{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,13]],"date-time":"2026-09-13T04:35:23Z","timestamp":1789274123589,"version":"build-2803163510"},"reference-count":29,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2025,1,1]],"date-time":"2025-01-01T00:00:00Z","timestamp":1735689600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2025,1,1]],"date-time":"2025-01-01T00:00:00Z","timestamp":1735689600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2024,11,13]],"date-time":"2024-11-13T00:00:00Z","timestamp":1731456000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["clinicalkey.fr","clinicalkey.jp","clinicalkey.es","clinicalkey.com.au","clinicalkey.com","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Sleep Medicine"],"published-print":{"date-parts":[[2025,1]]},"DOI":"10.1016\/j.sleep.2024.11.013","type":"journal-article","created":{"date-parts":[[2024,11,12]],"date-time":"2024-11-12T16:31:24Z","timestamp":1731429084000},"page":"65-73","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":4,"special_numbering":"C","title":["Social support and isolation in narcolepsy and idiopathic hypersomnia: An international survey"],"prefix":"10.1016","volume":"125","author":[{"given":"Julie","family":"Flygare","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lauren","family":"Oglesby","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sairam","family":"Parthasarathy","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Michael J.","family":"Thorpy","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Emmanuel","family":"Mignot","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Eileen B.","family":"Leary","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anne Marie","family":"Morse","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"key":"10.1016\/j.sleep.2024.11.013_bib1","series-title":"International classification of sleep disorders, 3rd ed, text revision","year":"2023"},{"key":"10.1016\/j.sleep.2024.11.013_bib2","doi-asserted-by":"crossref","first-page":"2654","DOI":"10.1056\/NEJMra1500587","article-title":"Narcolepsy","volume":"373","author":"Scammell","year":"2015","journal-title":"N Engl J Med"},{"key":"10.1016\/j.sleep.2024.11.013_bib3","doi-asserted-by":"crossref","first-page":"386","DOI":"10.1038\/nrneurol.2014.97","article-title":"Cataplexy\u2013clinical aspects, pathophysiology and management strategy","volume":"10","author":"Dauvilliers","year":"2014","journal-title":"Nat Rev Neurol"},{"key":"10.1016\/j.sleep.2024.11.013_bib4","doi-asserted-by":"crossref","first-page":"1035","DOI":"10.5665\/sleep.3756","article-title":"Challenges in diagnosing narcolepsy without cataplexy: a consensus statement","volume":"37","author":"Baumann","year":"2014","journal-title":"Sleep"},{"key":"10.1016\/j.sleep.2024.11.013_bib5","doi-asserted-by":"crossref","first-page":"9","DOI":"10.1016\/j.sleep.2014.10.002","article-title":"Clinical and practical considerations in the pharmacologic management of narcolepsy","volume":"16","author":"Thorpy","year":"2015","journal-title":"Sleep Med"},{"key":"10.1016\/j.sleep.2024.11.013_bib6","doi-asserted-by":"crossref","first-page":"331","DOI":"10.1016\/j.jsmc.2017.03.009","article-title":"Idiopathic hypersomnia","volume":"12","author":"Trotti","year":"2017","journal-title":"Sleep Med Clin"},{"key":"10.1016\/j.sleep.2024.11.013_bib7","doi-asserted-by":"crossref","first-page":"305","DOI":"10.1007\/s40263-023-00998-6","article-title":"Idiopathic hypersomnia: neurobiology, diagnosis, and management","volume":"37","author":"Morse","year":"2023","journal-title":"CNS Drugs"},{"key":"10.1016\/j.sleep.2024.11.013_bib8","doi-asserted-by":"crossref","DOI":"10.1212\/WNL.0000000000207994","article-title":"Prevalence and course of idiopathic hypersomnia in the Wisconsin sleep cohort study","volume":"102","author":"Plante","year":"2024","journal-title":"Neurology"},{"key":"10.1016\/j.sleep.2024.11.013_bib9","doi-asserted-by":"crossref","first-page":"61","DOI":"10.1016\/j.jsmc.2016.10.001","article-title":"Reducing the clinical and socioeconomic burden of narcolepsy by earlier diagnosis and effective treatment","volume":"12","author":"Thorpy","year":"2017","journal-title":"Sleep Med Clin"},{"key":"10.1016\/j.sleep.2024.11.013_bib10","doi-asserted-by":"crossref","first-page":"593","DOI":"10.2147\/NSS.S396641","article-title":"Impairment in functioning and quality of life in patients with idiopathic hypersomnia: the Real World Idiopathic Hypersomnia Outcomes Study","volume":"15","author":"Stevens","year":"2023","journal-title":"Nat Sci Sleep"},{"key":"10.1016\/j.sleep.2024.11.013_bib11","doi-asserted-by":"crossref","first-page":"10","DOI":"10.1016\/j.amjmed.2014.05.037","article-title":"Narcolepsy: let the patient\u2019s voice awaken us!","volume":"128","author":"Flygare","year":"2015","journal-title":"Am J Med"},{"key":"10.1016\/j.sleep.2024.11.013_bib13","doi-asserted-by":"crossref","first-page":"S45","DOI":"10.1093\/sleep\/17.suppl_8.S45","article-title":"Psychosocial impact of narcolepsy","volume":"17","author":"Broughton","year":"1994","journal-title":"Sleep"},{"key":"10.1016\/j.sleep.2024.11.013_bib14","doi-asserted-by":"crossref","DOI":"10.1371\/journal.pone.0122478","article-title":"Health-related stigma as a determinant of functioning in young adults with narcolepsy","volume":"10","author":"Kapella","year":"2015","journal-title":"PLoS One"},{"key":"10.1016\/j.sleep.2024.11.013_bib15","doi-asserted-by":"crossref","first-page":"453","DOI":"10.2147\/NSS.S162762","article-title":"Living with narcolepsy: current management strategies, future prospects, and overlooked real-life concerns","volume":"12","author":"Barker","year":"2020","journal-title":"Nat Sci Sleep"},{"key":"10.1016\/j.sleep.2024.11.013_bib16","doi-asserted-by":"crossref","first-page":"84","DOI":"10.1097\/NMD.0000000000000918","article-title":"Health-related quality of life in patients with narcolepsy: a review of the literature","volume":"207","author":"Raggi","year":"2019","journal-title":"J Nerv Ment Dis"},{"key":"10.1016\/j.sleep.2024.11.013_bib17","doi-asserted-by":"crossref","first-page":"419","DOI":"10.5664\/jcsm.6494","article-title":"Listening to the patient voice in narcolepsy: diagnostic delay, disease burden, and treatment efficacy","volume":"13","author":"Maski","year":"2017","journal-title":"J Clin Sleep Med"},{"key":"10.1016\/j.sleep.2024.11.013_bib18","doi-asserted-by":"crossref","first-page":"1123","DOI":"10.1093\/sleep\/27.6.1123","article-title":"The socioeconomic impact of narcolepsy","volume":"27","author":"Dodel","year":"2004","journal-title":"Sleep"},{"key":"10.1016\/j.sleep.2024.11.013_bib19","doi-asserted-by":"crossref","first-page":"1086","DOI":"10.1016\/j.sleep.2012.06.006","article-title":"Health, social, and economic consequences of narcolepsy: a controlled national study evaluating the societal effect on patients and their partners","volume":"13","author":"Jennum","year":"2012","journal-title":"Sleep Med"},{"key":"10.1016\/j.sleep.2024.11.013_bib20","doi-asserted-by":"crossref","DOI":"10.1111\/jsr.14087","article-title":"Work productivity and activity impairment in patients with narcolepsy type 1","volume":"33","author":"Bassi","year":"2024","journal-title":"J Sleep Res"},{"key":"10.1016\/j.sleep.2024.11.013_bib21","doi-asserted-by":"crossref","first-page":"151","DOI":"10.1016\/j.sleep.2024.06.028","article-title":"Barriers to therapy adherence in narcolepsy","volume":"121","author":"Finger","year":"2024","journal-title":"Sleep Med"},{"key":"10.1016\/j.sleep.2024.11.013_bib22","doi-asserted-by":"crossref","first-page":"1293","DOI":"10.1016\/j.sleep.2012.08.002","article-title":"The burden of narcolepsy with cataplexy: how disease history and clinical features influence socio-economic outcomes","volume":"13","author":"Ingravallo","year":"2012","journal-title":"Sleep Med"},{"key":"10.1016\/j.sleep.2024.11.013_bib23","doi-asserted-by":"crossref","DOI":"10.1016\/j.smrv.2022.101709","article-title":"Clinical considerations for the diagnosis of idiopathic hypersomnia","volume":"66","author":"Dauvilliers","year":"2022","journal-title":"Sleep Med Rev"},{"key":"10.1016\/j.sleep.2024.11.013_bib25","doi-asserted-by":"crossref","DOI":"10.2196\/14321","article-title":"Web-based peer support interventions for adults living with chronic conditions: scoping review","volume":"8","author":"Hossain","year":"2021","journal-title":"JMIR Rehabil Assist Technol"},{"key":"10.1016\/j.sleep.2024.11.013_bib26","author":"Smoak"},{"key":"10.1016\/j.sleep.2024.11.013_bib27","doi-asserted-by":"crossref","first-page":"65","DOI":"10.1007\/s12170-024-00737-6","article-title":"Recent findings on the effectiveness of peer support for patients with type 2 diabetes","volume":"18","author":"Werner","year":"2024","journal-title":"Curr Cardiovasc Risk Rep"},{"key":"10.1016\/j.sleep.2024.11.013_bib28","doi-asserted-by":"crossref","first-page":"543","DOI":"10.5664\/jcsm.2744","article-title":"A pilot study of CPAP adherence promotion by peer buddies with sleep apnea","volume":"9","author":"Parthasarathy","year":"2013","journal-title":"J Clin Sleep Med"},{"key":"10.1016\/j.sleep.2024.11.013_bib29","series-title":"Methods for community-based participatory research for health","year":"2012"},{"key":"10.1016\/j.sleep.2024.11.013_bib30","doi-asserted-by":"crossref","DOI":"10.1016\/j.sleepx.2023.100095","article-title":"Prevalence and incidence of narcolepsy symptoms in the US general population","volume":"6","author":"Ohayon","year":"2023","journal-title":"Sleep Med X"},{"key":"10.1016\/j.sleep.2024.11.013_bib31","doi-asserted-by":"crossref","first-page":"65","DOI":"10.5664\/jcsm.6882","article-title":"The MSLT is repeatable in narcolepsy type 1 but not narcolepsy type 2: a retrospective patient study","volume":"14","author":"Ruoff","year":"2018","journal-title":"J Clin Sleep Med"}],"container-title":["Sleep Medicine"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1389945724005161?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1389945724005161?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2024,12,12]],"date-time":"2024-12-12T00:09:09Z","timestamp":1733962149000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S1389945724005161"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,1]]},"references-count":29,"alternative-id":["S1389945724005161"],"URL":"https:\/\/doi.org\/10.1016\/j.sleep.2024.11.013","relation":{},"ISSN":["1389-9457"],"issn-type":[{"value":"1389-9457","type":"print"}],"subject":[],"published":{"date-parts":[[2025,1]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Social support and isolation in narcolepsy and idiopathic hypersomnia: An international survey","name":"articletitle","label":"Article Title"},{"value":"Sleep Medicine","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.sleep.2024.11.013","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2024 The Authors. Published by Elsevier B.V.","name":"copyright","label":"Copyright"}]}}