{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,4,16]],"date-time":"2026-04-16T04:11:44Z","timestamp":1776312704090,"version":"3.50.1"},"reference-count":30,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2023,11,1]],"date-time":"2023-11-01T00:00:00Z","timestamp":1698796800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2023,11,1]],"date-time":"2023-11-01T00:00:00Z","timestamp":1698796800000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2023,11,1]],"date-time":"2023-11-01T00:00:00Z","timestamp":1698796800000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-017"},{"start":{"date-parts":[[2023,11,1]],"date-time":"2023-11-01T00:00:00Z","timestamp":1698796800000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-037"},{"start":{"date-parts":[[2023,11,1]],"date-time":"2023-11-01T00:00:00Z","timestamp":1698796800000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-012"},{"start":{"date-parts":[[2023,11,1]],"date-time":"2023-11-01T00:00:00Z","timestamp":1698796800000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-029"},{"start":{"date-parts":[[2023,11,1]],"date-time":"2023-11-01T00:00:00Z","timestamp":1698796800000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-004"}],"content-domain":{"domain":["clinicalkey.com","clinicalkey.com.au","clinicalkey.es","clinicalkey.fr","clinicalkey.jp","epilepsybehavior.com","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Epilepsy & Behavior"],"published-print":{"date-parts":[[2023,11]]},"DOI":"10.1016\/j.yebeh.2023.109459","type":"journal-article","created":{"date-parts":[[2023,10,6]],"date-time":"2023-10-06T07:25:55Z","timestamp":1696577155000},"page":"109459","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":5,"special_numbering":"C","title":["How do parents perceive their children\u2019s epileptic seizures? Experiences of the first seizure and changes during the course of the epilepsy"],"prefix":"10.1016","volume":"148","author":[{"given":"S.","family":"Lange","sequence":"first","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"S.","family":"Jeschke","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"J.","family":"Pauschek","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"M.","family":"Charisius","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"P.","family":"Makiello","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"T.","family":"Bertsche","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-5208-0888","authenticated-orcid":false,"given":"M.P.","family":"Neininger","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]},{"given":"A.","family":"Bertsche","sequence":"additional","affiliation":[],"role":[{"role":"author","vocabulary":"crossref"}]}],"member":"78","reference":[{"key":"10.1016\/j.yebeh.2023.109459_b0005","doi-asserted-by":"crossref","first-page":"321","DOI":"10.1542\/pir.2019-0134","article-title":"Seizures in children","volume":"41","author":"Fine","year":"2020","journal-title":"Pediatr Rev"},{"key":"10.1016\/j.yebeh.2023.109459_b0010","doi-asserted-by":"crossref","first-page":"517","DOI":"10.1016\/j.yebeh.2005.07.015","article-title":"The reactions of parents who think that a child is dying in a seizure\u2013in their own words","volume":"7","author":"Besag","year":"2005","journal-title":"Epilepsy Behav"},{"key":"10.1016\/j.yebeh.2023.109459_b0015","doi-asserted-by":"crossref","DOI":"10.1371\/journal.pone.0274001","article-title":"Parents\u2019\/caregivers\u2019 fears and concerns about their child\u2019s epilepsy: a scoping review","volume":"17","author":"Carter","year":"2022","journal-title":"PLoS One"},{"key":"10.1016\/j.yebeh.2023.109459_b0020","doi-asserted-by":"crossref","first-page":"73","DOI":"10.1016\/j.yebeh.2015.09.019","article-title":"Children with new onset seizures: a prospective study of parent variables, child behavior problems, and seizure occurrence","volume":"53","author":"Austin","year":"2015","journal-title":"Epilepsy Behav"},{"key":"10.1016\/j.yebeh.2023.109459_b0025","doi-asserted-by":"crossref","first-page":"364","DOI":"10.1177\/1754073911410740","article-title":"What is meant by calling emotions basic","volume":"3","author":"Ekman","year":"2011","journal-title":"Emot Rev"},{"key":"10.1016\/j.yebeh.2023.109459_b0030","unstructured":"Uebersax JS. User Guide for the MH Program (Vers. 1.2). Computer program documentation; 2006."},{"key":"10.1016\/j.yebeh.2023.109459_b0035","doi-asserted-by":"crossref","first-page":"311","DOI":"10.1016\/j.pedn.2021.08.008","article-title":"Knowledge and fears of parents of children diagnosed with epilepsy","volume":"60","author":"Fowler","year":"2021","journal-title":"J Pediatr Nurs"},{"key":"10.1016\/j.yebeh.2023.109459_b0040","doi-asserted-by":"crossref","first-page":"851","DOI":"10.1136\/archdischild-2015-308306","article-title":"Knowledge and attitudes of school teachers, preschool teachers and students in teacher training about epilepsy and emergency management of seizures","volume":"100","author":"Dumeier","year":"2015","journal-title":"Arch Dis Child"},{"key":"10.1016\/j.yebeh.2023.109459_b0045","doi-asserted-by":"crossref","first-page":"139","DOI":"10.1016\/j.seizure.2017.08.008","article-title":"Knowledge and attitudes about epilepsy: a survey of high school students in Germany","volume":"51","author":"Jansen","year":"2017","journal-title":"Seizure"},{"key":"10.1016\/j.yebeh.2023.109459_b0050","doi-asserted-by":"crossref","DOI":"10.1016\/j.yebeh.2020.107490","article-title":"Knowledge of and attitudes towards epilepsy among first- and second-year students at a German university","volume":"112","author":"Mewes","year":"2020","journal-title":"Epilepsy Behav"},{"key":"10.1016\/j.yebeh.2023.109459_b0055","doi-asserted-by":"crossref","first-page":"197","DOI":"10.1684\/epd.2019.1048","article-title":"Epilepsy: a cross-sectional study of paediatricians and general practitioners on their experiences, knowledge and handling of the disease","volume":"21","author":"Schnabel","year":"2019","journal-title":"Epileptic Disord"},{"key":"10.1016\/j.yebeh.2023.109459_b0060","doi-asserted-by":"crossref","first-page":"1485","DOI":"10.1007\/s00431-019-03437-1","article-title":"Epilepsy: knowledge and attitudes of physiotherapists, occupational therapists, and speech therapists","volume":"178","author":"Hackel","year":"2019","journal-title":"Eur J Pediatr"},{"key":"10.1016\/j.yebeh.2023.109459_b0065","doi-asserted-by":"crossref","DOI":"10.1016\/j.eplepsyres.2021.106587","article-title":"Knowledge of epilepsy among German pharmacists","volume":"172","author":"M\u00fcller","year":"2021","journal-title":"Epilepsy Res"},{"key":"10.1016\/j.yebeh.2023.109459_b0070","doi-asserted-by":"crossref","first-page":"447","DOI":"10.1684\/epd.2022.1430","article-title":"Seizure semiology: ILAE glossary of terms and their significance","volume":"24","author":"Beniczky","year":"2022","journal-title":"Epileptic Disord"},{"key":"10.1016\/j.yebeh.2023.109459_b0075","doi-asserted-by":"crossref","first-page":"1398","DOI":"10.1111\/epi.17241","article-title":"International League Against Epilepsy classification and definition of epilepsy syndromes with onset in childhood: position paper by the ILAE Task Force on Nosology and Definitions","volume":"63","author":"Specchio","year":"2022","journal-title":"Epilepsia"},{"key":"10.1016\/j.yebeh.2023.109459_b0080","doi-asserted-by":"crossref","first-page":"1487","DOI":"10.1007\/s00431-021-04335-1","article-title":"Febrile seizures: perceptions and knowledge of parents of affected and unaffected children","volume":"181","author":"Rice","year":"2022","journal-title":"Eur J Pediatr"},{"key":"10.1016\/j.yebeh.2023.109459_b0085","doi-asserted-by":"crossref","DOI":"10.1016\/j.yebeh.2021.108120","article-title":"Anxiety of families after first unprovoked or first febrile seizure \u2013 a prospective, randomized pilot study","volume":"122","author":"Klotz","year":"2021","journal-title":"Epilepsy Behav"},{"key":"10.1016\/j.yebeh.2023.109459_b0090","doi-asserted-by":"crossref","first-page":"980","DOI":"10.1093\/jpepsy\/jsz026","article-title":"Parenting stress, sleep, and psychological adjustment in parents of infants and toddlers with congenital heart disease","volume":"44","author":"Bishop","year":"2019","journal-title":"J Pediatr Psychol"},{"key":"10.1016\/j.yebeh.2023.109459_b0095","doi-asserted-by":"crossref","first-page":"191","DOI":"10.1016\/j.yebeh.2014.06.029","article-title":"Zoning in on parents' needs: understanding parents' perspectives in order to provide person-centered care","volume":"37","author":"Jones","year":"2014","journal-title":"Epilepsy Behav"},{"key":"10.1016\/j.yebeh.2023.109459_b0100","doi-asserted-by":"crossref","first-page":"44","DOI":"10.1055\/s-0043-117960","article-title":"How do parents perceive the initial medical consultation on their child's developmental disorder?","volume":"230","author":"Hotopp","year":"2018","journal-title":"Klin Padiatr"},{"key":"10.1016\/j.yebeh.2023.109459_b0105","doi-asserted-by":"crossref","first-page":"1556","DOI":"10.1111\/apa.15672","article-title":"Interviews with patients aged 6\u201317 years provide valuable insights for physicians who need to deliver an epilepsy diagnosis","volume":"110","author":"Jeschke","year":"2021","journal-title":"Acta Paediatr"},{"issue":"Pt A","key":"10.1016\/j.yebeh.2023.109459_b0110","doi-asserted-by":"crossref","first-page":"94","DOI":"10.1016\/j.yebeh.2017.04.034","article-title":"The challenges that parents of children with epilepsy face: a qualitative study","volume":"71","author":"Kampra","year":"2017","journal-title":"Epilepsy Behav"},{"key":"10.1016\/j.yebeh.2023.109459_b0115","doi-asserted-by":"crossref","first-page":"239","DOI":"10.1016\/j.yebeh.2014.12.044","article-title":"Improving understanding, promoting social inclusion, and fostering empowerment related to epilepsy: Epilepsy Foundation public awareness campaigns\u20132001 through 2013","volume":"44","author":"Price","year":"2015","journal-title":"Epilepsy Behav"},{"key":"10.1016\/j.yebeh.2023.109459_b0120","doi-asserted-by":"crossref","first-page":"1811","DOI":"10.1111\/apa.13938","article-title":"Providing teachers with education on epilepsy increased their willingness to handle acute seizures in children from one to 10 years of age","volume":"106","author":"Dumeier","year":"2017","journal-title":"Acta Paediatr"},{"key":"10.1016\/j.yebeh.2023.109459_b0125","doi-asserted-by":"crossref","first-page":"38","DOI":"10.1016\/j.seizure.2017.06.001","article-title":"Seizure management by preschool teachers: a training concept focussing on practical skills","volume":"50","author":"Dumeier","year":"2017","journal-title":"Seizure"},{"key":"10.1016\/j.yebeh.2023.109459_b0130","doi-asserted-by":"crossref","first-page":"1139","DOI":"10.1007\/s00431-016-2750-6","article-title":"Administration of anticonvulsive rescue medication in children-discrepancies between parents' self-reports and limited practical performance","volume":"175","author":"Kaune","year":"2016","journal-title":"Eur J Pediatr"},{"key":"10.1016\/j.yebeh.2023.109459_b0135","doi-asserted-by":"crossref","first-page":"37","DOI":"10.1016\/j.yebeh.2018.02.032","article-title":"Optimizing parents' performance in anticonvulsant rescue medication administration","volume":"84","author":"Schumacher","year":"2018","journal-title":"Epilepsy Behav"},{"key":"10.1016\/j.yebeh.2023.109459_b0140","doi-asserted-by":"crossref","first-page":"951","DOI":"10.1007\/s40263-022-00940-2","article-title":"Benzodiazepines in the management of seizures and status epilepticus: a review of routes of delivery, pharmacokinetics, efficacy, and tolerability","volume":"36","author":"Kienitz","year":"2022","journal-title":"CNS Drugs"},{"issue":"Pt A","key":"10.1016\/j.yebeh.2023.109459_b0145","doi-asserted-by":"crossref","first-page":"143","DOI":"10.1016\/j.yebeh.2016.09.027","article-title":"The efficacy of an educational program for parents of children with epilepsy (FAMOSES): results of a controlled multicenter evaluation study","volume":"64","author":"Hagemann","year":"2016","journal-title":"Epilepsy Behav"},{"key":"10.1016\/j.yebeh.2023.109459_b0150","doi-asserted-by":"crossref","first-page":"478","DOI":"10.1016\/j.seizure.2009.04.007","article-title":"FLIP&FLAP-a training programme for children and adolescents with epilepsy, and their parents","volume":"18","author":"Jantzen","year":"2009","journal-title":"Seizure"}],"container-title":["Epilepsy & Behavior"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1525505023003785?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1525505023003785?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2025,10,26]],"date-time":"2025-10-26T18:53:00Z","timestamp":1761504780000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S1525505023003785"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2023,11]]},"references-count":30,"alternative-id":["S1525505023003785"],"URL":"https:\/\/doi.org\/10.1016\/j.yebeh.2023.109459","relation":{},"ISSN":["1525-5050"],"issn-type":[{"value":"1525-5050","type":"print"}],"subject":[],"published":{"date-parts":[[2023,11]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"How do parents perceive their children\u2019s epileptic seizures? Experiences of the first seizure and changes during the course of the epilepsy","name":"articletitle","label":"Article Title"},{"value":"Epilepsy & Behavior","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.yebeh.2023.109459","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2023 Elsevier Inc. All rights reserved.","name":"copyright","label":"Copyright"}],"article-number":"109459"}}