{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,8]],"date-time":"2026-10-08T16:44:18Z","timestamp":1791477858381,"version":"4.3.4"},"reference-count":38,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2026,5,1]],"date-time":"2026-05-01T00:00:00Z","timestamp":1777593600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2026,5,1]],"date-time":"2026-05-01T00:00:00Z","timestamp":1777593600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2026,2,18]],"date-time":"2026-02-18T00:00:00Z","timestamp":1771372800000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/100010269","name":"Wellcome Trust","doi-asserted-by":"publisher","award":["318552\/Z\/24\/Z"],"award-info":[{"award-number":["318552\/Z\/24\/Z"]}],"id":[{"id":"10.13039\/100010269","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100005131","name":"H&R BLOCK","doi-asserted-by":"publisher","award":["ARPP-2020-011"],"award-info":[{"award-number":["ARPP-2020-011"]}],"id":[{"id":"10.13039\/100005131","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100005131","name":"H&R BLOCK","doi-asserted-by":"publisher","award":["205384\/Z\/16\/Z"],"award-info":[{"award-number":["205384\/Z\/16\/Z"]}],"id":[{"id":"10.13039\/100005131","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Social Science & Medicine"],"published-print":{"date-parts":[[2026,5]]},"DOI":"10.1016\/j.socscimed.2026.119102","type":"journal-article","created":{"date-parts":[[2026,2,18]],"date-time":"2026-02-18T16:16:30Z","timestamp":1771431390000},"page":"119102","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":1,"special_numbering":"C","title":["Self-reporting quality of life in mild-to-moderate Alzheimer's disease and Lewy body dementia: Comparing capability and health-focused measures using response process validation"],"prefix":"10.1016","volume":"396","author":[{"ORCID":"https:\/\/orcid.org\/0000-0003-0133-2763","authenticated-orcid":false,"given":"Irina","family":"Kinchin","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0008-9528-1795","authenticated-orcid":false,"given":"Jayne","family":"Conlon","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0001-6790-4931","authenticated-orcid":false,"given":"Erin","family":"Boland","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-8795-7627","authenticated-orcid":false,"given":"Rachel","family":"Fitzpatrick","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Iracema","family":"Leroi","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Joanna","family":"Coast","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"key":"10.1016\/j.socscimed.2026.119102_bib1","doi-asserted-by":"crossref","first-page":"116","DOI":"10.1016\/j.socscimed.2013.03.035","article-title":"Can capabilities be self-reported? A think aloud study","volume":"87","author":"Al-Janabi","year":"2013","journal-title":"Soc. Sci. Med."},{"issue":"7","key":"10.1016\/j.socscimed.2026.119102_bib2","doi-asserted-by":"crossref","first-page":"642","DOI":"10.1177\/0269216315624890","article-title":"'The ICECAP-SCM tells you more about what i'm going through': a think-aloud study measuring quality of life among patients receiving supportive and palliative care","volume":"30","author":"Bailey","year":"2016","journal-title":"Palliat. Med."},{"key":"10.1016\/j.socscimed.2026.119102_bib3","article-title":"Reliability of the ICECAP-O quality of life scale with community-dwelling people with dementia","volume":"8","author":"Bibi","year":"2022","journal-title":"Gerontol Geriatr Med"},{"issue":"2","key":"10.1016\/j.socscimed.2026.119102_bib5","doi-asserted-by":"crossref","first-page":"271","DOI":"10.1016\/S0167-6296(01)00130-8","article-title":"The estimation of a preference-based measure of health from the SF-36","volume":"21","author":"Brazier","year":"2002","journal-title":"J. Health Econ."},{"issue":"3","key":"10.1016\/j.socscimed.2026.119102_bib6","doi-asserted-by":"crossref","first-page":"530","DOI":"10.1046\/j.1532-5415.2002.50122.x","article-title":"The GPCOG: a new screening test for dementia designed for general practice","volume":"50","author":"Brodaty","year":"2002","journal-title":"J. Am. Geriatr. Soc."},{"issue":"3","key":"10.1016\/j.socscimed.2026.119102_bib7","doi-asserted-by":"crossref","first-page":"215","DOI":"10.1017\/S095925980400108X","article-title":"What is person-centred care in dementia?","volume":"13","author":"Brooker","year":"2003","journal-title":"Rev. Clin. Gerontol."},{"issue":"6","key":"10.1016\/j.socscimed.2026.119102_bib8","doi-asserted-by":"crossref","first-page":"711","DOI":"10.1007\/s40271-021-00528-w","article-title":"Conducting qualitative research online: challenges and solutions","volume":"14","author":"Carter","year":"2021","journal-title":"The Patient - Patient-Centered Outcomes Research"},{"issue":"4","key":"10.1016\/j.socscimed.2026.119102_bib9","doi-asserted-by":"crossref","first-page":"1135","DOI":"10.1177\/14713012211069449","article-title":"Methods and approaches for enhancing communication with people with moderate-to-severe dementia that can facilitate their inclusion in research and service evaluation: findings from the IDEAL programme","volume":"21","author":"Collins","year":"2022","journal-title":"Dementia"},{"key":"10.1016\/j.socscimed.2026.119102_bib10","doi-asserted-by":"crossref","DOI":"10.1016\/j.socscimed.2025.118510","article-title":"Healthcare pathways and social experiences of Lewy body dementia and Alzheimer's disease in Ireland","volume":"383","author":"Conlon","year":"2025","journal-title":"Soc. Sci. Med."},{"issue":"8","key":"10.1016\/j.socscimed.2026.119102_bib11","doi-asserted-by":"crossref","first-page":"1994","DOI":"10.1177\/14713012231205610","article-title":"Use of adapted or modified methods with people with dementia in research: a scoping review","volume":"22","author":"Conway","year":"2023","journal-title":"Dementia"},{"key":"10.1016\/j.socscimed.2026.119102_bib12","doi-asserted-by":"crossref","DOI":"10.1186\/s12955-020-01425-w","article-title":"A qualitative exploration of the content and face validity of preference-based measures within the context of dementia","volume":"18","author":"Engel","year":"2020","journal-title":"Health Qual. Life Outcome"},{"key":"10.1016\/j.socscimed.2026.119102_bib13","series-title":"A Group Intervention to Improve Quality of Life for People with Advanced Dementia Living in Care Homes: the Namaste Feasibility Cluster RCT","author":"Froggatt","year":"2020"},{"issue":"8","key":"10.1016\/j.socscimed.2026.119102_bib14","doi-asserted-by":"crossref","first-page":"1891","DOI":"10.1016\/j.socscimed.2005.08.023","article-title":"Developing attributes for a generic quality of life measure for older people: preferences or capabilities?","volume":"62","author":"Grewal","year":"2006","journal-title":"Soc. Sci. Med."},{"issue":"3","key":"10.1016\/j.socscimed.2026.119102_bib15","doi-asserted-by":"crossref","first-page":"209","DOI":"10.1023\/A:1008815005736","article-title":"The assessment of quality of life (AQoL) instrument: a psychometric measure of health-related quality of life","volume":"8","author":"Hawthorne","year":"1999","journal-title":"Qual. Life Res."},{"issue":"10","key":"10.1016\/j.socscimed.2026.119102_bib16","doi-asserted-by":"crossref","first-page":"1727","DOI":"10.1007\/s11136-011-9903-x","article-title":"Development and preliminary testing of the new five-level version of EQ-5D (EQ-5D-5L)","volume":"20","author":"Herdman","year":"2011","journal-title":"Qual. Life Res."},{"issue":"3","key":"10.1016\/j.socscimed.2026.119102_bib17","doi-asserted-by":"crossref","first-page":"667","DOI":"10.1007\/s11482-013-9264-4","article-title":"Evaluating the face validity of the ICECAP-O capabilities measure: a \u201cThink Aloud\u201d study with hip and knee arthroplasty patients","volume":"9","author":"Horwood","year":"2014","journal-title":"Appl. Res. Qual. Life"},{"issue":"11","key":"10.1016\/j.socscimed.2026.119102_bib18","doi-asserted-by":"crossref","first-page":"781","DOI":"10.1016\/j.ijmedinf.2004.08.003","article-title":"The think aloud method: a guide to user interface design","volume":"73","author":"Jaspers","year":"2004","journal-title":"Int. J. Med. Inf."},{"issue":"9","key":"10.1016\/j.socscimed.2026.119102_bib19","doi-asserted-by":"crossref","first-page":"2549","DOI":"10.1007\/s11136-025-04009-7","article-title":"Self-reported quality of life in progressive cognitive Decline\u2014let\u2019s not throw the baby out with the bathwater","volume":"34","author":"Kinchin","year":"2025","journal-title":"Qual. Life Res."},{"key":"10.1016\/j.socscimed.2026.119102_bib20","doi-asserted-by":"crossref","DOI":"10.1016\/j.socscimed.2025.117716","article-title":"Through their eyes: defining 'Good Life' in dementia for health economics and Outcomes research","author":"Kinchin","year":"2025","journal-title":"Soc. Sci. Med."},{"key":"10.1016\/j.socscimed.2026.119102_bib21","doi-asserted-by":"crossref","DOI":"10.3389\/fnagi.2022.1061247","article-title":"What does a \u201cgood life\u201d mean for people living with dementia? A protocol for a think-aloud study informing the value of care","volume":"14","author":"Kinchin","year":"2022","journal-title":"Front. Aging Neurosci."},{"key":"10.1016\/j.socscimed.2026.119102_bib22","series-title":"Dementia Reconsidered: the Person Comes First","author":"Kitwood","year":"1997"},{"issue":"4","key":"10.1016\/j.socscimed.2026.119102_bib23","doi-asserted-by":"crossref","first-page":"471","DOI":"10.1016\/j.jval.2017.09.005","article-title":"Utility-based instruments for people with dementia: a systematic review and meta-regression analysis","volume":"21","author":"Li","year":"2018","journal-title":"Value Health"},{"issue":"3","key":"10.1016\/j.socscimed.2026.119102_bib24","doi-asserted-by":"crossref","first-page":"510","DOI":"10.1097\/00006842-200205000-00016","article-title":"Assessing quality of life in older adults with cognitive impairment","volume":"64","author":"Logsdon","year":"2002","journal-title":"Psychosom. Med."},{"key":"10.1016\/j.socscimed.2026.119102_bib25","first-page":"21","article-title":"Quality of life in Alzheimer's disease: patient and caregiver reports","volume":"5","author":"Logsdon","year":"1999","journal-title":"J. Ment. Health Aging"},{"issue":"3","key":"10.1016\/j.socscimed.2026.119102_bib26","doi-asserted-by":"crossref","DOI":"10.1371\/journal.pone.0092016","article-title":"Quality of life of nursing home residents with dementia: validation of the German version of the ICECAP-O","volume":"9","author":"Makai","year":"2014","journal-title":"PLoS One"},{"issue":"1","key":"10.1016\/j.socscimed.2026.119102_bib27","doi-asserted-by":"crossref","first-page":"88","DOI":"10.1212\/WNL.0000000000004058","article-title":"Diagnosis and management of dementia with lewy bodies","volume":"89","author":"McKeith","year":"2017","journal-title":"Neurology"},{"key":"10.1016\/j.socscimed.2026.119102_bib28","author":"Murphy"},{"issue":"10","key":"10.1016\/j.socscimed.2026.119102_bib29","doi-asserted-by":"crossref","first-page":"1559","DOI":"10.1177\/02692163221122979","article-title":"A think-aloud study of the feasibility of patients with end-stage organ failure completing the ICECAP-SCM","volume":"36","author":"Nwankwo","year":"2022","journal-title":"Palliat. Med."},{"issue":"4","key":"10.1016\/j.socscimed.2026.119102_bib30","doi-asserted-by":"crossref","DOI":"10.1097\/WAD.0000000000000430","article-title":"Psychometric properties of the ICECAP-O quality of life measurement tool when self-reported by community-dwelling older people with mild and moderate dementia","volume":"35","author":"Nyman","year":"2021","journal-title":"Alzheimer Dis. Assoc. Disord."},{"issue":"1","key":"10.1016\/j.socscimed.2026.119102_bib31","doi-asserted-by":"crossref","first-page":"162","DOI":"10.1080\/13607863.2018.1517727","article-title":"A comparison of self and proxy quality of life ratings for people with dementia and their carers: a European prospective cohort study","volume":"24","author":"O'Shea","year":"2020","journal-title":"Aging Ment. Health"},{"key":"10.1016\/j.socscimed.2026.119102_bib32","series-title":"Capability and Well-Being","author":"Sen","year":"1993"},{"issue":"5","key":"10.1016\/j.socscimed.2026.119102_bib33","doi-asserted-by":"crossref","first-page":"737","DOI":"10.1017\/S0033291706009469","article-title":"Development of a new measure of health-related quality of life for people with dementia: DEMQOL","volume":"37","author":"Smith","year":"2007","journal-title":"Psychol. Med."},{"issue":"2","key":"10.1016\/j.socscimed.2026.119102_bib34","doi-asserted-by":"crossref","first-page":"151","DOI":"10.1177\/0269216313489368","article-title":"Development of a supportive care measure for economic evaluation of end-of-life care using qualitative methods","volume":"28","author":"Sutton","year":"2014","journal-title":"Palliat. Med."},{"issue":"2","key":"10.1016\/j.socscimed.2026.119102_bib35","doi-asserted-by":"crossref","first-page":"157","DOI":"10.1016\/S1474-4422(19)30153-X","article-title":"New evidence on the management of Lewy body dementia","volume":"19","author":"Taylor","year":"2020","journal-title":"Lancet Neurol."},{"issue":"6","key":"10.1016\/j.socscimed.2026.119102_bib36","doi-asserted-by":"crossref","first-page":"349","DOI":"10.1093\/intqhc\/mzm042","article-title":"Consolidated criteria for reporting qualitative research (COREQ): a 32-item checklist for interviews and focus groups","volume":"19","author":"Tong","year":"2007","journal-title":"Int. J. Qual. Health Care"},{"key":"10.1016\/j.socscimed.2026.119102_bib37","series-title":"The Psychology of Survey Response","author":"Tourangeau","year":"2000"},{"issue":"10004","key":"10.1016\/j.socscimed.2026.119102_bib38","doi-asserted-by":"crossref","first-page":"1683","DOI":"10.1016\/S0140-6736(15)00462-6","article-title":"Lewy body dementias","volume":"386","author":"Walker","year":"2015","journal-title":"Lancet"},{"key":"10.1016\/j.socscimed.2026.119102_bib41","doi-asserted-by":"crossref","first-page":"3","DOI":"10.1016\/j.clinbiochem.2019.04.015","article-title":"Clinical aspects of Alzheimer's disease","volume":"72","author":"Zv\u011b\u0159ov\u00e1","year":"2019","journal-title":"Clin. Biochem."}],"container-title":["Social Science & Medicine"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0277953626001784?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0277953626001784?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2026,4,30]],"date-time":"2026-04-30T10:35:50Z","timestamp":1777545350000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S0277953626001784"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,5]]},"references-count":38,"alternative-id":["S0277953626001784"],"URL":"https:\/\/doi.org\/10.1016\/j.socscimed.2026.119102","relation":{},"ISSN":["0277-9536"],"issn-type":[{"value":"0277-9536","type":"print"}],"subject":[],"published":{"date-parts":[[2026,5]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Self-reporting quality of life in mild-to-moderate Alzheimer's disease and Lewy body dementia: Comparing capability and health-focused measures using response process validation","name":"articletitle","label":"Article Title"},{"value":"Social Science & Medicine","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.socscimed.2026.119102","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2026 The Authors. Published by Elsevier Ltd.","name":"copyright","label":"Copyright"}],"article-number":"119102"}}