{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,26]],"date-time":"2026-09-26T06:14:54Z","timestamp":1790403294845,"version":"4.1.0"},"reference-count":42,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2024,12,1]],"date-time":"2024-12-01T00:00:00Z","timestamp":1733011200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2024,12,1]],"date-time":"2024-12-01T00:00:00Z","timestamp":1733011200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2024,11,15]],"date-time":"2024-11-15T00:00:00Z","timestamp":1731628800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100005275","name":"Region Hovedstaden","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100005275","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/501100009708","name":"Novo Nordisk Fonden","doi-asserted-by":"publisher","id":[{"id":"10.13039\/501100009708","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100012774","name":"Innovation Fund Denmark","doi-asserted-by":"publisher","award":["9163-00016B"],"award-info":[{"award-number":["9163-00016B"]}],"id":[{"id":"10.13039\/100012774","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Social Science & Medicine"],"published-print":{"date-parts":[[2024,12]]},"DOI":"10.1016\/j.socscimed.2024.117480","type":"journal-article","created":{"date-parts":[[2024,11,5]],"date-time":"2024-11-05T16:57:52Z","timestamp":1730825872000},"page":"117480","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":6,"special_numbering":"C","title":["\u2018Online boundary-work\u2019: How people with diabetes negotiate what counts as legitimate knowledge in Facebook peer support groups"],"prefix":"10.1016","volume":"363","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-1426-0765","authenticated-orcid":false,"given":"Emilie M\u00f8lholm","family":"Kj\u00e6rulff","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Mette Andersen","family":"Nex\u00f8","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Chrysanthi","family":"Papoutsi","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Henriette","family":"Langstrup","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"key":"10.1016\/j.socscimed.2024.117480_bib1","doi-asserted-by":"crossref","first-page":"116","DOI":"10.5153\/sro.2152","article-title":"From communities of practice to epistemic communities: health mobilizations on the internet","volume":"15","author":"Akrich","year":"2010","journal-title":"Socio. Res. Online"},{"key":"10.1016\/j.socscimed.2024.117480_bib2","first-page":"347","article-title":"\u201cOh dear, should I really be saying that on here?\u201d: issues of identity and authority in an online diabetes community","volume":"16","author":"Armstrong","year":"2012","journal-title":"Health (United Kingdom)"},{"key":"10.1016\/j.socscimed.2024.117480_bib3","doi-asserted-by":"crossref","first-page":"20","DOI":"10.1177\/002214650804900103","article-title":"Electronic support groups, patient-consumers, and medicalization: the case of contested illness","volume":"49","author":"Barker","year":"2008","journal-title":"J. Health Soc. Behav."},{"key":"10.1016\/j.socscimed.2024.117480_bib4","doi-asserted-by":"crossref","first-page":"1","DOI":"10.2196\/28352","article-title":"Youtube videos and informed decision-making about covid-19 vaccination: successive sampling study","volume":"7","author":"Basch","year":"2021","journal-title":"JMIR Public Health Surveill"},{"key":"10.1016\/j.socscimed.2024.117480_bib5","doi-asserted-by":"crossref","first-page":"507","DOI":"10.1080\/1369118X.2018.1518474","article-title":"Becoming the expert constructing health knowledge in epistemic communities online","volume":"23","author":"Bellander","year":"2020","journal-title":"Inf. Commun. Soc."},{"key":"10.1016\/j.socscimed.2024.117480_bib6","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1186\/s12939-021-01528-w","article-title":"Does higher health literacy lead to higher trust in public hospitals?","volume":"20","author":"Bertram","year":"2021","journal-title":"Int. J. Equity Health"},{"key":"10.1016\/j.socscimed.2024.117480_bib7","doi-asserted-by":"crossref","first-page":"445","DOI":"10.1086\/643401","article-title":"Experiential knowledge: a analysis of self-help groups","volume":"50","author":"Borkman","year":"1976","journal-title":"Soc. Serv. Rev."},{"key":"10.1016\/j.socscimed.2024.117480_bib8","doi-asserted-by":"crossref","first-page":"50","DOI":"10.1111\/j.1467-9566.2004.00378.x","article-title":"Embodied health movements: new approaches to social movements in health","volume":"26","author":"Brown","year":"2004","journal-title":"Sociol. Health Illness"},{"key":"10.1016\/j.socscimed.2024.117480_bib9","doi-asserted-by":"crossref","DOI":"10.2196\/jmir.5051","article-title":"Health advice from internet discussion forums: how bad is dangerous?","volume":"18","author":"Cole","year":"2016","journal-title":"J. Med. Internet Res."},{"key":"10.1016\/j.socscimed.2024.117480_bib10","doi-asserted-by":"crossref","first-page":"408","DOI":"10.1177\/016224399502000402","article-title":"The Construction of Lay Expertise: AIDS Activism and the Forging of Credibility in the Reform of Clinical Trials","volume":"20","author":"Epstein","year":"1995","journal-title":"Sci. Technol. Human Values"},{"key":"10.1016\/j.socscimed.2024.117480_bib11","doi-asserted-by":"crossref","first-page":"781","DOI":"10.2307\/2095325","article-title":"Boundary-work and the demarcation of science from non-science : strains and interests in professional ideologies of scientists author (s): Thomas F","volume":"48","author":"Gieryn","year":"1983","journal-title":"Am. Socio. Rev."},{"key":"10.1016\/j.socscimed.2024.117480_bib12","doi-asserted-by":"crossref","first-page":"287","DOI":"10.1007\/s11606-010-1526-3","article-title":"Online social networking by patients with diabetes: a qualitative evaluation of communication with Facebook","volume":"26","author":"Greene","year":"2011","journal-title":"J. Gen. Intern. Med."},{"key":"10.1016\/j.socscimed.2024.117480_bib13","doi-asserted-by":"crossref","DOI":"10.1017\/S0020818300001442","article-title":"Introduction: epistemic communities and international policy coordination","author":"Haas","year":"1992","journal-title":"Int. Organ."},{"key":"10.1016\/j.socscimed.2024.117480_bib43","series-title":"Ethnography for the Internet: Embedded, Embodied and Everyday","author":"Hine","year":"2015"},{"key":"10.1016\/j.socscimed.2024.117480_bib15","doi-asserted-by":"crossref","first-page":"1277","DOI":"10.1177\/1049732305276687","article-title":"Three approaches to qualitative content analysis","volume":"15","author":"Hsieh","year":"2005","journal-title":"Qual. Health Res."},{"key":"10.1016\/j.socscimed.2024.117480_bib16","doi-asserted-by":"crossref","first-page":"53","DOI":"10.1177\/01622439231170443","article-title":"Digitized patients: elaborative tinkering and knowledge practices in the open-source type 1 diabetes \u201clooper community.\u201d","volume":"49","author":"Jansky","year":"2024","journal-title":"Sci. Technol. Hum. Val."},{"key":"10.1016\/j.socscimed.2024.117480_bib17","first-page":"152","article-title":"The tinkering m-patient: Co-constructing knowledge on how to live with type 1 diabetes through Facebook searching and sharing and offline tinkering with self-care","volume":"24","author":"Kingod","year":"2020","journal-title":"Health (United Kingdom)"},{"key":"10.1016\/j.socscimed.2024.117480_bib42","doi-asserted-by":"crossref","DOI":"10.1016\/j.socscimed.2023.115756","article-title":"From \u2018parallel world\u2019 to \u2018trading zone\u2019: How diabetes-related information from social media is (not) discussed in clinical consultations","volume":"320","author":"Kj\u00e6rulff","year":"2023","journal-title":"Soc. Sci. Med."},{"key":"10.1016\/j.socscimed.2024.117480_bib18","doi-asserted-by":"crossref","DOI":"10.1016\/j.socscimed.2023.115807","article-title":"Ethical considerations and methodological uses of Facebook data in public health research: a systematic review","volume":"322","author":"Lathan","year":"2023","journal-title":"Soc. Sci. Med."},{"key":"10.1016\/j.socscimed.2024.117480_bib19","series-title":"The Pasteurization of France","author":"Latour","year":"1993"},{"key":"10.1016\/j.socscimed.2024.117480_bib20","doi-asserted-by":"crossref","first-page":"518","DOI":"10.1016\/j.pec.2017.08.023","article-title":"The diabetes online community: older adults supporting self-care through peer health","volume":"101","author":"Litchman","year":"2018","journal-title":"Patient Educ. Counsel."},{"key":"10.1016\/j.socscimed.2024.117480_bib21","doi-asserted-by":"crossref","first-page":"1637","DOI":"10.1111\/1467-9566.12982","article-title":"\u2018Keeping it real\u2019: women's enactments of lay health knowledges and expertise on Facebook","volume":"41","author":"Maslen","year":"2019","journal-title":"Sociol. Health Illness"},{"key":"10.1016\/j.socscimed.2024.117480_bib22","doi-asserted-by":"crossref","first-page":"546","DOI":"10.1016\/j.socscimed.2011.10.036","article-title":"Being differently the same: the mediation of identity tensions in the sharing of illness experiences","volume":"74","author":"Mazanderani","year":"2012","journal-title":"Soc. Sci. Med."},{"key":"10.1016\/j.socscimed.2024.117480_bib23","doi-asserted-by":"crossref","first-page":"267","DOI":"10.1332\/174426420X15808912561112","article-title":"Knowledge, evidence, expertise? The epistemics of experience in contemporary healthcare","volume":"16","author":"Mazanderani","year":"2020","journal-title":"Evidence and Policy"},{"key":"10.1016\/j.socscimed.2024.117480_bib24","doi-asserted-by":"crossref","first-page":"420","DOI":"10.1016\/j.pec.2013.06.006","article-title":"\u201cPeople power\u201d or \u201cpester power\u201d? YouTube as a forum for the generation of evidence and patient advocacy","volume":"93","author":"Mazanderani","year":"2013","journal-title":"Patient Educ. Counsel."},{"key":"10.1016\/j.socscimed.2024.117480_bib25","doi-asserted-by":"crossref","first-page":"43","DOI":"10.1177\/1357034X04042932","article-title":"Embodied action, enacted bodies: the example of hypoglycaemia","volume":"10","author":"Mol","year":"2004","journal-title":"Body Soc."},{"key":"10.1016\/j.socscimed.2024.117480_bib26","doi-asserted-by":"crossref","first-page":"862","DOI":"10.1111\/1467-9566.13066","article-title":"Stratified users and technologies of empowerment: theorising social inequalities in the use and perception of diabetes self-management technologies","volume":"42","author":"\u00d8versveen","year":"2020","journal-title":"Sociol. Health Illness"},{"key":"10.1016\/j.socscimed.2024.117480_bib27","doi-asserted-by":"crossref","first-page":"1441","DOI":"10.1111\/1467-9566.13117","article-title":"Feeling less alone online: patients' ambivalent engagements with digital media","volume":"42","author":"Petersen","year":"2020","journal-title":"Sociol. Health Illness"},{"key":"10.1016\/j.socscimed.2024.117480_bib28","doi-asserted-by":"crossref","first-page":"146","DOI":"10.1016\/j.socscimed.2018.07.043","article-title":"Between empowerment and self-discipline: governing patients' conduct through technological self-care","volume":"213","author":"Petrakaki","year":"2018","journal-title":"Soc. Sci. Med."},{"key":"10.1016\/j.socscimed.2024.117480_bib29","doi-asserted-by":"crossref","first-page":"735","DOI":"10.1080\/01459740.2020.1717489","article-title":"The everyday politics of risk: managing diabetes in Fiji","volume":"39","author":"Phillips","year":"2020","journal-title":"Med. Anthropol.: Cross Cultural Studies in Health and Illness"},{"key":"10.1016\/j.socscimed.2024.117480_bib30","doi-asserted-by":"crossref","first-page":"261","DOI":"10.1080\/14461242.2019.1658537","article-title":"\u2018Mostly accurate with occasional piles of bullshit\u2019: patient \u2018boundary-work\u2019 in an online scientific controversy","volume":"28","author":"Phillips","year":"2019","journal-title":"Health Sociol. Rev."},{"key":"10.1016\/j.socscimed.2024.117480_bib31","doi-asserted-by":"crossref","first-page":"73","DOI":"10.1177\/0162243913504306","article-title":"Knowing patients: turning patient knowledge into science","volume":"39","author":"Pols","year":"2014","journal-title":"Sci. Technol. Hum. Val."},{"key":"10.1016\/j.socscimed.2024.117480_bib32","doi-asserted-by":"crossref","first-page":"974","DOI":"10.1177\/1932296819850187","article-title":"Supporting good intentions with good evidence: how to increase the benefits of diabetes social media","volume":"13","author":"Reidy","year":"2019","journal-title":"J. Diabetes Sci. Technol."},{"key":"10.1016\/j.socscimed.2024.117480_bib33","doi-asserted-by":"crossref","DOI":"10.1177\/14034948231219725","article-title":"Ethical dilemmas in conducting qualitative, public health research on social media: using a study on Facebook as a case","author":"S\u00f8rensen","year":"2024","journal-title":"Scand. J. Publ. Health"},{"key":"10.1016\/j.socscimed.2024.117480_bib34","doi-asserted-by":"crossref","first-page":"433","DOI":"10.1146\/annurev-publhealth-040119-094127","article-title":"Public health and online misinformation: challenges and recommendations","volume":"41","author":"Swire-Thompson","year":"2019","journal-title":"Annu. Rev. Publ. Health"},{"key":"10.1016\/j.socscimed.2024.117480_bib35","doi-asserted-by":"crossref","first-page":"676","DOI":"10.1016\/j.jbusres.2020.02.025","article-title":"Ethical considerations and challenges for using digital ethnography to research vulnerable populations","volume":"124","author":"Thompson","year":"2021","journal-title":"J. Bus. Res."},{"key":"10.1016\/j.socscimed.2024.117480_bib36","doi-asserted-by":"crossref","first-page":"167","DOI":"10.1177\/0735275112457914","article-title":"Theory construction in qualitative research: from grounded theory to abductive analysis","volume":"30","author":"Timmermans","year":"2012","journal-title":"Socio. Theor."},{"key":"10.1016\/j.socscimed.2024.117480_bib37","first-page":"1","article-title":"Empowerment of patients in online discussions about medicine use Clinical decision-making, knowledge support systems, and theory","volume":"15","author":"Van Berkel","year":"2015","journal-title":"BMC Med. Inf. Decis. Making"},{"key":"10.1016\/j.socscimed.2024.117480_bib38","doi-asserted-by":"crossref","first-page":"957","DOI":"10.1111\/j.1467-9566.2007.01024.x","article-title":"\u201cNo one agrees except for those of us who have it\u201d: endometriosis patients as an epistemological community","volume":"29","author":"Whelan","year":"2007","journal-title":"Sociol. Health Illness"},{"key":"10.1016\/j.socscimed.2024.117480_bib39","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1136\/bmjgh-2020-004206","article-title":"Social media and vaccine hesitancy","volume":"5","author":"Wilson","year":"2020","journal-title":"BMJ Glob. Health"},{"key":"10.1016\/j.socscimed.2024.117480_bib40","doi-asserted-by":"crossref","first-page":"1783","DOI":"10.1016\/j.socscimed.2004.02.019","article-title":"The importance of being expert: the quest for cancer information on the Internet","volume":"59","author":"Ziebland","year":"2004","journal-title":"Soc. Sci. Med."},{"key":"10.1016\/j.socscimed.2024.117480_bib41","first-page":"1654","article-title":"Do not use this hashtag: fat acceptance (Mis)information and discursive boundary-work as content moderation on Instagram","volume":"17","author":"Zimdars","year":"2023","journal-title":"Int. J. Commun."}],"container-title":["Social Science & Medicine"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0277953624009341?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0277953624009341?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2025,5,1]],"date-time":"2025-05-01T08:48:41Z","timestamp":1746089321000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S0277953624009341"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,12]]},"references-count":42,"alternative-id":["S0277953624009341"],"URL":"https:\/\/doi.org\/10.1016\/j.socscimed.2024.117480","relation":{},"ISSN":["0277-9536"],"issn-type":[{"value":"0277-9536","type":"print"}],"subject":[],"published":{"date-parts":[[2024,12]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"\u2018Online boundary-work\u2019: How people with diabetes negotiate what counts as legitimate knowledge in Facebook peer support groups","name":"articletitle","label":"Article Title"},{"value":"Social Science & Medicine","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.socscimed.2024.117480","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2024 The Authors. Published by Elsevier Ltd.","name":"copyright","label":"Copyright"}],"article-number":"117480"}}