{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,2]],"date-time":"2026-10-02T20:07:00Z","timestamp":1790971620991,"version":"4.1.0"},"reference-count":48,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2025,2,1]],"date-time":"2025-02-01T00:00:00Z","timestamp":1738368000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2025,2,1]],"date-time":"2025-02-01T00:00:00Z","timestamp":1738368000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2025,1,22]],"date-time":"2025-01-22T00:00:00Z","timestamp":1737504000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100000925","name":"National Health and Medical Research Council","doi-asserted-by":"publisher","award":["APP1043133"],"award-info":[{"award-number":["APP1043133"]}],"id":[{"id":"10.13039\/501100000925","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Social Science &amp; Medicine"],"published-print":{"date-parts":[[2025,2]]},"DOI":"10.1016\/j.socscimed.2025.117751","type":"journal-article","created":{"date-parts":[[2025,1,22]],"date-time":"2025-01-22T19:50:43Z","timestamp":1737575443000},"page":"117751","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":7,"special_numbering":"C","title":["Ethical issues in conducting health research with people in prison: Results of a deliberative research project conducted with people in Australian prisons"],"prefix":"10.1016","volume":"367","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-1947-8923","authenticated-orcid":false,"given":"Paul Leslie","family":"Simpson","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jill","family":"Guthrie","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jocelyn","family":"Jones","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Bridget","family":"Haire","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-2679-2769","authenticated-orcid":false,"given":"Tony","family":"Butler","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"key":"10.1016\/j.socscimed.2025.117751_bib1","series-title":"Engaging with Ethics in International Criminological Research","author":"Adorjan","year":"2016"},{"key":"10.1016\/j.socscimed.2025.117751_bib2","series-title":"Corrective Services, Australia, March Quarter 2019","year":"2019"},{"key":"10.1016\/j.socscimed.2025.117751_bib3","series-title":"Corrective Services, Australia, Septemner Quarter 2024","year":"2024"},{"key":"10.1016\/j.socscimed.2025.117751_bib4","series-title":"The Health of Australia's Prisoners 2018","year":"2019"},{"key":"10.1016\/j.socscimed.2025.117751_bib5","series-title":"A Future beyond the Wall: Improving Post-release Employment Outcomes for People Leaving Prison","author":"Baldry","year":"2018"},{"issue":"1","key":"10.1016\/j.socscimed.2025.117751_bib6","doi-asserted-by":"crossref","first-page":"30","DOI":"10.1001\/jama.2024.22530","article-title":"The 2024 revision to the Declaration of Helsinki: modern ethics for medical research","volume":"333","author":"Bibbins-Domingo","year":"2025","journal-title":"JAMA"},{"issue":"3","key":"10.1016\/j.socscimed.2025.117751_bib7","doi-asserted-by":"crossref","first-page":"353","DOI":"10.1177\/1468794112469624","article-title":"Deliberative research as a tool to make value judgements","volume":"14","author":"Burchardt","year":"2014","journal-title":"Qual. Res."},{"issue":"4","key":"10.1016\/j.socscimed.2025.117751_bib8","doi-asserted-by":"crossref","first-page":"246","DOI":"10.1136\/medethics-2012-101059","article-title":"Prisoners as research participants: current practice and attitudes in the UK","volume":"42","author":"Charles","year":"2016","journal-title":"J. Med. Ethics"},{"key":"10.1016\/j.socscimed.2025.117751_bib10","doi-asserted-by":"crossref","first-page":"166","DOI":"10.1016\/j.socscimed.2017.03.003","article-title":"Influencing health policy through public deliberation: lessons learned from two decades of citizens'\/community juries","volume":"179","author":"Degeling","year":"2017","journal-title":"Soc. Sci. Med."},{"issue":"4","key":"10.1016\/j.socscimed.2025.117751_bib11","doi-asserted-by":"crossref","first-page":"224","DOI":"10.1111\/j.1467-8519.2008.00634.x","article-title":"Research involving prisoners: consensus and controversies in international and European regulations","volume":"22","author":"Elger","year":"2008","journal-title":"Bioethics"},{"issue":"9769","key":"10.1016\/j.socscimed.2025.117751_bib12","doi-asserted-by":"crossref","first-page":"956","DOI":"10.1016\/S0140-6736(10)61053-7","article-title":"The health of prisoners","volume":"377","author":"Fazel","year":"2011","journal-title":"Lancet"},{"issue":"9","key":"10.1016\/j.socscimed.2025.117751_bib13","doi-asserted-by":"crossref","first-page":"871","DOI":"10.1016\/S2215-0366(16)30142-0","article-title":"Mental health of prisoners: prevalence, adverse outcomes, and interventions","volume":"3","author":"Fazel","year":"2016","journal-title":"Lancet Psychiatr."},{"issue":"5","key":"10.1016\/j.socscimed.2025.117751_bib14","doi-asserted-by":"crossref","first-page":"937","DOI":"10.1111\/add.14106","article-title":"Incidence and risk factors for mortality after release from prison in Australia: a prospective cohort study","volume":"113","author":"Forsyth","year":"2018","journal-title":"Addiction"},{"issue":"1","key":"10.1016\/j.socscimed.2025.117751_bib15","first-page":"14","article-title":"Setting the rules: the development of the NHMRC guidelines on ethical matters in Aboriginal and Torres Strait Islander health research","volume":"4","author":"Humphery","year":"2003","journal-title":"N. Z. Bioeth. J."},{"issue":"4","key":"10.1016\/j.socscimed.2025.117751_bib16","doi-asserted-by":"crossref","first-page":"191","DOI":"10.1111\/j.1467-8519.2008.00631.x","article-title":"Vulnerability in research and health care; describing the elephant in the room?","volume":"22","author":"Hurst","year":"2008","journal-title":"Bioethics"},{"key":"10.1016\/j.socscimed.2025.117751_bib17","series-title":"Institute of Medicine (US) Committee on Ethical Considerations for Revisions to DHHS Regulations for Protection of Prisoners Involved in Research","article-title":"Ethical considerations for research involving prisoners","year":"2007"},{"key":"10.1016\/j.socscimed.2025.117751_bib18","series-title":"Ethics and the Governance of Criminological Research in Australia","author":"Israel","year":"2004"},{"key":"10.1016\/j.socscimed.2025.117751_bib19","series-title":"Engaging with Ethics in International Criminological Research","first-page":"69","article-title":"A history of coercive practices: the abuse of consent in research involving prisoners and prisons in the United States","author":"Israel","year":"2016"},{"issue":"4","key":"10.1016\/j.socscimed.2025.117751_bib20","doi-asserted-by":"crossref","first-page":"26","DOI":"10.1353\/hcr.0.0164","article-title":"The ethics of altruism in clinical research","volume":"39","author":"Jansen","year":"2009","journal-title":"Hastings Cent. Rep."},{"key":"10.1016\/j.socscimed.2025.117751_bib21","series-title":"Network Patient Health Survey, 2015","year":"2017"},{"issue":"4","key":"10.1016\/j.socscimed.2025.117751_bib22","doi-asserted-by":"crossref","first-page":"290","DOI":"10.1111\/j.1369-7625.2004.00295.x","article-title":"Grounded citizens' juries: a tool for health activism?","volume":"7","author":"Kashefi","year":"2004","journal-title":"Health Expect."},{"issue":"4","key":"10.1016\/j.socscimed.2025.117751_bib23","doi-asserted-by":"crossref","first-page":"437","DOI":"10.20507\/AlterNative.2016.12.4.8","article-title":"Research, ethics and Indigenous peoples: an Australian Indigenous perspective on three threshold considerations for respectful engagement","volume":"12","author":"Kwaymullina","year":"2016","journal-title":"Alternative"},{"key":"10.1016\/j.socscimed.2025.117751_bib24","doi-asserted-by":"crossref","first-page":"9","DOI":"10.1186\/s40352-016-0040-z","article-title":"Unlocking dimensions of social capital in the prison setting","volume":"4","author":"Lafferty","year":"2016","journal-title":"Health Justice"},{"issue":"6","key":"10.1016\/j.socscimed.2025.117751_bib25","doi-asserted-by":"crossref","first-page":"333","DOI":"10.1111\/bioe.12032","article-title":"Vulnerability in research ethics: a way forward","volume":"27","author":"Lange","year":"2013","journal-title":"Bioethics"},{"issue":"7400","key":"10.1016\/j.socscimed.2025.117751_bib26","doi-asserted-by":"crossref","first-page":"1167","DOI":"10.1136\/bmj.326.7400.1167","article-title":"Pharmaceutical industry sponsorship and research outcome and quality: systematic review","volume":"326","author":"Lexchin","year":"2003","journal-title":"BMJ"},{"issue":"1","key":"10.1016\/j.socscimed.2025.117751_bib27","doi-asserted-by":"crossref","first-page":"121","DOI":"10.3138\/ijfab.2.1.121","article-title":"Elucidating the concept of vulnerability: layers not labels","volume":"2","author":"Luna","year":"2009","journal-title":"Int. J. Fem. Approaches to Bioethics"},{"key":"10.1016\/j.socscimed.2025.117751_bib28","doi-asserted-by":"crossref","first-page":"E38","DOI":"10.5888\/pcd13.150473","article-title":"Dissemination as dialogue: building trust and sharing research findings through community engagement","volume":"13","author":"McDavitt","year":"2016","journal-title":"Prev. Chronic Dis."},{"issue":"3","key":"10.1016\/j.socscimed.2025.117751_bib29","doi-asserted-by":"crossref","first-page":"233","DOI":"10.1017\/cts.2020.9","article-title":"Communicating and disseminating research findings to study participants: formative assessment of participant and researcher expectations and preferences","volume":"4","author":"Melvin","year":"2020","journal-title":"J. Clin. Transl. Sci."},{"issue":"1","key":"10.1016\/j.socscimed.2025.117751_bib30","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1016\/j.comppsych.2003.09.009","article-title":"Coercion and informed consent in research involving prisoners","volume":"45","author":"Moser","year":"2004","journal-title":"Compr. Psychiatr."},{"key":"10.1016\/j.socscimed.2025.117751_bib31","series-title":"The Belmont Report: Ethical Principles and Guidelines for the Protection of Human Subjects of Research","year":"1978"},{"key":"10.1016\/j.socscimed.2025.117751_bib32","series-title":"National Statement on Ethical Conduct in Human Research 2023","year":"2023"},{"key":"10.1016\/j.socscimed.2025.117751_bib33","series-title":"45 CFR 46 Subpart C \u2014 Additional Protections Pertaining to Biomedical and Behavioral Research Involving Prisoners as Subjects","year":"2021"},{"issue":"5","key":"10.1016\/j.socscimed.2025.117751_bib34","doi-asserted-by":"crossref","first-page":"443","DOI":"10.1177\/1556264620914463","article-title":"Self-interested and altruistic motivations in volunteering for clinical trials: a more complex relationship","volume":"15","author":"Olsen","year":"2020","journal-title":"J. Empir. Res. Hum. Res. Ethics"},{"issue":"6","key":"10.1016\/j.socscimed.2025.117751_bib35","doi-asserted-by":"crossref","first-page":"519","DOI":"10.1023\/A:1021337801802","article-title":"Confining choices: should inmates' participation in research be limited?","volume":"23","author":"Pasquerella","year":"2002","journal-title":"Theor. Med. Bioeth."},{"key":"10.1016\/j.socscimed.2025.117751_bib36","doi-asserted-by":"crossref","first-page":"215","DOI":"10.1016\/j.socscimed.2016.01.018","article-title":"Towards deep inclusion for equity-oriented health research priority-setting: a working model","volume":"151","author":"Pratt","year":"2016","journal-title":"Soc. Sci. Med."},{"key":"10.1016\/j.socscimed.2025.117751_bib37","doi-asserted-by":"crossref","DOI":"10.1016\/j.socscimed.2022.115223","article-title":"Integrating citizens juries and discrete choice experiments: methodological issues in the measurement of public values in healthcare priority setting","volume":"309","author":"Schoon","year":"2022","journal-title":"Soc. Sci. Med."},{"issue":"5","key":"10.1016\/j.socscimed.2025.117751_bib38","doi-asserted-by":"crossref","first-page":"e91","DOI":"10.1371\/journal.pmed.0050091","article-title":"Communicating the results of clinical research to participants: attitudes, practices, and future directions","volume":"5","author":"Shalowitz","year":"2008","journal-title":"PLoS Med."},{"issue":"20","key":"10.1016\/j.socscimed.2025.117751_bib39","doi-asserted-by":"crossref","first-page":"1436","DOI":"10.1056\/NEJM199711133372006","article-title":"Fifty years later: the significance of the Nuremberg Code","volume":"337","author":"Shuster","year":"1997","journal-title":"N. Engl. J. Med."},{"issue":"2","key":"10.1016\/j.socscimed.2025.117751_bib40","doi-asserted-by":"crossref","first-page":"113","DOI":"10.1108\/IJPH-12-2016-0070","article-title":"Prison health service directors' views on research priorities and organizational issues in conducting research in prison: outcomes of a national deliberative roundtable","volume":"13","author":"Simpson","year":"2017","journal-title":"Int. J. Prison. Health"},{"key":"10.1016\/j.socscimed.2025.117751_bib41","series-title":"Health Research Involving Prisoners: Assessing the Views of Prisoners, Prison Health Service Directors and Research Ethics Committee Chairs on Ethical Issues in Conducting Research with Prisoners (Report 2)","author":"Simpson","year":"2020"},{"issue":"10","key":"10.1016\/j.socscimed.2025.117751_bib42","doi-asserted-by":"crossref","first-page":"e771","DOI":"10.1016\/S2468-2667(21)00050-5","article-title":"Identifying research priorities to improve the health of incarcerated populations: results of citizens' juries in Australian prisons","volume":"6","author":"Simpson","year":"2021","journal-title":"Lancet Public Health"},{"issue":"3","key":"10.1016\/j.socscimed.2025.117751_bib43","doi-asserted-by":"crossref","first-page":"229","DOI":"10.1007\/s10805-019-09336-2","article-title":"Should we maintain or break confidentiality? the choices made by social researchers in the context of law violation and harm","volume":"18","author":"Surmiak","year":"2020","journal-title":"J. Acad. Ethics"},{"issue":"4","key":"10.1016\/j.socscimed.2025.117751_bib44","doi-asserted-by":"crossref","first-page":"626","DOI":"10.1111\/hex.12493","article-title":"CJcheck stage 1: development and testing of a checklist for reporting community juries\u2013Delphi process and analysis of studies published in 1996\u20132015","volume":"20","author":"Thomas","year":"2017","journal-title":"Health Expect."},{"issue":"17","key":"10.1016\/j.socscimed.2025.117751_bib45","doi-asserted-by":"crossref","first-page":"1719","DOI":"10.1001\/jama.2021.0258","article-title":"Revised UNAIDS\/WHO ethical guidance for HIV prevention trials","volume":"325","author":"van der Graaf","year":"2021","journal-title":"JAMA"},{"key":"10.1016\/j.socscimed.2025.117751_bib46","series-title":"Vulnerability and Incarceration: Evaluating Protections for Prisoners in Research","author":"Victor","year":"2019"},{"issue":"1","key":"10.1016\/j.socscimed.2025.117751_bib47","first-page":"1","article-title":"Citizens Juries: a radical alternative for social research","volume":"37","author":"Wakeford","year":"2002","journal-title":"Soc. Res. Update"},{"issue":"5","key":"10.1016\/j.socscimed.2025.117751_bib48","doi-asserted-by":"crossref","first-page":"417","DOI":"10.1080\/13645570701622231","article-title":"The management of confidentiality and anonymity in social research","volume":"11","author":"Wiles","year":"2008","journal-title":"Int. J. Soc. Res. Methodol."},{"key":"10.1016\/j.socscimed.2025.117751_bib49","series-title":"Issues and Innovations in Prison Health Research","first-page":"21","article-title":"Participatory research in prison: rationale, process and challenges","author":"Woodall","year":"2021"}],"container-title":["Social Science &amp; Medicine"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0277953625000802?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0277953625000802?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2026,4,28]],"date-time":"2026-04-28T00:45:52Z","timestamp":1777337152000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S0277953625000802"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,2]]},"references-count":48,"alternative-id":["S0277953625000802"],"URL":"https:\/\/doi.org\/10.1016\/j.socscimed.2025.117751","relation":{},"ISSN":["0277-9536"],"issn-type":[{"value":"0277-9536","type":"print"}],"subject":[],"published":{"date-parts":[[2025,2]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Ethical issues in conducting health research with people in prison: Results of a deliberative research project conducted with people in Australian prisons","name":"articletitle","label":"Article Title"},{"value":"Social Science & Medicine","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.socscimed.2025.117751","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2025 The Authors. Published by Elsevier Ltd.","name":"copyright","label":"Copyright"}],"article-number":"117751"}}