{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,15]],"date-time":"2026-05-15T03:02:28Z","timestamp":1778814148461,"version":"3.51.4"},"reference-count":45,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2025,6,1]],"date-time":"2025-06-01T00:00:00Z","timestamp":1748736000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2025,6,1]],"date-time":"2025-06-01T00:00:00Z","timestamp":1748736000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2025,6,1]],"date-time":"2025-06-01T00:00:00Z","timestamp":1748736000000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-017"},{"start":{"date-parts":[[2025,6,1]],"date-time":"2025-06-01T00:00:00Z","timestamp":1748736000000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-037"},{"start":{"date-parts":[[2025,6,1]],"date-time":"2025-06-01T00:00:00Z","timestamp":1748736000000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-012"},{"start":{"date-parts":[[2025,6,1]],"date-time":"2025-06-01T00:00:00Z","timestamp":1748736000000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-029"},{"start":{"date-parts":[[2025,6,1]],"date-time":"2025-06-01T00:00:00Z","timestamp":1748736000000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-004"}],"funder":[{"DOI":"10.13039\/100010269","name":"Wellcome Trust","doi-asserted-by":"publisher","award":["203,132\/Z\/16\/Z"],"award-info":[{"award-number":["203,132\/Z\/16\/Z"]}],"id":[{"id":"10.13039\/100010269","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100010269","name":"Wellcome Trust","doi-asserted-by":"publisher","award":["224,744\/Z\/21\/Z"],"award-info":[{"award-number":["224,744\/Z\/21\/Z"]}],"id":[{"id":"10.13039\/100010269","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","clinicalkey.es","clinicalkey.fr","clinicalkey.jp","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Seminars in Perinatology"],"published-print":{"date-parts":[[2025,6]]},"DOI":"10.1016\/j.semperi.2025.152097","type":"journal-article","created":{"date-parts":[[2025,6,4]],"date-time":"2025-06-04T03:55:13Z","timestamp":1749009313000},"page":"152097","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":3,"title":["Injustice and inequality in the provision of perinatal palliative care"],"prefix":"10.1016","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-4200-1717","authenticated-orcid":false,"given":"Matthew","family":"Lin","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9039-5207","authenticated-orcid":false,"given":"Sophie","family":"Bertaud","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-3958-8633","authenticated-orcid":false,"given":"Dominic","family":"Wilkinson","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"78","reference":[{"issue":"5","key":"10.1016\/j.semperi.2025.152097_bib0001","doi-asserted-by":"crossref","first-page":"966","DOI":"10.1542\/peds.2013-2731","article-title":"Pediatric palliative care and hospice care commitments, guidelines, and recommendations","volume":"132","author":"Feudtner","year":"2013","journal-title":"Pediatrics (Evanston)"},{"issue":"2","key":"10.1016\/j.semperi.2025.152097_bib0002","article-title":"Pediatric palliative care in infants and neonates","volume":"5","author":"Carter","year":"2018","journal-title":"Children (Basel)"},{"issue":"12","key":"10.1016\/j.semperi.2025.152097_bib0003","doi-asserted-by":"crossref","first-page":"1369","DOI":"10.1089\/jpm.2014.0095","article-title":"Reported availability and gaps of pediatric palliative care in low- and middle-income countries: a systematic review of published data","volume":"17","author":"Caruso Brown","year":"2014","journal-title":"J Palliat Med"},{"key":"10.1016\/j.semperi.2025.152097_bib0004","series-title":"Principles of Biomedical Ethics","author":"Beauchamp","year":"2019"},{"issue":"3","key":"10.1016\/j.semperi.2025.152097_bib0005","first-page":"549","article-title":"Children's rights and a capabilities approach: the question of special priority","volume":"97","author":"Dixon","year":"2012","journal-title":"Cornell Law Rev"},{"issue":"2","key":"10.1016\/j.semperi.2025.152097_bib0006","doi-asserted-by":"crossref","DOI":"10.1371\/journal.pone.0193181","article-title":"Assessing the capability to experience a 'good death': a qualitative study to directly elicit expert views on a new supportive care measure grounded in Sen's capability approach","volume":"13","author":"Kinghorn","year":"2018","journal-title":"PLoS One"},{"key":"10.1016\/j.semperi.2025.152097_bib0007","unstructured":"Palliative care: key facts. Accessed January 15, 2025. https:\/\/www.who.int\/health-topics\/palliative-care."},{"issue":"6","key":"10.1016\/j.semperi.2025.152097_bib0008","doi-asserted-by":"crossref","first-page":"1420","DOI":"10.21037\/apm-24-87","article-title":"Perinatal palliative care in low- and middle-income countries: a scoping review","volume":"13","author":"Rent","year":"2024","journal-title":"Ann Palliat Med"},{"key":"10.1016\/j.semperi.2025.152097_bib0009","doi-asserted-by":"crossref","DOI":"10.1016\/j.jpeds.2024.114194","article-title":"Disparities in pediatric palliative care: where are we and where do we go from here?","volume":"275","author":"Boyden","year":"2024","journal-title":"J Pediatr"},{"issue":"3","key":"10.1016\/j.semperi.2025.152097_bib0010","doi-asserted-by":"crossref","first-page":"574","DOI":"10.1542\/peds.2007-3042","article-title":"What accounts for differences or disparities in pediatric palliative and end-of-life care? a systematic review focusing on possible multilevel mechanisms","volume":"122","author":"Linton","year":"2008","journal-title":"Pediatrics"},{"issue":"11","key":"10.1016\/j.semperi.2025.152097_bib0011","doi-asserted-by":"crossref","first-page":"1329","DOI":"10.1089\/jpm.2013.9468","article-title":"Racial and ethnic disparities in palliative care","volume":"16","author":"Johnson","year":"2013","journal-title":"J Palliat Med"},{"issue":"1","key":"10.1016\/j.semperi.2025.152097_bib0012","doi-asserted-by":"crossref","first-page":"72","DOI":"10.1542\/peds.2013-0470","article-title":"Differences in characteristics of dying children who receive and do not receive palliative care","volume":"132","author":"Keele","year":"2013","journal-title":"Pediatrics"},{"issue":"6","key":"10.1016\/j.semperi.2025.152097_bib0013","doi-asserted-by":"crossref","first-page":"1094","DOI":"10.1542\/peds.2010-3225","article-title":"Pediatric palliative care patients: a prospective multicenter cohort study","volume":"127","author":"Feudtner","year":"2011","journal-title":"Pediatrics"},{"issue":"2","key":"10.1016\/j.semperi.2025.152097_bib0014","doi-asserted-by":"crossref","first-page":"123","DOI":"10.1177\/1049909118789868","article-title":"Children enrolled in hospice care under commercial insurance: a comparison of different age groups","volume":"36","author":"Lindley","year":"2019","journal-title":"Am J Hosp Palliat Med.\u00ae"},{"issue":"3","key":"10.1016\/j.semperi.2025.152097_bib0015","first-page":"214","article-title":"A national profile of children receiving pediatric concurrent hospice care, 2011 to 2013","volume":"23","author":"Lindley","year":"2021","journal-title":"J Hosp Palliat Nurs. J Hosp Palliat Nurs. J. Hosp. Palliat Nurs Assoc"},{"issue":"6","key":"10.1016\/j.semperi.2025.152097_bib0016","doi-asserted-by":"crossref","DOI":"10.1542\/peds.2016-3239","article-title":"Annual summary of vital statistics: 2013\u20132014","volume":"139","author":"Murphy","year":"2017","journal-title":"Pediatrics"},{"key":"10.1016\/j.semperi.2025.152097_bib0017","unstructured":"Kuebelbeck A. Accessed March 14, 2025. https:\/\/www.perinatalhospice.org\/."},{"issue":"3","key":"10.1016\/j.semperi.2025.152097_bib0018","doi-asserted-by":"crossref","first-page":"279","DOI":"10.1089\/jpm.2015.0266","article-title":"Provision of services in perinatal palliative care: a multicenter survey in the United States","volume":"19","author":"Wool","year":"2016","journal-title":"J Palliat Med"},{"issue":"10","key":"10.1016\/j.semperi.2025.152097_bib0019","doi-asserted-by":"crossref","first-page":"1080","DOI":"10.1089\/jpm.2015.0536","article-title":"A survey of perinatal palliative care programs in the United States: structure, processes, and outcomes","volume":"19","author":"Denney-Koelsch","year":"2016","journal-title":"J Palliat Med"},{"key":"10.1016\/j.semperi.2025.152097_bib0020","doi-asserted-by":"crossref","DOI":"10.1177\/10499091221089337","article-title":"Pediatric concurrent hospice care: cost implications of a hybrid payment model","author":"Cozad","year":"2022","journal-title":"Am J Hosp Palliat Care"},{"issue":"3","key":"10.1016\/j.semperi.2025.152097_bib0021","doi-asserted-by":"crossref","DOI":"10.1542\/peds.2017-1134","article-title":"Repeal of the affordable care act will negatively impact children at end of life","volume":"140","author":"Keim-Malpass","year":"2017","journal-title":"Pediatrics"},{"key":"10.1016\/j.semperi.2025.152097_bib0022","doi-asserted-by":"crossref","first-page":"11","DOI":"10.1016\/j.jpeds.2020.05.012","article-title":"Concurrent care is not enough: more hospice reforms are needed for children with serious illness","volume":"225","author":"Lotstein","year":"2020","journal-title":"J Pediatr"},{"issue":"4","key":"10.1016\/j.semperi.2025.152097_bib0023","doi-asserted-by":"crossref","DOI":"10.1542\/peds.2022-057872","article-title":"Palliative care programs in children's hospitals","volume":"150","author":"Weaver","year":"2022","journal-title":"Pediatrics"},{"issue":"1","key":"10.1016\/j.semperi.2025.152097_bib0024","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1016\/j.jpainsymman.2023.02.006","article-title":"The landscape of outpatient pediatric palliative care: a national cross-sectional assessment","volume":"66","author":"Autrey","year":"2023","journal-title":"J Pain Symptom Manage"},{"key":"10.1016\/j.semperi.2025.152097_bib0025","unstructured":"Joint workforce statement from paediatric palliative medicine CSAC and APPM October 2023 Accessed February 16, 2025. https:\/\/www.appm.org.uk\/_webedit\/uploaded-files\/All%20Files\/News\/Joint%20workforce%20statement%20from%20Paediatric%20Palliative%20Medicine%20CSAC%20and%20APPM%20%20-%20October%202023.pdf."},{"issue":"2","key":"10.1016\/j.semperi.2025.152097_bib0026","doi-asserted-by":"crossref","first-page":"133","DOI":"10.1053\/j.semperi.2016.11.005","article-title":"Primary palliative care in neonatal intensive care","volume":"41","author":"Marc-Aurele","year":"2017","journal-title":"Semin Perinatol"},{"issue":"1","key":"10.1016\/j.semperi.2025.152097_bib0027","doi-asserted-by":"crossref","first-page":"212","DOI":"10.1089\/pmr.2021.0011","article-title":"Gaps in palliative care education among neonatology fellowship trainees","volume":"2","author":"Wraight","year":"2021","journal-title":"Palliat. med. rep"},{"issue":"9","key":"10.1016\/j.semperi.2025.152097_bib0028","doi-asserted-by":"crossref","first-page":"731","DOI":"10.1038\/jp.2013.38","article-title":"Neonatologists' perspectives of palliative and end-of-life care in neonatal intensive care units","volume":"33","author":"Cortezzo","year":"2013","journal-title":"J. Perinatol"},{"issue":"1","key":"10.1016\/j.semperi.2025.152097_bib0029","first-page":"e1","article-title":"Antiracism in the field of neonatology: a foundation and concrete approaches","volume":"23","author":"Montoya-Williams","year":"2022","journal-title":"Neoreviews (Elk Grove Village, Ill)"},{"key":"10.1016\/j.semperi.2025.152097_bib0030","series-title":"Demarginalizing the Intersection of Race and Sex: A Black Feminist Critique of Antidiscrimination Doctrine, Feminist Theory and Antiracist Politics","first-page":"23","author":"Crenshaw","year":"1997"},{"issue":"1","key":"10.1016\/j.semperi.2025.152097_bib0031","doi-asserted-by":"crossref","first-page":"e7","DOI":"10.1016\/j.jpainsymman.2022.02.015","article-title":"Pediatric hospice and palliative care services and needs across the Northwest United States","volume":"64","author":"Bogetz","year":"2022","journal-title":"J Pain Symptom Manage"},{"issue":"1","key":"10.1016\/j.semperi.2025.152097_bib0032","article-title":"Pediatric palliative care programs in US hospitals","volume":"148","author":"Rogers","year":"2021","journal-title":"Pediatrics (Evanston)"},{"issue":"11","key":"10.1016\/j.semperi.2025.152097_bib0033","doi-asserted-by":"crossref","first-page":"1489","DOI":"10.1089\/jpm.2024.0148","article-title":"Outpatient pediatric palliative care development: guidance on building sustainable programs","volume":"27","author":"James","year":"2024","journal-title":"J Palliat Med"},{"key":"10.1016\/j.semperi.2025.152097_bib0034","article-title":"Consultant-led UK paediatric palliative care services: professional configuration, services, funding","author":"Bedendo","year":"2023","journal-title":"BMJ Support Palliat Care"},{"issue":"9","key":"10.1016\/j.semperi.2025.152097_bib0035","doi-asserted-by":"crossref","first-page":"981","DOI":"10.1177\/02692163241271010","article-title":"Barriers and facilitators influencing referral and access to palliative care for children and young people with life-limiting and life-threatening conditions: a scoping review of the evidence","volume":"38","author":"Holder","year":"2024","journal-title":"Palliat Med"},{"key":"10.1016\/j.semperi.2025.152097_bib0036","article-title":"Recognising uncertainty: an integrated framework for palliative care in perinatal medicine","author":"Wilkinson","year":"2024","journal-title":"Arch Dis Child Fetal Neonatal Ed"},{"issue":"3","key":"10.1016\/j.semperi.2025.152097_bib0037","doi-asserted-by":"crossref","DOI":"10.1016\/j.siny.2023.101436","article-title":"Paediatric palliative care in the NICU: a new era of integration","volume":"28","author":"Bertaud","year":"2023","journal-title":"Semin Fetal Neonatal Med"},{"issue":"1","key":"10.1016\/j.semperi.2025.152097_bib0038","doi-asserted-by":"crossref","first-page":"44","DOI":"10.1016\/j.jpainsymman.2024.09.021","article-title":"Racism in pediatric serious illness and palliative care: a scoping review of qualitative research","volume":"69","author":"Karbeah","year":"2025","journal-title":"J Pain Symptom Manage"},{"issue":"5","key":"10.1016\/j.semperi.2025.152097_bib0039","doi-asserted-by":"crossref","first-page":"1408","DOI":"10.1016\/j.jpainsymman.2018.01.007","article-title":"Culture and palliative care: preferences, communication, meaning, and mutual decision making","volume":"55","author":"Cain","year":"2018","journal-title":"J Pain Symptom Manage"},{"issue":"1","key":"10.1016\/j.semperi.2025.152097_bib0040","doi-asserted-by":"crossref","first-page":"6","DOI":"10.1002\/uog.1784","article-title":"Prenatal diagnosis of severe structural congenital malformations in Europe","volume":"25","author":"Garne","year":"2005","journal-title":"Ultrasound in Obstetrics & Gynecology: the official journal of the International Society of Ultrasound in Obstetrics and Gynecology"},{"issue":"3","key":"10.1016\/j.semperi.2025.152097_bib0041","doi-asserted-by":"crossref","first-page":"248","DOI":"10.1002\/pd.1391","article-title":"Attitudes towards prenatal diagnosis and termination of pregnancy for thalassaemia in pregnant Pakistani women in the North of England","volume":"26","author":"Ahmed","year":"2006","journal-title":"Prenat Diagn"},{"issue":"1","key":"10.1016\/j.semperi.2025.152097_bib0042","doi-asserted-by":"crossref","first-page":"101","DOI":"10.1007\/s10897-007-9131-2","article-title":"Culture and acculturation influences on Palestinian perceptions of prenatal genetic counseling","volume":"17","author":"Awwad","year":"2008","journal-title":"J Genet Couns"},{"issue":"1","key":"10.1016\/j.semperi.2025.152097_bib0043","doi-asserted-by":"crossref","first-page":"67","DOI":"10.1017\/S0266267101000153","article-title":"Symposium on Amartya Sen's philosophy: 5 adaptive preferences and women's options","volume":"17","author":"Nussbaum","year":"2001","journal-title":"Econ Philos"},{"key":"10.1016\/j.semperi.2025.152097_bib0044","doi-asserted-by":"crossref","DOI":"10.1136\/jme-2024-110120","article-title":"Hope pluralism in antenatal palliative care","author":"Bertaud","year":"2024","journal-title":"J Med Ethics"},{"issue":"2","key":"10.1016\/j.semperi.2025.152097_bib0045","doi-asserted-by":"crossref","first-page":"117","DOI":"10.1353\/hpu.2010.0233","article-title":"Cultural humility versus cultural competence: a critical distinction in defining physician training outcomes in multicultural education","volume":"9","author":"Tervalon","year":"1998","journal-title":"J Health Care Poor Underserved"}],"container-title":["Seminars in Perinatology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0146000525000746?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0146000525000746?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2025,6,7]],"date-time":"2025-06-07T00:39:12Z","timestamp":1749256752000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S0146000525000746"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,6]]},"references-count":45,"alternative-id":["S0146000525000746"],"URL":"https:\/\/doi.org\/10.1016\/j.semperi.2025.152097","relation":{},"ISSN":["0146-0005"],"issn-type":[{"value":"0146-0005","type":"print"}],"subject":[],"published":{"date-parts":[[2025,6]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Injustice and inequality in the provision of perinatal palliative care","name":"articletitle","label":"Article Title"},{"value":"Seminars in Perinatology","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.semperi.2025.152097","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2025 Published by Elsevier Inc.","name":"copyright","label":"Copyright"}],"article-number":"152097"}}