrit.2021.06.008_bib0003","doi-asserted-by":"crossref","first-page":"545","DOI":"10.1016\/j.rdc.2015.07.001","article-title":"The epidemiology of psoriatic arthritis","volume":"41","author":"Ogdie","year":"2015","journal-title":"Rheum Dis Clin North Am"},{"issue":"8","key":"10.1016\/j.semarthrit.2021.06.008_bib0004","first-page":"1740","article-title":"International spondyloarthritis interobserver reliability exercise\u2013the INSPIRE study: II. Assessment of peripheral joints, enthesitis, and dactylitis","volume":"34","author":"Gladman","year":"2007","journal-title":"J Rheumatol"},{"key":"10.1016\/j.semarthrit.2021.06.008_bib0005","first-page":"699","volume":"41","author":"Coates","year":"2015"},{"key":"10.1016\/j.semarthrit.2021.06.008_bib0006","doi-asserted-by":"crossref","DOI":"10.3389\/fmed.2018.00246","article-title":"Classification and Outcome Measures for Psoriatic Arthritis","author":"Leung","year":"2018","journal-title":"Front Med [Internet]"},{"issue":"8","key":"10.1016\/j.semarthrit.2021.06.008_bib0007","first-page":"1251","article-title":"New GRAPPA and EULAR recommendations for the management of psoriatic arthritis","volume":"56","author":"Coates","year":"2017","journal-title":"Rheumatol Oxf Engl"},{"issue":"1","key":"10.1016\/j.semarthrit.2021.06.008_bib0008","doi-asserted-by":"crossref","first-page":"3","DOI":"10.1136\/annrheumdis-2017-211734","article-title":"Treating axial spondyloarthritis and peripheral spondyloarthritis, especially psoriatic arthritis, to target: 2017 update of recommendations by an international task force","volume":"77","author":"Smolen","year":"2018","journal-title":"Ann Rheum Dis"},{"issue":"3","key":"10.1016\/j.semarthrit.2021.06.008_bib0009","doi-asserted-by":"crossref","first-page":"397","DOI":"10.1002\/acr.21552","article-title":"Clinical outcomes in psoriatic arthritis: a systematic literature review","volume":"64","author":"Palominos","year":"2012","journal-title":"Arthritis Care Res"},{"issue":"5","key":"10.1016\/j.semarthrit.2021.06.008_bib0010","first-page":"1167","article-title":"Consensus on a core set of domains for psoriatic arthritis","volume":"34","author":"Gladman","year":"2007","journal-title":"J Rheumatol"},{"issue":"4","key":"10.1016\/j.semarthrit.2021.06.008_bib0011","doi-asserted-by":"crossref","first-page":"673","DOI":"10.1136\/annrheumdis-2016-210242","article-title":"International patient and physician consensus on a psoriatic arthritis core outcome set for clinical trials","volume":"76","author":"Orbai","year":"2017","journal-title":"Ann Rheum Dis"},{"key":"10.1016\/j.semarthrit.2021.06.008_bib0012","doi-asserted-by":"crossref","first-page":"33","DOI":"10.3899\/jrheum.190122","article-title":"The GRAPPA-OMERACT Psoriatic Arthritis Working Group at the 2018 Annual Meeting: report and Plan for Completing the Core Outcome Measurement Set","volume":"95","author":"Leung","year":"2019","journal-title":"J Rheumatol Suppl"},{"key":"10.1016\/j.semarthrit.2021.06.008_bib0013","first-page":"S64","volume":"63","author":"Mease","year":"2011"},{"key":"10.1016\/j.semarthrit.2021.06.008_bib0014","doi-asserted-by":"crossref","DOI":"10.1093\/rheumatology\/keaa030","article-title":"Remission and low disease activity in psoriatic arthritis publications: a systematic literature review with meta-analysis","author":"Hag\u00e8ge","year":"2020","journal-title":"Rheumatol Oxf Engl"},{"issue":"2","key":"10.1016\/j.semarthrit.2021.06.008_bib0015","doi-asserted-by":"crossref","first-page":"251","DOI":"10.1136\/annrheumdis-2017-211998","article-title":"Ideal target for psoriatic arthritis? Comparison of remission and low disease activity states in a real-life cohort","volume":"77","author":"van Mens","year":"2018","journal-title":"Ann Rheum Dis"},{"issue":"1","key":"10.1016\/j.semarthrit.2021.06.008_bib0016","doi-asserted-by":"crossref","first-page":"48","DOI":"10.1136\/ard.2008.102053","article-title":"Defining minimal disease activity in psoriatic arthritis: a proposed objective target for treatment","volume":"69","author":"Coates","year":"2010","journal-title":"Ann Rheum Dis"},{"issue":"1","key":"10.1016\/j.semarthrit.2021.06.008_bib0017","doi-asserted-by":"crossref","first-page":"6","DOI":"10.3899\/jrheum.170449","article-title":"Minimal Disease Activity as a Treatment Target in Psoriatic Arthritis: a Review of the Literature","volume":"45","author":"Gossec","year":"2018","journal-title":"J Rheumatol"},{"key":"10.1016\/j.semarthrit.2021.06.008_bib0018","series-title":"Patient registries [Internet]. registries for evaluating patient outcomes: a user's guide [Internet]","author":"Gliklich","year":"2014"},{"issue":"9","key":"10.1016\/j.semarthrit.2021.06.008_bib0019","doi-asserted-by":"crossref","first-page":"1219","DOI":"10.1002\/acr.22602","article-title":"Consistency and Utility of Data Items Across European Rheumatoid Arthritis Clinical Cohorts and Registers","volume":"67","author":"Radner","year":"2015","journal-title":"Arthritis Care Res"},{"key":"10.1016\/j.semarthrit.2021.06.008_bib0020","series-title":"Cochrane handbook for systematic reviews of interventions version 5.1.0 2011]","author":"Higgins","year":"2011"},{"key":"10.1016\/j.semarthrit.2021.06.008_bib0021","series-title":"Outcomes used to collect disease activity in psoriatic arthritis registries: a systematic literature review","year":"2020"},{"key":"10.1016\/j.semarthrit.2021.06.008_bib0022","doi-asserted-by":"crossref","first-page":"24","DOI":"10.1016\/j.jclinepi.2020.12.022","article-title":"Using Embase as a supplement to PubMed in Cochrane reviews differed across fields","volume":"133","author":"Frandsen","year":"2021","journal-title":"J Clin Epidemiol"},{"issue":"2","key":"10.1016\/j.semarthrit.2021.06.008_bib0023","doi-asserted-by":"crossref","first-page":"453","DOI":"10.3899\/jrheum.090956","article-title":"Composite measures in psoriatic arthritis: GRAPPA","volume":"37","author":"Gladman","year":"2008","journal-title":"J Rheumatol"},{"issue":"Suppl 10","key":"10.1016\/j.semarthrit.2021.06.008_bib0024","doi-asserted-by":"crossref","first-page":"82","DOI":"10.1002\/acr.24242","article-title":"Measuring Outcomes in Psoriatic Arthritis","volume":"72","author":"Ogdie","year":"2020","journal-title":"Arthritis Care Res"},{"issue":"8","key":"10.1016\/j.semarthrit.2021.06.008_bib0025","doi-asserted-by":"crossref","first-page":"2665","DOI":"10.1002\/art.21972","article-title":"Classification criteria for psoriatic arthritis: development of new criteria from a large international study","volume":"54","author":"Taylor","year":"2006","journal-title":"Arthritis Rheum"},{"issue":"1","key":"10.1016\/j.semarthrit.2021.06.008_bib0026","doi-asserted-by":"crossref","first-page":"78","DOI":"10.1002\/acr.20017","article-title":"Validity of the bath ankylosing spondylitis disease activity index for the evaluation of disease activity in axial psoriatic arthritis","volume":"62","author":"Fern\u00e1ndez-Sueiro","year":"2010","journal-title":"Arthritis Care Res"},{"issue":"8","key":"10.1016\/j.semarthrit.2021.06.008_bib0027","doi-asserted-by":"crossref","first-page":"996","DOI":"10.3899\/jrheum.181089","article-title":"Endorsement of the 66\/68 Joint Count for the Measurement of Musculoskeletal Disease Activity: OMERACT 2018 Psoriatic Arthritis Workshop Report","volume":"46","author":"Duarte-Garc\u00eda","year":"2019","journal-title":"J Rheumatol"},{"issue":"5","key":"10.1016\/j.semarthrit.2021.06.008_bib0028","doi-asserted-by":"crossref","first-page":"782","DOI":"10.1136\/annrheumdis-2017-211447","article-title":"How are enthesitis, dactylitis and nail involvement measured and reported in recent clinical trials of psoriatic arthritis? A systematic literature review","volume":"77","author":"Ramiro","year":"2018","journal-title":"Ann Rheum Dis"},{"issue":"6","key":"10.1016\/j.semarthrit.2021.06.008_bib0029","doi-asserted-by":"crossref","first-page":"700","DOI":"10.1136\/annrheumdis-2020-217159","article-title":"EULAR recommendations for the management of psoriatic arthritis with pharmacological therapies: 2019 update","volume":"79","author":"Gossec","year":"2020","journal-title":"Ann Rheum Dis"},{"issue":"11","key":"10.1016\/j.semarthrit.2021.06.008_bib0030","doi-asserted-by":"crossref","first-page":"1692","DOI":"10.1002\/acr.23249","article-title":"Clinical Characteristics, Disease Activity, and Patient-Reported Outcomes in Psoriatic Arthritis Patients With Dactylitis or Enthesitis: results From the Corrona Psoriatic Arthritis\/Spondyloarthritis Registry","volume":"69","author":"Mease","year":"2017","journal-title":"Arthritis Care Res"},{"issue":"4","key":"10.1016\/j.semarthrit.2021.06.008_bib0031","doi-asserted-by":"crossref","first-page":"809","DOI":"10.3899\/jrheum.091059","article-title":"Risk factors for axial inflammatory arthritis in patients with psoriatic arthritis","volume":"37","author":"Chandran","year":"2010","journal-title":"J Rheumatol"},{"issue":"6","key":"10.1016\/j.semarthrit.2021.06.008_bib0032","doi-asserted-by":"crossref","first-page":"1340","DOI":"10.1093\/rheumatology\/kez457","article-title":"Is axial psoriatic arthritis distinct from ankylosing spondylitis with and without concomitant psoriasis?","volume":"59","author":"Feld","year":"2020","journal-title":"Rheumatol Oxf Engl"},{"issue":"12","key":"10.1016\/j.semarthrit.2021.06.008_bib0033","doi-asserted-by":"crossref","first-page":"1611","DOI":"10.3899\/jrheum.180802","article-title":"What Is Axial Psoriatic Arthritis?","volume":"45","author":"Feld","year":"2018","journal-title":"J Rheumatol"},{"issue":"12","key":"10.1016\/j.semarthrit.2021.06.008_bib0034","doi-asserted-by":"crossref","first-page":"2251","DOI":"10.1093\/rheumatology\/kez215","article-title":"Comparison of disease activity measures in early psoriatic arthritis in usual care","volume":"58","author":"Wervers","year":"2019","journal-title":"Rheumatol Oxf Engl"},{"key":"10.1016\/j.semarthrit.2021.06.008_bib0035","article-title":"Composite Measures for Clinical Trials in Psoriatic Arthritis: testing Pain and Fatigue Modifications in a UK Multicenter Study","author":"Tillett","year":"2021","journal-title":"J Rheumatol"},{"issue":"6","key":"10.1016\/j.semarthrit.2021.06.008_bib0036","doi-asserted-by":"crossref","first-page":"986","DOI":"10.1136\/annrheumdis-2012-201341","article-title":"The development of candidate composite disease activity and responder indices for psoriatic arthritis (GRACE project)","volume":"72","author":"Helliwell","year":"2013","journal-title":"Ann Rheum Dis"},{"key":"10.1016\/j.semarthrit.2021.06.008_bib0037","doi-asserted-by":"crossref","first-page":"11","DOI":"10.3899\/jrheum.200121","article-title":"Outcomes of the 2019 GRAPPA Workshop on Continuous Composite Indices for the Assessment of Psoriatic Arthritis and Membership-recommended Next Steps","volume":"96","author":"Tillett","year":"2020","journal-title":"J Rheumatol Suppl"},{"key":"10.1016\/j.semarthrit.2021.06.008_bib0038","article-title":"Composite Measures for Routine Clinical Practice in Psoriatic Arthritis: testing of Shortened Versions in a UK Multicenter Study","author":"Tillett","year":"2021","journal-title":"J Rheumatol"},{"issue":"2","key":"10.1016\/j.semarthrit.2021.06.008_bib0039","doi-asserted-by":"crossref","DOI":"10.1136\/rmdopen-2019-001002","article-title":"Measurement properties of the minimal disease activity criteria for psoriatic arthritis","volume":"5","author":"Coates","year":"2019","journal-title":"RMD Open"},{"issue":"5","key":"10.1016\/j.semarthrit.2021.06.008_bib0040","doi-asserted-by":"crossref","first-page":"405","DOI":"10.1080\/1744666X.2018.1468252","article-title":"Quality of life in psoriatic arthritis","volume":"14","author":"Gudu","year":"2018","journal-title":"Expert Rev Clin Immunol"},{"key":"10.1016\/j.semarthrit.2021.06.008_bib0041","series-title":"Improvements in fatigue lag behind disease remission in early rheumatoid arthritis: results from the canadian early arthritis cohort. arthritis rheumatol hoboken nj","author":"Holdren","year":"2020"},{"issue":"6","key":"10.1016\/j.semarthrit.2021.06.008_bib0042","doi-asserted-by":"crossref","first-page":"1004","DOI":"10.1093\/rheumatology\/keq282","article-title":"Fatigue in rheumatoid arthritis: time for a conceptual model","volume":"50","author":"Hewlett","year":"2011","journal-title":"Rheumatol Oxf Engl"},{"issue":"Suppl 5","key":"10.1016\/j.semarthrit.2021.06.008_bib0043","doi-asserted-by":"crossref","first-page":"v1","DOI":"10.1093\/rheumatology\/kez314","article-title":"Fatigue in rheumatoid arthritis","volume":"58","author":"Choy","year":"2019","journal-title":"Rheumatol Oxf Engl"},{"issue":"5","key":"10.1016\/j.semarthrit.2021.06.008_bib0044","doi-asserted-by":"crossref","first-page":"449","DOI":"10.1016\/j.jbspin.2020.03.014","article-title":"Determinants of sleep impairment in psoriatic arthritis: an observational study with 396 patients from 14 countries","volume":"87","author":"Palominos","year":"2020","journal-title":"Joint Bone Spine"},{"issue":"6","key":"10.1016\/j.semarthrit.2021.06.008_bib0045","doi-asserted-by":"crossref","first-page":"1012","DOI":"10.1136\/annrheumdis-2014-205207","article-title":"A patient-derived and patient-reported outcome measure for assessing psoriatic arthritis: elaboration and preliminary validation of the Psoriatic Arthritis Impact of Disease (PsAID) questionnaire, a 13-country EULAR initiative","volume":"73","author":"Gossec","year":"2014","journal-title":"Ann Rheum Dis"},{"key":"10.1016\/j.semarthrit.2021.06.008_bib0046","doi-asserted-by":"crossref","first-page":"46","DOI":"10.3899\/jrheum.200127","article-title":"The GRAPPA-OMERACT Working Group: 4 Prioritized Domains for Completing the Core Outcome Measurement Set for Psoriatic Arthritis 2019 Updates","volume":"96","author":"Leung","year":"2020","journal-title":"J Rheumatol Suppl"}],"container-title":["Seminars in Arthritis and Rheumatism"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0049017221001207?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0049017221001207?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2025,9,24]],"date-time":"2025-09-24T17:08:23Z","timestamp":1758733703000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S0049017221001207"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2021,8]]},"references-count":46,"journal-issue":{"issue":"4","published-print":{"date-parts":[[2021,8]]}},"alternative-id":["S0049017221001207"],"URL":"https:\/\/doi.org\/10.1016\/j.semarthrit.2021.06.008","relation":{},"ISSN":["0049-0172"],"issn-type":[{"value":"0049-0172","type":"print"}],"subject":[],"published":{"date-parts":[[2021,8]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Outcome measures used in psoriatic arthritis registries and cohorts: A systematic literature review of 27 registries or 16,183 patients","name":"articletitle","label":"Article Title"},{"value":"Seminars in Arthritis and Rheumatism","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.semarthrit.2021.06.008","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2021 Elsevier Inc. All rights reserved.","name":"copyright","label":"Copyright"}]}}