{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,27]],"date-time":"2026-09-27T10:54:43Z","timestamp":1790506483126,"version":"4.1.0"},"reference-count":50,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2016,10,1]],"date-time":"2016-10-01T00:00:00Z","timestamp":1475280000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"}],"funder":[{"DOI":"10.13039\/501100007051","name":"Uppsala University","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100007051","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100004472","name":"Riksbankens Jubileumsfond","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100004472","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100003945","name":"Link\u00f6ping University","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100003945","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Social Science & Medicine"],"published-print":{"date-parts":[[2016,10]]},"DOI":"10.1016\/j.socscimed.2016.08.028","type":"journal-article","created":{"date-parts":[[2016,8,23]],"date-time":"2016-08-23T05:10:47Z","timestamp":1471929047000},"page":"63-70","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":14,"special_numbering":"C","title":["\u2018You have all those emotions inside that you cannot show because of what they will cause\u2019: Disclosing the absence of one's uterus and vagina"],"prefix":"10.1016","volume":"167","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-8344-0308","authenticated-orcid":false,"given":"Lisa","family":"Guntram","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Kristin","family":"Zeiler","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"key":"10.1016\/j.socscimed.2016.08.028_bib1","series-title":"The Cultural Politics of Emotion","author":"Ahmed","year":"2004"},{"issue":"2","key":"10.1016\/j.socscimed.2016.08.028_bib2","first-page":"95","article-title":"Contextualising intersex: ethical discourses on intersex in Sweden and the US","volume":"7","author":"Alm","year":"2010","journal-title":"Grad. J. Soc. Sci."},{"key":"10.1016\/j.socscimed.2016.08.028_bib3","series-title":"I\u00a0en klass f\u00f6r sig: genus, klass och sexualitet bland gymnasietjejer","author":"Ambj\u00f6rnsson","year":"2004"},{"key":"10.1016\/j.socscimed.2016.08.028_bib4","series-title":"Queersverige","article-title":"Johannas f\u00f6r\u00e4ndring: genusskapande och heteronormativitet bland gymnasietjejer","author":"Ambj\u00f6rnsson","year":"2005"},{"key":"10.1016\/j.socscimed.2016.08.028_bib5","series-title":"Looking Good: a Study of Gendered Body Ideals Among Young People","author":"Bengs","year":"2000"},{"issue":"6","key":"10.1016\/j.socscimed.2016.08.028_bib6","doi-asserted-by":"crossref","first-page":"600","DOI":"10.1080\/07399332.2013.868465","article-title":"Menstruation during a lifespan: a qualitative study of women's experiences","volume":"35","author":"Brantelid","year":"2013","journal-title":"Health Care Women Int."},{"key":"10.1016\/j.socscimed.2016.08.028_bib7","series-title":"Undoing Gender","author":"Butler","year":"2004"},{"key":"10.1016\/j.socscimed.2016.08.028_bib8","series-title":"Teenage Sexual and Reproductive Behavior in Developed Countries: Country Report for Sweden","author":"Danielsson","year":"2001"},{"issue":"5","key":"10.1016\/j.socscimed.2016.08.028_bib9","doi-asserted-by":"crossref","first-page":"352","DOI":"10.1136\/sti.78.5.352","article-title":"Adolescent sexual health in Sweden","volume":"78","author":"Edgardh","year":"2002","journal-title":"Sex. Transm. Infect."},{"issue":"1","key":"10.1016\/j.socscimed.2016.08.028_bib10","doi-asserted-by":"crossref","first-page":"19","DOI":"10.1053\/ybeog.2003.0356","article-title":"Congenital malformations of the genital tract and their management","volume":"17","author":"Edmonds","year":"2003","journal-title":"Best Pract. Res. Clin. Obstet. Gynaecol."},{"issue":"2","key":"10.1016\/j.socscimed.2016.08.028_bib11","doi-asserted-by":"crossref","first-page":"225","DOI":"10.1215\/10642684-2008-135","article-title":"Imperatives of normality: from \u201cintersex\u201d to \u201cdisorders of sex development\u201d","volume":"15","author":"Feder","year":"2009","journal-title":"GLQ A J. Lesbian Gay Stud."},{"issue":"2","key":"10.1016\/j.socscimed.2016.08.028_bib12","doi-asserted-by":"crossref","first-page":"201","DOI":"10.1177\/1350506805051241","article-title":"Girls, adolescence and the impact of bodily changes, family dynamics and social definitions of the female body","volume":"12","author":"Flaake","year":"2005","journal-title":"Eur. J. Women\u2019s Stud."},{"key":"10.1016\/j.socscimed.2016.08.028_bib13","series-title":"Adolescent Sexuality in Sweden: a Research Review 2000","author":"Forsberg","year":"2001"},{"key":"10.1016\/j.socscimed.2016.08.028_bib14","series-title":"Continuum Complete International Encyclopedia of Sexuality","year":"2004"},{"issue":"1","key":"10.1016\/j.socscimed.2016.08.028_bib15","doi-asserted-by":"crossref","first-page":"105","DOI":"10.1177\/1464700112468573","article-title":"Creating, maintaining and questioning (hetero)relational normality in narratives about vaginal reconstruction","volume":"14","author":"Guntram","year":"2013","journal-title":"Fem. Theory"},{"key":"10.1016\/j.socscimed.2016.08.028_bib16","doi-asserted-by":"crossref","first-page":"232","DOI":"10.1016\/j.socscimed.2013.09.018","article-title":"\u2018Differently normal\u2019 and \u2018normally different\u2019: negotiations of female embodiment in women's accounts of \u2018atypical\u2019 sex development","volume":"98","author":"Guntram","year":"2013","journal-title":"Soc. Sci. Med."},{"key":"10.1016\/j.socscimed.2016.08.028_bib17","series-title":"Ambivalent Ambiguity? A Study of How Women with \u2018atypical\u2019 Sex Development Make Sense of Female Embodiment","author":"Guntram","year":"2014"},{"issue":"2","key":"10.1016\/j.socscimed.2016.08.028_bib18","doi-asserted-by":"crossref","first-page":"147","DOI":"10.1177\/1464700112442643","article-title":"Affective solidarity: feminist reflexivity and political transformation","volume":"13","author":"Hemmings","year":"2012","journal-title":"Fem. Theory"},{"key":"10.1016\/j.socscimed.2016.08.028_bib19","series-title":"Good Research Practice","author":"Hermer\u00e9n","year":"2011"},{"key":"10.1016\/j.socscimed.2016.08.028_bib20","series-title":"Intersex: a Perilous Difference","author":"Holmes","year":"2008"},{"issue":"2","key":"10.1016\/j.socscimed.2016.08.028_bib21","doi-asserted-by":"crossref","first-page":"388","DOI":"10.3366\/soma.2011.0026","article-title":"The intersex enchiridion: naming and knowledge","volume":"1","author":"Holmes","year":"2011","journal-title":"Somatechnics"},{"issue":"1","key":"10.1016\/j.socscimed.2016.08.028_bib22","doi-asserted-by":"crossref","first-page":"19","DOI":"10.1080\/1354850021000059232","article-title":"Living with an incomplete vagina and womb: an interpretative phenomenological analysis of the experience of vaginal agenesis","volume":"8","author":"Holt","year":"2003","journal-title":"Psychol. Health & Med."},{"key":"10.1016\/j.socscimed.2016.08.028_bib23","series-title":"Fixing Sex: Intersex, Medical Authority, and Lived Experience","author":"Karkazis","year":"2008"},{"key":"10.1016\/j.socscimed.2016.08.028_bib24","series-title":"Lessons from the Intersexed","author":"Kessler","year":"1998"},{"key":"10.1016\/j.socscimed.2016.08.028_bib25","series-title":"Storytelling in Daily Life: Performing Narrative","author":"Langellier","year":"2004"},{"issue":"2","key":"10.1016\/j.socscimed.2016.08.028_bib26","doi-asserted-by":"crossref","first-page":"488","DOI":"10.1542\/peds.2006-0738","article-title":"Consensus statement on management of intersex disorders","volume":"118","author":"Lee","year":"2006","journal-title":"Pediatrics"},{"issue":"1","key":"10.1016\/j.socscimed.2016.08.028_bib48","first-page":"83","article-title":"A values-driven and evidence-based health care psychology for diverse sex development","volume":"5","author":"Liao","year":"2014","journal-title":"Psychol. Sex."},{"issue":"1","key":"10.1016\/j.socscimed.2016.08.028_bib27","first-page":"1","article-title":"Intersex\/DSD post-Chicago: new developments and challenges for psychologists","volume":"5","author":"Liao","year":"2014","journal-title":"Psychol. Sex."},{"issue":"4","key":"10.1016\/j.socscimed.2016.08.028_bib28","doi-asserted-by":"crossref","first-page":"338","DOI":"10.1016\/j.jpag.2015.11.009","article-title":"\u201cIt\u2019s Part of Me, Not All of Me\u201d: young women\u2019s experiences of receiving a diagnosis related to diverse sex development","volume":"29","author":"Lundberg","year":"2016","journal-title":"J.\u00a0Pediatr. Adolesc. Gynecol."},{"key":"10.1016\/j.socscimed.2016.08.028_bib29","series-title":"Norms at Work: Challenging Homophobia and Heteronormativity","author":"Martinsson","year":"2007"},{"key":"10.1016\/j.socscimed.2016.08.028_bib30","series-title":"Parables for the Virtual: Movement, Affect, Sensation","author":"Massumi","year":"2002"},{"key":"10.1016\/j.socscimed.2016.08.028_bib31","series-title":"Making Sense of the Teenage Body: Sociological Perspectives on Girls, Changing Bodies, and Knowledge","author":"Oinas","year":"2001"},{"issue":"6","key":"10.1016\/j.socscimed.2016.08.028_bib32","doi-asserted-by":"crossref","first-page":"681","DOI":"10.1177\/1363460711420462","article-title":"\u2018You will always have to \u201cout\u201d yourself\u2019: reconsidering coming out through strategic outness","volume":"14","author":"Orne","year":"2011","journal-title":"Sexualities"},{"key":"10.1016\/j.socscimed.2016.08.028_bib33","series-title":"Telling Sexual Stories: Power, Change and Social Worlds","author":"Plummer","year":"1995"},{"key":"10.1016\/j.socscimed.2016.08.028_bib34","series-title":"Intersex and Identity: the Contested Self","author":"Preves","year":"2003"},{"issue":"4","key":"10.1016\/j.socscimed.2016.08.028_bib49","doi-asserted-by":"crossref","first-page":"535","DOI":"10.1353\/pbm.2007.0054","article-title":"Divergence or disorder? The politics of naming intersex","volume":"50","author":"Reis","year":"2007","journal-title":"Perspect. Biol. Med."},{"issue":"5","key":"10.1016\/j.socscimed.2016.08.028_bib35","doi-asserted-by":"crossref","first-page":"326","DOI":"10.1177\/1059840508323092","article-title":"Transition to puberty as experienced by 12-year-old Swedish girls","volume":"24","author":"Rembeck","year":"2008","journal-title":"J.\u00a0Sch. Nurs."},{"issue":"5","key":"10.1016\/j.socscimed.2016.08.028_bib36","doi-asserted-by":"crossref","first-page":"730","DOI":"10.1111\/j.1467-9566.2011.01409.x","article-title":"Understanding depression through a \u2018coming out\u2019 framework","volume":"34","author":"Ridge","year":"2012","journal-title":"Sociol. Health & Illn."},{"key":"10.1016\/j.socscimed.2016.08.028_bib37","series-title":"Narrative Methods for the Human Sciences","author":"Riessman","year":"2008"},{"issue":"1","key":"10.1016\/j.socscimed.2016.08.028_bib38","doi-asserted-by":"crossref","first-page":"47","DOI":"10.1177\/1357034X07087530","article-title":"\u2018But we have to do something\u2019: surgical \u2018correction\u2019 of atypical genitalia","volume":"14","author":"Roen","year":"2008","journal-title":"Body Soc."},{"issue":"4","key":"10.1016\/j.socscimed.2016.08.028_bib39","doi-asserted-by":"crossref","first-page":"373","DOI":"10.1111\/j.1365-2648.2006.04018.x","article-title":"Heterosexual assumptions in verbal and non-verbal communication in nursing","volume":"56","author":"R\u00f6ndahl","year":"2006","journal-title":"J.\u00a0Adv. Nurs."},{"issue":"1","key":"10.1016\/j.socscimed.2016.08.028_bib40","first-page":"56","article-title":"Gender experience and satisfaction with gender allocation in adults with diverse intersex conditions (divergences of sex development, DSD)","volume":"5","author":"Schweizer","year":"2014","journal-title":"Psychol. Sex."},{"key":"10.1016\/j.socscimed.2016.08.028_bib41","series-title":"Touching Feeling: Affect, Pedagogy, Performativity","author":"Sedgwick","year":"2003"},{"issue":"4","key":"10.1016\/j.socscimed.2016.08.028_bib42","doi-asserted-by":"crossref","first-page":"383","DOI":"10.1080\/14681811.2012.686882","article-title":"Sociopolitical influences on sexuality education in Sweden and Ireland","volume":"12","author":"Sherlock","year":"2012","journal-title":"Sex Educ."},{"key":"10.1016\/j.socscimed.2016.08.028_bib43","series-title":"Doing Narrative Research","article-title":"Experience-centered and culturally-oriented approaches to narrative","author":"Squire","year":"2008"},{"issue":"1","key":"10.1016\/j.socscimed.2016.08.028_bib44","first-page":"44","article-title":"Emotionally and cognitively informed consent for clinical care for differences of sex development","volume":"5","author":"Tamar-Mattis","year":"2014","journal-title":"Psychol. Sex."},{"key":"10.1016\/j.socscimed.2016.08.028_bib45","series-title":"Affect and Emotion: a New Social Science Understanding","author":"Wetherell","year":"2012"},{"issue":"1","key":"10.1016\/j.socscimed.2016.08.028_bib50","doi-asserted-by":"crossref","first-page":"69","DOI":"10.1111\/j.1527-2001.2012.01305.x","article-title":"A phenomenology of excorporation, bodily alienation and resistance. Rethinking sexed and racialized embodiment","volume":"28","author":"Zeiler","year":"2013","journal-title":"Hypatia J. Fem. Philos."},{"key":"10.1016\/j.socscimed.2016.08.028_bib46","series-title":"Feminist Phenomenology and Medicine","article-title":"Sexed embodiment in atypical pubertal development: intersubjectivity, excorporation, and the importance of making space for difference","author":"Zeiler","year":"2014"},{"issue":"3","key":"10.1016\/j.socscimed.2016.08.028_bib47","doi-asserted-by":"crossref","first-page":"355","DOI":"10.1177\/1464700109343258","article-title":"Why do \u2018we\u2019 perform surgery on newborn intersexed children? The phenomenology of the parental experience of having a child with intersex anatomies","volume":"10","author":"Zeiler","year":"2009","journal-title":"Fem. Theory"}],"container-title":["Social Science & Medicine"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0277953616304646?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0277953616304646?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2018,9,8]],"date-time":"2018-09-08T22:50:43Z","timestamp":1536447043000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S0277953616304646"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2016,10]]},"references-count":50,"alternative-id":["S0277953616304646"],"URL":"https:\/\/doi.org\/10.1016\/j.socscimed.2016.08.028","relation":{},"ISSN":["0277-9536"],"issn-type":[{"value":"0277-9536","type":"print"}],"subject":[],"published":{"date-parts":[[2016,10]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"\u2018You have all those emotions inside that you cannot show because of what they will cause\u2019: Disclosing the absence of one's uterus and vagina","name":"articletitle","label":"Article Title"},{"value":"Social Science & Medicine","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.socscimed.2016.08.028","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2016 Elsevier Ltd. All rights reserved.","name":"copyright","label":"Copyright"}]}}