{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,9,4]],"date-time":"2026-09-04T14:33:39Z","timestamp":1788532419210,"version":"build-2803163510"},"reference-count":36,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2018,10,1]],"date-time":"2018-10-01T00:00:00Z","timestamp":1538352000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2018,10,1]],"date-time":"2018-10-01T00:00:00Z","timestamp":1538352000000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"}],"funder":[{"DOI":"10.13039\/100000871","name":"Mayo Clinic","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100000871","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100009712","name":"Dravet Syndrome Foundation","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100009712","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100010621","name":"Pediatric Epilepsy Research Foundation","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100010621","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100008136","name":"Case Western Reserve University","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100008136","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000030","name":"Centers for Disease Control and Prevention","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100000030","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100007189","name":"UniHealth Foundation","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100007189","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000002","name":"National Institutes of Health","doi-asserted-by":"publisher","award":["U54 NS081764"],"award-info":[{"award-number":["U54 NS081764"]}],"id":[{"id":"10.13039\/100000002","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000065","name":"National Institute of Neurological Disorders and Stroke","doi-asserted-by":"publisher","award":["R37 NS31146"],"award-info":[{"award-number":["R37 NS31146"]}],"id":[{"id":"10.13039\/100000065","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000065","name":"National Institute of Neurological Disorders and Stroke","doi-asserted-by":"publisher","award":["R37-NS31146"],"award-info":[{"award-number":["R37-NS31146"]}],"id":[{"id":"10.13039\/100000065","id-type":"DOI","asserted-by":"publisher"}]},{"DOI":"10.13039\/100000002","name":"National Institutes of Health","doi-asserted-by":"publisher","id":[{"id":"10.13039\/100000002","id-type":"DOI","asserted-by":"publisher"}]}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","clinicalkey.es","clinicalkey.fr","clinicalkey.jp","epilepsybehavior.com","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Epilepsy & Behavior"],"published-print":{"date-parts":[[2018,10]]},"DOI":"10.1016\/j.yebeh.2018.06.052","type":"journal-article","created":{"date-parts":[[2018,8,25]],"date-time":"2018-08-25T17:48:58Z","timestamp":1535219338000},"page":"146-151","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":32,"special_numbering":"C","title":["The epilepsy transition care gap in young adults with childhood-onset epilepsy"],"prefix":"10.1016","volume":"87","author":[{"given":"Christine M.","family":"Baca","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Frances","family":"Barry","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"given":"Anne T.","family":"Berg","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"key":"10.1016\/j.yebeh.2018.06.052_bb0005","doi-asserted-by":"crossref","first-page":"437","DOI":"10.1002\/ana.22393","article-title":"Transition to adult care for children with chronic neurological disorders","volume":"69","author":"Camfield","year":"2011","journal-title":"Ann Neurol"},{"key":"10.1016\/j.yebeh.2018.06.052_bb0010","doi-asserted-by":"crossref","first-page":"13","DOI":"10.5698\/1535-7511-12.4s.13","article-title":"Transition from pediatric to adult epilepsy care: a difficult process marked by medical and social crisis","volume":"12","author":"Camfield","year":"2012","journal-title":"Epilepsy Curr"},{"key":"10.1016\/j.yebeh.2018.06.052_bb0015","doi-asserted-by":"crossref","first-page":"17","DOI":"10.1016\/j.pediatrneurol.2014.02.020","article-title":"What happens to children with epilepsy when they become adults? Some facts and opinions","volume":"51","author":"Camfield","year":"2014","journal-title":"Pediatr Neurol"},{"key":"10.1016\/j.yebeh.2018.06.052_bb0020","doi-asserted-by":"crossref","first-page":"67","DOI":"10.1212\/WNL.0000000000004806","article-title":"Quality improvement in neurology: child neurology quality measure set: executive summary","volume":"90","author":"Patel","year":"2018","journal-title":"Neurology"},{"key":"10.1016\/j.yebeh.2018.06.052_bb0025","doi-asserted-by":"crossref","first-page":"1502","DOI":"10.1111\/epi.13832","article-title":"Epilepsy: transition from pediatric to adult care. Recommendations of the Ontario epilepsy implementation task force","volume":"58","author":"Andrade","year":"2017","journal-title":"Epilepsia"},{"key":"10.1016\/j.yebeh.2018.06.052_bb0030","doi-asserted-by":"crossref","first-page":"182","DOI":"10.1542\/peds.2011-0969","article-title":"Supporting the health care transition from adolescence to adulthood in the medical home","volume":"128","author":"American Academy of Pediatrics","year":"2011","journal-title":"Pediatrics"},{"key":"10.1016\/j.yebeh.2018.06.052_bb0035","doi-asserted-by":"crossref","first-page":"186","DOI":"10.5698\/1535-7597-13.4.186","article-title":"Lost in transition? A practice tool for finding your way to adulthood","volume":"13","author":"Patel","year":"2013","journal-title":"Epilepsy Curr"},{"issue":"Suppl. 4","key":"10.1016\/j.yebeh.2018.06.052_bb0040","doi-asserted-by":"crossref","first-page":"S343","DOI":"10.1542\/peds.2009-1255D","article-title":"Unmet health care needs among CSHCN with neurologic conditions","volume":"124","author":"Bitsko","year":"2009","journal-title":"Pediatrics"},{"key":"10.1016\/j.yebeh.2018.06.052_bb0045","first-page":"825824","article-title":"Assessing systems of care for US children with epilepsy\/seizure disorder","volume":"2013","author":"Kenney","year":"2013","journal-title":"Epilepsy Res Treat"},{"key":"10.1016\/j.yebeh.2018.06.052_bb0050","doi-asserted-by":"crossref","first-page":"e145","DOI":"10.1542\/peds.2008-1298","article-title":"Planning for health care transitions: results from the 2005\u20132006 National Survey of Children With Special Health Care Needs","volume":"123","author":"Lotstein","year":"2009","journal-title":"Pediatrics"},{"key":"10.1016\/j.yebeh.2018.06.052_bb0055","doi-asserted-by":"crossref","first-page":"1090","DOI":"10.1542\/peds.2012-3050","article-title":"Current status of transition preparation among youth with special needs in the United States","volume":"131","author":"McManus","year":"2013","journal-title":"Pediatrics"},{"key":"10.1016\/j.yebeh.2018.06.052_bb0060","doi-asserted-by":"crossref","first-page":"127","DOI":"10.1016\/j.yebeh.2014.12.041","article-title":"Transition to adult medical care for adolescents with epilepsy","volume":"44","author":"Geerlings","year":"2015","journal-title":"Epilepsy Behav"},{"key":"10.1016\/j.yebeh.2018.06.052_bb0065","doi-asserted-by":"crossref","first-page":"445","DOI":"10.1111\/j.1528-1157.1999.tb00739.x","article-title":"Newly diagnosed epilepsy in children: presentation at diagnosis","volume":"40","author":"Berg","year":"1999","journal-title":"Epilepsia"},{"key":"10.1016\/j.yebeh.2018.06.052_bb0070","doi-asserted-by":"crossref","first-page":"e1532","DOI":"10.1542\/peds.2011-0245","article-title":"Psychiatric and medical comorbidity and quality of life outcomes in childhood-onset epilepsy","volume":"128","author":"Baca","year":"2011","journal-title":"Pediatrics"},{"key":"10.1016\/j.yebeh.2018.06.052_bb0075","doi-asserted-by":"crossref","first-page":"608","DOI":"10.1111\/j.1528-1167.2007.01461.x","article-title":"Global cognitive function in children with epilepsy: a community-based study","volume":"49","author":"Berg","year":"2008","journal-title":"Epilepsia"},{"key":"10.1016\/j.yebeh.2018.06.052_bb0080","doi-asserted-by":"crossref","DOI":"10.1111\/epi.13123","article-title":"Psychiatric disorders and suicidal behavior in neurotypical young adults with childhood-onset epilepsy","author":"Baldin","year":"2015","journal-title":"Epilepsia"},{"key":"10.1016\/j.yebeh.2018.06.052_bb0085","doi-asserted-by":"crossref","first-page":"781","DOI":"10.1111\/epi.13726","article-title":"Social outcomes of young adults with childhood-onset epilepsy: a case\u2013sibling\u2013control study","volume":"58","author":"Baca","year":"2017","journal-title":"Epilepsia"},{"key":"10.1016\/j.yebeh.2018.06.052_bb0090","doi-asserted-by":"crossref","first-page":"40","DOI":"10.1111\/epi.12862","article-title":"The course of childhood-onset epilepsy over the first two decades: a prospective, longitudinal study","volume":"56","author":"Berg","year":"2015","journal-title":"Epilepsia"},{"key":"10.1016\/j.yebeh.2018.06.052_bb0095","doi-asserted-by":"crossref","first-page":"676","DOI":"10.1111\/j.1528-1167.2010.02522.x","article-title":"Revised terminology and concepts for organization of seizures and epilepsies: report of the ILAE Commission on Classification and Terminology, 2005\u20132009","volume":"51","author":"Berg","year":"2010","journal-title":"Epilepsia"},{"key":"10.1016\/j.yebeh.2018.06.052_bb0100","doi-asserted-by":"crossref","first-page":"120","DOI":"10.1016\/j.acap.2013.11.007","article-title":"Transition care: future directions in education, health policy, and outcomes research","volume":"14","author":"Sharma","year":"2014","journal-title":"Acad Pediatr"},{"key":"10.1016\/j.yebeh.2018.06.052_bb0105","doi-asserted-by":"crossref","first-page":"e37","DOI":"10.1016\/j.pedn.2015.06.014","article-title":"Transition from pediatric to adult specialty care for adolescents and young adults with refractory epilepsy: a quality improvement approach","volume":"30","author":"Disabato","year":"2015","journal-title":"J Pediatr Nurs"},{"key":"10.1016\/j.yebeh.2018.06.052_bb0110","doi-asserted-by":"crossref","first-page":"4","DOI":"10.1016\/j.yebeh.2017.10.043","article-title":"The Temple Star Transitional Model of Care for epilepsy; the outcome of a quality improvement project","volume":"79","author":"Crowley","year":"2018","journal-title":"Epilepsy Behav"},{"key":"10.1016\/j.yebeh.2018.06.052_bb0115","doi-asserted-by":"crossref","first-page":"1659","DOI":"10.1111\/epi.12752","article-title":"Epilepsy transition: challenges of caring for adults with childhood-onset seizures","volume":"55","author":"Borlot","year":"2014","journal-title":"Epilepsia"},{"key":"10.1016\/j.yebeh.2018.06.052_bb0120","doi-asserted-by":"crossref","first-page":"359","DOI":"10.1016\/j.pedhc.2012.03.004","article-title":"Parental experiences transitioning their adolescent with epilepsy and cognitive impairments to adult health care","volume":"27","author":"Schultz","year":"2013","journal-title":"J Pediatr Health Care"},{"key":"10.1016\/j.yebeh.2018.06.052_bb0125","doi-asserted-by":"crossref","first-page":"169","DOI":"10.1186\/1471-2431-13-169","article-title":"Effective process or dangerous precipice: qualitative comparative embedded case study with young people with epilepsy and their parents during transition from children's to adult services","volume":"13","author":"Lewis","year":"2013","journal-title":"BMC Pediatr"},{"key":"10.1016\/j.yebeh.2018.06.052_bb0130","doi-asserted-by":"crossref","first-page":"487","DOI":"10.1016\/j.seizure.2013.03.005","article-title":"Transitioning pediatric patients receiving ketogenic diets for epilepsy into adulthood","volume":"22","author":"Kossoff","year":"2013","journal-title":"Seizure"},{"key":"10.1016\/j.yebeh.2018.06.052_bb0135","doi-asserted-by":"crossref","first-page":"19","DOI":"10.1111\/j.1528-1157.1996.tb00506.x","article-title":"Incidence of epilepsy in childhood and adolescence: a population-based study in Nova Scotia from 1977 to 1985","volume":"37","author":"Camfield","year":"1996","journal-title":"Epilepsia"},{"issue":"Suppl. 3","key":"10.1016\/j.yebeh.2018.06.052_bb0140","doi-asserted-by":"crossref","first-page":"S129","DOI":"10.1542\/peds.2010-1466F","article-title":"The transition to adult health care for youth with special health care needs: do racial and ethnic disparities exist?","volume":"126","author":"Lotstein","year":"2010","journal-title":"Pediatrics"},{"key":"10.1016\/j.yebeh.2018.06.052_bb0145","first-page":"1","article-title":"The transition of adolescents with juvenile idiopathic arthritis or epilepsy from paediatric health-care services to adult health-care services: a scoping review of the literature and a synthesis of the evidence","author":"Burke","year":"2018","journal-title":"J Child Health Care"},{"key":"10.1016\/j.yebeh.2018.06.052_bb0150","doi-asserted-by":"crossref","first-page":"27","DOI":"10.1016\/S1059-1311(97)80049-0","article-title":"Managing the teenager with epilepsy: paediatric to adult care","volume":"6","author":"Appleton","year":"1997","journal-title":"Seizure"},{"issue":"Suppl. 3","key":"10.1016\/j.yebeh.2018.06.052_bb0155","doi-asserted-by":"crossref","first-page":"46","DOI":"10.1111\/epi.12716","article-title":"Models for transition clinics","volume":"55","author":"Carrizosa","year":"2014","journal-title":"Epilepsia"},{"key":"10.1016\/j.yebeh.2018.06.052_bb0160","doi-asserted-by":"crossref","first-page":"433","DOI":"10.1016\/j.seizure.2013.02.014","article-title":"Transitional services for adolescents with epilepsy in the U.K.: a survey","volume":"22","author":"Iyer","year":"2013","journal-title":"Seizure"},{"key":"10.1016\/j.yebeh.2018.06.052_bb0165","doi-asserted-by":"crossref","first-page":"181","DOI":"10.1097\/JNN.0b013e3181e26be6","article-title":"Development and implementation of an adolescent epilepsy transition clinic","volume":"42","author":"Jurasek","year":"2010","journal-title":"J Neurosci Nurs"},{"key":"10.1016\/j.yebeh.2018.06.052_bb0170","doi-asserted-by":"crossref","first-page":"373","DOI":"10.1046\/j.1468-1331.2002.00418.x","article-title":"A teenager epilepsy clinic: observational study","volume":"9","author":"Smith","year":"2002","journal-title":"Eur J Neurol"},{"key":"10.1016\/j.yebeh.2018.06.052_bb0175","doi-asserted-by":"crossref","first-page":"900","DOI":"10.1542\/peds.2014-1909","article-title":"Transition care for children with special health care needs","volume":"134","author":"Davis","year":"2014","journal-title":"Pediatrics"},{"key":"10.1016\/j.yebeh.2018.06.052_bb0180","doi-asserted-by":"crossref","first-page":"263","DOI":"10.1016\/j.jpeds.2017.05.066","article-title":"Outcome evidence for structured pediatric to adult health care transition interventions: a systematic review","volume":"188","author":"Gabriel","year":"2017","journal-title":"J Pediatr"}],"container-title":["Epilepsy & Behavior"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1525505018304219?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1525505018304219?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2025,10,26]],"date-time":"2025-10-26T18:27:39Z","timestamp":1761503259000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S1525505018304219"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2018,10]]},"references-count":36,"alternative-id":["S1525505018304219"],"URL":"https:\/\/doi.org\/10.1016\/j.yebeh.2018.06.052","relation":{},"ISSN":["1525-5050"],"issn-type":[{"value":"1525-5050","type":"print"}],"subject":[],"published":{"date-parts":[[2018,10]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"The epilepsy transition care gap in young adults with childhood-onset epilepsy","name":"articletitle","label":"Article Title"},{"value":"Epilepsy & Behavior","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.yebeh.2018.06.052","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2018 Published by Elsevier Inc.","name":"copyright","label":"Copyright"}]}}