{"status":"ok","message-type":"work","message-version":"1.0.0","message":{"indexed":{"date-parts":[[2026,10,15]],"date-time":"2026-10-15T03:37:13Z","timestamp":1792035433755,"version":"4.4.0"},"reference-count":53,"publisher":"Elsevier BV","license":[{"start":{"date-parts":[[2024,2,1]],"date-time":"2024-02-01T00:00:00Z","timestamp":1706745600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/tdm\/userlicense\/1.0\/"},{"start":{"date-parts":[[2024,2,1]],"date-time":"2024-02-01T00:00:00Z","timestamp":1706745600000},"content-version":"tdm","delay-in-days":0,"URL":"https:\/\/www.elsevier.com\/legal\/tdmrep-license"},{"start":{"date-parts":[[2024,2,1]],"date-time":"2024-02-01T00:00:00Z","timestamp":1706745600000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-017"},{"start":{"date-parts":[[2024,2,1]],"date-time":"2024-02-01T00:00:00Z","timestamp":1706745600000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-037"},{"start":{"date-parts":[[2024,2,1]],"date-time":"2024-02-01T00:00:00Z","timestamp":1706745600000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-012"},{"start":{"date-parts":[[2024,2,1]],"date-time":"2024-02-01T00:00:00Z","timestamp":1706745600000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-029"},{"start":{"date-parts":[[2024,2,1]],"date-time":"2024-02-01T00:00:00Z","timestamp":1706745600000},"content-version":"stm-asf","delay-in-days":0,"URL":"https:\/\/doi.org\/10.15223\/policy-004"}],"content-domain":{"domain":["clinicalkey.fr","clinicalkey.jp","clinicalkey.es","clinicalkey.com.au","clinicalkey.com","epilepsybehavior.com","elsevier.com","sciencedirect.com"],"crossmark-restriction":true},"short-container-title":["Epilepsy &amp; Behavior"],"published-print":{"date-parts":[[2024,2]]},"DOI":"10.1016\/j.yebeh.2024.109646","type":"journal-article","created":{"date-parts":[[2024,1,24]],"date-time":"2024-01-24T06:51:00Z","timestamp":1706079060000},"page":"109646","update-policy":"https:\/\/doi.org\/10.1016\/elsevier_cm_policy","source":"Crossref","is-referenced-by-count":9,"special_numbering":"C","title":["The physician\u2019s role in reducing health disparities for persons with epilepsy and intellectual disability: \u201cit\u2019s not just epilepsy\u2026you really have to take a deeper dive.\u201d"],"prefix":"10.1016","volume":"151","author":[{"ORCID":"https:\/\/orcid.org\/0009-0002-0443-2591","authenticated-orcid":false,"given":"Emma","family":"Casey","sequence":"first","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]},{"ORCID":"https:\/\/orcid.org\/0000-0002-9083-3457","authenticated-orcid":false,"given":"Christine","family":"Linehan","sequence":"additional","affiliation":[],"role":[{"vocabulary":"crossref","role":"author"}]}],"member":"78","reference":[{"key":"10.1016\/j.yebeh.2024.109646_b0005","unstructured":"United Nations Office of the High Commisioner for Human Rights. Fact Sheet No. 31, The Right to Health. https:\/\/www.refworld.org\/docid\/48625a742.html. Published June 2008. Accessed July 27, 2023."},{"key":"10.1016\/j.yebeh.2024.109646_b0010","unstructured":"World Health Organisation. Basic documents. 48th ed. https:\/\/apps.who.int\/gb\/bd\/PDF\/bd48\/basic-documents-48th-edition-en.pdf. Published December 2014. Accessed July 27, 2023."},{"key":"10.1016\/j.yebeh.2024.109646_b0015","doi-asserted-by":"crossref","first-page":"e020268","DOI":"10.1136\/bmjopen-2017-020268","article-title":"Use of health services in the last year of life and cause of death in people with intellectual disability: a retrospective matched cohort study","volume":"8","author":"Brameld","year":"2018","journal-title":"BMJ Open"},{"key":"10.1016\/j.yebeh.2024.109646_b0020","doi-asserted-by":"crossref","first-page":"475","DOI":"10.1111\/jar.12537","article-title":"Health problems of people with intellectual disabilities in Dutch out-of-hours primary care","volume":"32","author":"Heutmekers","year":"2019","journal-title":"J Appl Res Intellect Disabil"},{"key":"10.1016\/j.yebeh.2024.109646_b0025","doi-asserted-by":"crossref","first-page":"e2113014","DOI":"10.1001\/jamanetworkopen.2021.13014","article-title":"Association of intellectual disability with all-cause and cause-specific mortality in Sweden","volume":"4","author":"Hirvikoski","year":"2021","journal-title":"JAMA Netw Open"},{"key":"10.1016\/j.yebeh.2024.109646_b0030","doi-asserted-by":"crossref","first-page":"1483","DOI":"10.2105\/AJPH.2016.303240","article-title":"Mortality among adults with intellectual disability in England: comparisons with the general population","volume":"106","author":"Hosking","year":"2016","journal-title":"Am J Public Health"},{"key":"10.1016\/j.yebeh.2024.109646_b0035","doi-asserted-by":"crossref","first-page":"889","DOI":"10.1016\/S0140-6736(13)62026-7","article-title":"The confidential inquiry into premature deaths of people with intellectual disabilities in the UK: a population-based study","volume":"383","author":"Heslop","year":"2014","journal-title":"Lancet"},{"key":"10.1016\/j.yebeh.2024.109646_b0040","doi-asserted-by":"crossref","first-page":"1230","DOI":"10.1111\/j.1528-1167.2008.01579.x","article-title":"The prevalence of epilepsy and pharmacoresistant epilepsy in adults: a population-based study in a Western European country","volume":"49","author":"Picot","year":"2008","journal-title":"Epilepsia"},{"key":"10.1016\/j.yebeh.2024.109646_b0045","doi-asserted-by":"crossref","first-page":"245","DOI":"10.1111\/j.1468-1331.2004.00992.x","article-title":"The epidemiology of epilepsy in Europe \u2013 a systematic review","volume":"12","author":"Forsgren","year":"2005","journal-title":"Eur J Neurol"},{"key":"10.1016\/j.yebeh.2024.109646_b0050","doi-asserted-by":"crossref","first-page":"1902","DOI":"10.1111\/epi.12848","article-title":"A white paper on the medical and social needs of people with epilepsy and intellectual disability: The task force on intellectual disabilities and epilepsy of the international league against epilepsy","volume":"55","author":"Kerr","year":"2014","journal-title":"Epilepsia"},{"key":"10.1016\/j.yebeh.2024.109646_b0055","doi-asserted-by":"crossref","first-page":"46","DOI":"10.1016\/j.seizure.2015.03.016","article-title":"Prevalence of epilepsy among people with intellectual disabilities: a systematic review","volume":"29","author":"Robertson","year":"2015","journal-title":"Seizure - Eur J Epilep"},{"key":"10.1016\/j.yebeh.2024.109646_b0060","doi-asserted-by":"crossref","first-page":"1042168","DOI":"10.3389\/fneur.2022.1042168","article-title":"Response to subsequent antiseizure medications after first antiseizure medication failure in newly diagnosed epilepsy","volume":"13","author":"Hersi","year":"2022","journal-title":"Front Neurol"},{"key":"10.1016\/j.yebeh.2024.109646_b0065","doi-asserted-by":"crossref","first-page":"279","DOI":"10.1001\/jamaneurol.2017.3949","article-title":"Treatment outcomes in patients with newly diagnosed epilepsy treated with established and new antiepileptic drugs: a 30-year longitudinal cohort study","volume":"75","author":"Chen","year":"2018","journal-title":"JAMA Neurol"},{"key":"10.1016\/j.yebeh.2024.109646_b0070","doi-asserted-by":"crossref","first-page":"20","DOI":"10.1186\/s42466-023-00248-6","article-title":"Video-EEG-monitoring to guide antiseizure medication withdrawal","volume":"5","author":"Dhaenens-Meyer","year":"2023","journal-title":"Neurol Res Pract"},{"key":"10.1016\/j.yebeh.2024.109646_b0075","doi-asserted-by":"crossref","DOI":"10.1016\/j.eplepsyres.2019.106192","article-title":"Epilepsy-related and other causes of mortality in people with epilepsy: a systematic review of systematic reviews","volume":"157","author":"Mbizvo","year":"2019","journal-title":"Epilepsy Res"},{"key":"10.1016\/j.yebeh.2024.109646_b0080","doi-asserted-by":"crossref","first-page":"956","DOI":"10.1111\/j.1528-1157.1996.tb00533.x","article-title":"Influence of epilepsy on mortality in mental retardation: an epidemiologic study","volume":"37","author":"Forsgren","year":"1996","journal-title":"Epilepsia"},{"key":"10.1016\/j.yebeh.2024.109646_b0085","doi-asserted-by":"crossref","first-page":"9","DOI":"10.1684\/epd.2021.1366","article-title":"Epilepsy in adults with neurodevelopmental disability \u2013 what every neurologist should know","volume":"24","author":"Watkins","year":"2022","journal-title":"Epileptic Disord"},{"key":"10.1016\/j.yebeh.2024.109646_b0090","article-title":"Prevalence estimation of intellectual disability using national administrative and household survey data: the importance of survey question specificity","volume":"6","author":"McBride","year":"2021","journal-title":"Int J Pop Data Sci"},{"key":"10.1016\/j.yebeh.2024.109646_b0095","doi-asserted-by":"crossref","first-page":"1711","DOI":"10.1007\/s00228-022-03375-2","article-title":"Rating scales to measure adverse effects of medications in people with intellectual disability: a scoping review","volume":"78","author":"Kelly","year":"2022","journal-title":"Eur J Clin Pharmacol"},{"key":"10.1016\/j.yebeh.2024.109646_b0100","doi-asserted-by":"crossref","first-page":"570","DOI":"10.1136\/bmj.39490.543137.80","article-title":"Illness in people with intellectual disabilities","volume":"336","author":"Ali","year":"2008","journal-title":"BMJ"},{"key":"10.1016\/j.yebeh.2024.109646_b0105","doi-asserted-by":"crossref","first-page":"112","DOI":"10.1016\/j.seizure.2014.10.001","article-title":"Does intellectual disability increase sudden unexpected death in epilepsy (SUDEP) risk?","volume":"25","author":"Young","year":"2015","journal-title":"Seizure - Eur J Epilep"},{"key":"10.1016\/j.yebeh.2024.109646_b0110","unstructured":"Royal College of Psychiatrists. Prescribing anti-epileptic drugs for people with epilepsy and intellectual disability. https:\/\/www.rcpsych.ac.uk\/docs\/default-source\/improving-care\/better-mh-policy\/college-reports\/college-report-cr206.pdf?sfvrsn=4db7a660_2. Published October 2017. Accessed July 27, 2023."},{"key":"10.1016\/j.yebeh.2024.109646_b0115","unstructured":"U.s. Department of Health and Human Services, Office of Disease Prevention and Health Promotion. Health Equity and Health Disparities Environmental Scan 2022 Published March."},{"key":"10.1016\/j.yebeh.2024.109646_b0125","doi-asserted-by":"crossref","first-page":"S198","DOI":"10.2105\/AJPH.2014.302182","article-title":"Persons with disabilities as an unrecognized health disparity population","volume":"105","author":"Krahn","year":"2015","journal-title":"Am J Public Health"},{"key":"10.1016\/j.yebeh.2024.109646_b0130","doi-asserted-by":"crossref","first-page":"70","DOI":"10.1002\/mrdd.20098","article-title":"A cascade of disparities: Health and health care access for people with intellectual disabilities","volume":"12","author":"Krahn","year":"2006","journal-title":"Ment Retard Dev Disabil Res Rev"},{"key":"10.1016\/j.yebeh.2024.109646_b0120","doi-asserted-by":"crossref","unstructured":"Krahn G, Cargill\u2010Willis K, Raymond M, Bonardi A, Havercamp SM, Johnson J. What are the priorities for health data for adults with intellectual and developmental disabilities? It varies by whom you ask. Published online July 4, 2023. https:\/\/doi.org\/10.1111\/jppi.12464.","DOI":"10.1111\/jppi.12464"},{"key":"10.1016\/j.yebeh.2024.109646_b0135","doi-asserted-by":"crossref","first-page":"77","DOI":"10.1191\/1478088706qp063oa","article-title":"Using thematic analysis in psychology","volume":"3","author":"Braun","year":"2006","journal-title":"Qual Res Psy"},{"key":"10.1016\/j.yebeh.2024.109646_b0140","doi-asserted-by":"crossref","first-page":"3","DOI":"10.1037\/qup0000196","article-title":"Conceptual and design thinking for thematic analysis","volume":"9","author":"Braun","year":"2022","journal-title":"Qual Psychol"},{"key":"10.1016\/j.yebeh.2024.109646_b0145","doi-asserted-by":"crossref","first-page":"589","DOI":"10.1080\/2159676X.2019.1628806","article-title":"Reflecting on reflexive thematic analysis","volume":"11","author":"Braun","year":"2019","journal-title":"Qual Res Sport, Exerc Health"},{"key":"10.1016\/j.yebeh.2024.109646_b0150","first-page":"216","article-title":"Critical realism vs Social Constructionism & Social Constructivism: Application to a social housing research study","volume":"37","author":"Taylor","year":"2018","journal-title":"Int J Sci: Basic Appl Res"},{"key":"10.1016\/j.yebeh.2024.109646_b0155","series-title":"Studying organizations using critical realism: a practical guide","first-page":"1","article-title":"Critical realism as an empirical project: a beginner\u2019s guide","author":"O\u2019Mahoney","year":"2014"},{"key":"10.1016\/j.yebeh.2024.109646_b0160","doi-asserted-by":"crossref","first-page":"1753","DOI":"10.1177\/1049732315617444","article-title":"Sample size in qualitative interview studies: guided by information power","volume":"26","author":"Malterud","year":"2016","journal-title":"Qual Health Res"},{"key":"10.1016\/j.yebeh.2024.109646_b0165","doi-asserted-by":"crossref","first-page":"447","DOI":"10.1111\/jir.13013","article-title":"A new measure of physicians' erroneous assumptions towards adults with intellectual disability: a first study","volume":"67","author":"Bacherini","year":"2023","journal-title":"J Intellect Disabil Res"},{"key":"10.1016\/j.yebeh.2024.109646_b0170","doi-asserted-by":"crossref","first-page":"402","DOI":"10.1016\/j.jemermed.2017.12.001","article-title":"Suffering in silence: Medical error and its impact on health care providers","volume":"54","author":"Robertson","year":"2018","journal-title":"J Emerg Med"},{"key":"10.1016\/j.yebeh.2024.109646_b0175","doi-asserted-by":"crossref","first-page":"329","DOI":"10.1016\/j.jemermed.2019.06.034","article-title":"Medicine's shame problem","volume":"57","author":"Robertson","year":"2019","journal-title":"J Emerg Med"},{"key":"10.1016\/j.yebeh.2024.109646_b0180","doi-asserted-by":"crossref","first-page":"710","DOI":"10.5964\/ejop.v14i3.1564","article-title":"Reconsidering the differences between shame and guilt","volume":"14","author":"Miceli","year":"2018","journal-title":"Eur J Psychol"},{"key":"10.1016\/j.yebeh.2024.109646_b0185","doi-asserted-by":"crossref","first-page":"171","DOI":"10.1111\/jcap.12160","article-title":"Diagnostic masking and overshadowing in intellectual disability \u2013 how structured evaluation helps","volume":"29","author":"Manohar","year":"2016","journal-title":"J Child Adolesc Psychiatr Nurs"},{"key":"10.1016\/j.yebeh.2024.109646_b0190","doi-asserted-by":"crossref","first-page":"1360","DOI":"10.1111\/inm.13034","article-title":"Diagnostic overshadowing: An evolutionary concept analysis on the misattribution of physical symptoms to pre-existing psychological illnesses","volume":"31","author":"Hallyburton","year":"2022","journal-title":"Int J Ment Health Nurs"},{"key":"10.1016\/j.yebeh.2024.109646_b0195","article-title":"Factors influencing physician prognosis: a scoping review","volume":"7","author":"Ferrand","year":"2022","journal-title":"MDM Policy Pract"},{"key":"10.1016\/j.yebeh.2024.109646_b0200","unstructured":"Busse R, Klazinga N, Panteli D, Quentin W, editors. Improving healthcare quality in Europe: characteristics, effectiveness and implementation of different strategies. In: Organisation for Economic Co-operation and Development (OECD) & World Health Organisation (WHO) Health policy Series, no. 53. 2019. https:\/\/apps.who.int\/iris\/bitstream\/handle\/10665\/327356\/9789289051750-eng.pdf. Published 2019. Accessed July 27, 2023."},{"issue":"12","key":"10.1016\/j.yebeh.2024.109646_b0205","doi-asserted-by":"crossref","first-page":"1476","DOI":"10.1016\/j.sapharm.2019.03.011","article-title":"The role of reflective practice in healthcare professions: Next steps for pharmacy education and practice","volume":"15","author":"Mantzourani","year":"2019","journal-title":"Res Social Adm Pharm"},{"key":"10.1016\/j.yebeh.2024.109646_b0210","doi-asserted-by":"crossref","first-page":"114","DOI":"10.1186\/s12909-016-0634-0","article-title":"The, \u201cHandling\u201d of power in the physician-patient encounter: perceptions from experienced physicians","volume":"16","author":"Nimmon","year":"2016","journal-title":"BMC Med Educ"},{"key":"10.1016\/j.yebeh.2024.109646_b0215","doi-asserted-by":"crossref","first-page":"347","DOI":"10.1016\/0270-3092(81)90029-1","article-title":"Asking questions of retarded persons: a comparison of yes-no and either-or formats","volume":"2","author":"Sigelman","year":"1981","journal-title":"Appl Res Ment Retard"},{"key":"10.1016\/j.yebeh.2024.109646_b0220","first-page":"53","article-title":"When in doubt, say yes: acquiescence in interviews with mentally retarded persons","volume":"19","author":"Sigelman","year":"1981","journal-title":"Ment Retard"},{"issue":"Pt 4","key":"10.1016\/j.yebeh.2024.109646_b0225","doi-asserted-by":"crossref","first-page":"331","DOI":"10.1111\/j.1365-2788.1995.tb00525.x","article-title":"Response biases in interviews of individuals with limited mental ability","volume":"39","author":"Heal","year":"1995","journal-title":"J Intellect Disabil Res"},{"key":"10.1016\/j.yebeh.2024.109646_b0230","doi-asserted-by":"crossref","first-page":"14","DOI":"10.1352\/0047-6765(2002)040<0014:AIIWPW>2.0.CO;2","article-title":"Acquiescence in interviews with people who have mental retardation","volume":"40","author":"Finlay","year":"2002","journal-title":"Ment Retard"},{"key":"10.1016\/j.yebeh.2024.109646_b0235","doi-asserted-by":"crossref","first-page":"281","DOI":"10.4997\/jrcpe.2017.315","article-title":"Medicine and the McNamara fallacy","volume":"47","author":"O'Mahony","year":"2017","journal-title":"J R Coll Physicians Edinb"},{"issue":"6","key":"10.1016\/j.yebeh.2024.109646_b0240","doi-asserted-by":"crossref","DOI":"10.1371\/journal.pone.0198261","article-title":"Under representation of people with epilepsy and intellectual disability in research","volume":"13","author":"Shankar","year":"2018","journal-title":"PLoS One"},{"key":"10.1016\/j.yebeh.2024.109646_b0245","unstructured":"International League Against Epilepsy. ILAE Curriculum. https:\/\/www.ilae.org\/education\/ilae-curriculum\/6-1-4-demonstrate-the-ability-to-recognize-and-manage-the-special-needs-of-persons-with-epilepsy-l3."},{"key":"10.1016\/j.yebeh.2024.109646_b0250","unstructured":"American Academy of Developmental Medicine and Dentistry. National Inclusive Curriculum for Health Education. https:\/\/www.aadmd.org\/niche. Accessed July 27, 2023."},{"issue":"3","key":"10.1016\/j.yebeh.2024.109646_b0255","doi-asserted-by":"crossref","first-page":"139","DOI":"10.1108\/13595471211240988","article-title":"The \u2018transition cliff\u2019 in the administrative prevalence of learning disabilities in England","volume":"17","author":"Emerson","year":"2012","journal-title":"Tizard Learn Disabil Rev"},{"key":"10.1016\/j.yebeh.2024.109646_b0260","unstructured":"United Nations General Assembly.Convention on the Rights of Persons with Disabilities. Resolution adopted by the General Assembly, 24 January 2007.A\/RES\/61\/106. Available at: https:\/\/www.refworld.org\/docid\/45f973632.html. Accessed July 27, 2023."},{"key":"10.1016\/j.yebeh.2024.109646_b0265","doi-asserted-by":"crossref","DOI":"10.1016\/j.ridd.2021.104117","article-title":"Invisible populations: Who is missing from research in intellectual disability?","volume":"119","author":"Rosencrans","year":"2021","journal-title":"Res Dev Disabil"}],"container-title":["Epilepsy &amp; Behavior"],"original-title":[],"language":"en","link":[{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1525505024000271?httpAccept=text\/xml","content-type":"text\/xml","content-version":"vor","intended-application":"text-mining"},{"URL":"https:\/\/api.elsevier.com\/content\/article\/PII:S1525505024000271?httpAccept=text\/plain","content-type":"text\/plain","content-version":"vor","intended-application":"text-mining"}],"deposited":{"date-parts":[[2024,6,22]],"date-time":"2024-06-22T03:50:34Z","timestamp":1719028234000},"score":1,"resource":{"primary":{"URL":"https:\/\/linkinghub.elsevier.com\/retrieve\/pii\/S1525505024000271"}},"subtitle":[],"short-title":[],"issued":{"date-parts":[[2024,2]]},"references-count":53,"alternative-id":["S1525505024000271"],"URL":"https:\/\/doi.org\/10.1016\/j.yebeh.2024.109646","relation":{},"ISSN":["1525-5050"],"issn-type":[{"value":"1525-5050","type":"print"}],"subject":[],"published":{"date-parts":[[2024,2]]},"assertion":[{"value":"Elsevier","name":"publisher","label":"This article is maintained by"},{"value":"The physician\u2019s role in reducing health disparities for persons with epilepsy and intellectual disability: \u201cit\u2019s not just epilepsy\u2026you really have to take a deeper dive.\u201d","name":"articletitle","label":"Article Title"},{"value":"Epilepsy & Behavior","name":"journaltitle","label":"Journal Title"},{"value":"https:\/\/doi.org\/10.1016\/j.yebeh.2024.109646","name":"articlelink","label":"CrossRef DOI link to publisher maintained version"},{"value":"article","name":"content_type","label":"Content Type"},{"value":"\u00a9 2024 Elsevier Inc. All rights reserved.","name":"copyright","label":"Copyright"}],"article-number":"109646"}}