{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,20]],"date-time":"2026-10-20T16:00:36Z","timestamp":1792512036625,"version":"4.5.0"},"reference-count":90,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2024,6,1]],"date-time":"2024-06-01T00:00:00Z","timestamp":1717200000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2024,6,1]],"date-time":"2024-06-01T00:00:00Z","timestamp":1717200000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2024,2,17]],"date-time":"2024-02-17T00:00:00Z","timestamp":1708128000000},"content-version":"vor","delay-in-days":0,"URL":"http:\/\/creativecommons.org\/licenses\/by-nc-nd\/4.0\/"}],"funder":[{"DOI":"10.13039\/100000051","name":"National Human Genome Research Institute","doi-asserted-by":"publisher","award":["HG009496"],"award-info":[{"award-number":["HG009496"]}],"id":[{"id":"10.13039\/100000051","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000897","name":"Cystic Fibrosis Foundation","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100000897","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100007812","name":"University of Washington","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100007812","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["SSM - Qualitative Research in Health"],"published-print":{"date-parts":[[2024,6]]},"DOI":"10.1016\/j.ssmqr.2024.100412","type":"journal-article","created":{"date-parts":[[2024,2,24]],"date-time":"2024-02-24T17:12:15Z","timestamp":1708794735000},"page":"100412","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":5,"special_numbering":"C","title":["When chronicity meets cyclicity: The cultivation of embodied knowledge and selfhood by cis-gender women with cystic fibrosis"],"prefix":"10.1016","volume":"5","author":[{"ORCID":"https:\/\/orcid.org\/0000-0001-5545-5801","authenticated-orcid":false,"given":"Sandy","family":"Sufian","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Rebecca","family":"Mueller","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Elinor","family":"Langfelder-Schwind","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Katherine","family":"Caldwell","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Georgia","family":"Brown","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Molly","family":"Ruben","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sheila","family":"Mody","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Patricia","family":"Walker","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Emily","family":"Godfrey","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"issue":"10","key":"10.1016\/j.ssmqr.2024.100412_bib1","doi-asserted-by":"crossref","DOI":"10.1128\/IAI.00422-17","article-title":"17\u03b2-Estradiol dysregulates innate immune responses to Pseudomonas aeruginosa respiratory infection and is modulated by estrogen receptor antagonism","volume":"85","author":"Abid","year":"2017","journal-title":"Infection and Immunity"},{"issue":"2","key":"10.1016\/j.ssmqr.2024.100412_bib2","doi-asserted-by":"crossref","first-page":"759","DOI":"10.1007\/s00520-020-05510-0","article-title":"Can-Pain-a digital intervention to optimize cancer pain control in the community: Development and feasibility testing","volume":"29","author":"Adam","year":"2020","journal-title":"Supportive Care in Cancer"},{"issue":"2","key":"10.1016\/j.ssmqr.2024.100412_bib4","doi-asserted-by":"crossref","first-page":"242","DOI":"10.1111\/1467-9566.13570","article-title":"Knowing (with) the body: Sensory knowing in contraceptive self-tracking","volume":"45","author":"Algera","year":"2022","journal-title":"Sociology of Health & Illness"},{"issue":"1","key":"10.1016\/j.ssmqr.2024.100412_bib7","first-page":"19","article-title":"Gender differences in health-related quality of life in adults with cystic fibrosis: An integrative literature review","volume":"9","author":"Bray","year":"2009","journal-title":"Journal of Nursing Practice Applications and Reviews of Research"},{"issue":"2","key":"10.1016\/j.ssmqr.2024.100412_bib9","doi-asserted-by":"crossref","DOI":"10.18061\/dsq.v38i2.6207","article-title":"Legal ableism interrupted: Developing tort law & policy alternatives to wrongful birth & wrongful life claims","volume":"38","author":"Brown","year":"2018","journal-title":"Disability Studies Quarterly"},{"key":"10.1016\/j.ssmqr.2024.100412_bib10","series-title":"Patient task force meeting on hormones","year":"2020"},{"key":"10.1016\/j.ssmqr.2024.100412_bib11","series-title":"Patient task force on hormones and cystic fibrosis","year":"2018"},{"issue":"4","key":"10.1016\/j.ssmqr.2024.100412_bib12","doi-asserted-by":"crossref","first-page":"657","DOI":"10.1111\/j.1533-8525.1995.tb00459.x","article-title":"The body, identity, and self: Adapting to impairment","volume":"36","author":"Charmaz","year":"1995","journal-title":"The Sociological Quarterly"},{"key":"10.1016\/j.ssmqr.2024.100412_bib13","series-title":"The handbook of social studies in health and medicine","first-page":"277","article-title":"Experiencing chronic illness","author":"Charmaz","year":"2000"},{"key":"10.1016\/j.ssmqr.2024.100412_bib14","series-title":"Constructing grounded theory: Introducing qualitative methods","author":"Charmaz","year":"2014"},{"issue":"1","key":"10.1016\/j.ssmqr.2024.100412_bib15","doi-asserted-by":"crossref","first-page":"21","DOI":"10.1002\/symb.432","article-title":"Experiencing stigma and exclusion: The influence of neoliberal perspectives, practices, and policies on living with chronic illness and disability","volume":"43","author":"Charmaz","year":"2019","journal-title":"Symbolic Interaction"},{"key":"10.1016\/j.ssmqr.2024.100412_bib16","series-title":"Body\/Embodiment: Symbolic interaction and the sociology of the body","first-page":"42","article-title":"Reflections of the body, images of self: Visibility and invisibility in chronic illness and disability","author":"Charmaz","year":"2006"},{"issue":"21","key":"10.1016\/j.ssmqr.2024.100412_bib17","doi-asserted-by":"crossref","first-page":"1978","DOI":"10.1056\/NEJMoa1106126","article-title":"Effect of estrogen on pseudomonas mucoidy and exacerbations in cystic fibrosis","volume":"366","author":"Chotirmall","year":"2012","journal-title":"New England Journal of Medicine"},{"issue":"3","key":"10.1016\/j.ssmqr.2024.100412_bib18","doi-asserted-by":"crossref","first-page":"359","DOI":"10.1215\/08992363-13-3-359","article-title":"Stolen bodies reclaimed bodies: Disability and queerness","volume":"13","author":"Clare","year":"2001","journal-title":"Public Culture"},{"key":"10.1016\/j.ssmqr.2024.100412_bib19","first-page":"261","article-title":"Body shame, body pride: Lessons from the disability rights movement","volume":"Vol. 2","author":"Clare","year":"2013"},{"key":"10.1016\/j.ssmqr.2024.100412_bib20","series-title":"Brilliant imperfection: Grappling with cure","author":"Clare","year":"2017"},{"issue":"1","key":"10.1016\/j.ssmqr.2024.100412_bib21","doi-asserted-by":"crossref","first-page":"43","DOI":"10.1177\/1357034X95001001004","article-title":"Merleau-Ponty, the elusive body and carnal sociology","volume":"1","author":"Crossley","year":"1995","journal-title":"Body & Society"},{"issue":"1_suppl","key":"10.1016\/j.ssmqr.2024.100412_bib22","doi-asserted-by":"crossref","first-page":"80","DOI":"10.1111\/j.1467-954X.2007.00694.x","article-title":"Researching embodiment by way of \u2018body techniques","volume":"55","author":"Crossley","year":"2007","journal-title":"\u2019 The Sociological Review"},{"key":"10.1016\/j.ssmqr.2024.100412_bib23","series-title":"Embodiment and experience: The existential ground of culture and self","author":"Csordas","year":"2005"},{"issue":"1","key":"10.1016\/j.ssmqr.2024.100412_bib24","doi-asserted-by":"crossref","first-page":"110","DOI":"10.1057\/sub.2008.5","article-title":"Intersubjectivity and intercorporeality","volume":"22","author":"Csordas","year":"2008","journal-title":"Subjectivity"},{"key":"10.1016\/j.ssmqr.2024.100412_bib25","first-page":"33","article-title":"Enhancing self-efficacy for self-management in people with cystic fibrosis","volume":"169","author":"Cummings","year":"2011","journal-title":"Studies in Health Technology and Informatics"},{"key":"10.1016\/j.ssmqr.2024.100412_bib26","series-title":"Patient registry data handout. Cystic fibrosis","year":"2022"},{"key":"10.1016\/j.ssmqr.2024.100412_bib27","author":"Davis"},{"issue":"1","key":"10.1016\/j.ssmqr.2024.100412_bib28","doi-asserted-by":"crossref","first-page":"87","DOI":"10.1146\/annurev-anthro-092010-153345","article-title":"Phenomenological approaches in anthropology","volume":"40","author":"DeJarlais","year":"2011","journal-title":"Annual review of anthropology"},{"issue":"12","key":"10.1016\/j.ssmqr.2024.100412_bib29","doi-asserted-by":"crossref","first-page":"1355","DOI":"10.1080\/07399332.2021.1884682","article-title":"Women's embodied, experiences of using wearable digital self-tracking health technology: A review of the qualitative research literature","volume":"43","author":"Del Busso","year":"2022","journal-title":"Health Care for Women International"},{"issue":"August","key":"10.1016\/j.ssmqr.2024.100412_bib30","article-title":"Current state of CFTR modulators for treatment of, Cystic Fibrosis","volume":"65","author":"Despotes","year":"2022","journal-title":"Current Opinion in Pharmacology"},{"key":"10.1016\/j.ssmqr.2024.100412_bib31","series-title":"Embodying difference: Critical, phenomenology and narratives of disability, race, and sexuality","first-page":"21","article-title":"Disability and embodiment","author":"Dickel","year":"2022"},{"issue":"2","key":"10.1016\/j.ssmqr.2024.100412_bib32","doi-asserted-by":"crossref","first-page":"298","DOI":"10.1177\/1049732305281944","article-title":"Embodied knowledge: Writing researchers' bodies into qualitative health, research","volume":"16","author":"Ellingson","year":"2006","journal-title":"Qualitative Health Research"},{"key":"10.1016\/j.ssmqr.2024.100412_bib33","series-title":"The sage encyclopedia for qualitative research methods","first-page":"244","article-title":"Embodied knowledge","author":"Ellingson","year":"2008"},{"key":"10.1016\/j.ssmqr.2024.100412_bib34","series-title":"Embodiment in qualitative research","author":"Ellingson","year":"2017"},{"key":"10.1016\/j.ssmqr.2024.100412_bib35","series-title":"Sexing the body: Gender politics and the construction of sexuality","author":"Fausto-Sterling","year":"2000"},{"issue":"3","key":"10.1016\/j.ssmqr.2024.100412_bib36","doi-asserted-by":"crossref","first-page":"591","DOI":"10.1111\/j.1527-2001.2011.01206.x","article-title":"Misfits: A feminist materialist disability concept","volume":"26","author":"Garland-Thomson","year":"2011","journal-title":"Hypatia"},{"issue":"4","key":"10.1016\/j.ssmqr.2024.100412_bib37","doi-asserted-by":"crossref","first-page":"206","DOI":"10.1016\/S1569-1993(03)00093-6","article-title":"Quality of life in cystic fibrosis: The impact of gender, general health perceptions, and disease severity","volume":"2","author":"Gee","year":"2003","journal-title":"Journal of Cystic Fibrosis"},{"issue":"6","key":"10.1016\/j.ssmqr.2024.100412_bib38","doi-asserted-by":"crossref","first-page":"420","DOI":"10.1016\/j.contraception.2020.02.006","article-title":"Contraceptive use among women with cystic fibrosis: A pilot study linking reproductive health questions to the cystic fibrosis foundation national patient registry","volume":"101","author":"Godfrey","year":"2020","journal-title":"Contraception"},{"issue":"5","key":"10.1016\/j.ssmqr.2024.100412_bib39","doi-asserted-by":"crossref","first-page":"631","DOI":"10.1080\/09687599.2012.717884","article-title":"Dis\/entangling critical disability studies","volume":"28","author":"Goodley","year":"2013","journal-title":"Disability & Society"},{"issue":"3","key":"10.1016\/j.ssmqr.2024.100412_bib40","doi-asserted-by":"crossref","first-page":"3","DOI":"10.1177\/1357034X19898259","article-title":"\u2018Catching ovulation\u2019: Exploring women's use of fertility tracking apps as a reproductive technology","volume":"26","author":"Hamper","year":"2020","journal-title":"Body & Society"},{"issue":"3","key":"10.1016\/j.ssmqr.2024.100412_bib41","doi-asserted-by":"crossref","first-page":"575","DOI":"10.2307\/3178066","article-title":"Situated knowledges: The science question in feminism and the privilege of partial perspective","volume":"14","author":"Haraway","year":"1988","journal-title":"Feminist Studies"},{"key":"10.1016\/j.ssmqr.2024.100412_bib42","series-title":"The science question in feminism","author":"Harding","year":"1986"},{"issue":"12","key":"10.1016\/j.ssmqr.2024.100412_bib43","doi-asserted-by":"crossref","first-page":"1012","DOI":"10.1089\/jwh.2014.4985","article-title":"Gender differences in outcomes of patients with cystic fibrosis","volume":"23","author":"Harness-Brumley","year":"2014","journal-title":"Journal of Women's Health"},{"key":"10.1016\/j.ssmqr.2024.100412_bib44","series-title":"A sensory education","author":"Harris","year":"2021"},{"issue":"supplement 21","key":"10.1016\/j.ssmqr.2024.100412_bib45","doi-asserted-by":"crossref","first-page":"S26","DOI":"10.1086\/705781","article-title":"Disability expertise: Claiming disability anthropology","volume":"61","author":"Hartblay","year":"2020","journal-title":"Current Anthropology"},{"issue":"3","key":"10.1016\/j.ssmqr.2024.100412_bib46","doi-asserted-by":"crossref","first-page":"62","DOI":"10.32398\/cjhp.v11i3.1542","article-title":"Utilizing bodily knowledge in patients with chronic illness in the promotion of their health","volume":"11","author":"Heggdal","year":"2013","journal-title":"Californian Journal of Health Promotion"},{"key":"10.1016\/j.ssmqr.2024.100412_bib47","series-title":"Health promotion among individuals facing chronic illness: The unique contribution of the bodyknowledging program - 16","author":"Heggdal","year":"2021"},{"issue":"3","key":"10.1016\/j.ssmqr.2024.100412_bib49","doi-asserted-by":"crossref","first-page":"325","DOI":"10.1080\/09687599727209","article-title":"The social model of disability and the disappearing body: Towards a sociology of impairment","volume":"12","author":"Hughes","year":"1997","journal-title":"Disability & Society"},{"issue":"2","key":"10.1016\/j.ssmqr.2024.100412_bib50","doi-asserted-by":"crossref","first-page":"115","DOI":"10.1016\/S0738-3991(97)00087-6","article-title":"Cystic fibrosis through a female perspective: Psychosocial issues and information concerning puberty and motherhood","volume":"34","author":"Johannesson","year":"1998","journal-title":"Patient Education and Counseling"},{"issue":"2","key":"10.1016\/j.ssmqr.2024.100412_bib51","doi-asserted-by":"crossref","first-page":"241","DOI":"10.1111\/1467-9566.ep10934993","article-title":"Medical sociology, chronic illness, and the body","volume":"18","author":"Kelly","year":"1996","journal-title":"Sociology of Health & Illness"},{"key":"10.1016\/j.ssmqr.2024.100412_bib52","series-title":"The illness narratives: Suffering, healing, and the human condition","author":"Kleinman","year":"2020"},{"issue":"2\u20133","key":"10.1016\/j.ssmqr.2024.100412_bib53","doi-asserted-by":"crossref","first-page":"205","DOI":"10.1177\/1357034X04042943","article-title":"How to talk about the body? The normative dimension of science studies","volume":"10","author":"Latour","year":"2004","journal-title":"Body & Society"},{"key":"10.1016\/j.ssmqr.2024.100412_bib54","series-title":"The absent body","author":"Leder","year":"1990"},{"key":"10.1016\/j.ssmqr.2024.100412_bib55","series-title":"Disability and mothering: Liminal spaces of embodied knowledge","author":"Lewiecki-Wilson","year":"2011"},{"issue":"12","key":"10.1016\/j.ssmqr.2024.100412_bib56","doi-asserted-by":"crossref","first-page":"1344","DOI":"10.1111\/soc4.12226","article-title":"Critical perspectives on digital health technologies","volume":"8","author":"Lupton","year":"2014","journal-title":"Sociology compass"},{"key":"10.1016\/j.ssmqr.2024.100412_bib57","series-title":"Digital health: Critical and cross-disciplinary perspectives","author":"Lupton","year":"2017"},{"issue":"2","key":"10.1016\/j.ssmqr.2024.100412_bib58","doi-asserted-by":"crossref","first-page":"190","DOI":"10.1080\/17458927.2018.1480177","article-title":"The more-than-human sensorium: Sensory engagements with digital self-tracking technologies","volume":"13","author":"Lupton","year":"2018","journal-title":"The Senses & Society"},{"issue":"1","key":"10.1016\/j.ssmqr.2024.100412_bib59","doi-asserted-by":"crossref","DOI":"10.2196\/11481","article-title":"How women use digital technologies for health: Qualitative interview and focus group study","volume":"21","author":"Lupton","year":"2019","journal-title":"Journal of Medical Internet Research"},{"issue":"8","key":"10.1016\/j.ssmqr.2024.100412_bib60","doi-asserted-by":"crossref","first-page":"1637","DOI":"10.1111\/1467-9566.12982","article-title":"\u201cKeeping it real\u201d: Women's enactments of lay health knowledges and expertise on Facebook","volume":"41","author":"Lupton","year":"2019","journal-title":"Sociology of Health & Illness"},{"key":"10.1016\/j.ssmqr.2024.100412_bib61","series-title":"Chronic conditions, fluid states: Chronicity and the anthropology of illness","author":"Manderson","year":"2010"},{"key":"10.1016\/j.ssmqr.2024.100412_bib62","doi-asserted-by":"crossref","DOI":"10.1177\/2055207617709101","article-title":"Layers of sense: The sensory work of diagnostic sensemaking in digital health","volume":"3","author":"Maslen","year":"2017","journal-title":"Digital Health"},{"key":"10.1016\/j.ssmqr.2024.100412_bib63","first-page":"277","article-title":"Becoming a diagnostic agent: A collated ethnography of digital- sensory work in caregiving intra-actions","author":"Maslen","year":"2021","journal-title":"Social Science & Medicine"},{"key":"10.1016\/j.ssmqr.2024.100412_bib64","series-title":"Risking the future: Biomedicine and modernity in the lives of adults with cystic fibrosis (Order No. 3102681)","author":"Maynard","year":"2003"},{"issue":"S1","key":"10.1016\/j.ssmqr.2024.100412_bib65","doi-asserted-by":"crossref","DOI":"10.1002\/ppul.25733","article-title":"Increasing life expectancy in cystic fibrosis: Advances and challenges","volume":"57","author":"McBennett","year":"2022","journal-title":"Pediatric Pulmonology"},{"key":"10.1016\/j.ssmqr.2024.100412_bib66","series-title":"Phenomenology of perception","author":"Merleau-Ponty","year":"1962"},{"key":"10.1016\/j.ssmqr.2024.100412_bib67","series-title":"The Genome and the biome: Cystic fibrosis @ six feet apart","author":"Mueller","year":"2021"},{"key":"10.1016\/j.ssmqr.2024.100412_bib68","article-title":"Prognostic imagination: Genetic counseling amidst therapeutic innovation and evolving futures","author":"Mueller","year":"2022","journal-title":"Journal of Genetic Counseling"},{"issue":"S3","key":"10.1016\/j.ssmqr.2024.100412_bib69","doi-asserted-by":"crossref","first-page":"S86","DOI":"10.1002\/ppul.24127","article-title":"Overcoming psychosocial challenges in cystic fibrosis: Promoting resilience","volume":"53","author":"Muther","year":"2018","journal-title":"Pediatric Pulmonology"},{"issue":"3","key":"10.1016\/j.ssmqr.2024.100412_bib70","doi-asserted-by":"crossref","first-page":"78","DOI":"10.3390\/socsci8030078","article-title":"The Salt without the Girl: Negotiating embodied identity as an agender person with cystic fibrosis","volume":"8","author":"Nowakowski","year":"2019","journal-title":"Social Sciences"},{"issue":"4","key":"10.1016\/j.ssmqr.2024.100412_bib71","doi-asserted-by":"crossref","first-page":"490","DOI":"10.1177\/1049732315570130","article-title":"Women's construction of embodiment and the abject sexual body after cancer","volume":"26","author":"Parton","year":"2016","journal-title":"Qualitative Health Research"},{"issue":"2","key":"10.1016\/j.ssmqr.2024.100412_bib72","doi-asserted-by":"crossref","DOI":"10.2196\/21138","article-title":"A smartphone app with a digital care pathway for patients undergoing spine surgery: Development and feasibility study","volume":"3","author":"Ponder","year":"2020","journal-title":"JMIR Perioperative Medicine"},{"issue":"1","key":"10.1016\/j.ssmqr.2024.100412_bib73","doi-asserted-by":"crossref","first-page":"268","DOI":"10.1111\/hypa.12127","article-title":"The bodymind problem and the possibilities of pain","volume":"30","author":"Price","year":"2015","journal-title":"Hypatia"},{"issue":"4","key":"10.1016\/j.ssmqr.2024.100412_bib74","doi-asserted-by":"crossref","first-page":"2347","DOI":"10.1378\/chest.128.4.2347","article-title":"Development and validation of the cystic fibrosis questionnaire in the United States","volume":"128","author":"Quittner","year":"2005","journal-title":"Chest"},{"issue":"12","key":"10.1016\/j.ssmqr.2024.100412_bib75","doi-asserted-by":"crossref","first-page":"1090","DOI":"10.1136\/thoraxjnl-2014-205983","article-title":"Prevalence of depression and anxiety in patients with cystic fibrosis and parent caregivers: Results of The International Depression Epidemiological Study across nine countries","volume":"69","author":"Quittner","year":"2014","journal-title":"Thorax"},{"key":"10.1016\/j.ssmqr.2024.100412_bib76","series-title":"Disability and passing blurring the lines of identity","first-page":"111","article-title":"Athlete first: A note on passing, disability and sport disability and passing: Blurring the lines of identity","author":"Rembis","year":"2013"},{"key":"10.1016\/j.ssmqr.2024.100412_bib77","series-title":"Routledge handbook of disability studies","first-page":"377","article-title":"Challenging the impairment\/disability divide: Disability history and the social model of disability","author":"Rembis","year":"2019"},{"issue":"2","key":"10.1016\/j.ssmqr.2024.100412_bib78","doi-asserted-by":"crossref","first-page":"245","DOI":"10.1177\/0959353509102222","article-title":"Imagining the other? Ethical challenges of researching and writing women's embodied lives","volume":"19","author":"Rice","year":"2009","journal-title":"Feminism & Psychology"},{"key":"10.1016\/j.ssmqr.2024.100412_bib79","series-title":"After the human: Culture, theory, and criticism in the 21st century","first-page":"58","article-title":"Affect and embodiment","author":"Robertson","year":"2020"},{"key":"10.1016\/j.ssmqr.2024.100412_bib80","series-title":"New directions in the sociology of chronic and disabling conditions: Assaults on the lifeworld","author":"Scambler","year":"2010"},{"key":"10.1016\/j.ssmqr.2024.100412_bib82","series-title":"The disability studies reader","first-page":"329","article-title":"Disability and the theory of complex embodiment: For identity politics in a new register","author":"Siebers","year":"2016"},{"issue":"4","key":"10.1016\/j.ssmqr.2024.100412_bib83","doi-asserted-by":"crossref","first-page":"309","DOI":"10.1002\/ppul.22967","article-title":"The cystic fibrosis gender gap: Potential roles of estrogen","volume":"49","author":"Sweezey","year":"2014","journal-title":"Pediatric Pulmonology"},{"key":"10.1016\/j.ssmqr.2024.100412_bib84","series-title":"New directions in the sociology of chronic and disabling conditions","first-page":"37","article-title":"Medical sociology and disability theory","author":"Thomas","year":"2010"},{"issue":"30","key":"10.1016\/j.ssmqr.2024.100412_bib85","doi-asserted-by":"crossref","first-page":"209","DOI":"10.1057\/sth.2012.7","article-title":"Theorizing disability and chronic illness: Where next for perspectives in medical sociology?","volume":"10","author":"Thomas","year":"2012","journal-title":"Social Theory & Health"},{"issue":"1","key":"10.1016\/j.ssmqr.2024.100412_bib86","doi-asserted-by":"crossref","first-page":"9","DOI":"10.1007\/BF01322837","article-title":"The lived experience of disability","volume":"18","author":"Toombs","year":"1995","journal-title":"Human Studies"},{"issue":"3","key":"10.1016\/j.ssmqr.2024.100412_bib87","doi-asserted-by":"crossref","first-page":"638","DOI":"10.1002\/ppul.24574","article-title":"Resilience in adolescents and young adults with cystic fibrosis: A pilot feasibility study promoting resilience in stress management intervention","volume":"55","author":"Toprak","year":"2019","journal-title":"Pediatric Pulmonology"},{"issue":"3","key":"10.1016\/j.ssmqr.2024.100412_bib88","first-page":"30","article-title":"Society and culture: Principles of scarcity and solidarity. SAGE. Underman, K","volume":"28","author":"Turner","year":"2001","journal-title":"The social transmission of bodily knowledge. Body & Society"},{"issue":"6","key":"10.1016\/j.ssmqr.2024.100412_bib89","doi-asserted-by":"crossref","first-page":"544","DOI":"10.1097\/MCP.0000000000000821","article-title":"Telehealth and virtual health monitoring in cystic fibrosis","volume":"27","author":"Vagg","year":"2021","journal-title":"Current Opinion in Pulmonary Medicine"},{"issue":"1","key":"10.1016\/j.ssmqr.2024.100412_bib90","doi-asserted-by":"crossref","first-page":"251","DOI":"10.1146\/annurev.anthro.33.070203.143749","article-title":"Hang on to your self: Of bodies, embodiment, and selves","volume":"33","author":"Van Wolputte","year":"2004","journal-title":"Annual Review of Anthropology"},{"key":"10.1016\/j.ssmqr.2024.100412_bib91","article-title":"Sex differences in outcomes of people with cystic fibrosis treated with elexacaftor\/tezacaftor\/ivacaftor","author":"Wang","year":"2023","journal-title":"Journal of Cystic Fibrosis"},{"key":"10.1016\/j.ssmqr.2024.100412_bib92","series-title":"Body images: Embodiment as intercorporeality","author":"Weiss","year":"1999"},{"issue":"1","key":"10.1016\/j.ssmqr.2024.100412_bib93","doi-asserted-by":"crossref","first-page":"77","DOI":"10.1007\/s11007-014-9316-y","article-title":"The normal, the natural, and the normative: A merleau-pontian legacy to feminist theory, critical race theory, and disability studies","volume":"48","author":"Weiss","year":"2015","journal-title":"Continental Philosophy Review"},{"issue":"3","key":"10.1016\/j.ssmqr.2024.100412_bib94","doi-asserted-by":"crossref","first-page":"170","DOI":"10.1046\/j.1440-1800.2003.00178.x","article-title":"Embodied knowledge in chronic illness and injury","volume":"10","author":"Wilde","year":"2003","journal-title":"Nursing Inquiry"},{"key":"10.1016\/j.ssmqr.2024.100412_bib95","series-title":"The lived body: Sociological themes, embodied issues","author":"Williams","year":"1998"},{"issue":"9","key":"10.1016\/j.ssmqr.2024.100412_bib96","doi-asserted-by":"crossref","first-page":"1163","DOI":"10.1016\/S0277-9536(00)00416-0","article-title":"Gendered embodiment and survival for young people with cystic fibrosis","volume":"53","author":"Willis","year":"2001","journal-title":"Social Science & Medicine"}],"container-title":["SSM - Qualitative Research in Health"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S2667321524000210?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S2667321524000210?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2024,11,25]],"date-time":"2024-11-25T04:20:02Z","timestamp":1732508402000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S2667321524000210"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,6]]},"references-count":90,"alternative-id":["S2667321524000210"],"URL":"https:\/\/doi.org\/10.1016\/j.ssmqr.2024.100412","relation":{},"ISSN":["2667-3215"],"issn-type":[{"value":"2667-3215","type":"print"}],"subject":[],"published":{"date-parts":[[2024,6]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"When chronicity meets cyclicity: The cultivation of embodied knowledge and selfhood by cis-gender women with cystic fibrosis","name":"articletitle","label":"Article Title"},{"value":"SSM - Qualitative Research in Health","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.ssmqr.2024.100412","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2024 The Authors. Published by Elsevier Ltd.","name":"copyright","label":"Copyright"}],"article-number":"100412"}}