{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,3,13]],"date-time":"2026-03-13T09:02:37Z","timestamp":1773392557716,"version":"3.50.1"},"reference-count":48,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2018,1,1]],"date-time":"2018-01-01T00:00:00Z","timestamp":1514764800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2018,1,1]],"date-time":"2018-01-01T00:00:00Z","timestamp":1514764800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2018,12,22]],"date-time":"2018-12-22T00:00:00Z","timestamp":1545436800000},"content-version":"am","delay-in-days":355,"URL":"http:\/\/www.elsevier.com\/open-access\/userlicense\/1.0\/"},{"start":{"date-parts":[[2018,1,1]],"date-time":"2018-01-01T00:00:00Z","timestamp":1514764800000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-017"},{"start":{"date-parts":[[2018,1,1]],"date-time":"2018-01-01T00:00:00Z","timestamp":1514764800000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-037"},{"start":{"date-parts":[[2018,1,1]],"date-time":"2018-01-01T00:00:00Z","timestamp":1514764800000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-012"},{"start":{"date-parts":[[2018,1,1]],"date-time":"2018-01-01T00:00:00Z","timestamp":1514764800000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-029"},{"start":{"date-parts":[[2018,1,1]],"date-time":"2018-01-01T00:00:00Z","timestamp":1514764800000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-004"}],"funder":[{"DOI":"10.13039\/100000001","name":"National Science Foundation","doi-asserted-by":"publisher","award":["1028600"],"award-info":[{"award-number":["1028600"]}],"id":[{"id":"10.13039\/100000001","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100001388","name":"Wenner Gren Foundation","doi-asserted-by":"crossref","id":[{"id":"10.13039\/100001388","id-type":"DOI","asserted-by":"crossref"}]}],"content-domain":{"domain":["elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Social Science & Medicine"],"published-print":{"date-parts":[[2018,1]]},"DOI":"10.1016\/j.socscimed.2017.12.001","type":"journal-article","created":{"date-parts":[[2017,12,6]],"date-time":"2017-12-06T01:10:26Z","timestamp":1512522626000},"page":"63-70","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":18,"special_numbering":"C","title":["The consequence of \u201cdoing nothing\u201d: Family caregiving for Alzheimer's disease as non-action in the US"],"prefix":"10.1016","volume":"197","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-1680-1334","authenticated-orcid":false,"given":"Aaron T.","family":"Seaman","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"78","reference":[{"key":"10.1016\/j.socscimed.2017.12.001_bib1","series-title":"Hearts of Wisdom: American Women Caring for Kin","first-page":"1850","author":"Abel","year":"2000"},{"key":"10.1016\/j.socscimed.2017.12.001_bib2","doi-asserted-by":"crossref","first-page":"185","DOI":"10.1177\/1471301205051092","article-title":"Communication and interaction within dementia care triads: developing a theory for relationship-centred care","volume":"4","author":"Adams","year":"2005","journal-title":"Dementia"},{"key":"10.1016\/j.socscimed.2017.12.001_bib3","doi-asserted-by":"crossref","first-page":"246","DOI":"10.1057\/sub.2009.18","article-title":"Anticipation: technoscience, life, affect, temporality","volume":"28","author":"Adams","year":"2009","journal-title":"Subjectivity"},{"key":"10.1016\/j.socscimed.2017.12.001_bib4","series-title":"Generation Alzheimer's: the Defining Disease of the Baby Boomers","author":"Alzheimer\u2019s Association","year":"2011"},{"key":"10.1016\/j.socscimed.2017.12.001_bib5","doi-asserted-by":"crossref","DOI":"10.1016\/j.jalz.2016.03.001","article-title":"2016 Alzheimer's disease facts and figures","author":"Alzheimer\u2019s Association","year":"2016","journal-title":"Alzheimer\u2019s Dement."},{"key":"10.1016\/j.socscimed.2017.12.001_bib6","series-title":"Self, Senility, and Alzheimer's Disease in Modern America: a History","author":"Ballenger","year":"2006"},{"key":"10.1016\/j.socscimed.2017.12.001_bib7","series-title":"Forget Memory: Creating Better Lives for People with Dementia","author":"Basting","year":"2009"},{"key":"10.1016\/j.socscimed.2017.12.001_bib8","doi-asserted-by":"crossref","first-page":"129","DOI":"10.2307\/3350277","article-title":"An historical perspective on home care policy","volume":"71","author":"Benjamin","year":"1993","journal-title":"Milbank Q."},{"key":"10.1016\/j.socscimed.2017.12.001_bib9","series-title":"Unforgotten: Love and the Culture of Dementia Care in India","author":"Brijnath","year":"2014"},{"key":"10.1016\/j.socscimed.2017.12.001_bib10","doi-asserted-by":"crossref","first-page":"637","DOI":"10.1111\/amet.12044","article-title":"Senses of care: embodying inequality and sustaining personhood in the home care of older adults in Chicago","volume":"40","author":"Buch","year":"2013","journal-title":"Am. Ethnol."},{"key":"10.1016\/j.socscimed.2017.12.001_bib11","doi-asserted-by":"crossref","first-page":"443","DOI":"10.1177\/1074840715573870","article-title":"Family caregivers' experiences of caring for a relative with younger onset dementia","volume":"21","author":"Cabote","year":"2015","journal-title":"J. Fam. Nurs."},{"key":"10.1016\/j.socscimed.2017.12.001_bib12","doi-asserted-by":"crossref","first-page":"327","DOI":"10.1177\/1471301210375316","article-title":"Development of a conceptual framework of positive aspects of caregiving in dementia","volume":"9","author":"Carbonneau","year":"2010","journal-title":"Dementia"},{"key":"10.1016\/j.socscimed.2017.12.001_bib13","series-title":"The Heat of the Hearth: the Process of Kinship in a Malay Fishing Community, Oxford Studies in Social and Cultural Anthropology","author":"Carsten","year":"1997"},{"key":"10.1016\/j.socscimed.2017.12.001_bib14","doi-asserted-by":"crossref","first-page":"788","DOI":"10.1016\/j.socscimed.2011.10.033","article-title":"Medical ideology as a double-edged sword: the politics of cure and care in the making of Alzheimer's disease","volume":"74","author":"Chaufan","year":"2012","journal-title":"Soc. Sci. Med."},{"key":"10.1016\/j.socscimed.2017.12.001_bib15","doi-asserted-by":"crossref","first-page":"161","DOI":"10.1177\/000312240306800201","article-title":"Biomedicalization: technoscientific transformations of health, illness, and U.S. biomedicine","volume":"68","author":"Clarke","year":"2003","journal-title":"Am. Sociol. Rev."},{"key":"10.1016\/j.socscimed.2017.12.001_bib16","series-title":"No Aging in India: Alzheimer's, the Bad Family, and Other Modern Things","author":"Cohen","year":"1998"},{"key":"10.1016\/j.socscimed.2017.12.001_bib17","series-title":"The Medicalization of Society: on the Transformation of Human Conditions into Treatable Disorders","author":"Conrad","year":"2007"},{"key":"10.1016\/j.socscimed.2017.12.001_bib18","doi-asserted-by":"crossref","first-page":"11","DOI":"10.1177\/1471301207075625","article-title":"Participatory research","volume":"6","author":"Dewing","year":"2007","journal-title":"Dementia"},{"key":"10.1016\/j.socscimed.2017.12.001_bib19","doi-asserted-by":"crossref","first-page":"634","DOI":"10.1177\/1533317513494443","article-title":"The unique experience of spouses in early-onset Dementia","volume":"28","author":"Ducharme","year":"2013","journal-title":"Am. J. Alzheimer\u2019s Dis. Other Dementiasr"},{"key":"10.1016\/j.socscimed.2017.12.001_bib20","doi-asserted-by":"crossref","first-page":"58","DOI":"10.2307\/3350070","article-title":"From senility to Alzheimer's disease: the rise of the Alzheimer's disease movement","author":"Fox","year":"1989","journal-title":"Milbank Q."},{"key":"10.1016\/j.socscimed.2017.12.001_bib21","series-title":"Forced to Care: Coercion and Caregiving in America","author":"Glenn","year":"2010"},{"key":"10.1016\/j.socscimed.2017.12.001_bib22","series-title":"Feminist Perspectives on Family Care: Policies for Gender Justice","author":"Hooyman","year":"1995"},{"key":"10.1016\/j.socscimed.2017.12.001_bib23","series-title":"Dementia Reconsidered: the Person Comes First","author":"Kitwood","year":"1997"},{"key":"10.1016\/j.socscimed.2017.12.001_bib24","doi-asserted-by":"crossref","first-page":"292","DOI":"10.1016\/S0140-6736(09)60087-8","article-title":"Caregiving: the odyssey of becoming more human","volume":"373","author":"Kleinman","year":"2009","journal-title":"Lancet"},{"key":"10.1016\/j.socscimed.2017.12.001_bib25","doi-asserted-by":"crossref","first-page":"1374","DOI":"10.1056\/NEJMp1300678","article-title":"From illness as culture to caregiving as moral experience Arthur Kleinman","volume":"368","author":"Kleinman","year":"2013","journal-title":"N. Engl. J. Med."},{"key":"10.1016\/j.socscimed.2017.12.001_bib26","series-title":"Caring for Our Own: Why There Is No Political Demand for New American Social Welfare Rights","author":"Levitsky","year":"2014"},{"key":"10.1016\/j.socscimed.2017.12.001_bib27","series-title":"Improvising Medicine: an African Oncology Ward in an Emerging Cancer Epidemic","author":"Livingston","year":"2012"},{"key":"10.1016\/j.socscimed.2017.12.001_bib28","doi-asserted-by":"crossref","first-page":"597","DOI":"10.1093\/geront\/29.5.597","article-title":"Bringing the social back in: a critique of the biomedicalization of dementia","volume":"29","author":"Lyman","year":"1989","journal-title":"Gerontologist"},{"key":"10.1016\/j.socscimed.2017.12.001_bib29","series-title":"Moral Laboratories: Family Peril and the Struggle for a Good Life","author":"Mattingly","year":"2014"},{"key":"10.1016\/j.socscimed.2017.12.001_bib30","doi-asserted-by":"crossref","DOI":"10.55016\/ojs\/jah.v2013Y2013.53220","article-title":"Dementia discourse: from imposed suffering to knowing other-wise","author":"Mitchell","year":"2013","journal-title":"J. Appl. Hermeneut."},{"key":"10.1016\/j.socscimed.2017.12.001_bib31","series-title":"The Logic of Care: Health and the Problem of Patient Choice","author":"Mol","year":"2008"},{"key":"10.1016\/j.socscimed.2017.12.001_bib32","doi-asserted-by":"crossref","first-page":"704","DOI":"10.1177\/0162243910396349","article-title":"Dementia and the limits to life: anthropological sensibilities, STS interferences, and possibilities for action in care","volume":"36","author":"Moser","year":"2011","journal-title":"Sci. Technol. Hum. Values"},{"key":"10.1016\/j.socscimed.2017.12.001_bib33","series-title":"Families Caring for an Aging America","author":"National Academies of Sciences, Engineering","year":"2016"},{"key":"10.1016\/j.socscimed.2017.12.001_bib34","series-title":"Caregiving in the U.S","author":"National Alliance for Caregiving and AARP","year":"2015"},{"key":"10.1016\/j.socscimed.2017.12.001_bib35","first-page":"193","article-title":"Towards a more inclusive vision of dementia care practice and research","volume":"1","author":"Nolan","year":"2002","journal-title":"Dement. Int. J. Soc. Res. Pract."},{"key":"10.1016\/j.socscimed.2017.12.001_bib36","series-title":"Anthropology and Social Theory: Culture, Power, and the Acting Subject","author":"Ortner","year":"2006"},{"key":"10.1016\/j.socscimed.2017.12.001_bib37","article-title":"World Alzheimer report 2015","author":"Prince","year":"2015","journal-title":"Alzheimer\u2019s Dis. Int. World Alzheimer Rep."},{"key":"10.1016\/j.socscimed.2017.12.001_bib38","doi-asserted-by":"crossref","first-page":"447","DOI":"10.1111\/1467-9655.12044","article-title":"Beyond the suffering subject: toward an anthropology of the good","volume":"19","author":"Robbins","year":"2013","journal-title":"J. R. Anthropol. Inst."},{"key":"10.1016\/j.socscimed.2017.12.001_bib39","series-title":"A Dimensional Analysis of Caregiver Burden Among Spouses and Adult Children","author":"Savundranayagam","year":"2010"},{"key":"10.1016\/j.socscimed.2017.12.001_bib40","doi-asserted-by":"crossref","first-page":"240","DOI":"10.1097\/00019442-200405000-00002","article-title":"Family caregiving of persons with dementia: prevalence, health effects, and support strategies","volume":"12","author":"Schulz","year":"2004","journal-title":"Am. J. Geriatr. psychiatry"},{"key":"10.1016\/j.socscimed.2017.12.001_bib41","series-title":"Scotland's National Dementia Strategy 2017-2020","author":"The Scottish Government","year":"2017"},{"key":"10.1016\/j.socscimed.2017.12.001_bib42","doi-asserted-by":"crossref","first-page":"313","DOI":"10.1111\/j.1548-1387.2008.00036.x","article-title":"On recognition, caring, and dementia","volume":"22","author":"Taylor","year":"2008","journal-title":"Med. Anthropol. Q."},{"key":"10.1016\/j.socscimed.2017.12.001_bib43","series-title":"Moral Boundaries: a Political Argument for an Ethic of Care","author":"Tronto","year":"1993"},{"key":"10.1016\/j.socscimed.2017.12.001_bib44","series-title":"National Plan to Address Alzheimer's Disease","author":"U.S. Department of Health and Human Services","year":"2012"},{"key":"10.1016\/j.socscimed.2017.12.001_bib45","article-title":"Dementia: a public health priority","volume":"112","author":"World Health Organization","year":"2012","journal-title":"Dementia"},{"key":"10.1016\/j.socscimed.2017.12.001_bib46","series-title":"Draft Global Action Plan on the Public Health Response to Dementia","author":"World Health Organization","year":"2017"},{"key":"10.1016\/j.socscimed.2017.12.001_bib47","series-title":"Care across Generations: Solidarity and Sacrifice in Transnational Families","author":"Yarris","year":"2017"},{"key":"10.1016\/j.socscimed.2017.12.001_bib48","first-page":"38","article-title":"Rate of early onset Alzheimer's disease: a systematic review and meta-analysis","volume":"3","author":"Zhu","year":"2015","journal-title":"Ann. Transl. Med."}],"container-title":["Social Science & Medicine"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0277953617307311?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0277953617307311?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2025,10,3]],"date-time":"2025-10-03T15:19:08Z","timestamp":1759504748000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S0277953617307311"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2018,1]]},"references-count":48,"alternative-id":["S0277953617307311"],"URL":"https:\/\/doi.org\/10.1016\/j.socscimed.2017.12.001","relation":{},"ISSN":["0277-9536"],"issn-type":[{"value":"0277-9536","type":"print"}],"subject":[],"published":{"date-parts":[[2018,1]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"The consequence of \u201cdoing nothing\u201d: Family caregiving for Alzheimer's disease as non-action in the US","name":"articletitle","label":"Article Title"},{"value":"Social Science & Medicine","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.socscimed.2017.12.001","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2017 Elsevier Ltd. All rights reserved.","name":"copyright","label":"Copyright"}]}}