{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,12]],"date-time":"2026-10-12T20:34:59Z","timestamp":1791837299298,"version":"4.3.4"},"reference-count":58,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2018,6,1]],"date-time":"2018-06-01T00:00:00Z","timestamp":1527811200000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"}],"content-domain":{"domain":["epilepsybehavior.com","clinicalkey.jp","clinicalkey.com","clinicalkey.es","clinicalkey.fr","clinicalkey.com.au","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Epilepsy &amp; Behavior"],"published-print":{"date-parts":[[2018,6]]},"DOI":"10.1016\/j.yebeh.2018.03.012","type":"journal-article","created":{"date-parts":[[2018,4,7]],"date-time":"2018-04-07T07:45:16Z","timestamp":1523087116000},"page":"13-21","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":51,"special_numbering":"C","title":["Tuberous sclerosis complex: Concerns and needs of patients and parents from the transitional period to adulthood"],"prefix":"10.1016","volume":"83","author":[{"given":"Pauline","family":"Both","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Lyenne","family":"ten Holt","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Sabine","family":"Mous","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Joke","family":"Patist","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Andr\u00e9","family":"Rietman","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Gwen","family":"Dieleman","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Leontine","family":"ten Hoopen","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Menno","family":"Vergeer","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Marie-Claire","family":"de Wit","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Karen","family":"Bindels-de Heus","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Henri\u00ebtte","family":"Moll","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Agnies","family":"van Eeghen","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"key":"10.1016\/j.yebeh.2018.03.012_bb0005","doi-asserted-by":"crossref","first-page":"125","DOI":"10.1111\/j.1749-6632.1991.tb37754.x","article-title":"Epidemiology of tuberous sclerosis","volume":"615","author":"Osborne","year":"1991","journal-title":"Ann N Y Acad Sci"},{"issue":"24","key":"10.1016\/j.yebeh.2018.03.012_bb0010","doi-asserted-by":"crossref","first-page":"21017","DOI":"10.1074\/jbc.C100136200","article-title":"Tuberin phosphorylation regulates its interaction with hamartin. Two proteins involved in tuberous sclerosis","volume":"276","author":"Aicher","year":"2001","journal-title":"J Biol Chem"},{"issue":"4","key":"10.1016\/j.yebeh.2018.03.012_bb0015","doi-asserted-by":"crossref","first-page":"273","DOI":"10.1136\/jmg.5.4.273","article-title":"Diagnostic and genetical aspects of tuberous sclerosis","volume":"5","author":"Nevin","year":"1968","journal-title":"J Med Genet"},{"issue":"4","key":"10.1016\/j.yebeh.2018.03.012_bb0020","doi-asserted-by":"crossref","first-page":"243","DOI":"10.1016\/j.pediatrneurol.2013.08.001","article-title":"Tuberous sclerosis complex diagnostic criteria update: recommendations of the 2012 Iinternational Tuberous Sclerosis Complex Consensus Conference","volume":"49","author":"Northrup","year":"2013","journal-title":"Pediatr Neurol"},{"key":"10.1016\/j.yebeh.2018.03.012_bb0025","doi-asserted-by":"crossref","first-page":"129","DOI":"10.1016\/S0072-9752(07)87009-6","article-title":"Tuberous sclerosis","volume":"87","author":"Curatolo","year":"2008","journal-title":"Handb Clin Neurol"},{"issue":"6","key":"10.1016\/j.yebeh.2018.03.012_bb0030","doi-asserted-by":"crossref","first-page":"691","DOI":"10.1111\/j.1468-1331.2009.02567.x","article-title":"Prevalence of subependymal giant cell tumors in patients with tuberous sclerosis and a review of the literature","volume":"16","author":"Adriaensen","year":"2009","journal-title":"Eur J Neurol"},{"issue":"9","key":"10.1016\/j.yebeh.2018.03.012_bb0035","doi-asserted-by":"crossref","first-page":"699","DOI":"10.1177\/08830738040190091101","article-title":"Molecular genetic basis of tuberous sclerosis complex: from bench to bedside","volume":"19","author":"Au","year":"2004","journal-title":"J Child Neurol"},{"issue":"1","key":"10.1016\/j.yebeh.2018.03.012_bb0040","doi-asserted-by":"crossref","first-page":"13","DOI":"10.1111\/j.1365-4632.2010.04727.x","article-title":"Tuberous sclerosis complex: tumors and tumorigenesis","volume":"50","author":"Borkowska","year":"2011","journal-title":"Int J Dermatol"},{"issue":"6","key":"10.1016\/j.yebeh.2018.03.012_bb0045","doi-asserted-by":"crossref","first-page":"591","DOI":"10.4065\/75.6.591","article-title":"High frequency of pulmonary lymphangioleiomyomatosis in women with tuberous sclerosis complex","volume":"75","author":"Costello","year":"2000","journal-title":"Mayo Clin Proc"},{"issue":"1","key":"10.1016\/j.yebeh.2018.03.012_bb0050","doi-asserted-by":"crossref","first-page":"e15","DOI":"10.1159\/000320891","article-title":"Tuberous sclerosis complex renal disease","volume":"118","author":"Dixon","year":"2011","journal-title":"Nephron Exp Nephrol"},{"issue":"4","key":"10.1016\/j.yebeh.2018.03.012_bb0055","doi-asserted-by":"crossref","first-page":"669","DOI":"10.1164\/ajrccm.164.4.2101154","article-title":"Prevalence and clinical characteristics of lymphangioleiomyomatosis (LAM) in patients with tuberous sclerosis complex","volume":"164","author":"Moss","year":"2001","journal-title":"Am J Respir Crit Care Med"},{"key":"10.1016\/j.yebeh.2018.03.012_bb0060","doi-asserted-by":"crossref","first-page":"50","DOI":"10.1111\/j.1749-6632.1991.tb37747.x","article-title":"Cardiac rhabdomyomas in tuberous sclerosis","volume":"615","author":"Watson","year":"1991","journal-title":"Ann N Y Acad Sci"},{"issue":"1","key":"10.1016\/j.yebeh.2018.03.012_bb0065","doi-asserted-by":"crossref","first-page":"1","DOI":"10.1111\/j.1365-2133.1996.tb03597.x","article-title":"The cutaneous features of tuberous sclerosis: a population study","volume":"135","author":"Webb","year":"1996","journal-title":"Br J Dermatol"},{"issue":"4","key":"10.1016\/j.yebeh.2018.03.012_bb0070","doi-asserted-by":"crossref","first-page":"241","DOI":"10.1177\/088307380401900401","article-title":"Neuropsychiatric problems in tuberous sclerosis complex","volume":"19","author":"Asato","year":"2004","journal-title":"J Child Neurol"},{"issue":"7","key":"10.1016\/j.yebeh.2018.03.012_bb0075","doi-asserted-by":"crossref","first-page":"1236","DOI":"10.1111\/j.1528-1167.2009.02474.x","article-title":"The natural history of epilepsy in tuberous sclerosis complex","volume":"51","author":"Chu-Shore","year":"2010","journal-title":"Epilepsia"},{"issue":"7","key":"10.1016\/j.yebeh.2018.03.012_bb0080","doi-asserted-by":"crossref","first-page":"733","DOI":"10.1016\/S1474-4422(15)00069-1","article-title":"Neurological and neuropsychiatric aspects of tuberous sclerosis complex","volume":"14","author":"Curatolo","year":"2015","journal-title":"Lancet Neurol"},{"issue":"10","key":"10.1016\/j.yebeh.2018.03.012_bb0085","doi-asserted-by":"crossref","first-page":"1282","DOI":"10.1177\/0883073809341272","article-title":"Attention-deficit hyperactivity disorder (ADHD) and tuberous sclerosis complex","volume":"24","author":"D'Agati","year":"2009","journal-title":"J Child Neurol"},{"issue":"3","key":"10.1016\/j.yebeh.2018.03.012_bb0090","doi-asserted-by":"crossref","first-page":"275","DOI":"10.1016\/j.nurt.2010.05.001","article-title":"Targeted treatments for cognitive and neurodevelopmental disorders in tuberous sclerosis complex","volume":"7","author":"de Vries","year":"2010","journal-title":"Neurotherapeutics"},{"issue":"2","key":"10.1016\/j.yebeh.2018.03.012_bb0095","doi-asserted-by":"crossref","first-page":"335","DOI":"10.1017\/S0033291702007092","article-title":"Learning disability and epilepsy in an epidemiological sample of individuals with tuberous sclerosis complex","volume":"33","author":"Joinson","year":"2003","journal-title":"Psychol Med"},{"issue":"9","key":"10.1016\/j.yebeh.2018.03.012_bb0100","doi-asserted-by":"crossref","first-page":"666","DOI":"10.1177\/08830738040190090601","article-title":"Behavioral and cognitive aspects of tuberous sclerosis complex","volume":"19","author":"Prather","year":"2004","journal-title":"J Child Neurol"},{"key":"10.1016\/j.yebeh.2018.03.012_bb0105","doi-asserted-by":"crossref","first-page":"77","DOI":"10.2147\/AHMT.S79060","article-title":"Epilepsy: addressing the transition from pediatric to adult care","volume":"7","author":"Rajendran","year":"2016","journal-title":"Adolesc Health Med Ther"},{"issue":"5","key":"10.1016\/j.yebeh.2018.03.012_bb0110","doi-asserted-by":"crossref","first-page":"562","DOI":"10.1177\/0883073809332396","article-title":"Adolescent and caregiver experiences with epilepsy","volume":"24","author":"Asato","year":"2009","journal-title":"J Child Neurol"},{"key":"10.1016\/j.yebeh.2018.03.012_bb0115","doi-asserted-by":"crossref","first-page":"29","DOI":"10.1111\/epi.12722","article-title":"Transition into adulthood: tuberous sclerosis complex, Sturge\u2013Weber syndrome, and Rasmussen encephalitis","volume":"55","author":"Thiele","year":"2014","journal-title":"Epilepsia"},{"issue":"1","key":"10.1016\/j.yebeh.2018.03.012_bb0120","doi-asserted-by":"crossref","first-page":"17","DOI":"10.1016\/j.pediatrneurol.2014.02.020","article-title":"What happens to children with epilepsy when they become adults? Some facts and opinions","volume":"51","author":"Camfield","year":"2014","journal-title":"Pediatr Neurol"},{"issue":"4","key":"10.1016\/j.yebeh.2018.03.012_bb0125","doi-asserted-by":"crossref","first-page":"659","DOI":"10.1002\/ajmg.a.35840","article-title":"Young Australian adults with NF1 have poor access to health care, high complication rates, and limited disease knowledge","volume":"161a","author":"Oates","year":"2013","journal-title":"Am J Med Genet A"},{"issue":"1","key":"10.1016\/j.yebeh.2018.03.012_bb0130","doi-asserted-by":"crossref","first-page":"E145-E152","DOI":"10.1542\/peds.2008-1298","article-title":"Planning for health care transitions: results from the 2005\u20132006 National Survey of children with special health care needs","volume":"123","author":"Lotstein","year":"2009","journal-title":"Pediatrics"},{"issue":"2","key":"10.1016\/j.yebeh.2018.03.012_bb0135","doi-asserted-by":"crossref","first-page":"181","DOI":"10.2217\/npy.13.13","article-title":"Transition to adulthood for individuals with autism spectrum disorder: current issues and future perspectives","volume":"3","author":"Friedman","year":"2013","journal-title":"Neuropsychiatry (London)"},{"issue":"4","key":"10.1016\/j.yebeh.2018.03.012_bb0140","doi-asserted-by":"crossref","DOI":"10.1016\/j.pcl.2010.07.017","article-title":"Approaches to transition in other chronic illnesses and conditions","volume":"57","author":"Betz","year":"2010","journal-title":"Pediatr Clin North Am"},{"issue":"3","key":"10.1016\/j.yebeh.2018.03.012_bb0145","doi-asserted-by":"crossref","first-page":"437","DOI":"10.1002\/ana.22393","article-title":"Transition to adult care for children with chronic neurological disorders","volume":"69","author":"Camfield","year":"2011","journal-title":"Ann Neurol"},{"issue":"4","key":"10.1016\/j.yebeh.2018.03.012_bb0150","first-page":"263","article-title":"Psychiatric comorbidity and treatment response in patients with tuberous sclerosis complex","volume":"23","author":"Chung","year":"2011","journal-title":"Ann Clin Psychiatry"},{"key":"10.1016\/j.yebeh.2018.03.012_bb0155","series-title":"Analyseren in kwalitatief onderzoek: denken en doen","author":"Boeije","year":"2005"},{"key":"10.1016\/j.yebeh.2018.03.012_bb0160","series-title":"International Classification of Functioning, Disability and Health (ICF)","author":"World Health Organization","year":"2001"},{"issue":"6","key":"10.1016\/j.yebeh.2018.03.012_bb0165","doi-asserted-by":"crossref","first-page":"759","DOI":"10.1111\/cch.12125","article-title":"Use of the international classification of functioning, disability and health as a framework for transition from paediatric to adult healthcare","volume":"40","author":"Nguyen","year":"2014","journal-title":"Child Care Health Dev"},{"key":"10.1016\/j.yebeh.2018.03.012_bb0170","series-title":"Diagnostic and statistical manual of mental disorders","author":"American Psychological Association","year":"2000"},{"issue":"3","key":"10.1016\/j.yebeh.2018.03.012_bb0175","doi-asserted-by":"crossref","first-page":"402","DOI":"10.1016\/j.yebeh.2007.02.004","article-title":"Psychological profile of adults with tuberous sclerosis complex","volume":"10","author":"Pulsifer","year":"2007","journal-title":"Epilepsy Behav"},{"key":"10.1016\/j.yebeh.2018.03.012_bb0180","doi-asserted-by":"crossref","first-page":"182","DOI":"10.1016\/j.yebeh.2015.07.035","article-title":"Developing from child to adult: risk factors for poor psychosocial outcome in adolescents and young adults with epilepsy","volume":"51","author":"Geerlings","year":"2015","journal-title":"Epilepsy Behav"},{"issue":"4","key":"10.1016\/j.yebeh.2018.03.012_bb0185","doi-asserted-by":"crossref","first-page":"435","DOI":"10.1016\/j.pediatrneurol.2014.11.013","article-title":"Tuberous sclerosis complex: a survey of health care resource use and health burden","volume":"52","author":"Rentz","year":"2015","journal-title":"Pediatr Neurol"},{"issue":"4","key":"10.1016\/j.yebeh.2018.03.012_bb0190","doi-asserted-by":"crossref","first-page":"195","DOI":"10.1097\/01.NUR.0000280488.33884.1d","article-title":"Concerns and needs of children with epilepsy and their parents","volume":"21","author":"McNelis","year":"2007","journal-title":"Clin Nurse Spec"},{"issue":"4","key":"10.1016\/j.yebeh.2018.03.012_bb0195","first-page":"243","article-title":"Stressor-related disorders in tuberous sclerosis","volume":"25","author":"Boronat","year":"2013","journal-title":"Ann Clin Psychiatry"},{"issue":"4","key":"10.1016\/j.yebeh.2018.03.012_bb0200","doi-asserted-by":"crossref","first-page":"540","DOI":"10.1016\/j.yebeh.2007.12.019","article-title":"The global burden and stigma of epilepsy","volume":"12","author":"de Boer","year":"2008","journal-title":"Epilepsy Behav"},{"issue":"4","key":"10.1016\/j.yebeh.2018.03.012_bb0205","doi-asserted-by":"crossref","first-page":"664","DOI":"10.1016\/j.yebeh.2005.07.004","article-title":"I just want to be normal: a qualitative study exploring how children and adolescents view the impact of intractable epilepsy on their quality of life","volume":"7","author":"Elliott","year":"2005","journal-title":"Epilepsy Behav"},{"issue":"6","key":"10.1016\/j.yebeh.2018.03.012_bb0210","doi-asserted-by":"crossref","first-page":"642","DOI":"10.1002\/(SICI)1096-8628(19991215)88:6<642::AID-AJMG12>3.0.CO;2-O","article-title":"Cognitive deficits in normally intelligent patients with tuberous sclerosis","volume":"88","author":"Harrison","year":"1999","journal-title":"Am J Med Genet"},{"issue":"4","key":"10.1016\/j.yebeh.2018.03.012_bb0215","doi-asserted-by":"crossref","first-page":"256","DOI":"10.1017\/S0012162201002031","article-title":"Care of adolescents with severe learning disability from tuberous sclerosis","volume":"44","author":"Ferguson","year":"2002","journal-title":"Dev Med Child Neurol"},{"key":"10.1016\/j.yebeh.2018.03.012_bb0220","doi-asserted-by":"crossref","DOI":"10.1002\/ajmg.a.38680","article-title":"Growing up with neurofibromatosis type 1: worries and needs of patients and parents from transition to adulthood","author":"Rietman","year":"2018","journal-title":"Am J Med Genet A"},{"issue":"9861","key":"10.1016\/j.yebeh.2018.03.012_bb0225","doi-asserted-by":"crossref","first-page":"125","DOI":"10.1016\/S0140-6736(12)61134-9","article-title":"Efficacy and safety of everolimus for subependymal giant cell astrocytomas associated with tuberous sclerosis complex (EXIST-1): a multicentre, randomised, placebo-controlled phase 3 trial","volume":"381","author":"Franz","year":"2013","journal-title":"Lancet"},{"issue":"9826","key":"10.1016\/j.yebeh.2018.03.012_bb0230","doi-asserted-by":"crossref","first-page":"1621","DOI":"10.1016\/S0140-6736(11)61851-5","article-title":"Prevalence and risk of violence against adults with disabilities: a systematic review and meta-analysis of observational studies","volume":"379","author":"Hughes","year":"2012","journal-title":"Lancet"},{"issue":"9845","key":"10.1016\/j.yebeh.2018.03.012_bb0235","doi-asserted-by":"crossref","first-page":"899","DOI":"10.1016\/S0140-6736(12)60692-8","article-title":"Prevalence and risk of violence against children with disabilities: a systematic review and meta-analysis of observational studies","volume":"380","author":"Jones","year":"2012","journal-title":"Lancet"},{"key":"10.1016\/j.yebeh.2018.03.012_bb0240","doi-asserted-by":"crossref","first-page":"161","DOI":"10.1016\/j.yebeh.2016.11.010","article-title":"Outcome of childhood-onset epilepsy from adolescence to adulthood: transition issues","volume":"69","author":"Nabbout","year":"2017","journal-title":"Epilepsy Behav"},{"issue":"6","key":"10.1016\/j.yebeh.2018.03.012_bb0245","first-page":"341","article-title":"Transitional psychiatry in the Netherlands: experiences and views of mental health professionals","volume":"59","author":"Gerritsen","year":"2017","journal-title":"Tijdschr Psychiatr"},{"issue":"3","key":"10.1016\/j.yebeh.2018.03.012_bb0250","doi-asserted-by":"crossref","first-page":"505","DOI":"10.1016\/j.yebeh.2008.05.010","article-title":"Behavior problems in children with tuberous sclerosis complex and parental stress","volume":"13","author":"Kopp","year":"2008","journal-title":"Epilepsy Behav"},{"issue":"12","key":"10.1016\/j.yebeh.2018.03.012_bb0255","doi-asserted-by":"crossref","first-page":"1574","DOI":"10.1177\/0883073815575364","article-title":"Caring for children with tuberous sclerosis complex: what is the physical and mental health impact on caregivers?","volume":"30","author":"Rentz","year":"2015","journal-title":"J Child Neurol"},{"issue":"12","key":"10.1016\/j.yebeh.2018.03.012_bb0260","doi-asserted-by":"crossref","DOI":"10.1136\/bmjopen-2013-003707","article-title":"Assisting a child with tuberous sclerosis complex (TSC): a qualitative deep analysis of parents' experience and caring needs","volume":"3","author":"Graffigna","year":"2013","journal-title":"BMJ Open"},{"issue":"4","key":"10.1016\/j.yebeh.2018.03.012_bb0265","doi-asserted-by":"crossref","first-page":"392","DOI":"10.1111\/j.1365-2648.2006.03736.x","article-title":"Stress and well-being among parents of children with rare diseases: a prospective intervention study","volume":"53","author":"Dellve","year":"2006","journal-title":"J Adv Nurs"},{"key":"10.1016\/j.yebeh.2018.03.012_bb0270","doi-asserted-by":"crossref","first-page":"127","DOI":"10.1016\/j.yebeh.2014.12.041","article-title":"Transition to adult medical care for adolescents with epilepsy","volume":"44","author":"Geerlings","year":"2015","journal-title":"Epilepsy Behav"},{"issue":"4","key":"10.1016\/j.yebeh.2018.03.012_bb0275","doi-asserted-by":"crossref","first-page":"183","DOI":"10.1007\/s00787-005-0443-1","article-title":"Consensus clinical guidelines for the assessment of cognitive and behavioural problems in tuberous sclerosis","volume":"14","author":"de Vries","year":"2005","journal-title":"Eur Child Adolesc Psychiatry"},{"issue":"6","key":"10.1016\/j.yebeh.2018.03.012_bb0280","doi-asserted-by":"crossref","first-page":"796","DOI":"10.1016\/j.jadohealth.2014.06.008","article-title":"Young adults' experiences and satisfaction with the transfer of care","volume":"55","author":"van Staa","year":"2014","journal-title":"J Adolesc Health"},{"key":"10.1016\/j.yebeh.2018.03.012_bb0285","doi-asserted-by":"crossref","first-page":"s36","DOI":"10.1192\/bjp.bp.112.119198","article-title":"Transfers and transitions between child and adult mental health services","volume":"54","author":"Paul","year":"2013","journal-title":"Br J Psychiatry Suppl"},{"key":"10.1016\/j.yebeh.2018.03.012_bb0290","series-title":"How to use the ICF: a practical manual for using the International Classification of Functioning, Disability and Health (ICF). Exposure draft for comment","first-page":"26","author":"World Health Organization","year":"2013"}],"container-title":["Epilepsy &amp; Behavior"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1525505017309903?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1525505017309903?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2018,8,22]],"date-time":"2018-08-22T16:56:16Z","timestamp":1534956976000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S1525505017309903"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2018,6]]},"references-count":58,"alternative-id":["S1525505017309903"],"URL":"https:\/\/doi.org\/10.1016\/j.yebeh.2018.03.012","relation":{},"ISSN":["1525-5050"],"issn-type":[{"value":"1525-5050","type":"print"}],"subject":[],"published":{"date-parts":[[2018,6]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"Tuberous sclerosis complex: Concerns and needs of patients and parents from the transitional period to adulthood","name":"articletitle","label":"Article Title"},{"value":"Epilepsy & Behavior","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.yebeh.2018.03.012","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2018 Published by Elsevier Inc.","name":"copyright","label":"Copyright"}]}}