{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,5]],"date-time":"2026-10-05T11:20:11Z","timestamp":1791199211623,"version":"4.1.0"},"reference-count":51,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2014,4,1]],"date-time":"2014-04-01T00:00:00Z","timestamp":1396310400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2014,3,13]],"date-time":"2014-03-13T00:00:00Z","timestamp":1394668800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100000269","name":"ESRC","doi-asserted-by":"crossref","award":["PTA-031-2005-00137"],"award-info":[{"award-number":["PTA-031-2005-00137"]}],"id":[{"id":"10.13039\/501100000269","id-type":"DOI","asserted-by":"crossref"}]},{"name":"Foundation for the Sociology of Health and Illness"}],"content-domain":{"domain":["elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Social Science &amp; Medicine"],"published-print":{"date-parts":[[2014,4]]},"DOI":"10.1016\/j.socscimed.2014.02.025","type":"journal-article","created":{"date-parts":[[2014,2,14]],"date-time":"2014-02-14T19:33:57Z","timestamp":1392406437000},"page":"18-25","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":63,"special_numbering":"C","title":["The expressivist objection to prenatal testing: The experiences of families living with genetic disease"],"prefix":"10.1016","volume":"107","author":[{"given":"Felicity Kate","family":"Boardman","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"key":"10.1016\/j.socscimed.2014.02.025_bib1","series-title":"Pragmatic Women and Body Politics","article-title":"Selective compliance with biomedical authority and the uses of experiential knowledge","author":"Abel","year":"1998"},{"key":"10.1016\/j.socscimed.2014.02.025_bib2","series-title":"Prenatal Testing and Disability Rights","article-title":"The disability rights response to prenatal testing","author":"Asch","year":"2000"},{"key":"10.1016\/j.socscimed.2014.02.025_bib3","article-title":"My baby, right or wrong","author":"Atkinson","year":"2008","journal-title":"The Guardian"},{"key":"10.1016\/j.socscimed.2014.02.025_bib4","series-title":"Prenatal Testing and Disability Rights","article-title":"Why I had amniocentesis","author":"Baily","year":"2000"},{"key":"10.1016\/j.socscimed.2014.02.025_bib5","article-title":"Should my hereditary disability stop me having a baby?","author":"Barford","year":"2011","journal-title":"BBC News Magazine"},{"issue":"3","key":"10.1016\/j.socscimed.2014.02.025_bib6","doi-asserted-by":"crossref","first-page":"30","DOI":"10.1080\/21507716.2012.662573","article-title":"Reproductive decision making and genetic predisposition to sudden cardiac death","volume":"3","author":"Barlevy","year":"2012","journal-title":"AJOB Primary Research"},{"issue":"3","key":"10.1016\/j.socscimed.2014.02.025_bib7","article-title":"Knowledge is power? The role of experiential knowledge in genetically \u2018risky\u2019 reproductive decisions","volume":"36","author":"Boardman","year":"2014","journal-title":"Sociology of Health and Illness"},{"key":"10.1016\/j.socscimed.2014.02.025_bib8","series-title":"Disability and Mothering: Liminal Spaces of Embodied Knowledge","article-title":"Negotiating discourses of maternal responsibility, disability and reprogenetics","author":"Boardman","year":"2011"},{"key":"10.1016\/j.socscimed.2014.02.025_bib9","series-title":"The Role of Experiential Knowledge in the Reproductive Decision-making of Families Genetically at Risk: The Case of Spinal Muscular Atrophy","author":"Boardman","year":"2010"},{"issue":"1","key":"10.1016\/j.socscimed.2014.02.025_bib51","doi-asserted-by":"crossref","first-page":"23","DOI":"10.1016\/j.socscimed.2010.09.050","article-title":"Accessing the field: disability and the research process","volume":"72","author":"Brown","year":"2011","journal-title":"Social Science & Medicine"},{"key":"10.1016\/j.socscimed.2014.02.025_bib10","doi-asserted-by":"crossref","first-page":"18","DOI":"10.1017\/S0265052500003447","article-title":"Choosing who will be disabled: genetic intervention and the morality of inclusion","volume":"13","author":"Buchanan","year":"1996","journal-title":"Social Philosophy and Policy"},{"issue":"4","key":"10.1016\/j.socscimed.2014.02.025_bib11","doi-asserted-by":"crossref","first-page":"361","DOI":"10.1086\/JCE200112403","article-title":"Genetic testing for hereditary disease: attending to relational responsibility","volume":"12","author":"Burgess","year":"2001","journal-title":"Journal of Clinical Ethics"},{"issue":"8773","key":"10.1016\/j.socscimed.2014.02.025_bib12","doi-asserted-by":"crossref","first-page":"998","DOI":"10.1016\/0140-6736(91)91849-P","article-title":"Is non-directive counselling possible?","volume":"338","author":"Clarke","year":"1991","journal-title":"Lancet"},{"issue":"2","key":"10.1016\/j.socscimed.2014.02.025_bib13","doi-asserted-by":"crossref","first-page":"257","DOI":"10.1023\/A:1022971113683","article-title":"Stories in decisions: how at-risk individuals decide to request predictive testing for Huntingdon Disease","volume":"26","author":"Cox","year":"2003","journal-title":"Qualitative Sociology"},{"issue":"3","key":"10.1016\/j.socscimed.2014.02.025_bib14","doi-asserted-by":"crossref","first-page":"219","DOI":"10.1007\/s10897-005-0619-3","article-title":"Negotiating responsibility: case studies of reproductive decision-making and prenatal genetic testing in families facing Huntingdon Disease","volume":"14","author":"Downing","year":"2005","journal-title":"Journal of Genetic Counselling"},{"issue":"9","key":"10.1016\/j.socscimed.2014.02.025_bib15","doi-asserted-by":"crossref","first-page":"881","DOI":"10.1093\/molehr\/4.9.881","article-title":"Pre-implantation genetic diagnosis of Spinal Muscular Atrophy","volume":"4","author":"Dreesen","year":"1998","journal-title":"Molecular Human Reproduction"},{"issue":"1","key":"10.1016\/j.socscimed.2014.02.025_bib16","doi-asserted-by":"crossref","first-page":"69","DOI":"10.1016\/j.nmd.2008.10.004","article-title":"Ramblings in the history of Spinal Muscular Atrophy","volume":"19","author":"Dubowitz","year":"2008","journal-title":"Neuromuscular Disorders"},{"issue":"2","key":"10.1016\/j.socscimed.2014.02.025_bib17","doi-asserted-by":"crossref","first-page":"77","DOI":"10.1016\/0960-8966(91)90051-S","article-title":"Editorial: chaos in the classification of the spinal muscular atrophies of childhood","volume":"1","author":"Dubowitz","year":"1991","journal-title":"Neuromuscular Disorders"},{"key":"10.1016\/j.socscimed.2014.02.025_bib18","series-title":"Disability: Definitions, Value and Identity","author":"Edwards","year":"2005"},{"key":"10.1016\/j.socscimed.2014.02.025_bib19","doi-asserted-by":"crossref","first-page":"418","DOI":"10.1136\/jme.2002.002634","article-title":"Disability, identity and the \u201cexpressivist objection\u201d","volume":"30","author":"Edwards","year":"2004","journal-title":"Journal of Medical Ethics"},{"issue":"1","key":"10.1016\/j.socscimed.2014.02.025_bib20","doi-asserted-by":"crossref","first-page":"115","DOI":"10.1089\/gte.2007.0057","article-title":"The influence of experiential knowledge on prenatal screening and testing decisions","volume":"12","author":"Etchegary","year":"2008","journal-title":"Genetic Testing"},{"key":"10.1016\/j.socscimed.2014.02.025_bib21","series-title":"Risky Relations: Family, Kinship and the New Genetics","author":"Featherstone","year":"2006"},{"key":"10.1016\/j.socscimed.2014.02.025_bib22","first-page":"330","article-title":"Fault trees: sensitivity of estimated failure probabilities to problem representation","volume":"4","author":"Fischhoff","year":"1978","journal-title":"Journal of Experimental Psychology: Human Perception and Performance"},{"key":"10.1016\/j.socscimed.2014.02.025_bib23","series-title":"Designer Babies: Where Do We Draw the Line?","article-title":"Making it better? Disability and genetic choice","author":"Fletcher","year":"2002"},{"key":"10.1016\/j.socscimed.2014.02.025_bib24","series-title":"Born and Made: an Ethnography of Pre-implantation Genetic Diagnosis","doi-asserted-by":"crossref","DOI":"10.1515\/9781400835423","author":"Franklin","year":"2006"},{"key":"10.1016\/j.socscimed.2014.02.025_bib25","series-title":"Analyzing Qualitative Data","doi-asserted-by":"crossref","DOI":"10.4135\/9781849208574","author":"Gibbs","year":"2007"},{"key":"10.1016\/j.socscimed.2014.02.025_bib26","series-title":"The Discovery of Grounded Theory: Strategies for Qualitative Research","author":"Glaser","year":"1967"},{"key":"10.1016\/j.socscimed.2014.02.025_bib27","doi-asserted-by":"crossref","first-page":"1003","DOI":"10.1002\/pd.743","article-title":"Living with Achondroplasia: attitudes toward population screening and correlation with quality of life","volume":"23","author":"Gollust","year":"2003","journal-title":"Prenatal Diagnosis"},{"key":"10.1016\/j.socscimed.2014.02.025_bib28","doi-asserted-by":"crossref","first-page":"74","DOI":"10.1136\/jme.29.2.74","article-title":"Balancing autonomy and responsibility: the ethics of generating and disclosing genetic information","volume":"29","author":"Hallowell","year":"2003","journal-title":"Journal of Medical Ethics"},{"issue":"9","key":"10.1016\/j.socscimed.2014.02.025_bib29","doi-asserted-by":"crossref","first-page":"1874","DOI":"10.1111\/j.1528-1167.2009.02507.x","article-title":"Genetic risk perception and reproductive decision making among people with epilepsy","volume":"51","author":"Helbig","year":"2010","journal-title":"Epilepsia"},{"key":"10.1016\/j.socscimed.2014.02.025_bib30","unstructured":"Jennifer Trust for Spinal Muscular Atrophy, 2011. http:\/\/www.jtsma.org.uk\/ (accessed 04.04.13.)."},{"key":"10.1016\/j.socscimed.2014.02.025_bib31","series-title":"Bioethics: an Anthology","article-title":"Prenatal screening and its impact on persons with disabilities","author":"Kaplan","year":"1999"},{"key":"10.1016\/j.socscimed.2014.02.025_bib32","series-title":"The Tentative Pregnancy: Prenatal Diagnosis and the Future of Motherhood","author":"Katz Rothman","year":"1986"},{"issue":"1","key":"10.1016\/j.socscimed.2014.02.025_bib33","doi-asserted-by":"crossref","first-page":"81","DOI":"10.1111\/j.1467-9566.2008.01110.x","article-title":"Choosing not to choose: reproductive responses of parents of children with genetic conditions or impairments","volume":"31","author":"Kelly","year":"2009","journal-title":"Sociology of Health & Illness"},{"issue":"2","key":"10.1016\/j.socscimed.2014.02.025_bib34","doi-asserted-by":"crossref","first-page":"8","DOI":"10.1080\/21507716.2011.594484","article-title":"Medical disparagement of the disability experience: empirical evidence for the \u201cexpressivist objection\u201d","volume":"2","author":"Klein","year":"2011","journal-title":"AJOB Primary Research"},{"issue":"5","key":"10.1016\/j.socscimed.2014.02.025_bib35","doi-asserted-by":"crossref","first-page":"255","DOI":"10.1023\/A:1022901131305","article-title":"Embodied knowledge and making sense of prenatal diagnosis","volume":"8","author":"Lippman","year":"1999","journal-title":"Journal of Genetic Counselling"},{"issue":"1&2","key":"10.1016\/j.socscimed.2014.02.025_bib36","doi-asserted-by":"crossref","first-page":"15","DOI":"10.1017\/S0098858800007917","article-title":"Prenatal genetic testing and screening: constructing needs\u00a0and\u00a0reinforcing inequities","volume":"7","author":"Lippman","year":"1991","journal-title":"American Journal of Law and Medicine"},{"key":"10.1016\/j.socscimed.2014.02.025_bib37","doi-asserted-by":"crossref","first-page":"1777","DOI":"10.1002\/ajmg.a.34054","article-title":"The relationship between the genetic counselling profession and the disability community: a commentary","volume":"155","author":"Madeo","year":"2011","journal-title":"American Journal of Medical Genetics Part A"},{"key":"10.1016\/j.socscimed.2014.02.025_bib38","doi-asserted-by":"crossref","first-page":"217","DOI":"10.1136\/jme.2009.034645","article-title":"Deciding against disability: does the use of reproductive genetic technologies express disvalue for people with disabilities?","volume":"36","author":"Malek","year":"2010","journal-title":"Journal of Medical Ethics"},{"issue":"1","key":"10.1016\/j.socscimed.2014.02.025_bib39","doi-asserted-by":"crossref","first-page":"37","DOI":"10.1111\/j.1467-9566.2009.01197.x","article-title":"Interrogating the dynamics between power, knowledge and pregnant bodies in amniocentesis decision making","volume":"32","author":"Markens","year":"2010","journal-title":"Sociology of Health and Illness"},{"issue":"4","key":"10.1016\/j.socscimed.2014.02.025_bib40","doi-asserted-by":"crossref","first-page":"1175","DOI":"10.1086\/302060","article-title":"Attitudes of deaf adults towards genetic testing for hereditary deafness","volume":"63","author":"Middleton","year":"1998","journal-title":"American Journal of Human Genetics"},{"key":"10.1016\/j.socscimed.2014.02.025_bib41","doi-asserted-by":"crossref","first-page":"105","DOI":"10.1136\/jme.2010.037861","article-title":"When choosing the traits of children is hurtful to others","volume":"37","author":"Murphy","year":"2011","journal-title":"Journal of Medical Ethics"},{"key":"10.1016\/j.socscimed.2014.02.025_bib42","series-title":"Prenatal Testing and Disability Rights","article-title":"The disability rights critique of prenatal testing: reflections and recommendations","author":"Parens","year":"2000"},{"key":"10.1016\/j.socscimed.2014.02.025_bib43","doi-asserted-by":"crossref","first-page":"13","DOI":"10.1007\/s10897-011-9412-7","article-title":"Disability advocacy and reproductive choice: engaging with the expressivist objection","volume":"21","author":"Peterson","year":"2012","journal-title":"Journal of Genetic Counselling"},{"key":"10.1016\/j.socscimed.2014.02.025_bib44","series-title":"Relative Values: Reconfiguring Kinship Studies","article-title":"Genealogical disease: where hereditary abnormality, biomedical explanation and family responsibility meet","author":"Rapp","year":"2001"},{"issue":"3","key":"10.1016\/j.socscimed.2014.02.025_bib45","doi-asserted-by":"crossref","first-page":"992","DOI":"10.1016\/j.socscimed.2011.01.010","article-title":"Negotiating desire and options: how mothers who carry the fragile X gene experience reproductive decisions","volume":"72","author":"Raspberry","year":"2011","journal-title":"Social Science & Medicine"},{"key":"10.1016\/j.socscimed.2014.02.025_bib46","series-title":"Prenatal Testing and Disability Rights","article-title":"Why members of the disability community oppose prenatal diagnosis and selective abortion","author":"Saxton","year":"2000"},{"key":"10.1016\/j.socscimed.2014.02.025_bib47","series-title":"Abortion Wars: a Half Century of Struggle, 1950\u20132000","article-title":"Disability rights and selective abortion","author":"Saxton","year":"1997"},{"key":"10.1016\/j.socscimed.2014.02.025_bib48","series-title":"Questioning Prenatal Diagnosis Disability Rights and Wrongs","author":"Shakespeare","year":"2006"},{"key":"10.1016\/j.socscimed.2014.02.025_bib49","series-title":"The Rejected Body","author":"Wendell","year":"1996"},{"key":"10.1016\/j.socscimed.2014.02.025_bib50","doi-asserted-by":"crossref","first-page":"230","DOI":"10.1054\/midw.2002.0316","article-title":"What constitutes \u2018balanced information\u2019 in the practitioners' portrayals of Down's Syndrome?","volume":"18","author":"Williams","year":"2002","journal-title":"Midwifery"}],"container-title":["Social Science &amp; Medicine"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0277953614001294?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0277953614001294?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2023,7,10]],"date-time":"2023-07-10T13:42:54Z","timestamp":1688996574000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S0277953614001294"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2014,4]]},"references-count":51,"alternative-id":["S0277953614001294"],"URL":"https:\/\/doi.org\/10.1016\/j.socscimed.2014.02.025","relation":{},"ISSN":["0277-9536"],"issn-type":[{"value":"0277-9536","type":"print"}],"subject":[],"published":{"date-parts":[[2014,4]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"The expressivist objection to prenatal testing: The experiences of families living with genetic disease","name":"articletitle","label":"Article Title"},{"value":"Social Science & Medicine","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.socscimed.2014.02.025","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"Copyright \u00a9 2014 The Author. Published by Elsevier Ltd.","name":"copyright","label":"Copyright"}]}}