{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,29]],"date-time":"2026-09-29T21:19:18Z","timestamp":1790716758473,"version":"4.1.0"},"reference-count":55,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2015,10,1]],"date-time":"2015-10-01T00:00:00Z","timestamp":1443657600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"}],"funder":[{"DOI":"10.13039\/100010414","name":"Health Research Board","doi-asserted-by":"publisher","award":["2012\/6"],"award-info":[{"award-number":["2012\/6"]}],"id":[{"id":"10.13039\/100010414","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100010414","name":"Health Research Board","doi-asserted-by":"publisher","award":["HRA PHS\/2012\/10"],"award-info":[{"award-number":["HRA PHS\/2012\/10"]}],"id":[{"id":"10.13039\/100010414","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100012891","name":"Medical Research Charities Group","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100012891","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["clinicalkey.fr","clinicalkey.jp","clinicalkey.es","clinicalkey.com.au","clinicalkey.com","epilepsybehavior.com","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Epilepsy & Behavior"],"published-print":{"date-parts":[[2015,10]]},"DOI":"10.1016\/j.yebeh.2015.06.043","type":"journal-article","created":{"date-parts":[[2015,8,24]],"date-time":"2015-08-24T12:34:45Z","timestamp":1440419685000},"page":"225-239","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":46,"special_numbering":"C","title":["Family communication in the context of pediatric epilepsy: A systematic review"],"prefix":"10.1016","volume":"51","author":[{"given":"S.","family":"O'Toole","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"A.","family":"Benson","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"V.","family":"Lambert","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"P.","family":"Gallagher","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"A.","family":"Shahwan","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"J.K.","family":"Austin","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"key":"10.1016\/j.yebeh.2015.06.043_bb0005","doi-asserted-by":"crossref","first-page":"98","DOI":"10.1111\/j.1528-1157.2000.tb01512.x","article-title":"The stigma of epilepsy: a European perspective","volume":"41","author":"Baker","year":"2000","journal-title":"Epilepsia"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0010","doi-asserted-by":"crossref","first-page":"21","DOI":"10.1016\/S1525-5050(02)00547-4","article-title":"Stigma and epilepsy","volume":"3","author":"Morrell","year":"2002","journal-title":"Epilepsy Behav"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0015","doi-asserted-by":"crossref","first-page":"39","DOI":"10.1016\/S0920-1211(00)00126-1","article-title":"The impact of epilepsy from the patient's perspective I. Descriptions and subjective perceptions","author":"Fisher","year":"2000","journal-title":"Epilepsy Res"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0020","doi-asserted-by":"crossref","first-page":"171","DOI":"10.1002\/mrdd.10035","article-title":"The epidemiology of the epilepsies in children","volume":"8","author":"Cowan","year":"2002","journal-title":"Ment Retard Dev Disabil Res Rev"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0025","doi-asserted-by":"crossref","first-page":"547","DOI":"10.1016\/j.yebeh.2006.01.001","article-title":"Quality of life in medication-resistant epilepsy: the effects of patient's age, age at seizure onset, and disease duration","volume":"8","author":"Szaflarski","year":"2006","journal-title":"Epilepsy Behav"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0030","doi-asserted-by":"crossref","first-page":"845","DOI":"10.1111\/j.1528-1167.2009.02417.x","article-title":"Examining the prevalence of epilepsy and delivery of epilepsy care in Ireland","volume":"51","author":"Linehan","year":"2010","journal-title":"Epilepsia"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0035","doi-asserted-by":"crossref","first-page":"431","DOI":"10.1016\/j.seizure.2007.12.010","article-title":"Diagnosing epilepsy in neurology clinics: a prospective study","volume":"17","author":"Angus-Leppan","year":"2008","journal-title":"Seizure"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0040","doi-asserted-by":"crossref","first-page":"26","DOI":"10.1097\/DBP.0b013e3181c7226b","article-title":"Family functioning in the context of pediatric chronic conditions","volume":"31","author":"Herzer","year":"2010","journal-title":"J Dev Behav Pediatr"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0045","series-title":"Psychological interventions for parents of children and adolescents with chronic illness","author":"Eccleston","year":"2012"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0050","doi-asserted-by":"crossref","first-page":"29","DOI":"10.1111\/scs.12023","article-title":"Living as a family in the midst of chronic illness","volume":"28","author":"\u00c5restedt","year":"2014","journal-title":"Scand J Caring Sci"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0055","doi-asserted-by":"crossref","first-page":"43","DOI":"10.1016\/1059-1311(92)90054-5","article-title":"The impact of chronic epilepsy on the family","volume":"1","author":"Thompson","year":"1992","journal-title":"Seizure"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0060","doi-asserted-by":"crossref","first-page":"149","DOI":"10.1093\/jpepsy\/22.2.149","article-title":"Relating parent and family functioning to the psychological adjustment of children with chronic health conditions: what have we learned? What do we need to know?","volume":"22","author":"Drotar","year":"1997","journal-title":"J Pediatr Psychol"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0065","doi-asserted-by":"crossref","first-page":"455","DOI":"10.1146\/annurev-clinpsy-032511-143108","article-title":"Coping with chronic illness in childhood and adolescence","volume":"8","author":"Compas","year":"2012","journal-title":"Annu Rev Clin Psychol"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0070","series-title":"How do families cope with chronic illness?","year":"2013"},{"issue":"7384","key":"10.1016\/j.yebeh.2015.06.043_bb0075","doi-asserted-by":"crossref","first-page":"305","DOI":"10.1136\/bmj.326.7384.305","article-title":"Managing communication with young people who have a potentially life threatening chronic illness: qualitative study of patients and parents","volume":"326","author":"Young","year":"2003","journal-title":"BMJ"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0080","doi-asserted-by":"crossref","first-page":"1238","DOI":"10.1542\/peds.2007-1112","article-title":"Parents as information intermediaries between primary care and specialty physicians","volume":"120","author":"Stille","year":"2007","journal-title":"Pediatrics"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0085","doi-asserted-by":"crossref","first-page":"32","DOI":"10.2307\/800379","article-title":"In the closet with illness: epilepsy, stigma potential and information control","volume":"28","author":"Schneider","year":"1980","journal-title":"Soc Probl"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0090","doi-asserted-by":"crossref","first-page":"1821","DOI":"10.1016\/j.socscimed.2005.03.025","article-title":"Internet use and stigmatized illness","volume":"61","author":"Berger","year":"2005","journal-title":"Soc Sci Med"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0095","doi-asserted-by":"crossref","first-page":"171","DOI":"10.1016\/S1474-4422(05)70020-X","article-title":"Epilepsy and social identity: the stigma of a chronic neurological disorder","volume":"4","author":"Jacoby","year":"2005","journal-title":"Lancet Neurol"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0100","doi-asserted-by":"crossref","first-page":"S3","DOI":"10.1006\/ebeh.2000.0104","article-title":"The ILAE\/IBE\/WHO global campaign against epilepsy: bringing epilepsy \u201cout of the shadows\u201d","volume":"1","author":"Reynolds","year":"2000","journal-title":"Epilepsy Behav"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0105","author":"International Bureau for Epilepsy"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0110","doi-asserted-by":"crossref","first-page":"6","DOI":"10.1111\/j.1528-1167.2007.01391.x","article-title":"Social stigma for adults and children with epilepsy","volume":"48","author":"Jacoby","year":"2007","journal-title":"Epilepsia"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0115","doi-asserted-by":"crossref","first-page":"26","DOI":"10.1111\/1467-9566.ep11346455","article-title":"Being epileptic \u2014 coming to terms with stigma","volume":"8","author":"Scambler","year":"1986","journal-title":"Sociol Health Illn"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0120","doi-asserted-by":"crossref","first-page":"662","DOI":"10.1016\/j.yebeh.2008.07.017","article-title":"Development of the parent response to child illness (PRCI) scale","volume":"13","author":"Austin","year":"2008","journal-title":"Epilepsy Behav"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0125","series-title":"International classification of functioning, disability and health (ICF)","author":"WHO","year":"2001"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0130","doi-asserted-by":"crossref","first-page":"264","DOI":"10.7326\/0003-4819-151-4-200908180-00135","article-title":"Preferred reporting items for systematic reviews and meta-analyses: the PRISMA statement","volume":"151","author":"Moher","year":"2009","journal-title":"Ann Intern Med"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0135","series-title":"The critical skills appraisal programme: making sense of evidence","author":"Public Health Resource Unit","year":"2006"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0140","doi-asserted-by":"crossref","first-page":"218","DOI":"10.1016\/j.ejon.2004.08.006","article-title":"Quality of life of children following bone marrow transplantation: critical review of the research literature","volume":"9","author":"Tsimicalis","year":"2005","journal-title":"Eur J Oncol Nurs"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0195","doi-asserted-by":"crossref","first-page":"441","DOI":"10.1017\/S0033291700016111","article-title":"Dependency of different types in schoolchildren with epilepsy","volume":"8","author":"Stores","year":"1978","journal-title":"Psychol Med"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0170","doi-asserted-by":"crossref","first-page":"334","DOI":"10.1097\/00004703-198512000-00003","article-title":"Information needs of parents of children with epilepsy","volume":"6","author":"Coulter","year":"1985","journal-title":"J Dev Behav Pediatr"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0145","doi-asserted-by":"crossref","first-page":"131","DOI":"10.1016\/S0891-5245(02)95956-0","article-title":"A qualitative descriptive study of the lived experiences of school-aged children with epilepsy","volume":"16","author":"Hightower","year":"2002","journal-title":"J Pediatr Health Care"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0220","doi-asserted-by":"crossref","first-page":"65","DOI":"10.1111\/j.1469-7610.1981.tb00532.x","article-title":"Research note: interaction in the families of epileptic children","volume":"22","author":"Ritchie","year":"1981","journal-title":"J Child Psychol Psychiatry"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0150","doi-asserted-by":"crossref","first-page":"15","DOI":"10.1016\/S1059-1311(03)00080-3","article-title":"Quality of life and psychosocial development in adolescents with epilepsy: a qualitative investigation using focus group methods","volume":"13","author":"McEwan","year":"2004","journal-title":"Seizure"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0155","doi-asserted-by":"crossref","first-page":"13","DOI":"10.1017\/S0021932000000420","article-title":"Families with a child with epilepsy: a sociological contribution","volume":"9","author":"Mulder","year":"1977","journal-title":"J Biosoc Sci"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0175","doi-asserted-by":"crossref","first-page":"28","DOI":"10.1111\/j.1528-1157.1996.tb01816.x","article-title":"Quality of life in children with epilepsy","volume":"37","author":"Hanai","year":"1996","journal-title":"Epilepsia"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0180","doi-asserted-by":"crossref","first-page":"20","DOI":"10.1111\/j.1469-8749.1984.tb04401.x","article-title":"Does illness foster dependency? A study of epileptic and diabetic children","volume":"26","author":"Hoare","year":"1984","journal-title":"Dev Med Child Neurol"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0230","doi-asserted-by":"crossref","first-page":"36","DOI":"10.1016\/S0387-7604(88)80043-3","article-title":"Child\u2013parent relationships in the care of epileptic children","volume":"10","author":"Kitamoto","year":"1988","journal-title":"Brain Dev"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0200","doi-asserted-by":"crossref","first-page":"53","DOI":"10.1111\/j.1545-5300.1983.00053.x","article-title":"The family and the child with epilepsy","volume":"22","author":"Ferrari","year":"1983","journal-title":"Fam Process"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0160","doi-asserted-by":"crossref","first-page":"554","DOI":"10.1017\/S0012162299001176","article-title":"Health\u2010related quality of life in childhood epilepsy: the results of children's participation in identifying the components","volume":"41","author":"Ronen","year":"1999","journal-title":"Dev Med Child Neurol"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0205","doi-asserted-by":"crossref","first-page":"1083","DOI":"10.1111\/1469-7610.00526","article-title":"Maternal expressed emotion and adjustment in children with epilepsy","volume":"40","author":"Hodes","year":"1999","journal-title":"J Child Psychol Psychiatry"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0210","doi-asserted-by":"crossref","first-page":"309","DOI":"10.1016\/S0022-3476(79)80680-0","article-title":"Emotional complications of adolescent grand mal epilepsy","volume":"95","author":"Hodgman","year":"1979","journal-title":"J Pediatr"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0215","doi-asserted-by":"crossref","first-page":"102","DOI":"10.1016\/0896-6974(94)90007-8","article-title":"Mother\u2013child interactions and seizure control: relations with behavior problems in children with epilepsy","volume":"7","author":"Nicholas","year":"1994","journal-title":"J Epilepsy"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0185","doi-asserted-by":"crossref","first-page":"201","DOI":"10.1111\/j.1469-8749.1991.tb05109.x","article-title":"Psychosocial adjustment of children with chronic epilepsy and their families","volume":"33","author":"Hoare","year":"1991","journal-title":"Dev Med Child Neurol"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0190","doi-asserted-by":"crossref","first-page":"658","DOI":"10.1111\/j.1528-1157.1993.tb00443.x","article-title":"Role of child\u2013mother interaction in predicting competence of children with epilepsy","volume":"34","author":"Lothman","year":"1993","journal-title":"Epilepsia"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0165","doi-asserted-by":"crossref","first-page":"30","DOI":"10.1097\/01376517-200202000-00007","article-title":"A feasibility study of a family seizure management program: \u2018be seizure smart\u2019","volume":"34","author":"Austin","year":"2002","journal-title":"J Neurosci Nurs"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0225","doi-asserted-by":"crossref","first-page":"349","DOI":"10.1093\/jpepsy\/13.3.349","article-title":"Mother\u2013child interactions involving a child with epilepsy: a comparison of immigrant and native-born Mexican Americans","volume":"13","author":"Chavez","year":"1988","journal-title":"J Pediatr Psychol"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0250","doi-asserted-by":"crossref","first-page":"71","DOI":"10.1016\/j.yebeh.2008.08.011","article-title":"Do knowledge of, perception of, and attitudes toward epilepsy affect the quality of life of Turkish children with epilepsy and their parents?","volume":"14","author":"Hirfanoglu","year":"2009","journal-title":"Epilepsy Behav"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0255","doi-asserted-by":"crossref","first-page":"109","DOI":"10.1111\/j.1365-2214.2005.00492.x","article-title":"The impact of childhood chronic neurological diseases on Greek families","volume":"31","author":"Tzoufi","year":"2005","journal-title":"Child Care Health Dev"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0235","doi-asserted-by":"crossref","first-page":"195","DOI":"10.1097\/01.NUR.0000280488.33884.1d","article-title":"Concerns and needs of children with epilepsy and their parents","volume":"21","author":"McNelis","year":"2007","journal-title":"Clin Nurse Spec"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0240","doi-asserted-by":"crossref","first-page":"179","DOI":"10.1016\/j.yebeh.2008.09.025","article-title":"The impact of childhood epilepsy on quality of life: a qualitative investigation using focus group methods to obtain children's perspectives on living with epilepsy","volume":"14","author":"Moffat","year":"2009","journal-title":"Epilepsy Behav"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0245","doi-asserted-by":"crossref","first-page":"543","DOI":"10.1016\/j.ijnurstu.2006.10.009","article-title":"Transition experience of parents caring of children with epilepsy: a phenomenological study","volume":"45","author":"Mu","year":"2008","journal-title":"Int J Nurs Stud"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0260","doi-asserted-by":"crossref","first-page":"478","DOI":"10.1016\/j.seizure.2009.04.007","article-title":"FLIP&FLAP \u2014 a training programme for children and adolescents with epilepsy, and their parents","volume":"18","author":"Jantzen","year":"2009","journal-title":"Seizure"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0265","doi-asserted-by":"crossref","first-page":"1443","DOI":"10.1111\/j.1365-2702.2009.03075.x","article-title":"The effectiveness of a programme of enhancing resiliency by reducing family boundary ambiguity among children with epilepsy","volume":"19","author":"Mu","year":"2010","journal-title":"J Clin Nurs"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0275","doi-asserted-by":"crossref","first-page":"1227","DOI":"10.1111\/j.1528-1157.1997.tb01221.x","article-title":"Disclose or conceal? Strategies of information management in persons with epilepsy","volume":"38","author":"Troster","year":"1997","journal-title":"Epilepsia"},{"key":"10.1016\/j.yebeh.2015.06.043_bb0280","doi-asserted-by":"crossref","first-page":"158","DOI":"10.4103\/0972-2327.85873","article-title":"Confronting the stigma of epilepsy","volume":"14","author":"Thomas","year":"2011","journal-title":"Ann Indian Acad Neurol"}],"container-title":["Epilepsy & Behavior"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1525505015003819?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1525505015003819?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2022,7,13]],"date-time":"2022-07-13T05:21:54Z","timestamp":1657689714000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S1525505015003819"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2015,10]]},"references-count":55,"alternative-id":["S1525505015003819"],"URL":"https:\/\/doi.org\/10.1016\/j.yebeh.2015.06.043","relation":{},"ISSN":["1525-5050"],"issn-type":[{"value":"1525-5050","type":"print"}],"subject":[],"published":{"date-parts":[[2015,10]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Family communication in the context of pediatric epilepsy: A systematic review","name":"articletitle","label":"Article Title"},{"value":"Epilepsy & Behavior","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.yebeh.2015.06.043","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"Copyright \u00a9 2015 Elsevier Inc. All rights reserved.","name":"copyright","label":"Copyright"}]}}