{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,29]],"date-time":"2026-09-29T04:57:30Z","timestamp":1790657850924,"version":"4.1.0"},"reference-count":33,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2026,10,1]],"date-time":"2026-10-01T00:00:00Z","timestamp":1790812800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2026,10,1]],"date-time":"2026-10-01T00:00:00Z","timestamp":1790812800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2026,8,5]],"date-time":"2026-08-05T00:00:00Z","timestamp":1785888000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by\/4.0\/"}],"content-domain":{"domain":["elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Social Science &amp; Medicine"],"published-print":{"date-parts":[[2026,10]]},"DOI":"10.1016\/j.socscimed.2026.119662","type":"journal-article","created":{"date-parts":[[2026,8,4]],"date-time":"2026-08-04T23:03:25Z","timestamp":1785884605000},"page":"119662","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":0,"special_numbering":"C","title":["\u2018They (researchers) don't have to justify their presence, why do we have to justify ours?\u2019: The political economy of community advisory boards in tuberculosis research"],"prefix":"10.1016","volume":"406","author":[{"ORCID":"https:\/\/orcid.org\/0000-0002-2273-836X","authenticated-orcid":false,"given":"Duy","family":"Trinh-Hoang","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sarah","family":"Bernays","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"issue":"3","key":"10.1016\/j.socscimed.2026.119662_bib1","doi-asserted-by":"crossref","first-page":"598","DOI":"10.1093\/heapro\/daz023","article-title":"Beyond positive a priori bias: reframing community engagement in LMICs","volume":"35","author":"Abimbola","year":"2020","journal-title":"Health Promot. Int."},{"key":"10.1016\/j.socscimed.2026.119662_bib2","series-title":"Good Participatory Practice Guidelines for TB Drug Trials","year":"2012"},{"issue":"10443","key":"10.1016\/j.socscimed.2026.119662_bib3","doi-asserted-by":"crossref","first-page":"2467","DOI":"10.1016\/S0140-6736(24)00489-6","article-title":"Tuberculosis: a biosocial problem that requires biosocial solutions","volume":"403","author":"Bhargava","year":"2024","journal-title":"Lancet"},{"issue":"4","key":"10.1016\/j.socscimed.2026.119662_bib4","doi-asserted-by":"crossref","first-page":"713","DOI":"10.1111\/j.1540-5893.2012.00515.x","article-title":"Pragmatic resistance, law, and social movements in authoritarian states: The case of gay collective action in Singapore","volume":"46","author":"Chua","year":"2012","journal-title":"Law Soc. Rev."},{"key":"10.1016\/j.socscimed.2026.119662_bib5","series-title":"Making Spaces, Changing Places: Situating Participation in Development","author":"Cornwall","year":"2002"},{"key":"10.1016\/j.socscimed.2026.119662_bib6","series-title":"TB CAB 10-Year Anniversary Evaluation Report 2011\u20132021 and Podcast","author":"Deluca","year":"2022"},{"issue":"6","key":"10.1016\/j.socscimed.2026.119662_bib7","doi-asserted-by":"crossref","first-page":"1102","DOI":"10.1016\/j.socscimed.2010.05.016","article-title":"Chasing the dragon: developing indicators for the assessment of community participation in health programmes","volume":"71","author":"Draper","year":"2010","journal-title":"Soc. Sci. Med."},{"issue":"1","key":"10.1016\/j.socscimed.2026.119662_bib8","doi-asserted-by":"crossref","first-page":"46","DOI":"10.17294\/2330-0698.1859","article-title":"Monitoring and evaluation of patient engagement in health product research and development: Co-creating a framework for community advisory boards","volume":"9","author":"Fruytier","year":"2022","journal-title":"J. Patient-Centered Res. Rev."},{"issue":"6","key":"10.1016\/j.socscimed.2026.119662_bib9","doi-asserted-by":"crossref","first-page":"23","DOI":"10.1111\/j.1759-5436.2006.tb00320.x","article-title":"Finding the spaces for change: a power analysis","volume":"37","author":"Gaventa","year":"2006","journal-title":"IDS Bull."},{"issue":"5","key":"10.1016\/j.socscimed.2026.119662_bib10","doi-asserted-by":"crossref","DOI":"10.19088\/1968-2016.164","article-title":"Inequality, power and participation \u2013 revisiting the links","volume":"47","author":"Gaventa","year":"2016","journal-title":"IDS Bull."},{"key":"10.1016\/j.socscimed.2026.119662_bib11","doi-asserted-by":"crossref","first-page":"38","DOI":"10.1016\/j.jctube.2018.06.003","article-title":"Contextualizing global TB advocacy: lessons from three experiments in movement building","volume":"12","author":"Krishnan","year":"2018","journal-title":"J. Clin. Tuberc. Other Mycobact. Dis."},{"issue":"1","key":"10.1016\/j.socscimed.2026.119662_bib12","doi-asserted-by":"crossref","first-page":"44","DOI":"10.1186\/s12910-015-0033-9","article-title":"Evaluating community engagement in global health research: the need for metrics","volume":"16","author":"MacQueen","year":"2015","journal-title":"BMC Med. Ethics"},{"key":"10.1016\/j.socscimed.2026.119662_bib13","series-title":"Explaining Institutional Change: Ambiguity, Agency, and Power","year":"2010"},{"key":"10.1016\/j.socscimed.2026.119662_bib14","doi-asserted-by":"crossref","first-page":"119","DOI":"10.1186\/s12913-023-09136-w","article-title":"Regulation of community advisory boards during conduct of clinical trials in Uganda: a qualitative study involving stakeholders","volume":"23","author":"Mijumbi","year":"2023","journal-title":"BMC Health Serv. Res."},{"issue":"1","key":"10.1016\/j.socscimed.2026.119662_bib15","doi-asserted-by":"crossref","first-page":"10","DOI":"10.1016\/S2213-2600(23)00409-5","article-title":"The 2023 UN high-level meeting on tuberculosis: renewing hope, momentum, and commitment to end tuberculosis","volume":"12","author":"Millington","year":"2024","journal-title":"Lancet Respir. Med."},{"issue":"1","key":"10.1016\/j.socscimed.2026.119662_bib16","doi-asserted-by":"crossref","first-page":"457","DOI":"10.1186\/s12913-023-09466-9","article-title":"Community engagement processes in low- and middle-income countries health research settings: a systematic review of the literature","volume":"23","author":"Mthembu","year":"2023","journal-title":"BMC Health Serv. Res."},{"issue":"2","key":"10.1016\/j.socscimed.2026.119662_bib17","doi-asserted-by":"crossref","first-page":"211","DOI":"10.1016\/j.healthpol.2009.12.004","article-title":"Establishment of a community advisory board (CAB) for tuberculosis control and research in the Inanda, Ntuzuma and KwaMashu (INK) area of KwaZulu-Natal, South Africa","volume":"95","author":"Ntshanga","year":"2010","journal-title":"Health Policy"},{"issue":"3","key":"10.1016\/j.socscimed.2026.119662_bib18","doi-asserted-by":"crossref","first-page":"283","DOI":"10.1080\/13825577.2013.867181","article-title":"Competing truths: epistemic authority in popular science books on human sexuality","volume":"17","author":"Oikkonen","year":"2013","journal-title":"Eur. J. Engl. Stud."},{"issue":"10411","key":"10.1016\/j.socscimed.2026.119662_bib19","doi-asserted-by":"crossref","first-page":"1473","DOI":"10.1016\/S0140-6736(23)01379-X","article-title":"Scientific advances and the end of tuberculosis: a report from the lancet commission on tuberculosis","volume":"402","author":"Reid","year":"2023","journal-title":"Lancet"},{"issue":"3","key":"10.1016\/j.socscimed.2026.119662_bib20","doi-asserted-by":"crossref","first-page":"257","DOI":"10.1080\/09581596.2018.1449598","article-title":"The ethics and politics of community engagement in global health research","volume":"28","author":"Reynolds","year":"2018","journal-title":"Crit. Public Health"},{"key":"10.1016\/j.socscimed.2026.119662_bib21","first-page":"S20","article-title":"Community engagement in tuberculosis research: the EU-Patient-cEntric clinicAl tRial pLatforms (EU-PEARL) experience","volume":"130","author":"Saluzzo","year":"2023","journal-title":"Int. J. Infect. Dis.Commemorating World Tuberculosis Day, March 24th, 2023: \u201cYes! We Can End TB,\u201d"},{"issue":"3","key":"10.1016\/j.socscimed.2026.119662_bib22","doi-asserted-by":"crossref","first-page":"318","DOI":"10.1080\/09581596.2018.1440072","article-title":"Who is answerable to whom? Exploring the complex relationship between researchers, community and community advisory board (CAB) members in two research studies in Zambia","volume":"28","author":"Simwinga","year":"2018","journal-title":"Crit. Public Health"},{"key":"10.1016\/j.socscimed.2026.119662_bib23","doi-asserted-by":"crossref","first-page":"318","DOI":"10.1080\/09581596.2018.1440072","article-title":"Who is answerable to whom? Exploring the complex relationship between researchers, community and community advisory board (CAB) members in two research studies in Zambia","volume":"28","author":"Simwinga","year":"2018","journal-title":"Crit. Public Health"},{"key":"10.1016\/j.socscimed.2026.119662_bib24","series-title":"Power in Movement: Social Movements and Contentious Politics","first-page":"123","article-title":"Mobilizing structures and contentious politics","year":"1998"},{"issue":"5","key":"10.1016\/j.socscimed.2026.119662_bib25","doi-asserted-by":"crossref","first-page":"761","DOI":"10.2307\/2117752","article-title":"Social movement continuity: the women's movement in abeyance","volume":"54","author":"Taylor","year":"1989","journal-title":"Am. Sociol. Rev."},{"key":"10.1016\/j.socscimed.2026.119662_bib26","series-title":"The Global Tuberculosis Community Advisory Board (TB CAB)\u2014Our History","year":"2011"},{"issue":"1","key":"10.1016\/j.socscimed.2026.119662_bib27","doi-asserted-by":"crossref","first-page":"24","DOI":"10.1186\/s12910-015-0014-z","article-title":"Community engagement strategies for genomic studies in Africa: a review of the literature","volume":"16","author":"Tindana","year":"2015","journal-title":"BMC Med. Ethics"},{"issue":"1","key":"10.1016\/j.socscimed.2026.119662_bib28","doi-asserted-by":"crossref","first-page":"7","DOI":"10.5588\/pha.23.0058","article-title":"Engagement of a community advisory group to shape and build up participation in TB research","volume":"14","author":"Van","year":"2024","journal-title":"Public Health Action"},{"issue":"4","key":"10.1016\/j.socscimed.2026.119662_bib29","doi-asserted-by":"crossref","DOI":"10.1371\/journal.pgph.0004437","article-title":"Fighting tuberculosis hand in hand: a call to engage communities affected by TB as essential partners in research","volume":"5","author":"Venkatesan","year":"2025","journal-title":"PLOS Glob. Publ. Health"},{"issue":"4","key":"10.1016\/j.socscimed.2026.119662_bib30","doi-asserted-by":"crossref","DOI":"10.1136\/bmjgh-2024-015350","article-title":"Community engagement and the centrality of \u2018working relationships\u2019 in health research","volume":"9","author":"Vincent","year":"2024","journal-title":"BMJ Glob. Health"},{"issue":"7","key":"10.1016\/j.socscimed.2026.119662_bib31","doi-asserted-by":"crossref","first-page":"957","DOI":"10.1111\/j.1467-9566.2007.01024.x","article-title":"\u2018No one agrees except for those of us who have it\u2019: endometriosis patients as an epistemological community","volume":"29","author":"Whelan","year":"2007","journal-title":"Sociol. Health Illness"},{"issue":"3","key":"10.1016\/j.socscimed.2026.119662_bib33","doi-asserted-by":"crossref","first-page":"292","DOI":"10.1177\/15562646221078415","article-title":"\u201cIt's Almost as if Stakeholder Engagement is the Annoying \u2018Have-to-do\u2019\u2026\u201d: can Ethics Review Help Address the \u201c3 Ts\u201d of tokenism, toxicity, and tailoring in stakeholder engagement?","volume":"17","author":"Wilkinson","year":"2022","journal-title":"J. Empir. Res. Hum. Res. Ethics"},{"issue":"9","key":"10.1016\/j.socscimed.2026.119662_bib34","doi-asserted-by":"crossref","first-page":"2205","DOI":"10.1177\/13623613241253014","article-title":"\u2018Building our own house\u2019 as an insider-only community-partnered participatory research council: Co-creating a safe space for autistic knowledge production","volume":"29","author":"Williams","year":"2025","journal-title":"Autism"}],"container-title":["Social Science &amp; Medicine"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0277953626007392?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0277953626007392?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2026,9,29]],"date-time":"2026-09-29T04:16:45Z","timestamp":1790655405000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S0277953626007392"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2026,10]]},"references-count":33,"alternative-id":["S0277953626007392"],"URL":"https:\/\/doi.org\/10.1016\/j.socscimed.2026.119662","relation":{},"ISSN":["0277-9536"],"issn-type":[{"value":"0277-9536","type":"print"}],"subject":[],"published":{"date-parts":[[2026,10]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"\u2018They (researchers) don't have to justify their presence, why do we have to justify ours?\u2019: The political economy of community advisory boards in tuberculosis research","name":"articletitle","label":"Article Title"},{"value":"Social Science & Medicine","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.socscimed.2026.119662","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2026 The Authors. Published by Elsevier Ltd.","name":"copyright","label":"Copyright"}],"article-number":"119662"}}