{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,3,26]],"date-time":"2026-03-26T09:20:31Z","timestamp":1774516831503,"version":"3.50.1"},"reference-count":45,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2023,12,1]],"date-time":"2023-12-01T00:00:00Z","timestamp":1701388800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2023,12,1]],"date-time":"2023-12-01T00:00:00Z","timestamp":1701388800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2023,11,8]],"date-time":"2023-11-08T00:00:00Z","timestamp":1699401600000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Social Science &amp; Medicine"],"published-print":{"date-parts":[[2023,12]]},"DOI":"10.1016\/j.socscimed.2023.116391","type":"journal-article","created":{"date-parts":[[2023,11,8]],"date-time":"2023-11-08T14:33:35Z","timestamp":1699454015000},"page":"116391","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":2,"special_numbering":"C","title":["Threat and adaptation: The maternal lived experience of continuing pregnancy after receiving a prenatal diagnosis of agenesis of the corpus callosum"],"prefix":"10.1016","volume":"339","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-4487-6429","authenticated-orcid":false,"given":"Pieta","family":"Shakes","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0001-6173-9114","authenticated-orcid":false,"given":"Andrew","family":"Cashin","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"John","family":"Hurley","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"78","reference":[{"key":"10.1016\/j.socscimed.2023.116391_bib1","doi-asserted-by":"crossref","first-page":"517","DOI":"10.1590\/1806-9304202200030005","article-title":"Post-traumatic stress disorder and congenital anomalies in prenatal care","volume":"22","author":"Aguiar","year":"2022","journal-title":"Rev. Bras. Sa\u00fade Materno Infant."},{"key":"10.1016\/j.socscimed.2023.116391_bib2","doi-asserted-by":"crossref","first-page":"471","DOI":"10.1016\/j.jpedsurg.2020.07.030","article-title":"Pediatric medical traumatic stress (PMTS) in parents of newborns with a congenital anomaly requiring surgery at birth","volume":"56","author":"Bevilacqua","year":"2021","journal-title":"J. Pediatr. Surg."},{"key":"10.1016\/j.socscimed.2023.116391_bib3","doi-asserted-by":"crossref","first-page":"117","DOI":"10.1006\/drev.2001.0539","article-title":"The life-course dynamics of goal pursuit and goal adjustment: a two-process framework","volume":"22","author":"Brandtst\u00e4dter","year":"2002","journal-title":"Dev. Rev."},{"key":"10.1016\/j.socscimed.2023.116391_bib4","doi-asserted-by":"crossref","first-page":"1328","DOI":"10.1017\/S1047951119001781","article-title":"Parental reactions, distress, and sense of coherence after prenatal versus postnatal diagnosis of complex congenital heart disease","volume":"29","author":"Bratt","year":"2019","journal-title":"Cardiol. Young"},{"key":"10.1016\/j.socscimed.2023.116391_bib5","series-title":"Thematic Analysis","author":"Braun","year":"2021"},{"key":"10.1016\/j.socscimed.2023.116391_bib6","doi-asserted-by":"crossref","first-page":"252","DOI":"10.1111\/medu.13414","article-title":"When I say ... hermeneutic phenomenology","volume":"52","author":"Bynum","year":"2018","journal-title":"Med. Educ."},{"key":"10.1016\/j.socscimed.2023.116391_bib7","doi-asserted-by":"crossref","first-page":"53","DOI":"10.1016\/j.midw.2017.02.010","article-title":"The emotional process from diagnosis to birth following a prenatal diagnosis of fetal anomaly: a qualitative study of messages in online discussion boards","volume":"48","author":"Carlsson","year":"2017","journal-title":"Midwifery"},{"key":"10.1016\/j.socscimed.2023.116391_bib8","series-title":"The Paradox of Subjectivity: the Self in the Transcendental Tradition","author":"Carr","year":"1999"},{"key":"10.1016\/j.socscimed.2023.116391_bib9","doi-asserted-by":"crossref","first-page":"100","DOI":"10.1016\/j.socscimed.2016.02.033","article-title":"\"Have no regrets:\" Parents' experiences and developmental tasks in pregnancy with a lethal fetal diagnosis","volume":"154","author":"C\u00f4t\u00e9-Arsenault","year":"2016","journal-title":"Soc. Sci. Med."},{"key":"10.1016\/j.socscimed.2023.116391_bib10","doi-asserted-by":"crossref","DOI":"10.1371\/journal.pone.0169907","article-title":"The impact of antenatal depression on perinatal outcomes in Australian women","volume":"12","author":"Eastwood","year":"2017","journal-title":"PLoS One"},{"key":"10.1016\/j.socscimed.2023.116391_bib11","unstructured":"FocusGroupIt. (n.d.). Focus groups made easy. (p. Online focus group platform)."},{"key":"10.1016\/j.socscimed.2023.116391_bib12","doi-asserted-by":"crossref","first-page":"320","DOI":"10.1080\/02646838.2011.634398","article-title":"Patterns of parental emotional reactions after a pre- or postnatal diagnosis of a congenital anomaly","volume":"29","author":"Fonseca","year":"2011","journal-title":"J. Reprod. Infant Psychol."},{"key":"10.1016\/j.socscimed.2023.116391_bib13","doi-asserted-by":"crossref","DOI":"10.1590\/1518-8345.2482.3080","article-title":"Anxiety of mothers of newborns with congenital malformations in the pre- and postnatal periods","volume":"26","author":"Fontoura","year":"2018","journal-title":"Rev. Lat. Am. Enfermagem."},{"key":"10.1016\/j.socscimed.2023.116391_bib14","series-title":"Truth and Method","author":"Gadamer","year":"1975"},{"key":"10.1016\/j.socscimed.2023.116391_bib15","doi-asserted-by":"crossref","first-page":"194","DOI":"10.1037\/1089-2680.8.3.194","article-title":"Social and individual coping with threats: outlines of an interdisciplinary approach","volume":"8","author":"Greve","year":"2004","journal-title":"Rev. Gen. Psychol."},{"key":"10.1016\/j.socscimed.2023.116391_bib16","doi-asserted-by":"crossref","first-page":"543","DOI":"10.1007\/s00737-018-0930-2","article-title":"A systematic review and meta-analysis of the effects of antenatal anxiety on postpartum outcomes","volume":"22","author":"Grigoriadis","year":"2019","journal-title":"Arch. Womens Ment. Health"},{"key":"10.1016\/j.socscimed.2023.116391_bib17","doi-asserted-by":"crossref","first-page":"320","DOI":"10.1027\/1016-9040\/a000463","article-title":"Assimilation and accommodation","volume":"27","author":"Hanfstingl","year":"2022","journal-title":"Eur. Psychol."},{"key":"10.1016\/j.socscimed.2023.116391_bib18","doi-asserted-by":"crossref","first-page":"521","DOI":"10.1080\/15298868.2015.1036919","article-title":"Worldview accommodation: selectively modifying committed beliefs provides defense against worldview threat","volume":"14","author":"Hayes","year":"2015","journal-title":"Self Ident."},{"key":"10.1016\/j.socscimed.2023.116391_bib19","series-title":"Being and Time","author":"Heidegger","year":"1927"},{"key":"10.1016\/j.socscimed.2023.116391_bib20","doi-asserted-by":"crossref","first-page":"1137","DOI":"10.1002\/pd.4207","article-title":"Maternal coping, appraisals and adjustment following diagnosis of fetal anomaly","volume":"33","author":"Horsch","year":"2013","journal-title":"Prenat. Diagn."},{"key":"10.1016\/j.socscimed.2023.116391_bib21","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1097\/jnr.0b013e3182828dbd","article-title":"A qualitative study of psychosocial factors affecting expecting mothers who choose to continue a cleft lip and\/or palate pregnancy to term","volume":"21","author":"Hsieh","year":"2013","journal-title":"J. Nurs. Res."},{"key":"10.1016\/j.socscimed.2023.116391_bib22","series-title":"The Routledge International Handbook of Children\u2019s Rights and Disability","first-page":"263","article-title":"Babies with disabilities and their entitlement to imagined hopeful futures","author":"Johnson","year":"2023"},{"key":"10.1016\/j.socscimed.2023.116391_bib23","doi-asserted-by":"crossref","first-page":"191","DOI":"10.1080\/17496535.2023.2206671","article-title":"\u2018It's all public anyway\u2019: a collaborative navigation of anonymity and informed consent in a study with identifiable parent carers","volume":"17","author":"Joseph","year":"2023","journal-title":"Ethics Soc. Welfare"},{"key":"10.1016\/j.socscimed.2023.116391_bib24","doi-asserted-by":"crossref","DOI":"10.1016\/j.ppedcard.2019.101142","article-title":"Heart care before birth: a psychobiological perspective on fetal cardiac diagnosis","volume":"54","author":"Kasparian","year":"2019","journal-title":"Prog. Pediatr. Cardiol."},{"key":"10.1016\/j.socscimed.2023.116391_bib25","doi-asserted-by":"crossref","first-page":"263","DOI":"10.1097\/HRP.0000000000000065","article-title":"Fear and the defense cascade: clinical implications and management","volume":"23","author":"Kozlowska","year":"2015","journal-title":"Harv. Rev. Psychiatr."},{"key":"10.1016\/j.socscimed.2023.116391_bib26","doi-asserted-by":"crossref","first-page":"474","DOI":"10.1111\/bju.13668","article-title":"Parents' perceptions of counselling following prenatal diagnosis of congenital anomalies of the kidney and urinary tract: a qualitative study","volume":"119","author":"Marokakis","year":"2017","journal-title":"BJU Int."},{"key":"10.1016\/j.socscimed.2023.116391_bib27","doi-asserted-by":"crossref","first-page":"1182","DOI":"10.1177\/1049732314553852","article-title":"Preparing heart and mind for becoming a parent following a diagnosis of fetal anomaly","volume":"25","author":"McKechnie","year":"2015","journal-title":"Qual. Health Res."},{"key":"10.1016\/j.socscimed.2023.116391_bib28","doi-asserted-by":"crossref","first-page":"74","DOI":"10.1177\/1074840715616603","article-title":"Walking the \u201cemotional tightrope\u201d from pregnancy to parenthood","volume":"22","author":"McKechnie","year":"2015","journal-title":"J. Fam. Nurs."},{"key":"10.1016\/j.socscimed.2023.116391_bib29","doi-asserted-by":"crossref","first-page":"332","DOI":"10.1002\/bdr2.1651","article-title":"Is preparation a good reason for prenatal genetic testing? Ethical and critical questions","volume":"112","author":"Michie","year":"2020","journal-title":"Birth Defects Res."},{"key":"10.1016\/j.socscimed.2023.116391_bib30","series-title":"Introduction to Phenomenology","author":"Moran","year":"2000"},{"key":"10.1016\/j.socscimed.2023.116391_bib31","article-title":"Potential benefits of prenatal diagnosis of TGA in Australia may be outweighed by the adverse effects of earlier delivery: likely causation and potential solutions","author":"Namachivayam","year":"2023","journal-title":"Arch. Dis. Child."},{"key":"10.1016\/j.socscimed.2023.116391_bib32","doi-asserted-by":"crossref","first-page":"906","DOI":"10.1177\/2374373520951672","article-title":"Understanding the patient experience: a conceptual framework","volume":"7","author":"Oben","year":"2020","journal-title":"J. Patient Exp."},{"key":"10.1016\/j.socscimed.2023.116391_bib33","doi-asserted-by":"crossref","first-page":"1291","DOI":"10.1111\/aogs.14453","article-title":"The impact of diagnosed fetal anomaly, diagnostic severity and prognostic ambiguity on parental depression and traumatic stress: a prospective longitudinal cohort study","volume":"101","author":"Oftedal","year":"2022","journal-title":"Acta Obstet. Gynecol. Scand."},{"key":"10.1016\/j.socscimed.2023.116391_bib34","unstructured":"Otter.ai (n.d.). Otter.ai. (p. Automated transcription)."},{"key":"10.1016\/j.socscimed.2023.116391_bib35","series-title":"Neurobiology and Treatment of Traumatic Dissociation: towards an Embodied Self","article-title":"Introduction: the ubiquity of dissociation","author":"Paulsen","year":"2014"},{"key":"10.1016\/j.socscimed.2023.116391_bib36","doi-asserted-by":"crossref","DOI":"10.1111\/jocn.16777","article-title":"Exploring continuity of care for women with prenatal diagnosis of congenital anomaly: a mixed method study","author":"Psaila","year":"2023","journal-title":"J. Clin. Nurs."},{"key":"10.1016\/j.socscimed.2023.116391_bib37","series-title":"NVivo","year":"2018"},{"key":"10.1016\/j.socscimed.2023.116391_bib38","doi-asserted-by":"crossref","first-page":"447","DOI":"10.1007\/s00234-010-0696-3","article-title":"The corpus callosum, the other great forebrain commissures, and the septum pellucidum: anatomy, development, and malformation","volume":"52","author":"Raybaud","year":"2010","journal-title":"Neuroradiology"},{"key":"10.1016\/j.socscimed.2023.116391_bib39","doi-asserted-by":"crossref","first-page":"302","DOI":"10.1016\/j.jpeds.2012.07.023","article-title":"Maternal psychological stress after prenatal diagnosis of congenital heart disease","volume":"162","author":"Rychik","year":"2013","journal-title":"J. Pediatr."},{"key":"10.1016\/j.socscimed.2023.116391_bib40","doi-asserted-by":"crossref","first-page":"423","DOI":"10.1016\/j.jogn.2020.06.003","article-title":"Scoping review of the prenatal diagnosis of agenesis of the corpus callosum","volume":"49","author":"Shakes","year":"2020","journal-title":"J. Obstet. Gynecol. Neonatal Nurs."},{"key":"10.1016\/j.socscimed.2023.116391_bib41","doi-asserted-by":"crossref","DOI":"10.3390\/jcm12113623","article-title":"Unravelling the clinical Co-morbidity and risk factors associated with agenesis of the corpus callosum","volume":"12","author":"Smith","year":"2023","journal-title":"J. Clin. Med."},{"key":"10.1016\/j.socscimed.2023.116391_bib42","doi-asserted-by":"crossref","first-page":"349","DOI":"10.1093\/intqhc\/mzm042","article-title":"Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups","volume":"19","author":"Tong","year":"2007","journal-title":"Int. J. Qual. Health Care"},{"key":"10.1016\/j.socscimed.2023.116391_bib43","doi-asserted-by":"crossref","first-page":"705","DOI":"10.1080\/2159676X.2020.1840423","article-title":"Developing the craft: reflexive accounts of doing reflexive thematic analysis","volume":"13","author":"Trainor","year":"2020","journal-title":"Qualitat. Res. Sport Exer. Health"},{"key":"10.1016\/j.socscimed.2023.116391_bib44","doi-asserted-by":"crossref","first-page":"367","DOI":"10.1177\/160940691101000405","article-title":"Philosophical hermeneutic interviewing","volume":"10","author":"Vandermause","year":"2011","journal-title":"Int. J. Qual. Methods"},{"key":"10.1016\/j.socscimed.2023.116391_bib45","doi-asserted-by":"crossref","first-page":"778","DOI":"10.1111\/chd.12777","article-title":"Parental anxiety before invasive cardiac procedure in children with congenital heart disease: contributing factors and consequences","volume":"14","author":"Werner","year":"2019","journal-title":"Congenit. Heart Dis."}],"container-title":["Social Science &amp; Medicine"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0277953623007487?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0277953623007487?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2025,10,3]],"date-time":"2025-10-03T16:03:15Z","timestamp":1759507395000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S0277953623007487"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2023,12]]},"references-count":45,"alternative-id":["S0277953623007487"],"URL":"https:\/\/doi.org\/10.1016\/j.socscimed.2023.116391","relation":{},"ISSN":["0277-9536"],"issn-type":[{"value":"0277-9536","type":"print"}],"subject":[],"published":{"date-parts":[[2023,12]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Threat and adaptation: The maternal lived experience of continuing pregnancy after receiving a prenatal diagnosis of agenesis of the corpus callosum","name":"articletitle","label":"Article Title"},{"value":"Social Science & Medicine","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.socscimed.2023.116391","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2023 The Authors. Published by Elsevier Ltd.","name":"copyright","label":"Copyright"}],"article-number":"116391"}}