{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,8]],"date-time":"2026-10-08T00:26:10Z","timestamp":1791419170061,"version":"4.3.3"},"reference-count":34,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2021,3,1]],"date-time":"2021-03-01T00:00:00Z","timestamp":1614556800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2021,3,1]],"date-time":"2021-03-01T00:00:00Z","timestamp":1614556800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"}],"funder":[{"DOI":"10.13039\/100000062","name":"National Institute of Diabetes and Digestive and Kidney Diseases","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100000062","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","clinicalkey.es","clinicalkey.fr","clinicalkey.jp","goldjournal.net","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Urology"],"published-print":{"date-parts":[[2021,3]]},"DOI":"10.1016\/j.urology.2020.11.016","type":"journal-article","created":{"date-parts":[[2020,11,20]],"date-time":"2020-11-20T05:56:37Z","timestamp":1605851797000},"page":"255-262","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":27,"special_numbering":"C","title":["Characteristics Associated With Depression, Anxiety, and Social Isolation in Adults With Spina Bifida"],"prefix":"10.1016","volume":"149","author":[{"given":"Amy","family":"Showen","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Hillary L.","family":"Copp","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Isabel Elaine","family":"Allen","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Nima","family":"Baradaran","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Aron","family":"Liaw","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lindsay A.","family":"Hampson","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"key":"10.1016\/j.urology.2020.11.016_bib0001","doi-asserted-by":"crossref","first-page":"995","DOI":"10.1002\/bdra.22858","article-title":"Twenty-five-year survival of children with birth defects in New York state: a population-based study","volume":"91","author":"Wang","year":"2011","journal-title":"Birth Defects Res Clin Mol Teratol"},{"key":"10.1016\/j.urology.2020.11.016_bib0002","doi-asserted-by":"crossref","first-page":"778","DOI":"10.1093\/jpepsy\/jsp094","article-title":"Correlates of depressive and anxiety symptoms in young adults with spina bifida","volume":"35","author":"Bellin","year":"2010","journal-title":"J Pediatr Psychol"},{"key":"10.1016\/j.urology.2020.11.016_bib0003","doi-asserted-by":"crossref","first-page":"50","DOI":"10.1093\/jpepsy\/jss095","article-title":"Self-Management, satisfaction with family functioning, and the course of psychological symptoms in emerging adults with spina bifida","volume":"38","author":"Bellin","year":"2013","journal-title":"J Pediatr Psychol"},{"issue":"S1","key":"10.1016\/j.urology.2020.11.016_bib0004","doi-asserted-by":"crossref","first-page":"S31","DOI":"10.1186\/1743-8454-3-S1-S31","article-title":"A comparative study of quality of life among adults with spina bifida","volume":"3","author":"Kalfoss","year":"2006","journal-title":"Fluids Barriers CNS"},{"key":"10.1016\/j.urology.2020.11.016_bib0005","doi-asserted-by":"crossref","first-page":"533","DOI":"10.1097\/PHM.0b013e3181aa41d4","article-title":"Mobility, assistive technology use, and social integration among adults with spina bifida","volume":"88","author":"Dicianno","year":"2009","journal-title":"Am J Phys Med Rehabil"},{"key":"10.1016\/j.urology.2020.11.016_bib0006","first-page":"280","article-title":"Family and peer issues among adolescents with spina bifida and cerebral palsy","volume":"88","author":"Blum","year":"1991","journal-title":"Pediatrics"},{"key":"10.1016\/j.urology.2020.11.016_bib0007","doi-asserted-by":"crossref","first-page":"784","DOI":"10.1097\/01.ajp.0000210929.43192.5d","article-title":"The role of pain in reduced quality of life and depressive symptomology in children with spina bifida","volume":"22","author":"Oddson","year":"2006","journal-title":"Clin J Pain"},{"key":"10.1016\/j.urology.2020.11.016_bib0008","doi-asserted-by":"crossref","first-page":"42","DOI":"10.1016\/j.socscimed.2017.11.008","article-title":"The relationship between physical and mental health: a mediation analysis","volume":"195","author":"Ohrnberger","year":"2017","journal-title":"Soc Sci Med"},{"key":"10.1016\/j.urology.2020.11.016_bib0009","doi-asserted-by":"crossref","first-page":"749","DOI":"10.1111\/j.1469-8749.2009.03543.x","article-title":"Expectation of life and unexpected death in open spina bifida: a 40-year complete, non-selective, longitudinal cohort study: life expectancy and unexpected death in open spina bifida","volume":"52","author":"Oakeshott","year":"2009","journal-title":"Dev Med Child Neurol"},{"key":"10.1016\/j.urology.2020.11.016_bib0010","doi-asserted-by":"crossref","first-page":"187","DOI":"10.1016\/j.juro.2018.02.3101","article-title":"Bladder management and continence outcomes in adults with spina bifida: results from the National Spina Bifida Patient Registry, 2009 to 2015","volume":"200","author":"Wiener","year":"2018","journal-title":"J Urol"},{"key":"10.1016\/j.urology.2020.11.016_bib0011","doi-asserted-by":"crossref","first-page":"88","DOI":"10.1016\/j.eururo.2011.07.049","article-title":"Urinary incontinence and its relationship to mental health and health-related quality of life in men and women in Sweden, the United Kingdom, and the United States","volume":"61","author":"Coyne","year":"2012","journal-title":"Eur Urol"},{"key":"10.1016\/j.urology.2020.11.016_bib0012","doi-asserted-by":"crossref","first-page":"324","DOI":"10.1111\/wvn.12231","article-title":"Quality of life of intermittent urinary catheterization users and their caregivers: a scoping review: QoL and intermittent urinary catheterization: a scoping review","volume":"14","author":"Fumincelli","year":"2017","journal-title":"Worldviews Evid-Based Nurs"},{"key":"10.1016\/j.urology.2020.11.016_bib0013","doi-asserted-by":"crossref","first-page":"679","DOI":"10.1038\/sc.2017.19","article-title":"Social activity and relationship changes experienced by people with bowel and bladder dysfunction following spinal cord injury","volume":"55","author":"Braaf","year":"2017","journal-title":"Spinal Cord"},{"key":"10.1016\/j.urology.2020.11.016_bib0014","doi-asserted-by":"crossref","first-page":"72","DOI":"10.1016\/j.invent.2016.02.001","article-title":"Recruiting for health, medical or psychosocial research using Facebook: Systematic review","volume":"4","author":"Thornton","year":"2016","journal-title":"Internet Interv"},{"key":"10.1016\/j.urology.2020.11.016_bib0015","doi-asserted-by":"crossref","first-page":"452","DOI":"10.1016\/j.juro.2014.01.027","article-title":"The validity and reliability of the neurogenic bladder symptom score","volume":"192","author":"Welk","year":"2014","journal-title":"J Urol"},{"issue":"Suppl 1","key":"10.1016\/j.urology.2020.11.016_bib0016","doi-asserted-by":"crossref","first-page":"S3","DOI":"10.1097\/01.mlr.0000258615.42478.55","article-title":"The patient-reported outcomes measurement information system (PROMIS): progress of an NIH Roadmap Cooperative Group during its first two years","volume":"45","author":"Cella","year":"2007","journal-title":"Med Care"},{"key":"10.1016\/j.urology.2020.11.016_bib0017","series-title":"Patient-Reported Outcomes Measurement System (PROMIS)","year":"2020"},{"key":"10.1016\/j.urology.2020.11.016_bib0018","doi-asserted-by":"crossref","first-page":"1179","DOI":"10.1016\/j.jclinepi.2010.04.011","article-title":"The patient-reported outcomes measurement information system (PROMIS) developed and tested its first wave of adult self-reported health outcome item banks: 2005\u20132008","volume":"63","author":"Cella","year":"2010","journal-title":"J Clin Epidemiol"},{"key":"10.1016\/j.urology.2020.11.016_bib0019","doi-asserted-by":"crossref","first-page":"437","DOI":"10.1016\/j.jad.2018.12.098","article-title":"Comparative validity and responsiveness of PHQ-ADS and other composite anxiety-depression measures","volume":"246","author":"Kroenke","year":"2019","journal-title":"J Affect Disord"},{"key":"10.1016\/j.urology.2020.11.016_bib0020","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1057\/s41306-016-0016-1","article-title":"Large-scale clinical implementation of PROMIS computer adaptive testing with direct incorporation into the electronic medical record","volume":"7","author":"Papuga","year":"2018","journal-title":"Health Syst"},{"key":"10.1016\/j.urology.2020.11.016_bib0021","doi-asserted-by":"crossref","first-page":"246","DOI":"10.1037\/rep0000044","article-title":"Depressive symptoms in adults with spina bifida","volume":"60","author":"Dicianno","year":"2015","journal-title":"Rehabil Psychol"},{"key":"10.1016\/j.urology.2020.11.016_bib0022","article-title":"Comorbid anxiety and depression in adults: epidemiology, clinical manifestations, and diagnosis.","author":"Van Ameringan","year":"2020","journal-title":"UpToDate"},{"key":"10.1016\/j.urology.2020.11.016_bib0023","doi-asserted-by":"crossref","first-page":"1279","DOI":"10.1016\/j.clinthera.2009.06.004","article-title":"Systematic review and quality assessment of economic evaluations and quality-of-life studies related to generalized anxiety disorder","volume":"31","author":"Bereza","year":"2009","journal-title":"Clin Ther"},{"key":"10.1016\/j.urology.2020.11.016_bib0024","doi-asserted-by":"crossref","first-page":"22","DOI":"10.1002\/mpr.139","article-title":"The economic burden of depression and the cost-effectiveness of treatment","volume":"12","author":"Wang","year":"2003","journal-title":"Int J Method Psychiat Res"},{"key":"10.1016\/j.urology.2020.11.016_bib0025","doi-asserted-by":"crossref","first-page":"851","DOI":"10.1016\/S0140-6736(07)61415-9","article-title":"Depression, chronic diseases, and decrements in health: results from the World Health Surveys","volume":"370","author":"Moussavi","year":"2007","journal-title":"Lancet N Am Ed"},{"key":"10.1016\/j.urology.2020.11.016_bib0026","doi-asserted-by":"crossref","first-page":"555","DOI":"10.1370\/afm.143","article-title":"Depression and comorbid illness in elderly primary care patients: impact on multiple domains of health status and well-being","volume":"2","author":"Noel","year":"2004","journal-title":"Ann Fam Med"},{"key":"10.1016\/j.urology.2020.11.016_bib0027","doi-asserted-by":"crossref","first-page":"294","DOI":"10.1016\/j.pcad.2018.07.015","article-title":"Depressive and anxiety symptoms in adult congenital heart disease: prevalence, health impact and treatment","volume":"61","author":"Jackson","year":"2018","journal-title":"Prog Cardiovasc Dis"},{"key":"10.1016\/j.urology.2020.11.016_bib0028","doi-asserted-by":"crossref","first-page":"229","DOI":"10.1136\/thx.2009.126201","article-title":"Influence of anxiety on health outcomes in COPD","volume":"65","author":"Eisner","year":"2010","journal-title":"Thorax"},{"key":"10.1016\/j.urology.2020.11.016_bib0029","doi-asserted-by":"crossref","first-page":"48","DOI":"10.1016\/j.jad.2016.07.031","article-title":"When social anxiety and depression go together: a population study of comorbidity and associated consequences","volume":"206","author":"Adams","year":"2016","journal-title":"J Affect Disord"},{"key":"10.1016\/j.urology.2020.11.016_bib0030","doi-asserted-by":"crossref","first-page":"213","DOI":"10.1016\/j.jad.2012.04.029","article-title":"Cognitive therapy for anxious depression in STAR*D: what have we learned?","volume":"142","author":"Farabaugh","year":"2012","journal-title":"J Affect Disord"},{"key":"10.1016\/j.urology.2020.11.016_bib0031","unstructured":"Spina Bifida Association. Guidelines for the Care of People with Spina Bifida. Published online 2018."},{"key":"10.1016\/j.urology.2020.11.016_bib0032","doi-asserted-by":"crossref","first-page":"253","DOI":"10.1017\/S0012162206000569","article-title":"Acquisition of autonomy skills in adolescents with myelomeningocele","volume":"48","author":"Davis","year":"2006","journal-title":"Dev Med Child Neurol"},{"key":"10.1016\/j.urology.2020.11.016_bib0033","series-title":"Cognitive Behavioral Group Therapy: Challenges and Opportunities","first-page":"44","article-title":"Effectiveness of CBGT compared to individual CBT.","author":"S\u00f6chting","year":"2014"},{"key":"10.1016\/j.urology.2020.11.016_bib0034","doi-asserted-by":"crossref","DOI":"10.1542\/peds.2017-3730","article-title":"Surgeries and health outcomes among patients with spina bifida","volume":"142","author":"Alabi","year":"2018","journal-title":"Pediatrics"}],"container-title":["Urology"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0090429520313911?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S0090429520313911?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2025,9,25]],"date-time":"2025-09-25T02:18:02Z","timestamp":1758766682000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S0090429520313911"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2021,3]]},"references-count":34,"alternative-id":["S0090429520313911"],"URL":"https:\/\/doi.org\/10.1016\/j.urology.2020.11.016","relation":{},"ISSN":["0090-4295"],"issn-type":[{"value":"0090-4295","type":"print"}],"subject":[],"published":{"date-parts":[[2021,3]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Characteristics Associated With Depression, Anxiety, and Social Isolation in Adults With Spina Bifida","name":"articletitle","label":"Article Title"},{"value":"Urology","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.urology.2020.11.016","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2020 Elsevier Inc. All rights reserved.","name":"copyright","label":"Copyright"}]}}