{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,3,28]],"date-time":"2026-03-28T12:51:39Z","timestamp":1774702299745,"version":"3.50.1"},"reference-count":44,"publisher":"Elsevier BV","issue":"3","license":[{"start":{"date-parts":[[2020,6,1]],"date-time":"2020-06-01T00:00:00Z","timestamp":1590969600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2020,6,1]],"date-time":"2020-06-01T00:00:00Z","timestamp":1590969600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"}],"funder":[{"name":"United States National Institute of Health Grant","award":["5 R01 NR 003695"],"award-info":[{"award-number":["5 R01 NR 003695"]}]},{"name":"United States Health Research Services Administration","award":["HRSA\/DHH T73 MC11047"],"award-info":[{"award-number":["HRSA\/DHH T73 MC11047"]}]},{"name":"United States National Institute of Health","award":["#NIH\/NICHD UG3 OD023348-01"],"award-info":[{"award-number":["#NIH\/NICHD UG3 OD023348-01"]}]}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","clinicalkey.es","clinicalkey.fr","clinicalkey.jp","sfnmjournal.com","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Seminars in Fetal and Neonatal Medicine"],"published-print":{"date-parts":[[2020,6]]},"DOI":"10.1016\/j.siny.2020.101118","type":"journal-article","created":{"date-parts":[[2020,5,16]],"date-time":"2020-05-16T03:08:17Z","timestamp":1589598497000},"page":"101118","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":12,"title":["Late adolescent & young adult functioning and participation outcomes after prematurity"],"prefix":"10.1016","volume":"25","author":[{"given":"Mary C.","family":"Sullivan","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Emma","family":"Lynch","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Michael E.","family":"Msall","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"78","reference":[{"issue":"3","key":"10.1016\/j.siny.2020.101118_bib1","doi-asserted-by":"crossref","first-page":"501","DOI":"10.1016\/j.clp.2018.05.009","article-title":"Long-term functioning and participation across the life course for preterm neonatal intensive care unit graduates","volume":"45","author":"Carter","year":"2018","journal-title":"Clin Perinatol"},{"issue":"2","key":"10.1016\/j.siny.2020.101118_bib2","doi-asserted-by":"crossref","first-page":"186","DOI":"10.1111\/dmcn.14011","article-title":"Cerebral palsy trends in Australia (1995-2009): a population-based observational study","volume":"61","author":"Galea","year":"2019","journal-title":"Dev Med Child Neurol"},{"issue":"8","key":"10.1016\/j.siny.2020.101118_bib3","doi-asserted-by":"crossref","first-page":"497","DOI":"10.1053\/j.semperi.2016.09.002","article-title":"Early neurodevelopmental outcomes of extremely preterm infants","volume":"40","author":"Rogers","year":"2016","journal-title":"Semin Perinatol"},{"issue":"4","key":"10.1016\/j.siny.2020.101118_bib4","doi-asserted-by":"crossref","first-page":"234","DOI":"10.1002\/mrdd.10043","article-title":"Cognitive and neuropsychological outcomes: more than IQ scores","volume":"8","author":"Aylward","year":"2002","journal-title":"Ment Retard Dev Disabil Res Rev"},{"issue":"1","key":"10.1016\/j.siny.2020.101118_bib5","doi-asserted-by":"crossref","first-page":"51","DOI":"10.1053\/j.semperi.2007.12.009","article-title":"Cognitive and educational deficits in children born extremely preterm","volume":"32","author":"Anderson","year":"2008","journal-title":"Semin Perinatol"},{"issue":"1","key":"10.1016\/j.siny.2020.101118_bib6","doi-asserted-by":"crossref","first-page":"74","DOI":"10.1080\/87565641.2011.540541","article-title":"Educational outcomes in extremely preterm children: neuropsychological correlates and predictors of attainment","volume":"36","author":"Johnson","year":"2011","journal-title":"Dev Neuropsychol"},{"issue":"12","key":"10.1016\/j.siny.2020.101118_bib7","doi-asserted-by":"crossref","first-page":"1240","DOI":"10.1111\/j.1651-2227.2012.02790.x","article-title":"Academic achievement of adolescents born with extremely low birth weight","volume":"101","author":"Litt","year":"2012","journal-title":"Acta Paediatr"},{"issue":"3","key":"10.1016\/j.siny.2020.101118_bib8","doi-asserted-by":"crossref","first-page":"e562","DOI":"10.1542\/peds.2006-2328","article-title":"Comparison of current health, functional limitations, and health care use of young adults who were born with extremely low birth weight and normal birth weight","volume":"119","author":"Saigal","year":"2007","journal-title":"Pediatrics"},{"issue":"3","key":"10.1016\/j.siny.2020.101118_bib9","doi-asserted-by":"crossref","first-page":"149","DOI":"10.1056\/NEJMoa010856","article-title":"Outcomes in young adulthood for very-low-birth-weight infants","volume":"346","author":"Hack","year":"2002","journal-title":"N\u00a0Engl J Med"},{"key":"10.1016\/j.siny.2020.101118_bib10","series-title":"International classification of functioning, disability and health: ICF","author":"Organisation mondiale de la sant\u00e9 WHO","year":"2001"},{"key":"10.1016\/j.siny.2020.101118_bib11","series-title":"International classification of functioning, disability, and health: children & youth version: ICF","author":"Organization","year":"2007"},{"key":"10.1016\/j.siny.2020.101118_bib12","series-title":"Kaufman Brief intelligence test. Circle pines","author":"Kaufman","year":"1990"},{"key":"10.1016\/j.siny.2020.101118_bib13","series-title":"Wisconsin card sorting test: 64 card version","author":"Kongs","year":"2000"},{"key":"10.1016\/j.siny.2020.101118_bib14","series-title":"Scales of independent behavior\u2013revised (SIB-R)","author":"Bruininks","year":"1996"},{"issue":"3","key":"10.1016\/j.siny.2020.101118_bib15","doi-asserted-by":"crossref","first-page":"204","DOI":"10.3109\/17518421003620525","article-title":"The ICF model of functioning and disability: incorporating quality of life and human development","volume":"13","author":"McDougall","year":"2010","journal-title":"Dev Neurorehabil"},{"key":"10.1016\/j.siny.2020.101118_bib16","series-title":"Kaufman test of educational achievement","author":"Kaufman","year":"1985"},{"key":"10.1016\/j.siny.2020.101118_bib17","series-title":"Manual for the ASEBA school-age forms & profiles","author":"Achenbach","year":"2003"},{"key":"10.1016\/j.siny.2020.101118_bib18","series-title":"Vineland adaptive behavior scales","author":"Sparrow","year":"2016"},{"key":"10.1016\/j.siny.2020.101118_bib19","series-title":"Diagnostic and statistical manual of mental disorders (DSM-5\u00ae)","year":"2013"},{"key":"10.1016\/j.siny.2020.101118_bib20","series-title":"Intellectual disability: definition, classification, and systems of supports","author":"Schalock","year":"2010"},{"key":"10.1016\/j.siny.2020.101118_bib21","series-title":"Adaptive behavior assessment system","author":"Harrison","year":"2003"},{"key":"10.1016\/j.siny.2020.101118_bib22","series-title":"ABAS-3: adaptive behavior assessment system","author":"Harrison","year":"2015"},{"issue":"3","key":"10.1016\/j.siny.2020.101118_bib23","doi-asserted-by":"crossref","first-page":"226","DOI":"10.1111\/j.1744-6155.2012.00337.x","article-title":"17-year outcome of preterm infants with diverse neonatal morbidities: Part 1uImpact on physical, neurological, and psychological health status","volume":"17","author":"Sullivan","year":"2012","journal-title":"J\u00a0Spec Pediatr Nurs (JSPN)"},{"issue":"1","key":"10.1016\/j.siny.2020.101118_bib24","doi-asserted-by":"crossref","first-page":"71","DOI":"10.1111\/cch.12616","article-title":"Prematurity and cardiovascular risk at early adulthood","volume":"45","author":"Sullivan","year":"2019","journal-title":"Child Care Health Dev"},{"key":"10.1016\/j.siny.2020.101118_bib25","series-title":"Four factor index of social status","author":"Hollingshead","year":"1975"},{"issue":"10","key":"10.1016\/j.siny.2020.101118_bib26","doi-asserted-by":"crossref","first-page":"665","DOI":"10.1016\/j.earlhumdev.2014.08.005","article-title":"Child and environmental factors associated with leisure participation in adolescents born extremely preterm","volume":"90","author":"Dahan-Oliel","year":"2014","journal-title":"Early Hum Dev"},{"issue":"6","key":"10.1016\/j.siny.2020.101118_bib27","doi-asserted-by":"crossref","first-page":"e1521","DOI":"10.1542\/peds.2013-2024","article-title":"Psychosocial outcomes of young adults born very low birth weight","volume":"132","author":"Darlow","year":"2013","journal-title":"Pediatrics"},{"issue":"7","key":"10.1016\/j.siny.2020.101118_bib28","doi-asserted-by":"crossref","DOI":"10.1001\/jamanetworkopen.2019.6961","article-title":"Association of preterm birth and low birth weight with romantic partnership, sexual intercourse, and parenthood in adulthood: a systematic review and meta-analysis","volume":"2","author":"Mendonca","year":"2019","journal-title":"JAMA Netw Open"},{"issue":"4","key":"10.1016\/j.siny.2020.101118_bib29","doi-asserted-by":"crossref","first-page":"531","DOI":"10.1007\/s00787-018-1219-8","article-title":"Trajectories of behavior, attention, social and emotional problems from childhood to early adulthood following extremely preterm birth: a prospective cohort study","volume":"28","author":"Linsell","year":"2019","journal-title":"Eur Child Adolesc Psychiatr"},{"issue":"4","key":"10.1016\/j.siny.2020.101118_bib30","doi-asserted-by":"crossref","first-page":"363","DOI":"10.1136\/archdischild-2017-313414","article-title":"Cognitive trajectories from infancy to early adulthood following birth before 26 weeks of gestation: a prospective, population-based cohort study","volume":"103","author":"Linsell","year":"2018","journal-title":"Arch Dis Child"},{"key":"10.1016\/j.siny.2020.101118_bib31","doi-asserted-by":"crossref","first-page":"68","DOI":"10.1016\/j.jpeds.2016.08.018","article-title":"Health-related quality of life trajectories of extremely low birth weight survivors into adulthood","volume":"179","author":"Saigal","year":"2016","journal-title":"J\u00a0Pediatr"},{"issue":"11","key":"10.1016\/j.siny.2020.101118_bib32","doi-asserted-by":"crossref","first-page":"1192","DOI":"10.1111\/jcpp.12909","article-title":"Trajectories of psychopathology in extremely low birth weight survivors from early adolescence to adulthood: a 20-year longitudinal study","volume":"59","author":"Van Lieshout","year":"2018","journal-title":"JCPP (J Child Psychol Psychiatry)"},{"issue":"4","key":"10.1016\/j.siny.2020.101118_bib33","doi-asserted-by":"crossref","first-page":"1008","DOI":"10.1016\/j.jpeds.2013.05.048","article-title":"Quality of life at age 18 years after extremely preterm birth in the post-surfactant era","volume":"163","author":"Roberts","year":"2013","journal-title":"J\u00a0Pediatr"},{"key":"10.1016\/j.siny.2020.101118_bib34","series-title":"Pathways of risk and resilience after prematurity: role of socioeconomic status","first-page":"224","author":"Msall","year":"2010"},{"issue":"5782","key":"10.1016\/j.siny.2020.101118_bib35","doi-asserted-by":"crossref","first-page":"1900","DOI":"10.1126\/science.1128898","article-title":"Skill formation and the economics of investing in disadvantaged children","volume":"312","author":"Heckman","year":"2006","journal-title":"Science"},{"issue":"3","key":"10.1016\/j.siny.2020.101118_bib36","doi-asserted-by":"crossref","first-page":"318","DOI":"10.1001\/jama.294.3.318","article-title":"Chronic conditions, functional limitations, and special health care needs of school-aged children born with extremely low-birth-weight in the 1990s","volume":"294","author":"Hack","year":"2005","journal-title":"J\u00a0Am Med Assoc"},{"issue":"2","key":"10.1016\/j.siny.2020.101118_bib37","doi-asserted-by":"crossref","first-page":"325","DOI":"10.1542\/peds.105.2.325","article-title":"School difficulties at adolescence in a regional cohort of children who were extremely low birth weight","volume":"105","author":"Saigal","year":"2000","journal-title":"Pediatrics"},{"issue":"3","key":"10.1016\/j.siny.2020.101118_bib38","doi-asserted-by":"crossref","first-page":"556","DOI":"10.1542\/peds.2007-1043","article-title":"Health-related quality of life for extremely low birth weight adolescents in Canada, Germany, and The Netherlands","volume":"122","author":"Verrips","year":"2008","journal-title":"Pediatrics"},{"issue":"3","key":"10.1016\/j.siny.2020.101118_bib39","doi-asserted-by":"crossref","first-page":"426","DOI":"10.1016\/S0022-3476(05)83290-1","article-title":"School performance at nine years of age in very premature and very low birth weight infants: perinatal risk factors and predictors at five years of age. Collaborative Project on Preterm and Small for Gestational Age (POPS) Infants in The Netherlands","volume":"125","author":"Hille ET den Ouden","year":"1994","journal-title":"J\u00a0Pediatr"},{"issue":"3","key":"10.1016\/j.siny.2020.101118_bib40","doi-asserted-by":"crossref","first-page":"e587","DOI":"10.1542\/peds.2006-2407","article-title":"Functional outcomes and participation in young adulthood for very preterm and very low birth weight infants: the Dutch Project on Preterm and Small for Gestational Age Infants at 19 years of age","volume":"120","author":"Hille","year":"2007","journal-title":"Pediatrics"},{"issue":"3","key":"10.1016\/j.siny.2020.101118_bib41","doi-asserted-by":"crossref","first-page":"316","DOI":"10.1111\/j.1939-0025.1987.tb03541.x","article-title":"Psychosocial resilience and protective mechanisms","volume":"57","author":"Rutter","year":"1987","journal-title":"Am J Orthopsychiatry"},{"issue":"2","key":"10.1016\/j.siny.2020.101118_bib42","doi-asserted-by":"crossref","first-page":"335","DOI":"10.1017\/S0954579412000028","article-title":"Resilience as a dynamic concept","volume":"24","author":"Rutter","year":"2012","journal-title":"Dev Psychopathol"},{"issue":"4","key":"10.1016\/j.siny.2020.101118_bib43","doi-asserted-by":"crossref","first-page":"474","DOI":"10.1111\/j.1469-7610.2012.02615.x","article-title":"Annual research review: resilience--clinical implications","volume":"54","author":"Rutter","year":"2013","journal-title":"JCPP (J Child Psychol Psychiatry)"},{"issue":"4","key":"10.1016\/j.siny.2020.101118_bib44","doi-asserted-by":"crossref","first-page":"1071","DOI":"10.1017\/S0954579404040143","article-title":"Resources and resilience in the transition to adulthood: continuity and change","volume":"16","author":"Masten","year":"2004","journal-title":"Dev Psychopathol"}],"container-title":["Seminars in Fetal and Neonatal Medicine"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1744165X20300433?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1744165X20300433?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2025,10,28]],"date-time":"2025-10-28T18:43:35Z","timestamp":1761677015000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S1744165X20300433"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2020,6]]},"references-count":44,"journal-issue":{"issue":"3","published-print":{"date-parts":[[2020,6]]}},"alternative-id":["S1744165X20300433"],"URL":"https:\/\/doi.org\/10.1016\/j.siny.2020.101118","relation":{},"ISSN":["1744-165X"],"issn-type":[{"value":"1744-165X","type":"print"}],"subject":[],"published":{"date-parts":[[2020,6]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Late adolescent & young adult functioning and participation outcomes after prematurity","name":"articletitle","label":"Article Title"},{"value":"Seminars in Fetal and Neonatal Medicine","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.siny.2020.101118","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2020 Published by Elsevier Ltd.","name":"copyright","label":"Copyright"}],"article-number":"101118"}}