{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,5]],"date-time":"2026-08-05T02:50:48Z","timestamp":1785898248670,"version":"3.56.0"},"reference-count":29,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2026,7,1]],"date-time":"2026-07-01T00:00:00Z","timestamp":1782864000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2026,7,1]],"date-time":"2026-07-01T00:00:00Z","timestamp":1782864000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2026,4,7]],"date-time":"2026-04-07T00:00:00Z","timestamp":1775520000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"funder":[{"DOI":"10.13039\/501100000269","name":"Economic and Social Research Council","doi-asserted-by":"publisher","award":["ES\/X00351\/1"],"award-info":[{"award-number":["ES\/X00351\/1"]}],"id":[{"id":"10.13039\/501100000269","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Social Science &amp; Medicine"],"published-print":{"date-parts":[[2026,7]]},"DOI":"10.1016\/j.socscimed.2026.119268","type":"journal-article","created":{"date-parts":[[2026,4,7]],"date-time":"2026-04-07T16:22:48Z","timestamp":1775578968000},"page":"119268","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":1,"special_numbering":"C","title":["Connecting care: Understanding the relational dimensions of supporting migrant children and young people living with sickle cell disease"],"prefix":"10.1016","volume":"400","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-2265-7041","authenticated-orcid":false,"given":"Brenda Agyeiwaa","family":"Poku","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Natasha","family":"Nicholls","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-0987-8760","authenticated-orcid":false,"given":"Alison","family":"Pilnick","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0003-1070-8670","authenticated-orcid":false,"given":"Karl Michael","family":"Atkin","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0009-0004-5418-7170","authenticated-orcid":false,"given":"Gloria","family":"Olutayo","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"David Adeyemi","family":"Olowofoyeku","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nathaniel Adebayo","family":"Olowofoyeku","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Tamia","family":"Kawonga","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"issue":"1","key":"10.1016\/j.socscimed.2026.119268_bib1","doi-asserted-by":"crossref","first-page":"69","DOI":"10.1177\/07255136241285470","article-title":"Institutions and their failure to care: bureaucracy and the practice of emotion","volume":"183","author":"Barclay","year":"2024","journal-title":"Thesis Eleven"},{"key":"10.1016\/j.socscimed.2026.119268_bib2","series-title":"Care in Everyday Life: an Ethic of Care in Practice","first-page":"167","article-title":"Care: ethics, policy and politics","author":"Barnes","year":"2012"},{"key":"10.1016\/j.socscimed.2026.119268_bib3","series-title":"Ethics of care: Critical advances in international perspective","author":"Barnes","year":"2015"},{"key":"10.1016\/j.socscimed.2026.119268_bib4","doi-asserted-by":"crossref","DOI":"10.1016\/j.socscimed.2020.113148","article-title":"\u201cYou have to find a caring man, like your father!\u201d gendering sickle cell and refashioning women's moral boundaries in Sierra Leone","volume":"259","author":"Berghs","year":"2020","journal-title":"Soc. Sci. Med."},{"key":"10.1016\/j.socscimed.2026.119268_bib5","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1016\/j.wss.2021.100058","article-title":"Everyday built environments of care: examining the socio-spatial relationalities of suburban neighbourhoods for people living with dementia","volume":"2","author":"Biglieri","year":"2021","journal-title":"Wellbeing, Space Soc."},{"issue":"3","key":"10.1016\/j.socscimed.2026.119268_bib6","first-page":"367","article-title":"An ethics of care research manifesto","volume":"2","author":"Brannelly","year":"2018","journal-title":"Int. J. Care Caring"},{"issue":"3","key":"10.1016\/j.socscimed.2026.119268_bib7","doi-asserted-by":"crossref","first-page":"304","DOI":"10.1177\/1471301216639463","article-title":"Citizenship and people living with dementia: a case for the ethics of care","volume":"15","author":"Brannelly","year":"2016","journal-title":"Dementia"},{"issue":"3","key":"10.1016\/j.socscimed.2026.119268_bib8","doi-asserted-by":"crossref","first-page":"340","DOI":"10.1177\/1468794117698916","article-title":"The ethics of care and transformational research practices in Aotearoa New Zealand","volume":"17","author":"Brannelly","year":"2017","journal-title":"Qual. Res."},{"issue":"1","key":"10.1016\/j.socscimed.2026.119268_bib9","doi-asserted-by":"crossref","first-page":"4","DOI":"10.1177\/0969733015624297","article-title":"Decolonising research practices with the ethics of care","volume":"23","author":"Brannelly","year":"2016","journal-title":"Nurs. Ethics"},{"key":"10.1016\/j.socscimed.2026.119268_bib10","series-title":"Constructing grounded theory","author":"Charmaz","year":"2014"},{"key":"10.1016\/j.socscimed.2026.119268_bib12","series-title":"The Routledge International Handbook of Gender and Feminist Geographies","first-page":"336","article-title":"Care, health and migration","author":"England","year":"2020"},{"key":"10.1016\/j.socscimed.2026.119268_bib13","series-title":"Circles of Care: Work and Identity in Women's Lives I","first-page":"35","article-title":"Toward a feminist theory of caring","author":"Fisher","year":"1990"},{"issue":"3","key":"10.1016\/j.socscimed.2026.119268_bib14","first-page":"1","article-title":"Pathways for improvement of care in psychiatric crisis: a plea for the co-creation with service users and ethics of care","volume":"3","author":"Groot","year":"2019","journal-title":"Arch. Psychol."},{"issue":"2","key":"10.1016\/j.socscimed.2026.119268_bib15","doi-asserted-by":"crossref","first-page":"286","DOI":"10.1080\/09650792.2018.1450771","article-title":"Ethics of care in participatory health research: mutual responsibility in collaboration with coresearchers","volume":"27","author":"Groot","year":"2019","journal-title":"Educ. Action Res."},{"key":"10.1016\/j.socscimed.2026.119268_bib16","doi-asserted-by":"crossref","DOI":"10.1016\/j.socscimed.2025.117857","article-title":"Care in an opioid substitution therapy daycentre","volume":"369","author":"Houborg","year":"2025","journal-title":"Soc. Sci. Med."},{"issue":"4","key":"10.1016\/j.socscimed.2026.119268_bib17","doi-asserted-by":"crossref","first-page":"845","DOI":"10.1007\/s10551-024-05771-3","article-title":"(In)vulnerable managers in an immigration context","volume":"194","author":"Kivij\u00e4rvi","year":"2024","journal-title":"J. Bus. Ethics"},{"key":"10.1016\/j.socscimed.2026.119268_bib18","doi-asserted-by":"crossref","first-page":"126","DOI":"10.1016\/j.socscimed.2013.06.032","article-title":"Structural competency: theorizing a new medical engagement with stigma and inequality","volume":"103","author":"Metzl","year":"2014","journal-title":"Soc. Sci. Med."},{"issue":"1\u20132","key":"10.1016\/j.socscimed.2026.119268_bib19","doi-asserted-by":"crossref","first-page":"275","DOI":"10.1111\/jocn.12612","article-title":"Patient experience in the emergency department: inconsistencies in the ethics and duty of care","volume":"24","author":"Moss","year":"2015","journal-title":"J. Clin. Nurs."},{"issue":"10","key":"10.1016\/j.socscimed.2026.119268_bib20","doi-asserted-by":"crossref","first-page":"e789","DOI":"10.1016\/S2352-3026(25)00235-2","article-title":"Indicators of inequity in research and funding for sickle cell disease, cystic fibrosis and haemophilia: a descriptive comparative study","volume":"12","author":"Muzambi","year":"2025","journal-title":"Lancet Haematol."},{"issue":"3","key":"10.1016\/j.socscimed.2026.119268_bib22","doi-asserted-by":"crossref","first-page":"279","DOI":"10.1080\/17496535.2021.1924814","article-title":"Power and care in statutory social work with vulnerable families","volume":"15","author":"Nissen","year":"2021","journal-title":"Ethics Soc. Welfare"},{"key":"10.1016\/j.socscimed.2026.119268_bib23","doi-asserted-by":"crossref","first-page":"32","DOI":"10.1016\/j.jaging.2018.06.001","article-title":"Themes of care giving and receiving in the interconnecting stories of a mother living with dementia and her adult son: a single-case life story study","volume":"46","author":"Novy","year":"2018","journal-title":"J. Aging Stud."},{"issue":"2","key":"10.1016\/j.socscimed.2026.119268_bib24","doi-asserted-by":"crossref","first-page":"259","DOI":"10.1017\/S0714980822000253","article-title":"Relational care, dementia, and communication challenges in long-term care: a meta-ethnography","volume":"42","author":"Novy","year":"2023","journal-title":"Can. J. Aging"},{"issue":"1","key":"10.1016\/j.socscimed.2026.119268_bib25","first-page":"153","article-title":"Ethics of care in supporting disabled forced migrants: interactions with professionals and ethical dilemmas in health and social care in the south-east of England","volume":"44","author":"Ottosdottir","year":"2014","journal-title":"Br. J. Soc. Work"},{"key":"10.1016\/j.socscimed.2026.119268_bib26","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1016\/j.socscimed.2024.117327","article-title":"Healthcare compassion interventions co-design and feasibility inquiry with clinicians and healthcare leaders in Aotearoa\/New Zealand","volume":"360","author":"Pavlova","year":"2024","journal-title":"Soc. Sci. Med."},{"issue":"14","key":"10.1016\/j.socscimed.2026.119268_bib27","article-title":"Children and young people at the intersection of chronic illness and migration: a scoping review","volume":"3","author":"Poku","year":"2025","journal-title":"BMC Global Public Health"},{"key":"10.1016\/j.socscimed.2026.119268_bib28","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1016\/j.socscimed.2025.118113","article-title":"Can care ethics help healthcare systems address their environmental harms? Findings from focus groups with members of the UK public","volume":"376","author":"Samuel","year":"2025","journal-title":"Soc. Sci. Med."},{"key":"10.1016\/j.socscimed.2026.119268_bib31","series-title":"Moral Boundaries: a Political Argument for an Ethic of Care","author":"Tronto","year":"1993"},{"key":"10.1016\/j.socscimed.2026.119268_bib32","series-title":"Caring Democracy: Markets, Equality, and Justice","author":"Tronto","year":"2013"},{"key":"10.1016\/j.socscimed.2026.119268_bib33","doi-asserted-by":"crossref","DOI":"10.1016\/j.socscimed.2020.113297","article-title":"Using an ethics of care lens to understand the place of community health workers in Rwanda's maternal healthcare system","volume":"264","author":"Tuyisenge","year":"2020","journal-title":"Soc. Sci. Med."}],"container-title":["Social Science &amp; Medicine"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0277953626003448?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0277953626003448?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2026,7,28]],"date-time":"2026-07-28T16:17:09Z","timestamp":1785255429000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S0277953626003448"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,7]]},"references-count":29,"alternative-id":["S0277953626003448"],"URL":"https:\/\/doi.org\/10.1016\/j.socscimed.2026.119268","relation":{},"ISSN":["0277-9536"],"issn-type":[{"value":"0277-9536","type":"print"}],"subject":[],"published":{"date-parts":[[2026,7]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Connecting care: Understanding the relational dimensions of supporting migrant children and young people living with sickle cell disease","name":"articletitle","label":"Article Title"},{"value":"Social Science & Medicine","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.socscimed.2026.119268","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2026 The Authors. Published by Elsevier Ltd.","name":"copyright","label":"Copyright"}],"article-number":"119268"}}