{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,8,17]],"date-time":"2026-08-17T20:03:15Z","timestamp":1786996995546,"version":"build-2736575974"},"reference-count":43,"publisher":"Elsevier BV","issue":"2","license":[{"start":{"date-parts":[[2025,6,1]],"date-time":"2025-06-01T00:00:00Z","timestamp":1748736000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2025,6,1]],"date-time":"2025-06-01T00:00:00Z","timestamp":1748736000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2025,5,13]],"date-time":"2025-05-13T00:00:00Z","timestamp":1747094400000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"}],"funder":[{"DOI":"10.13039\/100000002","name":"National Institutes of Health","doi-asserted-by":"publisher","award":["K23 MD018383"],"award-info":[{"award-number":["K23 MD018383"]}],"id":[{"id":"10.13039\/100000002","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000005","name":"US Department of Defense","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100000005","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["surgoncinsight.org","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Surgical Oncology Insight"],"published-print":{"date-parts":[[2025,6]]},"DOI":"10.1016\/j.soi.2025.100153","type":"journal-article","created":{"date-parts":[[2025,5,15]],"date-time":"2025-05-15T11:20:11Z","timestamp":1747308011000},"page":"100153","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":3,"title":["Unseen burden: Exploring caregiver experiences, barriers, and facilitators in foregut cancer care"],"prefix":"10.1016","volume":"2","author":[{"given":"Ioannis","family":"Liapis","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Jaspinder","family":"Sanghera","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Michelle","family":"Holland","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Ivan","family":"Herbey","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Katie","family":"West","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Martin J.","family":"Heslin","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Krista","family":"Mehari","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Larry","family":"Hearld","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Smita","family":"Bhatia","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Annabelle L.","family":"Fonseca","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"issue":"10","key":"10.1016\/j.soi.2025.100153_bib1","article-title":"Caregivers-an undervalued and underused essential","volume":"9","author":"The Lancet","year":"2022","journal-title":"Lancet Haematol"},{"issue":"2","key":"10.1016\/j.soi.2025.100153_bib2","first-page":"145","article-title":"The emerging role and needs of family caregivers in cancer care","volume":"2","author":"Glajchen","year":"2004","journal-title":"J Support Oncol"},{"issue":"1","key":"10.1016\/j.soi.2025.100153_bib3","first-page":"74","article-title":"Systematic review of caregiver burden, unmet needs and quality-of-life among informal caregivers of patients with pancreatic cancer","volume":"31","author":"Chong","year":"2022","journal-title":"Support Care Cancer"},{"key":"10.1016\/j.soi.2025.100153_bib4","unstructured":"National Comprehensive Cancer Network Guidelines. Accessed February 1st, 2025. https:\/\/www.nccn.org\/guidelines\/category_1."},{"key":"10.1016\/j.soi.2025.100153_bib5","unstructured":"United States Census Bureau. 2020 Census data. Accessed February 1st, 2025. https:\/\/www.census.gov\/programs-surveys\/decennial-census\/decade\/2020\/2020-census-main.html."},{"issue":"7","key":"10.1016\/j.soi.2025.100153_bib6","doi-asserted-by":"crossref","first-page":"1137","DOI":"10.2105\/AJPH.93.7.1137","article-title":"Area deprivation and widening inequalities in US mortality, 1969-1998","volume":"93","author":"Singh","year":"2003","journal-title":"Am J Public Health"},{"key":"10.1016\/j.soi.2025.100153_bib7","article-title":"Qualitative Research Method: Grounded Theory","volume":"9","author":"Khan","year":"2024","journal-title":"Int J Bus Manag"},{"issue":"26","key":"10.1016\/j.soi.2025.100153_bib8","doi-asserted-by":"crossref","first-page":"2456","DOI":"10.1056\/NEJMp1802313","article-title":"Making Neighborhood-Disadvantage Metrics Accessible - The Neighborhood Atlas","volume":"378","author":"Kind","year":"2018","journal-title":"N Engl J Med"},{"key":"10.1016\/j.soi.2025.100153_bib9","doi-asserted-by":"crossref","DOI":"10.1097\/XCS.0000000000000957","article-title":"Time Kills: Impact of Socioeconomic Deprivation on Timely Access to Guideline-Concordant Treatment in Foregut Cancer","author":"Fonseca","year":"2024","journal-title":"J Am Coll Surg"},{"issue":"4","key":"10.1016\/j.soi.2025.100153_bib10","doi-asserted-by":"crossref","DOI":"10.1097\/00006199-196807000-00014","article-title":"The Discovery of Grounded Theory; Strategies for Qualitative Research","volume":"17","author":"Glaser","year":"1968","journal-title":"Nurs Res"},{"issue":"11","key":"10.1016\/j.soi.2025.100153_bib11","doi-asserted-by":"crossref","first-page":"2913","DOI":"10.1158\/0008-5472.CAN-14-0155","article-title":"Projecting cancer incidence and deaths to 2030: the unexpected burden of thyroid, liver, and pancreas cancers in the United States","volume":"74","author":"Rahib","year":"2014","journal-title":"Cancer Res"},{"key":"10.1016\/j.soi.2025.100153_bib12","unstructured":"Cancer Caregiving in the U.S; An Intense, Episodic, and Challenging Care Experience. National Alliance for Caregiving. Accessed February 2nd, 2025. https:\/\/www.caregiving.org\/wp-content\/uploads\/2022\/11\/CancerCaregivingReport_FINAL_June-17-2016.pdf."},{"issue":"8","key":"10.1016\/j.soi.2025.100153_bib13","doi-asserted-by":"crossref","first-page":"551","DOI":"10.1200\/OP.22.00736","article-title":"Profile of the Postoperative Care Provided for Patients With Pancreatic and Periampullary Cancers by Family and Unpaid Caregivers","volume":"19","author":"Fong","year":"2023","journal-title":"JCO Oncol Pr"},{"issue":"5","key":"10.1016\/j.soi.2025.100153_bib14","doi-asserted-by":"crossref","first-page":"1070","DOI":"10.1002\/cncr.25695","article-title":"Caregiver symptom burden: the risk of caring for an underserved patient with advanced cancer","volume":"117","author":"Palos","year":"2011","journal-title":"Cancer"},{"issue":"5","key":"10.1016\/j.soi.2025.100153_bib15","doi-asserted-by":"crossref","first-page":"2132","DOI":"10.21037\/jgo-22-884","article-title":"Impact of caregiver burden on caregiver mental health in patients with esophageal cancer: chain mediating effects of benefit finding and rumination, a cross-sectional study","volume":"13","author":"Wen","year":"2022","journal-title":"J Gastrointest Oncol"},{"key":"10.1016\/j.soi.2025.100153_bib16","doi-asserted-by":"crossref","first-page":"92643","DOI":"10.52965\/001c.92643","article-title":"Cancer caregivers are primarily motivated by love and sense of duty","volume":"12","author":"Gupta","year":"2024","journal-title":"Health Psychol Res"},{"issue":"11","key":"10.1016\/j.soi.2025.100153_bib17","doi-asserted-by":"crossref","first-page":"1850","DOI":"10.1177\/1359105319890407","article-title":"Co-afflicted but invisible: A qualitative study of perceptions among informal caregivers in cancer care","volume":"26","author":"Tranberg","year":"2021","journal-title":"J Health Psychol"},{"issue":"11","key":"10.1016\/j.soi.2025.100153_bib18","doi-asserted-by":"crossref","first-page":"1227","DOI":"10.1200\/JCO.2011.39.5798","article-title":"Psychosocial care for family caregivers of patients with cancer","volume":"30","author":"Northouse","year":"2012","journal-title":"J Clin Oncol"},{"issue":"3","key":"10.1016\/j.soi.2025.100153_bib19","doi-asserted-by":"crossref","first-page":"344","DOI":"10.1093\/geronj\/38.3.344","article-title":"Validation of a Caregiver Strain Index","volume":"38","author":"Robinson","year":"1983","journal-title":"J Gerontol"},{"issue":"3","key":"10.1016\/j.soi.2025.100153_bib20","doi-asserted-by":"crossref","first-page":"245","DOI":"10.1037\/0882-7974.3.3.245","article-title":"Symptoms of psychological distress among caregivers of dementia patients","volume":"3","author":"Anthony-Bergstone","year":"1988","journal-title":"Psychol Aging"},{"key":"10.1016\/j.soi.2025.100153_bib21","article-title":"Current status and influencing factors of care burden of pancreatic cancer caregivers under COVID-19","volume":"13","author":"Sun","year":"2022","journal-title":"Front Psychol"},{"issue":"5","key":"10.1016\/j.soi.2025.100153_bib22","doi-asserted-by":"crossref","first-page":"1597","DOI":"10.1590\/1413-81232018245.04432019","article-title":"Barriers to access to palliative care services perceived by gastric cancer patients, their caregivers and physicians in Santander, Colombia","volume":"24","author":"Uribe","year":"2019","journal-title":"Cien Saude Colet"},{"issue":"23-24","key":"10.1016\/j.soi.2025.100153_bib23","doi-asserted-by":"crossref","first-page":"3402","DOI":"10.1111\/jocn.16167","article-title":"Prevalence of distress and its associated factors among caregivers of people diagnosed with cancer: A cross-sectional study","volume":"31","author":"Kirk","year":"2022","journal-title":"J Clin Nurs"},{"issue":"9","key":"10.1016\/j.soi.2025.100153_bib24","doi-asserted-by":"crossref","first-page":"6007","DOI":"10.1245\/s10434-024-15627-9","article-title":"Understanding Barriers to Guideline-Concordant Treatment in Foregut Cancer: From Data to Solutions","volume":"31","author":"Fonseca","year":"2024","journal-title":"Ann Surg Oncol"},{"issue":"9","key":"10.1016\/j.soi.2025.100153_bib25","doi-asserted-by":"crossref","first-page":"714","DOI":"10.1200\/OP.23.00324","article-title":"Management of Anxiety and Depression in Adult Survivors of Cancer: ASCO Guideline Update Q&A","volume":"19","author":"Pirl","year":"2023","journal-title":"JCO Oncol Pr"},{"issue":"5","key":"10.1016\/j.soi.2025.100153_bib26","doi-asserted-by":"crossref","first-page":"1490","DOI":"10.1377\/hlthaff.26.5.1490","article-title":"America's health care safety net: revisiting the 2000 IOM report","volume":"26","author":"Lewin","year":"2007","journal-title":"Health Aff"},{"issue":"2","key":"10.1016\/j.soi.2025.100153_bib27","doi-asserted-by":"crossref","first-page":"145","DOI":"10.1300\/J010v05n02_03","article-title":"Adjustment and coping strategies among the caretakers of cancer patients","volume":"5","author":"Koocher","year":"1979","journal-title":"Soc Work Health Care"},{"key":"10.1016\/j.soi.2025.100153_bib28","doi-asserted-by":"crossref","first-page":"66","DOI":"10.1080\/07347332.2014.977418","article-title":"Mindful Caring: Using Mindfulness-Based Cognitive Therapy With Caregivers of Cancer Survivors","volume":"33","author":"Wood","year":"2015","journal-title":"J Psychosoc Oncol"},{"issue":"8","key":"10.1016\/j.soi.2025.100153_bib29","doi-asserted-by":"crossref","first-page":"1758","DOI":"10.1002\/cncr.32680","article-title":"Multimodal psychosocial intervention for family caregivers of patients undergoing hematopoietic stem cell transplantation: A randomized clinical trial","volume":"126","author":"El-Jawahri","year":"2020","journal-title":"Cancer"},{"issue":"1","key":"10.1016\/j.soi.2025.100153_bib30","doi-asserted-by":"crossref","first-page":"96","DOI":"10.1186\/s12904-018-0346-9","article-title":"Unmet care needs of advanced cancer patients and their informal caregivers: a systematic review","volume":"17","author":"Wang","year":"2018","journal-title":"BMC Palliat Care"},{"issue":"4 2","key":"10.1016\/j.soi.2025.100153_bib31","first-page":"25","article-title":"Family caregivers of elderly patients with cancer: understanding and minimizing the burden of care","volume":"1","author":"Haley","year":"2003","journal-title":"J Support Oncol"},{"issue":"5","key":"10.1016\/j.soi.2025.100153_bib32","first-page":"317","article-title":"Addressing transportation barriers in oncology: existing programs and new solutions","volume":"32","author":"Pringle","year":"2024","journal-title":"Support Care Cancer"},{"issue":"9","key":"10.1016\/j.soi.2025.100153_bib33","first-page":"1510","article-title":"Caregiver intervention research: an opportunity for collaboration between caregiving investigators and African-american faith communities","volume":"98","author":"Hebert","year":"2006","journal-title":"J Natl Med Assoc"},{"key":"10.1016\/j.soi.2025.100153_bib34","doi-asserted-by":"crossref","first-page":"191","DOI":"10.3389\/fpubh.2018.00191","article-title":"Engaging Black Churches to Address Cancer Health Disparities: Project CHURCH","volume":"6","author":"McNeill","year":"2018","journal-title":"Front Public Health"},{"key":"10.1016\/j.soi.2025.100153_bib35","unstructured":"Paid Family Leave Across OECD Countries. February 1st, 2025. Accessed February 1st, 2025. https:\/\/bipartisanpolicy.org\/download\/?file=\u202f\/wp-content\/uploads\/2020\/01\/PFL6-FInal_.pdf."},{"issue":"2","key":"10.1016\/j.soi.2025.100153_bib36","doi-asserted-by":"crossref","first-page":"400","DOI":"10.1007\/s10900-018-0572-3","article-title":"A Systematic Review of Interventions to Minimize Transportation Barriers Among People with Chronic Diseases","volume":"44","author":"Starbird","year":"2019","journal-title":"J Community Health"},{"key":"10.1016\/j.soi.2025.100153_bib37","first-page":"7","article-title":"No Way to Go: A Review of the Literature on Transportation Barriers in Health Care","volume":"14","author":"Wright","year":"2008","journal-title":"World Transp Policy Pract"},{"key":"10.1016\/j.soi.2025.100153_bib38","doi-asserted-by":"crossref","DOI":"10.32866\/001c.37060","article-title":"Potential of Telehealth to Mitigate Transport Barriers: Evidence from the COVID-19 Pandemic","author":"Vinella-Brusher","year":"2022","journal-title":"Findings"},{"issue":"2","key":"10.1016\/j.soi.2025.100153_bib39","first-page":"1007","article-title":"Disparities in telehealth use: How should the supportive care community respond?","volume":"30","author":"Dixit","year":"2022","journal-title":"Support Care Cancer"},{"issue":"12","key":"10.1016\/j.soi.2025.100153_bib40","doi-asserted-by":"crossref","first-page":"1210","DOI":"10.1097\/01.SMJ.0000146492.27650.1C","article-title":"The role of religion\/spirituality for cancer patients and their caregivers","volume":"97","author":"Weaver","year":"2004","journal-title":"South Med J"},{"issue":"4","key":"10.1016\/j.soi.2025.100153_bib41","doi-asserted-by":"crossref","first-page":"465","DOI":"10.1093\/geront\/29.4.465","article-title":"The effectiveness of peer-led and professionally led groups to support family caregivers","volume":"29","author":"Toseland","year":"1989","journal-title":"Gerontologist"},{"issue":"7","key":"10.1016\/j.soi.2025.100153_bib42","doi-asserted-by":"crossref","first-page":"917","DOI":"10.1177\/0269216311421834","article-title":"Can assessing caregiver needs and activating community networks improve caregiver-defined outcomes? A single-blind, quasi-experimental pilot study: community facilitator pilot","volume":"26","author":"Greene","year":"2012","journal-title":"Palliat Med"},{"issue":"6","key":"10.1016\/j.soi.2025.100153_bib43","first-page":"301","article-title":"Simply delivered meals: a tale of collaboration","volume":"24","author":"Martin","year":"2018","journal-title":"Am J Manag Care"}],"container-title":["Surgical Oncology Insight"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S2950247025000325?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S2950247025000325?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2025,7,24]],"date-time":"2025-07-24T03:22:57Z","timestamp":1753327377000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S2950247025000325"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2025,6]]},"references-count":43,"journal-issue":{"issue":"2","published-print":{"date-parts":[[2025,6]]}},"alternative-id":["S2950247025000325"],"URL":"https:\/\/doi.org\/10.1016\/j.soi.2025.100153","relation":{},"ISSN":["2950-2470"],"issn-type":[{"value":"2950-2470","type":"print"}],"subject":[],"published":{"date-parts":[[2025,6]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Unseen burden: Exploring caregiver experiences, barriers, and facilitators in foregut cancer care","name":"articletitle","label":"Article Title"},{"value":"Surgical Oncology Insight","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.soi.2025.100153","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2025 The Authors. Published by Elsevier Inc. on behalf of Society of Surgical Oncology.","name":"copyright","label":"Copyright"}],"article-number":"100153"}}