{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,2,15]],"date-time":"2026-02-15T21:16:09Z","timestamp":1771190169512,"version":"3.50.1"},"reference-count":58,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2019,12,1]],"date-time":"2019-12-01T00:00:00Z","timestamp":1575158400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2019,12,1]],"date-time":"2019-12-01T00:00:00Z","timestamp":1575158400000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2019,10,31]],"date-time":"2019-10-31T00:00:00Z","timestamp":1572480000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100000923","name":"Australian Research Council","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100000923","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Social Science &amp; Medicine"],"published-print":{"date-parts":[[2019,12]]},"DOI":"10.1016\/j.socscimed.2019.112620","type":"journal-article","created":{"date-parts":[[2019,10,22]],"date-time":"2019-10-22T11:35:54Z","timestamp":1571744154000},"page":"112620","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":11,"special_numbering":"C","title":["The embodied relationality of blood-borne viruses: How families matter in the context of a stigmatised viral infection"],"prefix":"10.1016","volume":"243","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-1173-4697","authenticated-orcid":false,"given":"Asha","family":"Persson","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Christy E.","family":"Newman","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"kylie","family":"valentine","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Myra","family":"Hamilton","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Joanne","family":"Bryant","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"Jack","family":"Wallace","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"78","reference":[{"issue":"2","key":"10.1016\/j.socscimed.2019.112620_bib1","doi-asserted-by":"crossref","first-page":"77","DOI":"10.1191\/1478088706qp063oa","article-title":"Using thematic analysis in qualitative psychology","volume":"3","author":"Braun","year":"2006","journal-title":"Qual. Res. Psychol."},{"issue":"2\u20133","key":"10.1016\/j.socscimed.2019.112620_bib2","doi-asserted-by":"crossref","first-page":"182","DOI":"10.1016\/j.drugalcdep.2009.10.007","article-title":"Needle sharing in regular sexual relationships: an examination of serodiscordance, drug using practices, and the gendered character of injecting","volume":"107","author":"Bryant","year":"2010","journal-title":"Drug Alcohol Depend."},{"key":"10.1016\/j.socscimed.2019.112620_bib3","series-title":"Illness: the Cry of the Flesh","author":"Carel","year":"2008"},{"key":"10.1016\/j.socscimed.2019.112620_bib4","series-title":"Handbook of the Sociology of Health, Illness and Healing, Part 3","first-page":"173","article-title":"Medicalization and biomedicalization revisited: technoscience and transformations of health, illness and American medicine","author":"Clarke","year":"2011"},{"issue":"3","key":"10.1016\/j.socscimed.2019.112620_bib5","doi-asserted-by":"crossref","first-page":"103","DOI":"10.1177\/0263276408090660","article-title":"A body worth having? Or, a system of natural governance","volume":"25","author":"Cohen","year":"2008","journal-title":"Theory Cult. Soc."},{"issue":"2","key":"10.1016\/j.socscimed.2019.112620_bib6","doi-asserted-by":"crossref","first-page":"135","DOI":"10.1525\/can.1993.8.2.02a00010","article-title":"Somatic modes of attention","volume":"8","author":"Csordas","year":"1993","journal-title":"Cult. Anthropol."},{"key":"10.1016\/j.socscimed.2019.112620_bib7","doi-asserted-by":"crossref","first-page":"110","DOI":"10.1057\/sub.2008.5","article-title":"Intersubjectivity and intercorporeality","volume":"22","author":"Csordas","year":"2008","journal-title":"Subjectivity"},{"key":"10.1016\/j.socscimed.2019.112620_bib8","series-title":"Understanding HIV\/AIDS Stigma: A Theoretical and Methodological Analysis","author":"Deacon","year":"2005"},{"issue":"3","key":"10.1016\/j.socscimed.2019.112620_bib9","doi-asserted-by":"crossref","first-page":"282","DOI":"10.1111\/j.1365-2648.2007.04238.x","article-title":"Family interviews as a method for family research","volume":"58","author":"Eggenberger","year":"2007","journal-title":"J. Adv. Nurs."},{"issue":"10","key":"10.1016\/j.socscimed.2019.112620_bib10","doi-asserted-by":"crossref","first-page":"e449","DOI":"10.1371\/journal.pmed.0030449","article-title":"Structural violence and clinical medicine","volume":"3","author":"Farmer","year":"2006","journal-title":"PLoS Med."},{"key":"10.1016\/j.socscimed.2019.112620_bib11","series-title":"The Wounded Storyteller: Body, Illness and Ethics","author":"Frank","year":"1995"},{"key":"10.1016\/j.socscimed.2019.112620_bib12","series-title":"Making Disease, Making Citizens: the Politics of Hepatitis C. Surrey & Burlington","author":"Fraser","year":"2013"},{"issue":"5","key":"10.1016\/j.socscimed.2019.112620_bib13","doi-asserted-by":"crossref","first-page":"375","DOI":"10.1177\/0164027507303169","article-title":"Help or hindrance? How family and friends influence chronic illness self-management among older adults","volume":"29","author":"Gallant","year":"2007","journal-title":"Res. Aging"},{"key":"10.1016\/j.socscimed.2019.112620_bib57","series-title":"Sourcebook of Family Theories and Methods: A Contextual Approach","first-page":"651","article-title":"Phenomenology, ethnomethodology, and family discourse","author":"Gubrium","year":"1993"},{"issue":"4","key":"10.1016\/j.socscimed.2019.112620_bib14","first-page":"529","article-title":"Hidden carers for an increasingly hidden illness? A scoping review of the needs of informal carers of people with HIV in the contemporary treatment era","volume":"2","author":"Hamilton","year":"2018","journal-title":"Int. J. Carrer Caring"},{"issue":"4","key":"10.1016\/j.socscimed.2019.112620_bib15","doi-asserted-by":"crossref","first-page":"33","DOI":"10.1177\/1357034X09347221","article-title":"Injecting, infection, illness: abjection and hepatitis C illness","volume":"15","author":"Harris","year":"2009","journal-title":"Body Soc."},{"issue":"4","key":"10.1016\/j.socscimed.2019.112620_bib16","doi-asserted-by":"crossref","first-page":"373","DOI":"10.5172\/hesr.2012.21.4.373","article-title":"Bringing our dying home: how caring for someone at end of life builds social capital and develops compassionate communities","volume":"21","author":"Horsfall","year":"2012","journal-title":"Health Sociol. Rev."},{"key":"10.1016\/j.socscimed.2019.112620_bib17","series-title":"Socialising the Biomedical Turn in HIV Prevention","author":"Kippax","year":"2016"},{"key":"10.1016\/j.socscimed.2019.112620_bib18","series-title":"HIV, Viral Hepatitis and Sexually Transmissible Infections in Australia: Annual Surveillance Report 2017","author":"Kirby Institute","year":"2017"},{"key":"10.1016\/j.socscimed.2019.112620_bib19","series-title":"Qualitative Researching: Living Research","first-page":"77","article-title":"Embodiment in research practices: the body in qualitative research","author":"Lala","year":"2011"},{"key":"10.1016\/j.socscimed.2019.112620_bib20","series-title":"Self-stigma Reduction Interventions for People Living with HIV\/AIDS and Their Families: A Systematic Review","author":"Ma","year":"2018"},{"key":"10.1016\/j.socscimed.2019.112620_bib21","doi-asserted-by":"crossref","first-page":"453","DOI":"10.1111\/maq.12001","article-title":"What is life worth? Exploring biomedical interventions, survival, and the politics of life","volume":"26","author":"Marsland","year":"2012","journal-title":"Med. Anthropol. Q."},{"issue":"1","key":"10.1016\/j.socscimed.2019.112620_bib22","doi-asserted-by":"crossref","first-page":"68","DOI":"10.1111\/j.1467-954X.2011.02045.x","article-title":"The powerful relational language of \u201cfamily\u201d: togetherness, belonging and personhood","volume":"60","author":"McCarthy","year":"2012","journal-title":"Sociol. Rev."},{"issue":"2","key":"10.1016\/j.socscimed.2019.112620_bib23","doi-asserted-by":"crossref","first-page":"18","DOI":"10.1177\/1357034X13506469","article-title":"Embodied relationality and caring after death","volume":"20","author":"McCarthy","year":"2014","journal-title":"Body Soc."},{"issue":"241","key":"10.1016\/j.socscimed.2019.112620_bib24","article-title":"A scoping review and thematic analysis of social and behavioural research among HIV-serodiscordant couples in high-income settings","volume":"15","author":"Mendelsohn","year":"2015","journal-title":"BMC Public Health"},{"key":"10.1016\/j.socscimed.2019.112620_bib25","series-title":"Phenomenology of Perception","author":"Merleau-Ponty","year":"1962"},{"issue":"3","key":"10.1016\/j.socscimed.2019.112620_bib26","doi-asserted-by":"crossref","first-page":"270","DOI":"10.1080\/14461242.2015.1034747","article-title":"The lived experience of everyday activity for individuals with severe mental illness","volume":"24","author":"Milbourn","year":"2015","journal-title":"Health Sociol. Rev."},{"issue":"4","key":"10.1016\/j.socscimed.2019.112620_bib59","doi-asserted-by":"crossref","first-page":"263","DOI":"10.1080\/01459740.2014.890618","article-title":"A disease unlike any other? Why HIV remains exceptional in the age of treatment","volume":"33","author":"Moyer","year":"2014","journal-title":"Med. Anthropol."},{"key":"10.1016\/j.socscimed.2019.112620_bib27","series-title":"Cross-cultural Perspectives on Couples with Mixed HIV Status: beyond Positive\/Negative","article-title":"Pills, providers and partners: exploring trust among serodiscordant couples in Australia","author":"Newman","year":"2016"},{"issue":"4","key":"10.1016\/j.socscimed.2019.112620_bib28","doi-asserted-by":"crossref","first-page":"195","DOI":"10.1111\/nicc.12199","article-title":"Critical illness trajectory for patients, families and nurses: a literature review","volume":"21","author":"Page","year":"2016","journal-title":"Nurs. Crit. Care"},{"issue":"1","key":"10.1016\/j.socscimed.2019.112620_bib29","doi-asserted-by":"crossref","first-page":"13","DOI":"10.1016\/S0277-9536(02)00304-0","article-title":"HIV and AIDS-related stigma and discrimination: a conceptual framework and implications for action","volume":"57","author":"Parker","year":"2003","journal-title":"Soc. Sci. Med."},{"issue":"4","key":"10.1016\/j.socscimed.2019.112620_bib30","doi-asserted-by":"crossref","first-page":"45","DOI":"10.1177\/1357034X04047855","article-title":"Incorporating pharmakon: HIV, medicine and body shape change","volume":"10","author":"Persson","year":"2004","journal-title":"Body Soc."},{"issue":"6","key":"10.1016\/j.socscimed.2019.112620_bib31","doi-asserted-by":"crossref","first-page":"569","DOI":"10.1080\/01459740.2011.561456","article-title":"HIV-negativity in serodiscordant relationships: the absence, enactment, and liminality of serostatus identity","volume":"30","author":"Persson","year":"2011","journal-title":"Med. Anthropol."},{"issue":"2","key":"10.1016\/j.socscimed.2019.112620_bib32","doi-asserted-by":"crossref","first-page":"209","DOI":"10.1080\/17441692.2012.729219","article-title":"Notes on the concepts of \u201cserodiscordance\u201d and \u201crisk\u201d in couples with mixed HIV status","volume":"8","author":"Persson","year":"2013","journal-title":"Glob. Public Health"},{"issue":"2","key":"10.1016\/j.socscimed.2019.112620_bib33","doi-asserted-by":"crossref","first-page":"197","DOI":"10.1007\/s12119-015-9316-z","article-title":"Bridging the HIV divide: stigma, stories and serodiscordant sexuality in the biomedical age","volume":"20","author":"Persson","year":"2016","journal-title":"Sex. Cult."},{"key":"10.1016\/j.socscimed.2019.112620_bib34","series-title":"Cross-cultural Perspectives on Couples with Mixed HIV Status: beyond Positive\/Negative","author":"Persson","year":"2016"},{"key":"10.1016\/j.socscimed.2019.112620_bib35","series-title":"Interdisciplinary Perspectives on Infectious Diseases","article-title":"Families living with blood-borne viruses: the case for extending the concept of \u201cserodiscordance\u201d","author":"Persson","year":"2017"},{"issue":"5","key":"10.1016\/j.socscimed.2019.112620_bib36","doi-asserted-by":"crossref","first-page":"799","DOI":"10.1016\/j.socscimed.2008.05.010","article-title":"Vulnerability, gender and \u201cproxy negativity\u201d: HIV-negative women in serodiscordant relationships in Australia","volume":"67","author":"Persson","year":"2008","journal-title":"Soc. Sci. Med."},{"key":"10.1016\/j.socscimed.2019.112620_bib37","series-title":"Long Term","article-title":"A lifetime of drugs","author":"Race","year":"2019"},{"issue":"1","key":"10.1016\/j.socscimed.2019.112620_bib41","doi-asserted-by":"crossref","first-page":"1","DOI":"10.3402\/qhw.v9.21901","article-title":"Touch and relate: the body experience among staff in habilitation services","volume":"9","author":"R\u00e5smark","year":"2014","journal-title":"Int. J. Qual. Stud. Health Well-Being"},{"issue":"1","key":"10.1016\/j.socscimed.2019.112620_bib38","doi-asserted-by":"crossref","first-page":"3","DOI":"10.1177\/1363459316660859","article-title":"Practices of partnership: negotiated safety among couples who inject drugs","volume":"22","author":"Rance","year":"2018","journal-title":"Health"},{"key":"10.1016\/j.socscimed.2019.112620_bib39","doi-asserted-by":"crossref","first-page":"78","DOI":"10.1016\/j.drugalcdep.2016.12.020","article-title":"\u201cDon't think I'm going to leave you over it\u201d: accounts of changing hepatitis C status among couples who inject drugs","volume":"173","author":"Rance","year":"2017","journal-title":"Drug Alcohol Depend."},{"issue":"2","key":"10.1016\/j.socscimed.2019.112620_bib40","doi-asserted-by":"crossref","first-page":"98","DOI":"10.1080\/0145935X.2016.1104037","article-title":"What do we know about families where parents have a mental illness? A systematic review","volume":"37","author":"Reupert","year":"2016","journal-title":"Child. Youth Serv."},{"key":"10.1016\/j.socscimed.2019.112620_bib42","series-title":"Clinical Handbook of Health Psychology","first-page":"289","article-title":"Family, friends, and community: the role of social support in promoting health","author":"Rhodes","year":"2004"},{"issue":"2","key":"10.1016\/j.socscimed.2019.112620_bib43","doi-asserted-by":"crossref","first-page":"157","DOI":"10.1016\/S0277-9536(97)00156-1","article-title":"Drug users' sexual relationships and the social organisation of risk: the sexual relationship as a site of risk management","volume":"46","author":"Rhodes","year":"1998","journal-title":"Soc. Sci. Med."},{"issue":"2","key":"10.1016\/j.socscimed.2019.112620_bib44","doi-asserted-by":"crossref","first-page":"221","DOI":"10.1007\/s10865-011-9354-4","article-title":"The impact of family behaviors and communication patterns on chronic illness outcomes: a systematic review","volume":"35","author":"Rosland","year":"2012","journal-title":"J. Behav. Med."},{"issue":"8","key":"10.1016\/j.socscimed.2019.112620_bib45","doi-asserted-by":"crossref","first-page":"978","DOI":"10.1080\/09540120500101690","article-title":"Families living with HIV","volume":"17","author":"Rotheram-Borus","year":"2005","journal-title":"AIDS Care"},{"key":"10.1016\/j.socscimed.2019.112620_bib56","series-title":"Handbook of Phenomenology and Medicine","first-page":"1","article-title":"Grasping the existential anatomy: The role of bodily empathy in clinical communication","author":"Rudebeck","year":"2001"},{"issue":"1","key":"10.1016\/j.socscimed.2019.112620_bib46","doi-asserted-by":"crossref","first-page":"104","DOI":"10.1177\/1049732302012001008","article-title":"Reembodying qualitative inquiry","volume":"12","author":"Sandelowski","year":"2002","journal-title":"Qual. Health Res."},{"issue":"3","key":"10.1016\/j.socscimed.2019.112620_bib47","doi-asserted-by":"crossref","first-page":"272","DOI":"10.5172\/hesr.2012.21.3.272","article-title":"Rethinking safety and fidelity: the role of love and intimacy in hepatitis C transmission and prevention","volume":"21","author":"Seear","year":"2012","journal-title":"Health Sociol. Rev."},{"key":"10.1016\/j.socscimed.2019.112620_bib48","series-title":"The Affect Theory Reader","first-page":"1","article-title":"An inventory of shimmers","author":"Seigworth","year":"2010"},{"issue":"4","key":"10.1016\/j.socscimed.2019.112620_bib49","doi-asserted-by":"crossref","first-page":"549","DOI":"10.1007\/s11019-014-9544-2","article-title":"Multiple dimensions of embodiment in medical practices","volume":"17","author":"Slatman","year":"2014","journal-title":"Med. Healthc. Philos."},{"key":"10.1016\/j.socscimed.2019.112620_bib50","series-title":"Health, Illness and Disease: Philosophical Essays","first-page":"97","article-title":"What is phenomenology of medicine? Embodiment, illness and being-in-the-world","author":"Svenaeus","year":"2013"},{"key":"10.1016\/j.socscimed.2019.112620_bib51","series-title":"90-90-90: an Ambitious Treatment Target to Help End the AIDS Epidemic","author":"UNAIDS","year":"2014"},{"issue":"1","key":"10.1016\/j.socscimed.2019.112620_bib52","doi-asserted-by":"crossref","first-page":"129","DOI":"10.1177\/1357034X09354770","article-title":"Individuation, relationality, affect: rethinking the human in relation to the living","volume":"16","author":"Venn","year":"2010","journal-title":"Body Soc."},{"key":"10.1016\/j.socscimed.2019.112620_bib53","series-title":"Body Images: Embodiment as Intercorporeality","author":"Weiss","year":"1999"},{"key":"10.1016\/j.socscimed.2019.112620_bib54","series-title":"Eliminate Hepatitis","author":"WHO","year":"2017"},{"issue":"3","key":"10.1016\/j.socscimed.2019.112620_bib55","doi-asserted-by":"crossref","first-page":"398","DOI":"10.1016\/j.socscimed.2008.03.011","article-title":"\u201cFace\u201d and the embodiment of stigma in China: the cases of schizophrenia and AIDS","volume":"67","author":"Yang","year":"2008","journal-title":"Soc. Sci. Med."}],"container-title":["Social Science &amp; Medicine"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S027795361930615X?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S027795361930615X?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2025,10,3]],"date-time":"2025-10-03T15:24:54Z","timestamp":1759505094000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S027795361930615X"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2019,12]]},"references-count":58,"alternative-id":["S027795361930615X"],"URL":"https:\/\/doi.org\/10.1016\/j.socscimed.2019.112620","relation":{},"ISSN":["0277-9536"],"issn-type":[{"value":"0277-9536","type":"print"}],"subject":[],"published":{"date-parts":[[2019,12]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"The embodied relationality of blood-borne viruses: How families matter in the context of a stigmatised viral infection","name":"articletitle","label":"Article Title"},{"value":"Social Science & Medicine","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.socscimed.2019.112620","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2019 The Authors. Published by Elsevier Ltd.","name":"copyright","label":"Copyright"}],"article-number":"112620"}}