{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,5,4]],"date-time":"2026-05-04T04:06:34Z","timestamp":1777867594349,"version":"3.51.4"},"reference-count":39,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2019,12,1]],"date-time":"2019-12-01T00:00:00Z","timestamp":1575158400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2019,12,1]],"date-time":"2019-12-01T00:00:00Z","timestamp":1575158400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"}],"funder":[{"DOI":"10.13039\/100000051","name":"National Human Genome Research Institute","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100000051","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000009","name":"Foundation for the National Institutes of Health","doi-asserted-by":"publisher","award":["1 U01 HG00 8226 -01"],"award-info":[{"award-number":["1 U01 HG00 8226 -01"]}],"id":[{"id":"10.13039\/100000009","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Social Science &amp; Medicine"],"published-print":{"date-parts":[[2019,12]]},"DOI":"10.1016\/j.socscimed.2019.112619","type":"journal-article","created":{"date-parts":[[2019,10,19]],"date-time":"2019-10-19T11:07:34Z","timestamp":1571483254000},"page":"112619","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":12,"special_numbering":"C","title":["Does genetics matter for disease-related stigma? The impact of genetic attribution on stigma associated with rheumatic heart disease in the Western Cape, South Africa"],"prefix":"10.1016","volume":"243","author":[{"given":"Marlyn C.","family":"Faure","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Olivia P.","family":"Matshabane","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Patricia","family":"Marshall","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Paul S.","family":"Appelbaum","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Dan J.","family":"Stein","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Mark E.","family":"Engel","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jantina","family":"de Vries","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"78","reference":[{"key":"10.1016\/j.socscimed.2019.112619_bib1","series-title":"Census 2011: Community Profile Databases","author":"Africa","year":"2012"},{"key":"10.1016\/j.socscimed.2019.112619_bib2","doi-asserted-by":"crossref","first-page":"367","DOI":"10.1192\/bjp.bp.110.085563","article-title":"Biogenetic explanations and public acceptance of mental illness: systematic review of population studies","volume":"199","author":"Angermeyer","year":"2011","journal-title":"British Journal of Psychiatry"},{"key":"10.1016\/j.socscimed.2019.112619_bib3","doi-asserted-by":"crossref","first-page":"219","DOI":"10.1186\/s12913-015-0890-4","article-title":"Effect of distance to health facility on the maintenance of INR therapeutic ranges in rheumatic heart disease patients from Cape Town: No evidence for an association","volume":"15","author":"Barth","year":"2015","journal-title":"BMC Health Services Research"},{"key":"10.1016\/j.socscimed.2019.112619_bib4","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1080\/01973533.2012.746147","article-title":"Stigma: advances in theory and research","volume":"35","author":"Bos","year":"2013","journal-title":"Basic and Applied Social Psychology"},{"key":"10.1016\/j.socscimed.2019.112619_bib5","doi-asserted-by":"crossref","first-page":"77","DOI":"10.1191\/1478088706qp063oa","article-title":"Using thematic analysis in psychology","volume":"3","author":"Braun","year":"2006","journal-title":"Qualitative Research in Psychology"},{"key":"10.1016\/j.socscimed.2019.112619_bib6","doi-asserted-by":"crossref","first-page":"163","DOI":"10.1038\/475163a","article-title":"Genomics for the world","volume":"475","author":"Bustamante","year":"2011","journal-title":"Nature"},{"key":"10.1016\/j.socscimed.2019.112619_bib7","doi-asserted-by":"crossref","first-page":"155","DOI":"10.1016\/S0140-6736(05)66874-2","article-title":"Acute rheumatic fever","volume":"366","author":"Carapetis","year":"2005","journal-title":"The Lancet"},{"key":"10.1016\/j.socscimed.2019.112619_bib8","doi-asserted-by":"crossref","first-page":"169","DOI":"10.1088\/0963-6625\/8\/3\/302","article-title":"How the public understands genetics: non-deterministic and non-discriminatory interpretations of the \u201cblueprint\u201d metaphor","volume":"8","author":"Condit","year":"1999","journal-title":"Public Understanding of Science"},{"key":"10.1016\/j.socscimed.2019.112619_bib9","first-page":"48","article-title":"Mental health stigma as social attribution: implications for research methods and attitude change","volume":"7","author":"Corrigan","year":"2000","journal-title":"Clinical Psychology: Science and Practice"},{"key":"10.1016\/j.socscimed.2019.112619_bib10","doi-asserted-by":"crossref","first-page":"1400","DOI":"10.1016\/j.socscimed.2012.05.020","article-title":"Investigating the potential for ethnic group harm in collaborative genomics research in Africa: is ethnic stigmatisation likely?","volume":"75","author":"de Vries","year":"2012","journal-title":"Social Science & Medicine"},{"key":"10.1016\/j.socscimed.2019.112619_bib11","doi-asserted-by":"crossref","first-page":"1408","DOI":"10.1016\/j.socscimed.2012.05.042","article-title":"\u201cNot all my fault\u201d: genetics, stigma, and personal responsibility for women with eating disorders","volume":"75","author":"Easter","year":"2012","journal-title":"Social Science & Medicine"},{"key":"10.1016\/j.socscimed.2019.112619_bib12","doi-asserted-by":"crossref","first-page":"515","DOI":"10.1186\/s13059-014-0515-y","article-title":"Empowering African genomics for infectious disease control","volume":"15","author":"Folarin","year":"2014","journal-title":"Genome Biology"},{"key":"10.1016\/j.socscimed.2019.112619_bib13","doi-asserted-by":"crossref","first-page":"S44","DOI":"10.1002\/hast.1016","article-title":"Psychosocial effects of multigene panel testing in the context of cancer genomics","volume":"49","author":"Hamilton","year":"2019","journal-title":"Hastings Center Report"},{"key":"10.1016\/j.socscimed.2019.112619_bib14","doi-asserted-by":"crossref","first-page":"184","DOI":"10.1038\/nrclinonc.2010.227","article-title":"Predictive, personalized, preventive, participatory (P4) cancer medicine","volume":"8","author":"Hood","year":"2011","journal-title":"Nature Reviews Clinical Oncology"},{"key":"10.1016\/j.socscimed.2019.112619_bib15","first-page":"343","article-title":"Primary prevention of acute rheumatic fever and rheumatic heart disease with penicillin in South African children with pharyngitis","volume":"6","author":"Irlam","year":"2013","journal-title":"Circulation: Cardiovascular Quality and Outcomes"},{"key":"10.1016\/j.socscimed.2019.112619_bib16","doi-asserted-by":"crossref","first-page":"3","DOI":"10.1080\/15265161.2017.1284915","article-title":"Psychiatric genomics and mental health treatment: setting the ethical agenda","volume":"17","author":"Kong","year":"2017","journal-title":"The American Journal of Bioethics"},{"key":"10.1016\/j.socscimed.2019.112619_bib17","doi-asserted-by":"crossref","first-page":"782","DOI":"10.1016\/j.cpr.2013.06.002","article-title":"The \u2018side effects\u2019 of medicalization: a meta-analytic review of how biogenetic explanations affect stigma","volume":"33","author":"Kvaale","year":"2013","journal-title":"Clinical psychology review"},{"key":"10.1016\/j.socscimed.2019.112619_bib18","doi-asserted-by":"crossref","first-page":"470","DOI":"10.1111\/j.1600-0447.2010.01555.x","article-title":"The perceived and predicted implications of psychiatric genetic knowledge among persons with multiple cases of depression in the family","volume":"122","author":"Laegsgaard","year":"2010","journal-title":"Acta Psychiatrica Scandinavica"},{"key":"10.1016\/j.socscimed.2019.112619_bib19","doi-asserted-by":"crossref","first-page":"S82","DOI":"10.1002\/hast.1020","article-title":"The implications of genetic and other biological explanations for thinking about mental disorders","volume":"49","author":"Lebowitz","year":"2019","journal-title":"Hasting Center Report"},{"key":"10.1016\/j.socscimed.2019.112619_bib20","doi-asserted-by":"crossref","first-page":"1469","DOI":"10.1016\/0277-9536(92)90049-V","article-title":"Led (astray) by genetic maps: the cartography of the human genome and health care","volume":"35","author":"Lippman","year":"1992","journal-title":"Social Science & Medicine"},{"key":"10.1016\/j.socscimed.2019.112619_bib21","doi-asserted-by":"crossref","first-page":"2150","DOI":"10.1016\/j.socscimed.2010.09.030","article-title":"Correlates and consequences of internalized stigma for people living with mental illness: a systematic review and meta-analysis","volume":"71","author":"Livingston","year":"2010","journal-title":"Social Science & Medicine"},{"key":"10.1016\/j.socscimed.2019.112619_bib22","doi-asserted-by":"crossref","first-page":"343","DOI":"10.1080\/13557858.2010.541903","article-title":"\u2018All her children are born that way\u2019: gendered experiences of stigma in families affected by sickle cell disorder in rural Kenya","volume":"16","author":"Marsh","year":"2011","journal-title":"Ethnicity & Health"},{"key":"10.1016\/j.socscimed.2019.112619_bib23","doi-asserted-by":"crossref","first-page":"109","DOI":"10.1016\/j.socscimed.2004.04.016","article-title":"Implications of genetic risk information in families with a high density of bipolar disorder: an exploratory study","volume":"60","author":"Meiser","year":"2005","journal-title":"Social Science & Medicine"},{"key":"10.1016\/j.socscimed.2019.112619_bib24","doi-asserted-by":"crossref","first-page":"711","DOI":"10.1111\/j.1467-9566.2008.01095.x","article-title":"Men, masculine identities, and health care utilisation","volume":"30","author":"Noone","year":"2008","journal-title":"Sociology of Health & Illness"},{"key":"10.1016\/j.socscimed.2019.112619_bib25","series-title":"NVivo 11","year":"2015"},{"key":"10.1016\/j.socscimed.2019.112619_bib26","doi-asserted-by":"crossref","first-page":"91","DOI":"10.1007\/BF03324754","article-title":"Men: good health and high mortality. Sex differences in health and aging","volume":"20","author":"Oksuzyan","year":"2008","journal-title":"Aging Clinical and Experimental Research"},{"key":"10.1016\/j.socscimed.2019.112619_bib27","doi-asserted-by":"crossref","first-page":"S2","DOI":"10.1002\/hast.1011","article-title":"On what we have learned and still need to learn about the psychosocial impacts of genetic testing","volume":"49","author":"Parens","year":"2019","journal-title":"Hasting Center Report"},{"key":"10.1016\/j.socscimed.2019.112619_bib28","doi-asserted-by":"crossref","first-page":"307","DOI":"10.1177\/002214650504600401","article-title":"Geneticization of deviant behavior and consequences for stigma: the case of mental illness","volume":"46","author":"Phelan","year":"2005","journal-title":"Journal of Health and Social Behavior"},{"key":"10.1016\/j.socscimed.2019.112619_bib29","doi-asserted-by":"crossref","first-page":"159","DOI":"10.1080\/10973430208408431","article-title":"Genes and stigma: the connection between perceived genetic etiology and attitudes and beliefs about mental illness","volume":"6","author":"Phelan","year":"2002","journal-title":"Psychiatric Rehabilitation Skills"},{"key":"10.1016\/j.socscimed.2019.112619_bib30","doi-asserted-by":"crossref","first-page":"382","DOI":"10.1176\/appi.ps.57.3.382","article-title":"Effects of attributing serious mental illnesses to genetic causes on orientations to treatment","volume":"57","author":"Phelan","year":"2006","journal-title":"Psychiatric Services"},{"key":"10.1016\/j.socscimed.2019.112619_bib31","first-page":"780","article-title":"Rheumatic heart disease: social and economic dimensions","volume":"98","author":"Robertson","year":"2008","journal-title":"South African Medical Journal"},{"key":"10.1016\/j.socscimed.2019.112619_bib32","doi-asserted-by":"crossref","first-page":"33","DOI":"10.1097\/01.gim.0000195894.67756.8b","article-title":"What is in a cause? Exploring the relationship between genetic cause and felt stigma","volume":"8","author":"Sankar","year":"2006","journal-title":"Genetics in Medicine"},{"key":"10.1016\/j.socscimed.2019.112619_bib33","doi-asserted-by":"crossref","first-page":"SIV16","DOI":"10.1016\/S0140-6736(99)90359-8","article-title":"The \u201cgeneticisation\u201d of disease stigma","volume":"354","author":"Savulescu","year":"1999","journal-title":"The Lancet"},{"key":"10.1016\/j.socscimed.2019.112619_bib34","doi-asserted-by":"crossref","first-page":"87","DOI":"10.1126\/science.1062633","article-title":"Harnessing genomics and biotechnology to improve global health equity","volume":"294","author":"Singer","year":"2001","journal-title":"Science"},{"key":"10.1016\/j.socscimed.2019.112619_bib35","doi-asserted-by":"crossref","first-page":"13","DOI":"10.1186\/1472-6939-10-13","article-title":"Impact of social stigma on the process of obtaining informed consent for genetic research on podoconiosis: a qualitative study","volume":"10","author":"Tekola","year":"2009","journal-title":"BMC Medical Ethics"},{"key":"10.1016\/j.socscimed.2019.112619_bib36","doi-asserted-by":"crossref","first-page":"e482","DOI":"10.1371\/journal.pntd.0000482","article-title":"Tailoring consent to context: designing an appropriate consent process for a biomedical study in a low income setting","volume":"3","author":"Tekola","year":"2009","journal-title":"PLOS Neglected Tropical Diseases"},{"key":"10.1016\/j.socscimed.2019.112619_bib37","doi-asserted-by":"crossref","first-page":"548","DOI":"10.1037\/0033-295X.92.4.548","article-title":"An attributional theory of achievement motivation and emotion","volume":"92","author":"Weiner","year":"1985","journal-title":"Psychological Review"},{"key":"10.1016\/j.socscimed.2019.112619_bib38","doi-asserted-by":"crossref","first-page":"957","DOI":"10.1037\/0003-066X.48.9.957","article-title":"On sin versus sickness: a theory of perceived responsibility and social motivation","volume":"48","author":"Weiner","year":"1993","journal-title":"American Psychologist"},{"key":"10.1016\/j.socscimed.2019.112619_bib39","doi-asserted-by":"crossref","first-page":"1669","DOI":"10.1093\/eurheartj\/ehy199","article-title":"Rheumatic heart disease patient event: Cape Town hosts 4th annual listen to my heart rheumatic heart disease for patients at the South African heart association meeting in 2017","volume":"39","author":"Z\u00fchlke","year":"2018","journal-title":"European Heart Journal"}],"container-title":["Social Science &amp; Medicine"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0277953619306148?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0277953619306148?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2026,4,30]],"date-time":"2026-04-30T10:31:36Z","timestamp":1777545096000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S0277953619306148"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2019,12]]},"references-count":39,"alternative-id":["S0277953619306148"],"URL":"https:\/\/doi.org\/10.1016\/j.socscimed.2019.112619","relation":{},"ISSN":["0277-9536"],"issn-type":[{"value":"0277-9536","type":"print"}],"subject":[],"published":{"date-parts":[[2019,12]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Does genetics matter for disease-related stigma? The impact of genetic attribution on stigma associated with rheumatic heart disease in the Western Cape, South Africa","name":"articletitle","label":"Article Title"},{"value":"Social Science & Medicine","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.socscimed.2019.112619","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2019 Elsevier Ltd. All rights reserved.","name":"copyright","label":"Copyright"}],"article-number":"112619"}}